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Volumn 165, Issue 11, 2011, Pages 1020-1026

A national profile of caregiver challenges among more medically complex children with special health care needs

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CAREGIVER; HANDICAPPED CHILD; HEALTH CARE NEED; MEDICAL CARE; MEDICAL SERVICE; MENTAL DEFICIENCY; PRIORITY JOURNAL; UNITED STATES;

EID: 80755152947     PISSN: 10724710     EISSN: 15383628     Source Type: Journal    
DOI: 10.1001/archpediatrics.2011.172     Document Type: Article
Times cited : (412)

References (40)
  • 1
    • 61549084382 scopus 로고    scopus 로고
    • ACH medical home program for special needs children: A new medical era...
    • Tanios AT, Lyle RE, Casey PH. ACH medical home program for special needs children: a new medical era. . . . J Ark Med Soc. 2009;105(7):163-165.
    • (2009) J Ark Med Soc , vol.105 , Issue.7 , pp. 163-165
    • Tanios, A.T.1    Lyle, R.E.2    Casey, P.H.3
  • 2
    • 34948888898 scopus 로고    scopus 로고
    • A tertiary care-primary care partnership model for medically complex and fragile children and youth with special health care needs
    • DOI 10.1001/archpedi.161.10.937
    • Gordon JB, Colby HH, Bartelt T, Jablonski D, Krauthoefer ML, Havens P. A tertiary care-primary care partnership model for medically complex and fragile children and youth with special health care needs. Arch Pediatr Adolesc Med. 2007; 161(10):937-944. (Pubitemid 47529410)
    • (2007) Archives of Pediatrics and Adolescent Medicine , vol.161 , Issue.10 , pp. 937-944
    • Gordon, J.B.1    Colby, H.H.2    Bartelt, T.3    Jablonski, D.4    Krauthoefer, M.L.5    Havens, P.6
  • 3
    • 53749102696 scopus 로고    scopus 로고
    • A medical home center: Specializing in the care of children with special health care needs of high intensity
    • Kelly A, Golnik A, Cady R. A medical home center: specializing in the care of children with special health care needs of high intensity. Matern Child Health J. 2008; 12(5):633-640.
    • (2008) Matern Child Health J , vol.12 , Issue.5 , pp. 633-640
    • Kelly, A.1    Golnik, A.2    Cady, R.3
  • 5
    • 79960462678 scopus 로고    scopus 로고
    • Characteristics of hospitalizations for patients who use a structured clinical care program for children with medical complexity
    • Berry JG, Agrawal R, Kuo DZ, et al. Characteristics of hospitalizations for patients who use a structured clinical care program for children with medical complexity. J Pediatr. 2011;159(2):284-290.
    • (2011) J Pediatr , vol.159 , Issue.2 , pp. 284-290
    • Berry, J.G.1    Agrawal, R.2    Kuo, D.Z.3
  • 6
    • 4644292232 scopus 로고    scopus 로고
    • The transformation of child health in the United States
    • DOI 10.1377/hlthaff.23.5.9
    • Wise PH. The transformation of child health in the United States. Health Aff (Millwood). 2004;23(5):9-25. (Pubitemid 39303489)
    • (2004) Health Affairs , vol.23 , Issue.5 , pp. 9-25
    • Wise, P.H.1
  • 8
    • 77957707493 scopus 로고    scopus 로고
    • Children with complex chronic conditions in inpatient hospital settings in the United States
    • Simon TD, Berry J, Feudtner C, et al. Children with complex chronic conditions in inpatient hospital settings in the United States. Pediatrics. 2010;126(4):647-655.
    • (2010) Pediatrics , vol.126 , Issue.4 , pp. 647-655
    • Simon, T.D.1    Berry, J.2    Feudtner, C.3
  • 9
    • 0141454742 scopus 로고    scopus 로고
    • Complications of amedically complicated child
    • Ghose R. Complications of amedically complicated child. Ann Intern Med. 2003; 139(4):301-302.
    • (2003) Ann Intern Med , vol.139 , Issue.4 , pp. 301-302
    • Ghose, R.1
  • 10
    • 0036985268 scopus 로고    scopus 로고
    • Parenting and childhood chronicity: Making visible the invisible work
    • DOI 10.1053/jpdn.2002.127172
    • Ray LD. Parenting and Childhood Chronicity: making visible the invisible work. J Pediatr Nurs. 2002;17(6):424-438. (Pubitemid 40433673)
    • (2002) Journal of Pediatric Nursing , vol.17 , Issue.6 , pp. 424-438
    • Ray, L.D.1
  • 11
    • 0037803532 scopus 로고    scopus 로고
    • Pre-school children with and without developmental delay: Behaviour problems and parenting stress over time
    • DOI 10.1046/j.1365-2788.2003.00484.x
    • Baker BL, McIntyre LL, Blacher J, Crnic K, Edelbrock C, Low C. Pre-school children with and without developmental delay: behaviour problems and parenting stress over time. J Intellect Disabil Res. 2003;47(pt 4-5):217-230. (Pubitemid 36773140)
    • (2003) Journal of Intellectual Disability Research , vol.47 , Issue.4-5 , pp. 217-230
    • Baker, B.L.1    McIntyre, L.L.2    Blacher, J.3    Crnic, K.4    Edelbrock, C.5    Low, C.6
  • 12
    • 33747489330 scopus 로고    scopus 로고
    • Toileting concerns, parenting stress, and behavior problems in children with special health care needs
    • DOI 10.1177/0009922806289616
    • Macias MM, Roberts KM, Saylor CF, Fussell JJ. Toileting concerns, parenting stress, and behavior problems in children with special health care needs. Clin Pediatr (Phila). 2006;45(5):415-422. (Pubitemid 44257184)
    • (2006) Clinical Pediatrics , vol.45 , Issue.5 , pp. 415-422
    • Macias, M.M.1    Roberts, K.M.2    Saylor, C.F.3    Fussell, J.J.4
  • 15
    • 71749116518 scopus 로고    scopus 로고
    • Understanding factors associated with work loss for families caring for CSHCN
    • Okumura MJ, Van Cleave J, Gnanasekaran S, Houtrow A. Understanding factors associated with work loss for families caring for CSHCN. Pediatrics. 2009; 124(suppl 4):S392-S398.
    • (2009) Pediatrics , vol.124 , Issue.SUPPL. 4
    • Okumura, M.J.1    Van Cleave, J.2    Gnanasekaran, S.3    Houtrow, A.4
  • 16
    • 79951711289 scopus 로고    scopus 로고
    • Hospital utilization and characteristics of patients experiencing recurrent readmissions within children's hospitals
    • Berry JG, Hall DE, Kuo DZ, et al. Hospital utilization and characteristics of patients experiencing recurrent readmissions within children's hospitals. JAMA. 2011;305(7):682-690.
    • (2011) JAMA , vol.305 , Issue.7 , pp. 682-690
    • Berry, J.G.1    Hall, D.E.2    Kuo, D.Z.3
  • 17
    • 21844470236 scopus 로고    scopus 로고
    • Hospitalist care of the medically complex child
    • DOI 10.1016/j.pcl.2005.03.007, PII S0031395505000702, Pediatric Hospital Medicine
    • Srivastava R, Stone BL, Murphy NA. Hospitalist care of the medically complex child. Pediatr Clin North Am. 2005;52(4):1165-1187, x. (Pubitemid 40961620)
    • (2005) Pediatric Clinics of North America , vol.52 , Issue.4 , pp. 1165-1187
    • Srivastava, R.1    Stone, B.L.2    Murphy, N.A.3
  • 18
    • 77951222413 scopus 로고    scopus 로고
    • Managing childhood chronic illness: Parent perspectives and implications for parent-provider relationships
    • Kratz L, Uding N, Trahms CM, Villareale N, Kieckhefer GM. Managing childhood chronic illness: parent perspectives and implications for parent-provider relationships. Fam Syst Health. 2009;27(4):303-313.
    • (2009) Fam Syst Health , vol.27 , Issue.4 , pp. 303-313
    • Kratz, L.1    Uding, N.2    Trahms, C.M.3    Villareale, N.4    Kieckhefer, G.M.5
  • 19
    • 14844294447 scopus 로고    scopus 로고
    • Bridging the divide between families and health professionals' perspectives on family-centred care
    • DOI 10.1111/j.1369-7625.2005.00319.x
    • MacKean GL, Thurston WE, Scott CM. Bridging the divide between families and health professionals' perspectives on family-centred care. Health Expect. 2005; 8(1):74-85. (Pubitemid 40343319)
    • (2005) Health Expectations , vol.8 , Issue.1 , pp. 74-85
    • MacKean, G.L.1    Thurston, W.E.2    Scott, C.M.3
  • 20
    • 38949114933 scopus 로고    scopus 로고
    • Parenting children requiring complex care: A journey through time
    • DOI 10.1111/j.1365-2214.2007.00790.x
    • Macdonald H, Callery P. Parenting children requiring complex care: a journey through time. Child Care Health Dev. 2008;34(2):207-213. (Pubitemid 351228115)
    • (2008) Child: Care, Health and Development , vol.34 , Issue.2 , pp. 207-213
    • Macdonald, H.1    Callery, P.2
  • 21
    • 0033002156 scopus 로고    scopus 로고
    • Employment, child care, and mental health of mothers caring for children assisted by technology
    • DOI 10.1542/peds.103.6.1235
    • Thyen U, Kuhlthau K, Perrin JM. Employment, child care, and mental health of mothers caring for children assisted by technology. Pediatrics. 1999;103(6, pt 1):1235-1242. (Pubitemid 29258799)
    • (1999) Pediatrics , vol.103 , Issue.6 I , pp. 1235-1242
    • Thyen, U.1    Kuhlthau, K.2    Perrin, J.M.3
  • 23
    • 0036372650 scopus 로고    scopus 로고
    • Identifying children with special health care needs: Development and evaluation of a short screening instrument
    • DOI 10.1367/1539-4409(2002)002<0038:ICWSHC>2.0.CO;2
    • Bethell CD, Read D, Stein RE, Blumberg SJ, Wells N, Newacheck PW. Identifying children with special health care needs: development and evaluation of a short screening instrument. Ambul Pediatr. 2002;2(1):38-48. (Pubitemid 44133341)
    • (2002) Ambulatory Pediatrics , vol.2 , Issue.1 , pp. 38-48
    • Bethell, C.D.1    Read, D.2    Stein, R.E.K.3    Blumberg, S.J.4    Wells, N.5    Newacheck, P.W.6
  • 24
    • 59849086917 scopus 로고    scopus 로고
    • Differentiating subgroups of children with special health care needs by health status and complexity of health care needs
    • Bramlett MD, Read D, Bethell C, Blumberg SJ. Differentiating subgroups of children with special health care needs by health status and complexity of health care needs. Matern Child Health J. 2009;13(2):151-163.
    • (2009) Matern Child Health J , vol.13 , Issue.2 , pp. 151-163
    • Bramlett, M.D.1    Read, D.2    Bethell, C.3    Blumberg, S.J.4
  • 25
    • 39749179742 scopus 로고    scopus 로고
    • Conceptualizing childhood health problems using survey data: A comparison of key indicators
    • Kohen DE, Brehaut JC, Garner RE, et al. Conceptualizing childhood health problems using survey data: a comparison of key indicators. BMC Pediatr. 2007; 7:40.
    • (2007) BMC Pediatr , vol.7 , pp. 40
    • Kohen, D.E.1    Brehaut, J.C.2    Garner, R.E.3
  • 26
    • 0029270196 scopus 로고
    • Revisiting the behavioral model and access to medical care: Does it matter?
    • Andersen RM. Revisiting the behavioral model and access to medical care: does it matter? J Health Soc Behav. 1995;36(1):1-10.
    • (1995) J Health Soc Behav , vol.36 , Issue.1 , pp. 1-10
    • Andersen, R.M.1
  • 27
    • 79952208290 scopus 로고    scopus 로고
    • Children with medical complexity: An emerging population for clinical and research initiatives
    • Cohen E, Kuo DZ, Agrawal R, et al. Children with medical complexity: an emerging population for clinical and research initiatives. Pediatrics. 2011;127(3): 529-538.
    • (2011) Pediatrics , vol.127 , Issue.3 , pp. 529-538
    • Cohen, E.1    Kuo, D.Z.2    Agrawal, R.3
  • 28
    • 33749000274 scopus 로고    scopus 로고
    • Children who are medically fragile in North Carolina: Using Medicaid data to estimate prevalence and Medical care costs in 2004
    • DOI 10.1007/s10995-006-0081-3
    • Buescher PA, Whitmire JT, Brunssen S, Kluttz-Hile CE. Children who are medically fragile in North Carolina: using Medicaid data to estimate prevalence and medical care costs in 2004. Matern Child Health J. 2006;10(5):461-466. (Pubitemid 44445976)
    • (2006) Maternal and Child Health Journal , vol.10 , Issue.5 , pp. 461-466
    • Buescher, P.A.1    Whitmire, J.T.2    Brunssen, S.3    Kluttz-Hile, C.E.4
  • 29
    • 1642453593 scopus 로고    scopus 로고
    • Profile of Medical Charges for Children by Health Status Group and Severity Level in a Washington State Health Plan
    • DOI 10.1111/j.1475-6773.2004.00216.x
    • Neff JM, Sharp VL, Muldoon J, Graham J, Myers K. Profile of medical charges for children by health status group and severity level in a Washington State Health Plan. Health Serv Res. 2004;39(1):73-89. (Pubitemid 38124792)
    • (2004) Health Services Research , vol.39 , Issue.1 , pp. 73-89
    • Neff, J.M.1    Sharp, V.L.2    Muldoon, J.3    Graham, J.4    Myers, K.5
  • 30
  • 31
    • 0033754913 scopus 로고    scopus 로고
    • Prevalence and severity of feeding and nutritional problems in children with neurological impairment: Oxford Feeding Study
    • Sullivan PB, Lambert B, Rose M, Ford-Adams M, Johnson A, Griffiths P. Prevalence and severity of feeding and nutritional problems in children with neurological impairment: Oxford Feeding Study. Dev Med Child Neurol. 2000;42 (10):674-680.
    • (2000) Dev Med Child Neurol , vol.42 , Issue.10 , pp. 674-680
    • Sullivan, P.B.1    Lambert, B.2    Rose, M.3    Ford-Adams, M.4    Johnson, A.5    Griffiths, P.6
  • 32
    • 0018340755 scopus 로고
    • Gastroesophageal reflux among severely retarded children
    • Sondheimer JM, Morris BA. Gastroesophageal reflux among severely retarded children. J Pediatr. 1979;94(5):710-714. (Pubitemid 9135487)
    • (1979) Journal of Pediatrics , vol.94 , Issue.5 , pp. 710-714
    • Sondheimer, J.M.1    Morris, B.A.2
  • 34
    • 0037048694 scopus 로고    scopus 로고
    • Improving primary care for patients with chronic illness
    • Bodenheimer T, Wagner EH, Grumbach K. Improving primary care for patients with chronic illness. JAMA. 2002;288(14):1775-1779.
    • (2002) JAMA , vol.288 , Issue.14 , pp. 1775-1779
    • Bodenheimer, T.1    Wagner, E.H.2    Grumbach, K.3
  • 36
    • 34248196529 scopus 로고    scopus 로고
    • Need for and use of family leave among parents of children with special health care needs
    • DOI 10.1542/peds.2006-2337
    • Chung PJ, Garfield CF, Elliott MN, Carey C, Eriksson C, Schuster MA. Need for and use of family leave among parents of children with special health care needs. Pediatrics. 2007;119(5):e1047-e1055. (Pubitemid 46715641)
    • (2007) Pediatrics , vol.119 , Issue.5
    • Chung, P.J.1    Garfield, C.F.2    Elliott, M.N.3    Carey, C.4    Eriksson, C.5    Schuster, M.A.6
  • 37
    • 76249132691 scopus 로고    scopus 로고
    • A home respiratory support programme for children by parents and layperson carers
    • Tibballs J, Henning R, Robertson CF, et al. A home respiratory support programme for children by parents and layperson carers. J Paediatr Child Health. 2010;46(1-2):57-62.
    • (2010) J Paediatr Child Health , vol.46 , Issue.1-2 , pp. 57-62
    • Tibballs, J.1    Henning, R.2    Robertson, C.F.3
  • 38
    • 23844517799 scopus 로고    scopus 로고
    • Normalization in families raising a child who is medically fragile/technology dependent and developmentally delayed
    • DOI 10.1177/1049732305276754
    • Rehm RS, Bradley JF. Normalization in families raising a child who is medically fragile/technology dependent and developmentally delayed. Qual Health Res. 2005; 15(6):807-820. (Pubitemid 41358768)
    • (2005) Qualitative Health Research , vol.15 , Issue.6 , pp. 807-820
    • Rehm, R.S.1    Bradley, J.F.2
  • 39
    • 79958076374 scopus 로고    scopus 로고
    • Hospital-based comprehensive care programs for children with special health care needs: A systematic review
    • Cohen E, Jovcevska V, Kuo DZ, Mahant S. Hospital-based comprehensive care programs for children with special health care needs: a systematic review. Arch Pediatr Adolesc Med. 2011;165(6):554-561.
    • (2011) Arch Pediatr Adolesc Med , vol.165 , Issue.6 , pp. 554-561
    • Cohen, E.1    Jovcevska, V.2    Kuo, D.Z.3    Mahant, S.4
  • 40
    • 79955562955 scopus 로고    scopus 로고
    • Effect of hospital-based comprehensive care clinic on health costs for Medicaid-insured medically complex children
    • Casey PH, Lyle RE, Bird TM, et al. Effect of hospital-based comprehensive care clinic on health costs for Medicaid-insured medically complex children. Arch Pediatr Adolesc Med. 2011;165(5):392-398.
    • (2011) Arch Pediatr Adolesc Med , vol.165 , Issue.5 , pp. 392-398
    • Casey, P.H.1    Lyle, R.E.2    Bird, T.M.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.