메뉴 건너뛰기




Volumn 5, Issue 2, 2012, Pages 67-74

Parental psychological distress and quality of life after a prenatal or postnatal diagnosis of congenital anomaly: A controlled comparison study with parents of healthy infants

Author keywords

Parental adjustment; Postnatal diagnosis of congenital anomaly; Prenatal diagnosis of congenital anomaly; Psychological distress; Quality of life

Indexed keywords

ADOLESCENT; ADULT; ARTICLE; CHILD; CONGENITAL MALFORMATION; CONTROLLED STUDY; DISTRESS SYNDROME; FATHER; FEMALE; GENDER; HUMAN; INFANT; MAJOR CLINICAL STUDY; MALE; MOTHER; PARENT; PARENTAL STRESS; POSTNATAL CARE; PRENATAL DIAGNOSIS; PRESCHOOL CHILD; PRIORITY JOURNAL; QUALITY OF LIFE; SCHOOL CHILD; SEX DIFFERENCE;

EID: 84862194431     PISSN: None     EISSN: 19366574     Source Type: Journal    
DOI: 10.1016/j.dhjo.2011.11.001     Document Type: Article
Times cited : (90)

References (45)
  • 1
    • 33748314554 scopus 로고    scopus 로고
    • Psychosocial morbidity among parents of children with congenital heart disease: A prospective longitudinal study
    • DOI 10.1016/j.hrtlng.2006.01.004, PII S0147956306000835
    • Lawoko S, Soares J. Psychosocial morbidity among parents of children with congenital heart disease: a prospective longitudinal study. Heart Lung. 2006;35(5):301-314. (Pubitemid 44331952)
    • (2006) Heart and Lung: Journal of Acute and Critical Care , vol.35 , Issue.5 , pp. 301-314
    • Lawoko, S.1    Soares, J.J.F.2
  • 2
    • 33747499785 scopus 로고    scopus 로고
    • Family-centered care in the context of fetal abnormality
    • PII 0000523720060700000011
    • Howard E. Family-centered care in the context of fetal abnormality. J Perinatal Neonatal Nursing. 2006;20(3):237-242. (Pubitemid 44258973)
    • (2006) Journal of Perinatal and Neonatal Nursing , vol.20 , Issue.3 , pp. 237-242
    • Howard, E.D.1
  • 3
    • 58149112272 scopus 로고    scopus 로고
    • Impact of a child with congenital anomalies on parents (ICCAP) questionnaire: A psychometric analysis
    • Mazer P, Gischler SJ, Koot HM, et al. Impact of a child with congenital anomalies on parents (ICCAP) questionnaire: a psychometric analysis. Health Qual Life Outcomes. 2008;6(102):102-110.
    • (2008) Health Qual Life Outcomes , vol.6 , Issue.102 , pp. 102-110
    • Mazer, P.1    Gischler, S.J.2    Koot, H.M.3
  • 5
    • 29144527337 scopus 로고    scopus 로고
    • A challenging intervention with maternal anxiety: Babies requiring surgical correction of a congenital anomaly after missed prenatal diagnosis
    • DOI 10.1002/imhj.10075
    • Aite L, Trucchi A, Nahom A, et al. A challenging intervention with maternal anxiety: babies requiring surgical correction of a congenital anomaly after missed prenatal diagnosis. Infant Ment Health J. 2003;24(6):571-579. (Pubitemid 44767346)
    • (2003) Infant Mental Health Journal , vol.24 , Issue.6 , pp. 571-579
    • Aite, L.1    Trucchi, A.2    Nahom, A.3    Zaccara, A.4    Casaccia, G.5    Bagolan, P.6
  • 6
    • 0036758712 scopus 로고    scopus 로고
    • A place in the family: An historical interpretation of research on parental reactions to having a child with disability
    • Ferguson P. A place in the family: an historical interpretation of research on parental reactions to having a child with disability. J Spec Educ. 2002;36(3):124-130.
    • (2002) J Spec Educ. , vol.36 , Issue.3 , pp. 124-130
    • Ferguson, P.1
  • 8
    • 77954422732 scopus 로고    scopus 로고
    • Acute maternal social dysfunction, health perception and psychological distress after ultrasonographic detection of a fetal structural anomaly
    • Kaasen A, Helbig A, Malt U, et al. Acute maternal social dysfunction, health perception and psychological distress after ultrasonographic detection of a fetal structural anomaly. Br J Obstet Gynecol. 2010;17:1127-1138.
    • (2010) Br J Obstet Gynecol. , vol.17 , pp. 1127-1138
    • Kaasen, A.1    Helbig, A.2    Malt, U.3
  • 9
    • 0031686474 scopus 로고    scopus 로고
    • Antenatally diagnosed surgical anomalies: The psychological effect of parental antenatal counseling
    • DOI 10.1016/S0022-3468(98)90011-2
    • Kemp J, Davenport M, Pernet A. Antenatally diagnosed surgical anomalies: the psychological effect of parental antenatal counseling. J Pediatr Surg. 1998;33(9):1376-1379. (Pubitemid 28443113)
    • (1998) Journal of Pediatric Surgery , vol.33 , Issue.9 , pp. 1376-1379
    • Kemp, J.1    Davenport, M.2    Pernet, A.3
  • 11
    • 52949113029 scopus 로고    scopus 로고
    • Patterns of change in family functioning, resources, coping and parental depression in mothers and fathers of sick newborns over the first year of life
    • Pinelli J, Saigal S, Wu YW, et al. Patterns of change in family functioning, resources, coping and parental depression in mothers and fathers of sick newborns over the first year of life. J Neonatal Nursing. 2008;14:156-165.
    • (2008) J Neonatal Nursing , vol.14 , pp. 156-165
    • Pinelli, J.1    Saigal, S.2    Wu, Y.W.3
  • 12
    • 35648958695 scopus 로고    scopus 로고
    • Psychological distress in parents of children with severe congenital heart disease: The impact of prenatal versus postnatal diagnosis
    • DOI 10.1038/sj.jp.7211807, PII 7211807
    • Brosig CL, Whitstone BN, Frommelt MA, et al. Psychological distress in parents of children with severe congenital heart disease: the impact of prenatal versus postnatal diagnosis. J Perinatol. 2007;27:687-692. (Pubitemid 350020348)
    • (2007) Journal of Perinatology , vol.27 , Issue.11 , pp. 687-692
    • Brosig, C.L.1    Whitstone, B.N.2    Frommelt, M.A.3    Frisbee, S.J.4    Leuthner, S.R.5
  • 14
    • 17844383377 scopus 로고    scopus 로고
    • Parental decision-making in congenital heart disease
    • Hoehn K,Wernovsky G, Rychick J, et al. Parental decision-making in congenital heart disease. Cardiol Young. 2004;14:309-314.
    • (2004) Cardiol Young , vol.14 , pp. 309-314
    • Hoehn, K.1    Wernovsky, G.2    Rychick, J.3
  • 15
    • 70350742933 scopus 로고    scopus 로고
    • Predictors of psychological functioning in mothers and fathers of infants born with severe congenital heart disease
    • Doherty N, McCusker C, Molloy B, et al. Predictors of psychological functioning in mothers and fathers of infants born with severe congenital heart disease. J Reprod Infant Psychol. 2009;27(4):390-400.
    • (2009) J Reprod Infant Psychol. , vol.27 , Issue.4 , pp. 390-400
    • Doherty, N.1    McCusker, C.2    Molloy, B.3
  • 16
    • 77957582002 scopus 로고    scopus 로고
    • Parent stress levels during children's hospital recovery after congenital heart surgery
    • Franck LS, Mcquillan A, Wray J, et al. Parent stress levels during children's hospital recovery after congenital heart surgery. Pediatr Cardiol. 2010;31:961-968.
    • (2010) Pediatr Cardiol. , vol.31 , pp. 961-968
    • Franck, L.S.1    McQuillan, A.2    Wray, J.3
  • 17
    • 25444527243 scopus 로고    scopus 로고
    • Depressive symptoms and psychosocial stress across the transition to parenthood: Associations with parental psychopathology and child difficulty
    • DOI 10.1080/01674820400028407
    • Perren S, Wyl A, Burgin D, et al. Depressive symptoms and psychological stress across the transition to parenthood: associations with parental psychopathology and child difficulty. J Psychosom Obstet Gynecol. 2005;26(3):173-183. (Pubitemid 41367520)
    • (2005) Journal of Psychosomatic Obstetrics and Gynecology , vol.26 , Issue.3 , pp. 173-183
    • Perren, S.1    Von Wyl, A.2    Burgin, D.3    Simoni, H.4    Von Klitzing, K.5
  • 18
    • 70349782045 scopus 로고    scopus 로고
    • Anxiety and depression during pregnancy in women and men
    • Teixeira C, Figueiredo B, Conde A, et al. Anxiety and depression during pregnancy in women and men. J Affect Disord. 2009;119(1): 142-148.
    • (2009) J Affect Disord. , vol.119 , Issue.1 , pp. 142-148
    • Teixeira, C.1    Figueiredo, B.2    Conde, A.3
  • 19
    • 34047222158 scopus 로고    scopus 로고
    • Factors influencing satisfaction and well-being among parents of congenital heart disease children: Development of a conceptual model based on the literature review
    • Lawoko S. Factors influencing satisfaction and well-being among parents of congenital heart disease children: development of a conceptual model based on the literature review. Scand J Caring Sci. 2007;21: 106-117.
    • (2007) Scand J Caring Sci. , vol.21 , pp. 106-117
    • Lawoko, S.1
  • 20
    • 0009686664 scopus 로고
    • Development of the WHOQOL: Rationale and current status
    • The WHOQOL Group
    • The WHOQOL Group. Development of the WHOQOL: rationale and current status. Int J Ment Health. 1994;23(3):24-56.
    • (1994) Int J Ment Health , vol.23 , Issue.3 , pp. 24-56
  • 22
    • 1842475987 scopus 로고    scopus 로고
    • The first-time fathers study: A prospective study of the mental health and wellbeing of men during the transition to parenthood
    • DOI 10.1111/j.1440-1614.2004.01298.x
    • Condon J, Boyce P, Corkindale C. The first-time fathers study: a prospective study of the mental health and wellbeing of men during the transition to parenthood. Aust N Z J Psychiatry. 2004;38:56-64. (Pubitemid 38443679)
    • (2004) Australian and New Zealand Journal of Psychiatry , vol.38 , Issue.1-2 , pp. 56-64
    • Condon, J.T.1    Boyce, P.2    Corkindale, C.J.3
  • 23
    • 24344467047 scopus 로고    scopus 로고
    • The importance of assessing psychological status during pregnancy, childbirth and the postnatal period as a multidimensional construct: A literature review
    • DOI 10.1016/j.cein.2005.02.001, PII S136190040500018X, Women's Mental Health
    • Jomeen J. The importance of assessing psychological status during pregnancy, chilbirth and the postnatal period as a multidimensional construct: a literature review. Clin Effect Nursing. 2004;8:143-155. (Pubitemid 41258531)
    • (2004) Clinical Effectiveness in Nursing , vol.8 , Issue.3-4 , pp. 143-155
    • Jomeen, J.1
  • 24
    • 78650028805 scopus 로고    scopus 로고
    • Predictors of parental quality of life after child open heart surgery: A 6-month prospective study
    • Landolt M, Buechel E, Latal B. Predictors of parental quality of life after child open heart surgery: a 6-month prospective study. J Pediatr. 2011;158(1):37-43.
    • (2011) J Pediatr. , vol.158 , Issue.1 , pp. 37-43
    • Landolt, M.1    Buechel, E.2    Latal, B.3
  • 26
    • 9744279071 scopus 로고    scopus 로고
    • An evaluation of quality of life of mothers of children with cerebral palsy
    • DOI 10.1080/09638280400000187
    • Eker L, Tü z̈n EH. An evaluation of quality of life of mothers of children with cerebral palsy. Disabil Rehabil. 2004;26(23):1354-1359. (Pubitemid 39585807)
    • (2004) Disability and Rehabilitation , vol.26 , Issue.23 , pp. 1354-1359
    • Eker, L.1    Tuzun, E.H.2
  • 27
    • 57249084640 scopus 로고    scopus 로고
    • Quality of life among parents of children with heart disease
    • Arafa M, Zaher S, El-Dowaty A, et al. Quality of life among parents of children with heart disease. Health Qual Life Outcomes. 2008; 6:91.
    • (2008) Health Qual Life Outcomes , vol.6 , pp. 91
    • Arafa, M.1    Zaher, S.2    El-Dowaty, A.3
  • 28
    • 84862164854 scopus 로고    scopus 로고
    • Mothers of infants with congenital heart defects: Well-being from pregnancy through the child's first six months
    • Dale M, Solberg O, Holmstrom H, et al. Mothers of infants with congenital heart defects: well-being from pregnancy through the child's first six months. Qual Life Res. 2011.
    • (2011) Qual Life Res.
    • Dale, M.1    Solberg, O.2    Holmstrom, H.3
  • 30
    • 67651193097 scopus 로고    scopus 로고
    • Estudos psicométricos do instrumento de avaliação da qualidade de vida da Organização Mundial de Saúde (WHOQOL-Bref) para Portugupês de Portugal
    • Vaz-Serra A, Canavarro MC, Simões MR, et al. Estudos psicométricos do instrumento de avaliação da qualidade de vida da Organização Mundial de Saúde (WHOQOL-Bref) para Portugupês de Portugal. Psiquiatr Clín. 2006;27(1):41-49.
    • (2006) Psiquiatr Clín , vol.27 , Issue.1 , pp. 41-49
    • Vaz-Serra, A.1    Canavarro, M.C.2    Simões, M.R.3
  • 31
    • 1642338383 scopus 로고    scopus 로고
    • The World Health Organization's WHOQOL-BREF quality of life assessment: Psychometric properties and results of the international field trial: A report from the WHOQOL Group
    • Skevington SM, Lotfy M, O'Connell KA. The World Health Organization's WHOQOL-BREF quality of life assessment: psychometric properties and results of the international field trial: a report from the WHOQOL Group. Qual Life Res. 2011;13:299-310.
    • (2011) Qual Life Res. , vol.13 , pp. 299-310
    • Skevington, S.M.1    Lotfy, M.2    O'connell, K.A.3
  • 32
    • 34547145165 scopus 로고    scopus 로고
    • G*Power3: A flexible statistical power analysis program for the social, behavioral, and biomedical sciences
    • Faul F, Erdfelder E, Lang AG, et al. G*Power3: a flexible statistical power analysis program for the social, behavioral, and biomedical sciences. Behav Res Methods. 2007;39:175-191.
    • (2007) Behav Res Methods. , vol.39 , pp. 175-191
    • Faul, F.1    Erdfelder, E.2    Lang, A.G.3
  • 33
    • 11944272254 scopus 로고
    • A power prime
    • Cohen J. A power prime. Psychol Bull. 1992;112(1):155-159.
    • (1992) Psychol Bull. , vol.112 , Issue.1 , pp. 155-159
    • Cohen, J.1
  • 34
    • 0038011902 scopus 로고    scopus 로고
    • Costs and rewards of children: The effects of becoming a parent on adults' lives
    • DOI 10.1111/j.1741-3737.2003.00356.x
    • Nomaguchi K, Milkie M. Costs and rewards of children: the effects of becoming a parent on adults' lives. J Marriage Fam. 2003;65(2): 356-374. (Pubitemid 36668360)
    • (2003) Journal of Marriage and Family , vol.65 , Issue.2 , pp. 356-374
    • Nomaguchi, K.M.1    Milkie, M.A.2
  • 37
    • 58749087879 scopus 로고    scopus 로고
    • Recasting hope: A process of adaptation following fetal anomaly
    • Lalor J, Begley C, Galavan E. Recasting hope: a process of adaptation following fetal anomaly. Soc Sci Med. 2009;68:462-472.
    • (2009) Soc Sci Med. , vol.68 , pp. 462-472
    • Lalor, J.1    Begley, C.2    Galavan, E.3
  • 38
    • 85055305154 scopus 로고    scopus 로고
    • SolomouW. When expectant mothers know their baby has a fetal abnormality: Exploring a crisis of motherhood through qualitative data-mining
    • Jones S, Statham H, SolomouW. When expectant mothers know their baby has a fetal abnormality: exploring a crisis of motherhood through qualitative data-mining. J Soc Work Res Eval. 2005;62(2): 195-206.
    • (2005) J Soc Work Res Eval. , vol.62 , Issue.2 , pp. 195-206
    • Jones, S.1    Statham, H.2
  • 39
    • 0041829239 scopus 로고    scopus 로고
    • Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children
    • DOI 10.1023/A:1025114331419
    • Lawoko S, Soares J. Quality of life among parents of children with congenital heart disease, parents of children with other diseases and parents of healthy children. Qual Life Res. 2003;12(6):655-666. (Pubitemid 37094029)
    • (2003) Quality of Life Research , vol.12 , Issue.6 , pp. 655-666
    • Lawoko, S.1    Soares, J.J.F.2
  • 40
    • 0032699933 scopus 로고    scopus 로고
    • Parental burden and grief one year after the birth of a child with a congenital anomaly
    • Hunfeld JAM, Tempels A, Passchier J, et al. Parental burden and grief one year after the birth of a child with a congenital anomaly. J Pediatr Psychol. 1999;24(6):515-520.
    • (1999) J Pediatr Psychol. , vol.24 , Issue.6 , pp. 515-520
    • Hunfeld, J.A.M.1    Tempels, A.2    Passchier, J.3
  • 41
    • 32044459959 scopus 로고    scopus 로고
    • 'Just a bystander'? Men's place in the process of fetal screening and diagnosis
    • DOI 10.1016/j.socscimed.2005.08.011, PII S0277953605004284
    • Locock L, Alexander J. Just a bystander? Men's place in the process of fetal screening and diagnosis. Soc Sci Med. 2006;62:1349-1359. (Pubitemid 43197821)
    • (2006) Social Science and Medicine , vol.62 , Issue.6 , pp. 1349-1359
    • Locock, L.1    Alexander, J.2
  • 42
    • 0033796423 scopus 로고    scopus 로고
    • Prenatal diagnosis of fetal abnormality: Psychological effects on women in low-risk pregnancies
    • Statham H, Solomou W, Chitty L. Prenatal diagnosis of fetal abnormality: psychological effects on women in low-risk pregnancies. Baillière's Clin Obstet Gynaecol. 2000;14(4):731-747.
    • (2000) Baillière's Clin Obstet Gynaecol. , vol.14 , Issue.4 , pp. 731-747
    • Statham, H.1    Solomou, W.2    Chitty, L.3
  • 43
    • 77955501962 scopus 로고    scopus 로고
    • Women's experiences when ultrasound examinations give unexpected findings in the second trismester
    • Sommerseth E, Sundby J. Women's experiences when ultrasound examinations give unexpected findings in the second trismester. Women Birth. 2010;23:111-116.
    • (2010) Women Birth. , vol.23 , pp. 111-116
    • Sommerseth, E.1    Sundby, J.2
  • 44
    • 0031977165 scopus 로고    scopus 로고
    • Relationship of parental psychological distress to consequences of chronic health conditions in children
    • DOI 10.1093/jpepsy/23.1.5
    • Silver EJ, Westbrook LE, Stein REK. Relationship of parental psychological distress to consequences of chronic health conditions in children. J Pediatr Psychol. 1998;23(1):5-15. (Pubitemid 28178113)
    • (1998) Journal of Pediatric Psychology , vol.23 , Issue.1 , pp. 5-15
    • Silver, E.J.1    Westbrook, L.E.2    Stein, R.E.K.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.