Perceptions of barriers and facilitators: Self-management decisions by older adolescents and adults with CF

Journal of Cystic Fibrosis

Volumn 9, Issue 6, 2010, Pages 425-432

  George, Maureen ^a   Rand Giovannetti, Devin ^b   Eakin, Michelle N ^b   Borrelli, Belinda ^c   Zettler, Melissa ^b   Riekert, Kristin A ^b  

^a UNIVERSITY OF PENNSYLVANIA SCHOOL OF NURSING   (United States)

^b JOHNS HOPKINS UNIVERSITY   (United States)

^c BROWN UNIVERSITY   (United States)

Author keywords

Adherence; Feedback; Quality of life; Self management

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CLINICAL ARTICLE; CYSTIC FIBROSIS; FEMALE; FORCED EXPIRATORY VOLUME; HUMAN; MALE; OCCUPATION; PATIENT COMPLIANCE; QUALITATIVE ANALYSIS; SELF CARE; SEMI STRUCTURED INTERVIEW; SOCIAL SUPPORT; STIGMA; TREATMENT DURATION;

ADOLESCENT; ADOLESCENT PSYCHOLOGY; ADULT; ATTITUDE TO HEALTH; COST OF ILLNESS; CYSTIC FIBROSIS; FEEDBACK; FEMALE; HUMANS; INTERVIEWS AS TOPIC; MALE; PATIENT COMPLIANCE; PERCEPTION; QUALITY OF LIFE; SELF CARE; SOCIAL SUPPORT; YOUNG ADULT;

EID: 78650197368     PISSN: 15691993     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.jcf.2010.08.016     Document Type: Article

References (23)

1. Cystic Fibrosis Foundation Patient Registry. 2007 Annual Data Report 2008, Cystic Fibrosis Foundation, Cystic Fibrosis Foundation, Bethesda, MD.
2. Yankaskas J.R., Marshall B.C., Sufian B., Simon R.H., Rodman D. Cystic fibrosis adult care: consensus conference report. Chest 2004 Jan, 125(1 Suppl):1S-39S.
3. Burrows J.A., Bunting J.P., Masel P.J., Bell S.C. Nebulised dornase alpha: adherence in adults with cystic fibrosis. J Cyst Fibros 2002 Dec, 1(4):255-259.
4. Elkins M.R., Robinson M., Rose B.R., Harbour C., Moriarty C.P., Marks G.B., et al. A controlled trial of long-term inhaled hypertonic saline in patients with cystic fibrosis. N Engl J Med 2006 Jan 19, 354(3):229-240.
5. Modi A.C., Lim C.S., Yu N., Geller D., Wagner M.H., Quittner A.L. A multi-method assessment of treatment adherence for children with cystic fibrosis. J Cyst Fibros 2006 Aug, 5(3):177-185.
6. Quinn J., Latchford G., Duff A., Conner M., Pollard K., Morrison L., et al. Measuring, predicting and improving adherence to inhalation in patients with CF: a randomised controlled study of motivational interviewing. Pediatr Pulmonol 2004, S27:360.
7. Quittner A.L., Drotar D., Ievers-Landis C. Improving adherence in adolescents with cystic fibrosis: comparisons of family therapy and psychoeducation. Paper presented at the Society of Pediatric Psychology National Conference on Child Health Psychology, Charleston SC 2004.
8. Zindani G.N., Streetman D.D., Streetman D.S., Nasr S.Z. Adherence to treatment in children and adolescent patients with cystic fibrosis. J Adolesc Health 2006 Jan, 38(1):13-17.
9. Eakin MN, Bilderback A, Boyle MP, Mogayzel PJ, Jr., Riekert KA. Longitudinal association between medication adherence and lung health in people with cystic fibrosis. Am J Respir Crit Care Med submitted for publication.
10. McNamara P.S., McCormack P., McDonald A.J., Heaf L., Southern K.W. Open adherence monitoring using routine data download from an adaptive aerosol delivery nebuliser in children with cystic fibrosis. J Cyst Fibros 2009 Jul, 8(4):258-263.
11. White H., Morton A.M., Peckham D.G., Conway S.P. Dietary intakes in adult patients with cystic fibrosis-do they achieve guidelines?. J Cyst Fibros 2004 Mar, 3(1):1-7.
12. Abbott J., Dodd M., Bilton D., Webb A.K. Treatment compliance in adults with cystic fibrosis. Thorax 1994 Feb, 49(2):115-120.
13. Conway S.P., Pond M.N., Hamnett T., Watson A. Compliance with treatment in adult patients with cystic fibrosis. Thorax 1996 Jan, 51(1):29-33.
14. Riekert K., Boyle M.P., Rand C.S. Psychosicial factors and treatment adherence in adults with cystic fibrosis. Annals of behavioral medicine proceedings 2004, 27.
15. Riekert K.A., Mogayzel P.J., Bilderback A., Hale W., Boyle M.P. Medication adherence among children, adolescents and adults with CF. Pediatric Pulmonology Suppl 2007, 30:405.
16. Modi A.C., Quittner A.L. Barriers to treatment adherence for children with cystic fibrosis and asthma: what gets in the way?. J Pediatr Psychol 2006 Jan 9, 31(8):846-858.
17. Williams B., Mukhopadhyay S., Dowell J., Coyle J. Problems and solutions: accounts by parents and children of adhering to chest physiotherapy for cystic fibrosis. Disabil Rehabil 2007 Jul, 29(14):1097-1105.
18. Bucks R.S., Hawkins K., Skinner T.C., Horn S., Seddon P., Horne R. Adherence to treatment in adolescents with cystic fibrosis: the role of illness perceptions and treatment beliefs. J Pediatr Psychol 2009 Sep, 34(8):893-902.
19. Dziuban E.J., Saab-Abazeed L., Chaudhry S.R., Streetman D.S., Nasr S.Z. Identifying barriers to treatment adherence and related attitudinal patterns in adolescents with cystic fibrosis. Pediatr Pulmonol 2010 May, 45(5):450-458.
20. Lincoln Y., Guba E. Naturalistic inquiry 1985, Sage, New York.
21. Flick U. An introduction to qualitative research 1998, Sage, London.
22. Braun V., Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006, 3:77-101.
23. Johnson C., Butler S.M., Konstan M.W., Morgan W., Wohl M.E. Factors influencing outcomes in cystic fibrosis: a center-based analysis. Chest 2003 Jan, 123(1):20-27.