Inequities in health care needs for children with medical complexity

Health Affairs

Volumn 33, Issue 12, 2014, Pages 2190-2198

  Kuo, Dennis Z ^a   Goudie, Anthony ^a   Cohen, Eyal ^b   Houtrow, Amy ^c   Agrawal, Rishi ^d   Carle, Adam C ^e   Wells, Nora ^f  

^a UNIVERSITY OF ARKANSAS FOR MEDICAL SCIENCES   (United States)

^b HOSPITAL FOR SICK CHILDREN   (Canada)

^c UNIVERSITY OF PITTSBURGH SCHOOL OF MEDICINE   (United States)

^d CHILDREN'S MEMORIAL HOSPITAL   (United States)

^e UNIVERSITY OF CINCINNATI   (United States)

^f Family Voices Inc   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CHILD HEALTH CARE; CHILDHOOD DISEASE; ETHNICITY; FEMALE; HEALTH CARE ACCESS; HEALTH CARE DISPARITY; HEALTH CARE NEED; HEALTH CARE UTILIZATION; HEALTH INSURANCE; HEALTH SERVICE; HUMAN; INFANT; LANGUAGE; MAJOR CLINICAL STUDY; MALE; MEDICAID; MEDICAL SERVICE; PREVALENCE; SECONDARY ANALYSIS; HEALTH CARE SURVEY; NEEDS ASSESSMENT; NEWBORN; PRESCHOOL CHILD; STATISTICS AND NUMERICAL DATA; UNITED STATES;

ADOLESCENT; CHILD; CHILD HEALTH SERVICES; CHILD, PRESCHOOL; FEMALE; HEALTH CARE SURVEYS; HEALTH SERVICES NEEDS AND DEMAND; HEALTHCARE DISPARITIES; HUMANS; INFANT; INFANT, NEWBORN; MALE; NEEDS ASSESSMENT; UNITED STATES;

EID: 84916878071     PISSN: 02782715     EISSN: 15445208     Source Type: Journal    
DOI: 10.1377/hlthaff.2014.0273     Document Type: Article

References (37)

1. Berry JG, Agrawal RK, Cohen E, Kuo DZ. The landscape of medical care for children with medical complexity [Internet]. Overland Park (KS): Children's Hospital Association; 2013 Jun [cited 2014 Oct 6]. (Special Report). Available from: http:// www.childrenshospitals.net/AM/ Template.cfm?Section=Home3&Template=/CM/ContentDisplay.cfm&ContentID=67046
2. Cohen E, Kuo DZ, Agrawal R, Berry JG, Bhagat SKM, Simon TD, et al. Children with medical complexity: an emerging population for clinical and research initiatives. Pediatrics. 2011;127(3):529-38.
3. Berry JG, Bloom S, Foley S, Palfrey JS. Health inequity in children and youth with chronic health conditions. Pediatrics. 2010;126(Suppl 3): S111-9.
4. McPherson M, Arango P, Fox H, Lauver C, McManus M, Newacheck PW, et al. A new definition of children with special health care needs. Pediatrics. 1998;102(1 Pt 1):137-40.
5. Kuo DZ, Cohen E, Agrawal R, Berry JG, Casey PH. A national profile of caregiver challenges among more medically complex children with special health care needs. Arch Pediatr Adolesc Med. 2011;165(11): 1020-6.
6. Braveman PA. Monitoring equity in health and healthcare: a conceptual framework. J Health Popul Nutr. 2003;21(3):181-92.
7. HealthyPeople.gov. Disparities [Internet]. Washington (DC): Department of Health and Human Services; [last updated 2014 Oct 6; cited 2014 Oct 6]. Available from: http:// www.healthypeople.gov/2020/ about/disparitiesAbout.aspx
8. Braveman P, Barclay C. Health disparities beginning in childhood: a life-course perspective. Pediatrics. 2009;124(Suppl 3):S163-75.
9. Strickland BB, Singh GK, Kogan MD, Mann MY, van Dyck PC, Newacheck PW. Access to the medical home: new findings from the 2005-2006 National Survey of Children with Special Health Care Needs. Pediatrics. 2009;123(6): e996-1004.
10. Newacheck PW, Hung YY, Wright KK. Racial and ethnic disparities in access to care for children with special health care needs. Ambul Pediatr. 2002;2(4):247-54.
11. Yu SM, Singh GK. Household language use and health care access, unmet need, and family impact among CSHCN. Pediatrics. 2009; 124(Suppl 4):S414-9.
12. Inkelas M, Raghavan R, Larson K, Kuo AA, Ortega AN. Unmet mental health need and access to services for children with special health care needs and their families. Ambul Pediatr. 2007;7(6):431-8.
13. Montes G, Halterman JS. Whiteblack disparities in family-centered care among children with autism in the United States: evidence from the NS-CSHCN 2005-2006. Acad Pediatr. 2011;11(4):297-304.
14. Houtrow AJ, Okumura MJ, Hilton JF, Rehm RS. Profiling health and health-related services for children with special health care needs with and without disabilities. Acad Pediatr. 2011;11(6):508-16.
15. Lykens KA, Fulda KG, Bae S, Singh KP. Differences in risk factors for children with special health care needs (CSHCN) receiving needed specialty care by socioeconomic status. BMC Pediatr. 2009;9:48.
16. Ngui EM, Flores G. Satisfaction with care and ease of using health care services among parents of children with special health care needs: the roles of race/ethnicity, insurance, language, and adequacy of familycentered care. Pediatrics. 2006; 117(4):1184-96.
17. Derigne L, Porterfield S, Metz S. The influence of health insurance on parent's reports of children's unmet mental health needs. Matern Child Health J. 2009;13(2):176-86.
18. Silver EJ, Stein RE. Access to care, unmet health needs, and poverty status among children with and without chronic conditions. Ambul Pediatr. 2001;1(6):314-20.
19. Braveman PA, Kumanyika S, Fielding J, LaVeist T, Borrell LN, Manderscheid R, et al. Health disparities and health equity: the issue is justice. Am J Public Health. 2011;101(Suppl 1):S149-55.
20. Bethell CD, Read D, Stein RE, Blumberg SJ, Wells N, Newacheck PW. Identifying children with special health care needs: development and evaluation of a short screening instrument. Ambul Pediatr. 2002;2(1): 38-48.
21. Carle AC, Blumberg SJ, Poblenz C. Internal psychometric properties of the Children with Special Health Care Needs Screener. Acad Pediatr. 2011;11(2):128-35.
22. Muthén LK, Muthén BO. Mplus statistical analysis with latent variables: user's guide. 7th ed. [Internet]. Los Angeles (CA): Muthén and Muthén; 2012 Nov [cited 2014 Oct 14]. Available from: http:// www.statmodel.com/download/ usersguide/Mplus%20user %20guide%20Ver_7_r6_web.pdf
23. Yu H, Dick AW. Risk-adjusted capitation rates for children: how useful are the survey-based measures? Health Serv Res. 2010;45(6 Pt 2): 1948-62.
24. Kuo DZ, Robbins JM, Lyle RE, Barrett KW, Burns KH, Casey PH. Parent-reported outcomes of comprehensive care for children with medical complexity. Fam Syst Health. 2013;31(2):132-41.
25. Honberg LE, Kogan MD, Allen D, Strickland BB, Newacheck PW. Progress in ensuring adequate health insurance for children with special health care needs. Pediatrics. 2009;124(5):1273-80.
26. Yeh M, McCabe K, Hough RL, Dupuis D, Hazen A. Racial/ethnic differences in parental endorsement of barriers to mental health services for youth. Ment Health Serv Res. 2003;5(2):65-77.
27. Flores G, Lin H. Trends in racial/ ethnic disparities in medical and oral health, access to care, and use of services in US children: has anything changed over the years? Int J Equity Health. 2013;12:10.
28. Palfrey JS, Sofis LA, Davidson EJ, Liu J, Freeman L, Ganz ML. The Pediatric Alliance for Coordinated Care: evaluation of a medical home model. Pediatrics. 2004;113(5 Suppl): 1507-16.
29. Berry JG, Agrawal R, Kuo DZ, Cohen E, Risko W, Hall M, et al. Characteristics of hospitalizations for patients who use a structured clinical care program for children with medical complexity. J Pediatr. 2011;159(2):284-90.
30. Edwards ST, Abrams MK, Baron RJ, Berenson RA, Rich EC, Rosenthal GE, et al. Structuring payment to medical homes after the Affordable Care Act. J Gen Intern Med. 2014; 29(10):1410-3.
31. Medical Home Initiatives for Children with Special Needs Project Advisory Committee, American Academy of Pediatrics. The medical home. Pediatrics. 2002;110(1 Pt 1):184-6.
32. Shone LP, Dick AW, Klein JD, Zwanziger J, Szilagyi PG. Reduction in racial and ethnic disparities after enrollment in the State Children's Health Insurance Program. Pediatrics. 2005;115(6):e697-705.
33. American Academy of Pediatrics, Council on Pediatric Practice. Pediatric records and a "medical home." In: Council on Pediatric Practice. Standards of child health care. Evanston (IL): American Academy of Pediatrics; 1967. p. 77-9.
34. Sia C, Tonniges TF, Osterhus E, Taba S. History of the medical home concept. Pediatrics. 2004; 113(5 Suppl):1473-8.
35. Rose RA, Parish SL, Yoo J, Grady MD, Powell SE, Hicks-Sangster TK. Suppression of racial disparities for children with special health care needs among families receiving Medicaid. Soc Sci Med. 2010;70(9): 1263-70.
36. Kogan MD, Newacheck PW, Blumberg SJ, Ghandour RM, Singh GK, Strickland BB, et al. Underinsurance among children in the United States. N Engl J Med. 2010; 363(9):841-51.
37. Wells N, Krauss MW, Anderson B, Gulley S, Leiter V, O'Neil M, et al. What do families say about health care for children with special heatlh care needs? Your voice counts!! The Family Partners Project report to families. 2nd ed. [Internet]. Boston (MA): Family Voices at the Federation for Children with Special Health Care Needs; 2000 Apr [cited 2014 Oct 14]. Available from: http:// www.familyvoices.org/admin/ miscdocs/files/National-Famrpt-1 .pdf