Motivating adherence among adolescents with cystic fibrosis: Youth and parent perspectives

Pediatric Pulmonology

Volumn 50, Issue 2, 2015, Pages 127-136

  Sawicki, Gregory S ^a   Heller, Karen S ^a   Demars, Nathan ^a   Robinson, Walter M ^a  

^a BOSTON CHILDREN S HOSPITAL   (United States)

Author keywords

Adherence; Adolescents; Cystic fibrosis

Indexed keywords

ADOLESCENT; ADOLESCENT PARENT; ADULT; ARTICLE; AWARENESS; BREATHING EXERCISE; CHILD PARENT RELATION; CLINICAL ARTICLE; CYSTIC FIBROSIS; FEMALE; HUMAN; ILLNESS TRAJECTORY; MALE; PATIENT COMPLIANCE; PRIORITY JOURNAL; QUALITATIVE RESEARCH; RESPONSIBILITY; SELF CARE; SELF REPORT; STRUCTURED INTERVIEW; ATTITUDE TO HEALTH; CONFIDENTIALITY; EPIDEMIOLOGY; INTERVIEW; MOTIVATION; PARENT; TIME; YOUNG ADULT;

ADOLESCENT; ATTITUDE TO HEALTH; CONFIDENTIALITY; CYSTIC FIBROSIS; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; MOTIVATION; PARENTS; PATIENT COMPLIANCE; SAMPLING STUDIES; SELF CARE; TIME; YOUNG ADULT;

EID: 84920941168     PISSN: 87556863     EISSN: 10990496     Source Type: Journal    
DOI: 10.1002/ppul.23017     Document Type: Article

References (31)

1. Foundation CF. Cystic Fibrosis Foundation Annual Data Report for 2010: Cystic Fibrosis Foundation, Bethesda, MD; 2011.
2. Sawicki GS, Tiddens H. Managing treatment complexity in cystic fibrosis: challenges and opportunities. Pediatr Pulmonol 2012;47:523-533.
3. Sawicki GS, Sellers DE, Robinson WM. High treatment burden in adults with cystic fibrosis: challenges to disease self-management. J Cyst Fibros 2009;8:91-96.
4. Abbott J, Dodd M, Webb AK. Health perceptions and treatment adherence in adults with cystic fibrosis. Thorax 1996;51:1233-1238.
5. Latchford G, Duff A, Quinn J, Conway S, Conner M. Adherence to nebulised antibiotics in cystic fibrosis. Patient Educ Couns 2009;75:141-144.
6. Modi AC, Cassedy AE, Quittner AL, Accurso F, Sontag M, Koenig JM, et al. Trajectories of adherence to airway clearance therapy for patients with cystic fibrosis. J Pediatr Psychol 2010;35:1028-1037.
7. Modi AC, Lim CS, Yu N, Geller D, Wagner MH, Quittner AL. A multi-method assessment of treatment adherence for children with cystic fibrosis. J Cyst Fibros 2006;5:177-185.
8. Myers LB, Horn SA. Adherence to chest physiotherapy in adults with cystic fibrosis. J Health Psychol 2006;11:915-926.
9. Nasr SZ, Chou W, Villa KF, Chang E, Broder MS. Adherence to dornase alfa treatment among commercially insured patients with cystic fibrosis. J Med Econ 2013;16:801-808.
10. White D, Stiller K, Haensel N. Adherence of adult cystic fibrosis patients with airway clearance and exercise regimens. J Cyst Fibros 2007;6:163-170.
11. Zindani GN, Streetman DD, Streetman DS, Nasr SZ. Adherence to treatment in children and adolescent patients with cystic fibrosis. J Adolesc Health 2006;38:13-17.
12. Eakin MN, Bilderback A, Boyle MP, Mogayzel PJ, Riekert KA. Longitudinal association between medication adherence and lung health in people with cystic fibrosis. J Cyst Fibros 2011;10:258-264.
13. Tuchman LK, Schwartz LA, Sawicki GS, Britto MT. Cystic fibrosis and transition to adult medical care. Pediatrics 2010;125:566-573.
14. Quittner AL, Modi AC, Lemanek KL, Ievers-Landis CE, Rapoff MA. Evidence-based assessment of adherence to medical treatments in pediatric psychology. J Pediatr Psychol 2008;33:916-936; discussion 937-918.
15. Stark LJ, Mulvihill MM, Powers SW, Jelalian E, Keating K, Creveling S, et al. Behavioral intervention to improve calorie intake of children with cystic fibrosis: treatment versus wait list control. J Pediatr Gastroenterol Nutr 1996;22:240-253.
16. Stark LJ, Knapp LG, Bowen AM, Powers SW, Jelalian E, Evans S, et al. Increasing calorie consumption in children with cystic fibrosis: replication with 2-year follow-up. J Appl Behav Anal 1993;26:435-450.
17. Duff AJ, Latchford GJ. Motivational interviewing for adherence problems in cystic fibrosis. Pediatr Pulmonol 2010;45:211-220.
18. Kvale S. Interviews: an introduction to qualitative research interviewing. London: Sage Publications; 1996.
19. Marshall C, Rossman GB. Designing qualitative research. Newbury Park: Sage Publications; 1989.
20. Miles MB, Michael Huberman A. Qualitative data analysis: an expanded sourcebook, 2nd edition. London: Sage Publications; 1994.
21. Sawicki GS, Ren CL, Konstan MW, Millar SJ, Pasta DJ, Quittner AL. Treatment complexity in cystic fibrosis: trends over time and associations with site-specific outcomes. J Cyst Fibros 2013;12:461-467.
22. Modi AC, Quittner AL. Barriers to treatment adherence for children with cystic fibrosis and asthma: what gets in the way? J Pediatr Psychol 2006;31:846-858.
23. Bregnballe V, Schiotz PO, Boisen KA, Pressler T, Thastum M. Barriers to adherence in adolescents and young adults with cystic fibrosis: a questionnaire study in young patients and their parents. Patient Prefer Adherence 2011;5:507-515.
24. Dziuban EJ, Saab-Abazeed L, Chaudhry SR, Streetman DS, Nasr SZ. Identifying barriers to treatment adherence and related attitudinal patterns in adolescents with cystic fibrosis. Pediatr Pulmonol 2010;45:450-458.
25. George M, Rand-Giovannetti D, Eakin MN, Borrelli B, Zettler M, Riekert KA. Perceptions of barriers and facilitators: self-management decisions by older adolescents and adults with CF. J Cyst Fibros 2010;9:425-432.
26. DeLambo KE, Ievers-Landis CE, Drotar D, Quittner AL. Association of observed family relationship quality and problem-solving skills with treatment adherence in older children and adolescents with cystic fibrosis. J Pediatr Psychol 2004;29:343-353.
27. Iles N, Lowton K. What is the perceived nature of parental care and support for young people with cystic fibrosis as they enter adult health services? Health Soc Care Community 2010;18:21-29.
28. Bucks RS, Hawkins K, Skinner TC, Horn S, Seddon P, Horne R. Adherence to treatment in adolescents with cystic fibrosis: the role of illness perceptions and treatment beliefs. J Pediatr Psychol 2009;34:893-902.
29. Bregnballe V, Schiotz PO, Lomborg K. Parenting adolescents with cystic fibrosis: the adolescents' and young adults' perspectives. Patient Prefer Adherence 2011;5:563-570.
30. McGuffie K, Sellers DE, Sawicki GS, Robinson WM. Self-reported involvement of family members in the care of adults with CF. J Cyst Fibros 2008;7:95-101.
31. Marciel KK, Saiman L, Quittell LM, Dawkins K, Quittner AL. Cell phone intervention to improve adherence: cystic fibrosis care team, patient, and parent perspectives. Pediatr Pulmonol 2010;45:157-164.