A Spanish version of the skin cancer index: A questionnaire for measuring quality of life in patients with cervicofacial nonmelanoma skin cancer

British Journal of Dermatology

Volumn 172, Issue 1, 2015, Pages 160-168

  De Troya Martin M ^a,b   Rivas Ruiz, F ^a,b   Blazquez Sanchez N ^a   Fernandez Canedo I ^a   Aguilar Bernier, M ^a   Repiso Jimenez J B ^a   Toribio Montero, J C ^a   Jones Caballero, M ^c   Rhee, J ^d  

^a HOSPITAL COSTA DEL SOL   (Spain)

^b Spanish Research Network on Health Care in Chronic Diseases ^*  (Spain)

^c UNIVERSITY OF SYDNEY   (Australia)

^d MEDICAL COLLEGE OF WISCONSIN   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADULT; ARTICLE; CANCER PATIENT; CANCER STAGING; CERVICOFACIAL NONMELANOMA SKIN CANCER; CONSTRUCT VALIDITY; CONVERGENT VALIDITY; CROSS-SECTIONAL STUDY; DISCRIMINANT VALIDITY; FACTORIAL ANALYSIS; HUMAN; MAJOR CLINICAL STUDY; PILOT STUDY; PRIORITY JOURNAL; PSYCHOMETRY; QUALITY OF LIFE; QUALITY OF LIFE ASSESSMENT; QUALITY OF LIFE INDEX; SHORT FORM 12; SKIN CANCER; SKIN CANCER INDEX; VALIDATION STUDY; AGED; BASAL CELL CARCINOMA; EVALUATION STUDY; FACE TUMOR; FEMALE; HEAD AND NECK TUMOR; MALE; PSYCHOLOGY; QUESTIONNAIRE; SICKNESS IMPACT PROFILE; SKIN TUMOR; SPAIN; SQUAMOUS CELL CARCINOMA;

AGED; CARCINOMA, BASAL CELL; CARCINOMA, SQUAMOUS CELL; CROSS-SECTIONAL STUDIES; FACIAL NEOPLASMS; FEMALE; HEAD AND NECK NEOPLASMS; HUMANS; MALE; PSYCHOMETRICS; QUALITY OF LIFE; SICKNESS IMPACT PROFILE; SKIN NEOPLASMS; SPAIN; SURVEYS AND QUESTIONNAIRES;

EID: 84920857838     PISSN: 00070963     EISSN: 13652133     Source Type: Journal    
DOI: 10.1111/bjd.13173     Document Type: Article

References (52)

1. Cakir BO, Adamson P, Cingi C,. Epidemiology and economic burden of nonmelanoma skin cancer. Facial Plast Surg Clin North Am 2012; 20: 419-22.
2. Flohil SC, Seubring I, van Rossum MM, et al,. Trends in basal cell carcinoma incidence rates: a 37 year Dutch observational study. J Invest Dermatol 2013; 133: 913-18.
3. Lomas A, Leonardi-Bee J, Bath-Hextall F,. A systematic review of worldwide incidence of nonmelanoma skin cancer. Br J Dermatol 2012; 166: 1069-80.
4. Madera-Aceituno P, Eisman-Buendía A, Arias-Santiago S, Serrano-Ortega S,. [ Changes in the incidence of skin cancer between 1978 and 2002 ]. Actas Dermosifiliogr 2010; 101: 39-46 (in Spanish).
5. Molho-Pessach V, Lotem M,. Ultraviolet radiation and cutaneous carcinogenesis. Curr Probl Dermatol 2007; 35: 14-27.
6. Davis RE, Spercer JM,. Basal and squamous cell cancer of the facial skin. Curr Opin Otolaryngol Head Neck Surg 1997; 5: 86-92.
7. Nguyen TH, Ho DQD,. Nonmelanoma skin cancer. Curr Treat Options Oncol 2002; 3: 193-203.
8. Raasch BA, Buettner PG,. Multiple nonmelanoma skin cancer in an exposed Australian population. Int J Dermatol 2002; 41: 652-8.
9. Van der Geer S, Reijers HA, van Tuijl HF, et al,. Need for a new skin cancer management strategy. Arch Dermatol 2010; 146: 332-6.
10. Blackford S, Roberts D, Salek MS, Finlay A,. Basal cell carcinomas cause little handicap. Qual Life Res 1996; 5: 191-4.
11. Chren MM, Lasek RJ, Quinn LM, et al,. Convergent and discriminant validity of a generic and disease-specific instrument to measure quality of life in patients with skin disease. J Invest Dermatol 1997; 108: 103-7.
12. Rhee JS, Fausto RL, Matthews BA, et al,. Quality of life assessment in nonmelanoma cervicofacial skin cancer. Laryngoscope 2003; 113: 215-20.
13. Rhee JS, Matthews BA, Neiburg M, et al,. Skin cancer and quality of life: assessment with Dermatology Life Quality Index. Dermatol Surg 2004; 30: 525-9.
14. Roberts N, Czajkoska Z, Radiotis G, Korner A,. Distress and coping strategies among patients with skin cancer. J Clin Psychol Med Setting 2013; 20: 209-14.
15. Rhee JS, Matthews BA, Neiburg M, et al,. Quality of life and sun protective behaviours in patients with skin cancer. Arch Otolaryngol Head Neck Surg 2004; 130: 141-6.
16. Rhee JS, Matthews BA, Neiburg M, et al,. The skin cancer index: clinical responsiveness and predictors of quality of life. Laryngoscope 2007; 117: 399-405.
17. Moloney FJ, Keane S, O'Kelly P, et al,. The impact of skin disease following renal transplantation on quality of life. Br J Dermatol 2005; 153: 574-8.
18. Steinbauer J, Koller M, Khol E, et al,. Quality of life in health care of non-melanoma skin cancer-results of a pilot study. J Dtsch Dermatol Ges 2011; 9: 129-35.
19. Lee KC, Weinstock MA,; Veterans Affairs Topical Tretinoin Chemoprevention (VATTC) Trial Group. Prospective quality of life of keratinocyte carcinomas: observations of the Veterans Affairs Topical Tretinoin Chemoprevention Trial. J Am Acad Dematol 2010; 63: 1107-9.
20. Chren T, Bertenthal B, Sahay A, et al,. Predictors of skin related quality of life after treatment of cutaneous basal cell carcinoma. Arch Dermatol 2007; 143: 1386-92.
21. Chren MM, Sahay A, Bertenthal B, et al,. Quality of life outcomes of treatments for cutaneous basal cell carcinoma and squamous cell carcinoma. J Invest Dermatol 2007; 127: 1351-7.
22. Chren MM,. The Skindex instruments to measure the effects of skin disease on quality of life. Dermatol Clin 2012; 30: 231-6.
23. Sampogna FSA, Di Pietro C, Pagliarello C, et al,. Field performance of the Skindex-17 quality of life questionnaire: a comparison with the Skindex-29 in a large sample of dermatological outpatients. J Invest Dermatol 2013; 133: 104-9.
24. Waalboer-Spuij R, Nijsten TEC,. A review of quality of life in keratinocyte carcinoma patients. G Ital Dermatol Venerol 2013; 148: 249-54.
25. Bates AS, Davis CR, Takwale A, Knepil GJ,. Patient reported outcome measures in nonmelanoma skin cancer of the face: a systematic review. Br J Dermatol 2013; 168: 1187-94.
26. Rhee JS, Matthews BA, Neiburg M, et al,. Creation of a quality of life instrument for non melanoma skin cancer patients. Laryngoscope 2005; 115: 1178-85.
27. Matthews BA, Rhee JS, Neiburg M, et al,. Development of the facial skin cancer index: a health related outcomes index for skin cancer patients. Dermatol Surg 2006; 32: 924-34.
28. Rhee JS, Matthews BA, Neiburg M, et al,. Validation of a quality of life instrument for patients with nonmelanoma skin cancer. Arch Facial Plast Surg 2006; 8: 314-18.
29. Cuestionario de Salud SF-12v2 (España)-4 semanas. Barcelona: Instituto Municipal de Investigaciõn Médica. Available from: http://www.bibliopro.org/ (last accessed 12 December 2014).
30. Badia X, Mascarõ JM, Lozano R,. Measuring health-related quality of life in patients with mild to moderate eczema and psoriasis: clinical validity, reliability and sensibility to change of the DLQI. Br J Dermatol 1999; 14: 698-702.
31. Baños RM, Guillén V,. Psychometric characteristics in normal and social phobic samples for a Spanish version of the Rosenberg Self-Esteem Scale. Psychol Rep 2000; 87: 269-74.
32. Collazo AA,. Translation of the Marlowe-Crowne Social Desirability Scale into an equivalent Spanish version. Educ Psychol Meas 2005; 65: 780-806.
33. Ramada-Rodilla JM, Serra-Pujadas C, Declõs-Clanchet GL,. [ Cross-cultural adaptation and health questionnaires validation: revision and methodological recommendations ]. Salud Publica Mex 2013; 55: 57-66 (in Spanish).
34. Alexandre NMC, Guirardello EB,. [ Cultural adaptation of instruments utilized in occupational health ]. Rev Panam Salud Publica 2002; 11: 109-11 (in Spanish).
35. Beaton DE, Bombardier C, Guillermin F, Bosi-Ferraz M,. Guidelines for the process of cross-cultural adaptation of self-report measures. Spine 2000; 25: 3186-91.
36. Carvajal A, Centeno C, Watson R, et al,. [ How is an instrument for measuring health to be validated? ]. An Sist Sanit Navar 2011; 34: 63-72 (in Spanish).
37. Guillermin F, Bombardier C, Beaton D,. Cross-cultural adaptation of health related quality of life measures: literature review and proposed guidelines. J Clin Epidemiol 1993; 46: 1417-32.
38. Herdman M, Fox-Rushby J, Badia X,. A model of equivalence in the cultural adaptation of HRQoL instruments: the universalist approach. Qual Life Res 1998; 7: 323-35.
39. De Tiedra AG, Mercadal J, Badia X, et al,. Adaptaciõn transcultural al español del cuestionario Dermatology Life Quality Index (DLQI): El índice de la calidad de vida en Dermatología. Actas Dermosifiliogr 1998; 89: 692-700.
40. Jones-Caballero M, Peñas PF, García-Díez A, et al,. The Spanish version of Skindex-29. Int J Dermatol 2000; 39: 907-12.
41. Jones-Caballero M, Peñas PF, García-Díez A, et al,. [ The Spanish version of Skindex-29. An instrument for measuring quality of life in patients with cutaneous diseases ]. Med Clin (Barc) 2002; 118: 5-9 (in Spanish).
42. García-Lõpez R, Perea-Milla E, Romero-González J, et al,. [ Spanish adaptation and diagnostic validity of the Yale Global Tics Severity Scale ]. Rev Neurol 2008; 46: 261-6 (in Spanish).
43. De Troya-Martín M, Blázquez-Sánchez N, Rivas-Ruiz F, et al,. [ Validation of a Spanish questionnaire to evaluate habits, attitudes and understanding of exposure to sunlight: "the beach questionnaire" ]. Actas Dermosifiliogr 2009; 100: 586-95 (in Spanish).
44. Landis JR, Koch GG,. The measurement of observer agreement for categorical data. Biometrics 1977; 33: 159-74.
45. Von Hoff DD, LoRusso PM, Rudin CM, et al,. Inhibition of hedgehog pathway in advanced basal cell carcinoma. N Engl J Med 2009; 361: 1164-72.
46. Tang JY,. Elucidating the role of molecular signaling pathways in the tumorigenesis of basal cell carcinoma. Semin Cutan Med Surg 2011; 30: s6-9.
47. Burdon-Jones D, Thomas P, Baker R,. Quality of life issue in nonmetastatic skin cancer. Br J Dermatol 2010; 162: 147-51.
48. Burdon-Jones D, Gibbons K,. The Skin Cancer Quality of Life Impact Tool (SCQOLIT) A validated health-related quality of life questionnaire for non-metastatic skin cancers. J Eur Acad Dermatol Venerol 2013; 27: 1109-13.
49. Esmann S, Vinding GR, Christensen KB, et al,. Assessing the influence of actinic keratosis on patients' quality of life. The AKQoL Questionnaire. Br J Dermatol 2013; 168: 277-83.
50. Caddick J, Green L, Stephenson J, Spyrou G,. The psychosocial impact of facial skin cancers. J Plast Reconstr Aesthet Surg 2012; 65: e257-9.
51. Delong LK, Chen SC,. Future directions in dermatology quality of life measures. Dermatol Clin 2012; 30: 343-7.
52. Terwee CB, Bot SDM, de Boer MR, et al,. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol 2007; 60: 34-42.