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Volumn 16, Issue 12, 2014, Pages

Analysis of a parent-initiated social media campaign for Hirschsprung's disease

Author keywords

Hirschsprung's Disease; Knowledge translation; Patient oriented research; Social media

Indexed keywords

ADULT; CHILD; FEMALE; HIRSCHSPRUNG DISEASE; HUMAN; INTERNET; MALE; MEDICAL INFORMATION; PARENT; PROCEDURES; PSYCHOLOGY; SOCIAL MEDIA; SOCIAL NETWORK;

EID: 84918562073     PISSN: None     EISSN: 14388871     Source Type: Journal    
DOI: 10.2196/jmir.3200     Document Type: Article
Times cited : (26)

References (24)
  • 1
    • 84862208127 scopus 로고    scopus 로고
    • Hirschsprung's disease in the North of England: Prevalence, associated anomalies, and survival
    • Jun;, Medline: 22511583
    • Best KE, Glinianaia SV, Bythell M, Rankin J. Hirschsprung's disease in the North of England: prevalence, associated anomalies, and survival. Birth Defects Res A Clin Mol Teratol 2012 Jun; 94(6):477-480. [doi: 10.1002/bdra.23016] [Medline: 22511583]
    • (2012) Birth Defects Res a Clin Mol Teratol , vol.94 , Issue.6 , pp. 477-480
    • Best, K.E.1    Glinianaia, S.V.2    Bythell, M.3    Rankin, J.4
  • 2
    • 34249911207 scopus 로고    scopus 로고
    • Symptomatology, pathophysiology, diagnostic work-up, and treatment of Hirschsprung disease in infancy and childhood
    • Jun;, Medline: 17511924
    • De Lorijn F, Boeckxstaens GE, Benninga MA. Symptomatology, pathophysiology, diagnostic work-up, and treatment of Hirschsprung disease in infancy and childhood. Curr Gastroenterol Rep 2007 Jun; 9(3):245-253. [Medline: 17511924]
    • (2007) Curr Gastroenterol Rep , vol.9 , Issue.3 , pp. 245-253
    • De Lorijn, F.1    Boeckxstaens, G.E.2    Benninga, M.A.3
  • 3
    • 84255183979 scopus 로고    scopus 로고
    • Modern treatment of Hirschsprung's disease
    • Medline: 22182845
    • Gunnarsdóttir A, Wester T. Modern treatment of Hirschsprung's disease. Scand J Surg 2011;100(4):243-249. [Medline: 22182845]
    • (2011) Scand J Surg , vol.100 , Issue.4 , pp. 243-249
    • Gunnarsdóttir, A.1    Wester, T.2
  • 4
    • 84866371776 scopus 로고    scopus 로고
    • Future therapies for Hirschsprung's disease
    • Nov;, Medline: 22985842
    • Wilkinson DJ, Edgar DH, Kenny SE. Future therapies for Hirschsprung's disease. Semin Pediatr Surg 2012 Nov; 21(4):364-370. [doi: 10.1053/j.sempedsurg.2012.07.010] [Medline: 22985842]
    • (2012) Semin Pediatr Surg , vol.21 , Issue.4 , pp. 364-370
    • Wilkinson, D.J.1    Edgar, D.H.2    Kenny, S.E.3
  • 5
    • 79953166849 scopus 로고    scopus 로고
    • Quality of life and disease-specific functioning of patients with anorectal malformations or Hirschsprung's disease: A review
    • Apr;, Medline: 20371581
    • Hartman EE, Oort FJ, Aronson DC, Sprangers MA. Quality of life and disease-specific functioning of patients with anorectal malformations or Hirschsprung's disease: a review. Arch Dis Child 2011 Apr; 96(4):398-406. [doi: 10.1136/adc.2007.118133] [Medline: 20371581]
    • (2011) Arch Dis Child , vol.96 , Issue.4 , pp. 398-406
    • Hartman, E.E.1    Oort, F.J.2    Aronson, D.C.3    Sprangers, M.A.4
  • 6
    • 84862194431 scopus 로고    scopus 로고
    • Parental psychological distress and quality of life after a prenatal or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy infants
    • Apr;, Medline: 22429541
    • Fonseca A, Nazaré B, Canavarro MC. Parental psychological distress and quality of life after a prenatal or postnatal diagnosis of congenital anomaly: a controlled comparison study with parents of healthy infants. Disabil Health J 2012 Apr; 5(2):67-74. [doi: 10.1016/j.dhjo.2011.11.001] [Medline: 22429541]
    • (2012) Disabil Health J , vol.5 , Issue.2 , pp. 67-74
    • Fonseca, A.1    Nazaré, B.2    Canavarro, M.C.3
  • 7
    • 44949142227 scopus 로고    scopus 로고
    • Parenting stress in mothers and fathers of a child with a hemiparesis: Sources of stress, intervening factors and long-term expressions of stress
    • Jul;, Medline: 19154554
    • Butcher PR, Wind T, Bouma A. Parenting stress in mothers and fathers of a child with a hemiparesis: sources of stress, intervening factors and long-term expressions of stress. Child Care Health Dev 2008 Jul; 34(4):530-541. [doi: 10.1111/j.1365-2214.2008.00842.x] [Medline: 19154554]
    • (2008) Child Care Health Dev , vol.34 , Issue.4 , pp. 530-541
    • Butcher, P.R.1    Wind, T.2    Bouma, A.3
  • 8
    • 33645119030 scopus 로고    scopus 로고
    • Stress and well-being among parents of children with rare diseases: A prospective intervention study
    • Feb;, Medline: 16448482
    • Dellve L, Samuelsson L, Tallborn A, Fasth A, Hallberg LR. Stress and well-being among parents of children with rare diseases: a prospective intervention study. J Adv Nurs 2006 Feb; 53(4):392-402. [doi: 10.1111/j.1365-2648.2006.03736.x] [Medline: 16448482]
    • (2006) J Adv Nurs , vol.53 , Issue.4 , pp. 392-402
    • Dellve, L.1    Samuelsson, L.2    Tallborn, A.3    Fasth, A.4    Hallberg, L.R.5
  • 9
    • 84883385162 scopus 로고    scopus 로고
    • accessed 2013-12-11, WebCite Cache ID 6LnAj58UR
    • Fox S, Duggan M. Health Online. 2013. URL: http://www.pewinternet.org/Reports/2013/Health-online/Summary-of-Findings.aspx [accessed 2013-12-11] [WebCite Cache ID 6LnAj58UR]
    • (2013) Health Online
    • Fox, S.1    Duggan, M.2
  • 10
    • 84871579485 scopus 로고    scopus 로고
    • Cancer patients on Twitter: A novel patient community on social media
    • FREE Full text, Medline: 23270426
    • Sugawara Y, Narimatsu H, Hozawa A, Shao L, Otani K, Fukao A. Cancer patients on Twitter: a novel patient community on social media. BMC Res Notes 2012;5:699 [FREE Full text] [doi: 10.1186/1756-0500-5-699] [Medline: 23270426]
    • (2012) BMC Res Notes , vol.5 , pp. 699
    • Sugawara, Y.1    Narimatsu, H.2    Hozawa, A.3    Shao, L.4    Otani, K.5    Fukao, A.6
  • 11
    • 84886101629 scopus 로고    scopus 로고
    • Online support for parents of preterm infants: A qualitative and content analysis of Facebook 'preemie' groups
    • Nov;, Medline: 23759520
    • Thoren EM, Metze B, Bührer C, Garten L. Online support for parents of preterm infants: a qualitative and content analysis of Facebook 'preemie' groups. Arch Dis Child Fetal Neonatal Ed 2013 Nov; 98(6):F534-F538. [doi: 10.1136/archdischild-2012-303572] [Medline: 23759520]
    • (2013) Arch Dis Child Fetal Neonatal Ed , vol.98 , Issue.6 , pp. F534-F538
    • Thoren, E.M.1    Metze, B.2    Bührer, C.3    Garten, L.4
  • 12
    • 84888199303 scopus 로고    scopus 로고
    • Health outcomes and related effects of using social media in chronic disease management: A literature review and analysis of affordances
    • Dec;, Medline: 23702104
    • Merolli M, Gray K, Martin-Sanchez F. Health outcomes and related effects of using social media in chronic disease management: a literature review and analysis of affordances. J Biomed Inform 2013 Dec; 46(6):957-969. [doi: 10.1016/j.jbi.2013.04.010] [Medline: 23702104]
    • (2013) J Biomed Inform , vol.46 , Issue.6 , pp. 957-969
    • Merolli, M.1    Gray, K.2    Martin-Sanchez, F.3
  • 13
    • 84899814251 scopus 로고    scopus 로고
    • Social media methods for studying rare diseases
    • May;, Medline: 24733869
    • Schumacher KR, Stringer KA, Donohue JE, Yu S, Shaver A, Caruthers RL, et al. Social media methods for studying rare diseases. Pediatrics 2014 May; 133(5):e1345-e1353. [doi: 10.1542/peds.2013-2966] [Medline: 24733869]
    • (2014) Pediatrics , vol.133 , Issue.5 , pp. e1345-e1353
    • Schumacher, K.R.1    Stringer, K.A.2    Donohue, J.E.3    Yu, S.4    Shaver, A.5    Caruthers, R.L.6
  • 14
    • 84877269821 scopus 로고    scopus 로고
    • Correlates of health-related social media use among adults
    • FREE Full text, Medline: 23367505
    • Thackeray R, Crookston BT, West JH. Correlates of health-related social media use among adults. J Med Internet Res 2013;15(1):e21 [FREE Full text] [doi: 10.2196/jmir.2297] [Medline: 23367505]
    • (2013) J Med Internet Res , vol.15 , Issue.1 , pp. e21
    • Thackeray, R.1    Crookston, B.T.2    West, J.H.3
  • 15
    • 84879701869 scopus 로고    scopus 로고
    • The apomediated world: Regulating research when social media has changed research
    • Medline: 23802898
    • O'Connor D. The apomediated world: regulating research when social media has changed research. J Law Med Ethics 2013;41(2):470-483. [doi: 10.1111/jlme.12056] [Medline: 23802898]
    • (2013) J Law Med Ethics , vol.41 , Issue.2 , pp. 470-483
    • O'Connor, D.1
  • 16
    • 33750439144 scopus 로고    scopus 로고
    • Understanding knowledge sharing in virtual communities: An integration of social capital and social cognitive theories
    • Dec.
    • Chiu CM, Hsu MH, Wang E. Understanding knowledge sharing in virtual communities: An integration of social capital and social cognitive theories. Decision Support Systems 2006 Dec; 42(3):1872-1888. [doi: 10.1016/J. Dss.2006.04.001]
    • (2006) Decision Support Systems , vol.42 , Issue.3 , pp. 1872-1888
    • Chiu, C.M.1    Hsu, M.H.2    Wang, E.3
  • 17
    • 84872411215 scopus 로고    scopus 로고
    • accessed 2013-12-10, WebCite Cache ID 6LnB2Qyw4t
    • Google. Google Analytics: Dimensions and metrics URL: https://support.google.com/analytics/answer/1033861?rd=1 [accessed 2013-12-10] [WebCite Cache ID 6LnB2Qyw4t]
    • Google Analytics: Dimensions and Metrics
    • Google1
  • 18
    • 77953157681 scopus 로고    scopus 로고
    • accessed 2013-12-11, WebCite Cache ID 6LnBAHoq2
    • CIHR. More About Knowledge Translation at CIHR. 2013. URL: http://www.cihr-irsc.gc.ca/e/39033.html [accessed 2013-12-11] [WebCite Cache ID 6LnBAHoq2]
    • (2013) More About Knowledge Translation at CIHR
    • CIHR1
  • 19
    • 85028115295 scopus 로고    scopus 로고
    • Twitter=quitter? An analysis of Twitter quit smoking social networks
    • Jul;, FREE Full text, Medline: 21730101
    • Prochaska JJ, Pechmann C, Kim R, Leonhardt JM. Twitter=quitter? An analysis of Twitter quit smoking social networks. Tob Control 2012 Jul; 21(4):447-449 [FREE Full text] [doi: 10.1136/tc.2010.042507] [Medline: 21730101]
    • (2012) Tob Control , vol.21 , Issue.4 , pp. 447-449
    • Prochaska, J.J.1    Pechmann, C.2    Kim, R.3    Leonhardt, J.M.4
  • 20
    • 84876124382 scopus 로고    scopus 로고
    • Ethical issues in using social media for health and health care research
    • May;, Medline: 23477806
    • McKee R. Ethical issues in using social media for health and health care research. Health Policy 2013 May; 110(2-3):298-301. [doi: 10.1016/j.healthpol.2013.02.006] [Medline: 23477806]
    • (2013) Health Policy , vol.110 , Issue.2-3 , pp. 298-301
    • McKee, R.1
  • 23
    • 84876962400 scopus 로고    scopus 로고
    • An introduction to social media for scientists
    • FREE Full text, Medline: 23630451
    • Bik HM, Goldstein MC. An introduction to social media for scientists. PLoS Biol 2013;11(4):e1001535 [FREE Full text] [doi: 10.1371/journal.pbio.1001535] [Medline: 23630451]
    • (2013) PLoS Biol , vol.11 , Issue.4 , pp. e1001535
    • Bik, H.M.1    Goldstein, M.C.2
  • 24
    • 67449163841 scopus 로고    scopus 로고
    • Understanding the sustainability of a virtual community: Model development and empirical test
    • Mar. 24;, FREE Full text
    • Cheung CM, Lee MK. Understanding the sustainability of a virtual community: model development and empirical test. Journal of Information Science 2009 Mar. 24; 35(3):279-298 [FREE Full text] [doi: 10.1177/0165551508099088]
    • (2009) Journal of Information Science , vol.35 , Issue.3 , pp. 279-298
    • Cheung, C.M.1    Lee, M.K.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.