Profiling health and health-related services for children with special health care needs with and without disabilities

Academic Pediatrics

Volumn 11, Issue 6, 2011, Pages 508-516

  Houtrow, Amy J ^a   Okumura, Megumi J ^a   Hilton, Joan F ^a   Rehm, Roberta S ^b  

^a UNIVERSITY OF CALIFORNIA   (United States)

^b UNIVERSITY OF CALIFORNIA   (United States)

Author keywords

children with special health care needs; disabilities; medical home; unmet need

Indexed keywords

ADOLESCENT; ANXIETY DISORDER; ARTICLE; BEHAVIOR DISORDER; CHILD; CHILD HEALTH; CHILD HEALTH CARE; CHILDHOOD DISEASE; CHILDREN WITH SPECIAL HEALTH CARE NEED; DEMOGRAPHY; DEPRESSION; DISABILITY; FEMALE; HEALTH CARE DELIVERY; HEALTH CARE NEED; HEALTH CARE POLICY; HEALTH STATUS; HUMAN; INFANT; MAJOR CLINICAL STUDY; MALE; MULTIVARIATE LOGISTIC REGRESSION ANALYSIS; NEWBORN; PSYCHOSOCIAL DISORDER; SOCIAL ASPECT; SOCIAL STATUS;

ADOLESCENT; CHILD; CHILD, PRESCHOOL; DISABLED CHILDREN; FEMALE; HEALTH SERVICES NEEDS AND DEMAND; HEALTH SURVEYS; HEALTHCARE DISPARITIES; HUMANS; INFANT; INFANT, NEWBORN; MALE; MENTAL DISORDERS; NEEDS ASSESSMENT; PATIENT-CENTERED CARE; SOCIOECONOMIC FACTORS; UNITED STATES;

EID: 81055157785     PISSN: 18762859     EISSN: 18762867     Source Type: Journal    
DOI: 10.1016/j.acap.2011.08.004     Document Type: Article

References (33)

1. B. Newacheck Strickland, and J.P. Shonkoff An epidemiologic profile of children with special health care needs Pediatrics 102 1 pt 1 1998 117 123 (Pubitemid 28309255)
2. C.D. Bethell, D. Read, and R.E.K. Stein Identifying children with special health care needs: development and evaluation of a short screening instrument Ambul Pediatr 2 2002 38 48 (Pubitemid 44133341)
3. U.S. Department of Health and Human Services The National Survey of Children with Special Health Care Needs Chartbook 2005-2006 2007 U.S. Department of Health and Human Services Rockville, Md
4. D.J. Lollar, and R.J. Simeonsson Diagnosis to function: classification of children and youths Devel Behav Pediatr 26 2005 323 330 (Pubitemid 41272193)
5. L.L. Eddy, and J.M. Engel The impact of child disability type on the family Rehabil Nurs 33 2008 98 103
6. R.E. Benedict Disparities in use of and unmet need for therapeutic and supportive services among school-age children with functional limitations: a comparison across settings Health Serv Res 41 2006 103 124
7. D.P. Hogan, M.L. Rogers, and M.E. Msall Functional limitations and key indicators of well-being in children with disability Arch Pediatr Adolesc Med 154 2000 1042 1048
8. M.D. Bramlett, D. Read, C. Bethell, and S.J. Blumberg Differentiating subgroups of children with special health care needs by health status and complexity of health care needs Matern Child Health J 13 2009 151 163
9. S. Nageswaran, E.J. Silver, and R.E. Stein Association of functional limitation with health care needs and experiences of children with special health care needs Pediatrics 121 2008 994 1001
10. G. King, M.A. Tucker, and P. Baldwin A life needs model of pediatric service delivery: services to support community participation and quality of life for children and youth with disabilities Phys Occup Ther Pediatr 22 2 2002 53 77 (Pubitemid 34976915)
11. R.E.K. Stein, and E.J. Silver Are rates of functional limitations associated with access to care A state-level analysis of the National Survey of Children with Special Health Care Needs Matern Child Health J 9 2005 S33 S39
12. C. Bethell, D. Read, S. Blumberg, and P. Newacheck What is the prevalence of children with special health care needs Toward an understanding of variations in findings and methods across three national surveys Matern Child Health J 12 2008 1 14
13. A.Y. Chen, and P.W. Newacheck Insurance coverage and financial burden for families of children with special health care needs Ambul Pediatr 6 2006 204 209
14. A. Houtrow, S. Kim, and P. Newacheck Health care utilization, access and expenditures for infants and young children with special health care needs Infants and Young Children 21 2 April/June 2008 149 159
15. M.L. Mayer, A.C. Skinner, and R.T. Slifkin Unmet need for routine and specialty care: data from the National Survey of Children With Special Health Care Needs Pediatrics 113 2004 e109 e115
16. P.W. Newacheck, M. McManus, and H.B. Fox Access to health care for children with special health care needs Pediatrics 105 2000 760 766 (Pubitemid 30219522)
17. S.C. Dusing, A.C. Skinner, and M.L. Mayer Unmet need for therapy services, assistive devices, and related services: data from the National Survey of Children With Special Health Care Needs Ambul Pediatr 4 2004 448 454 (Pubitemid 39317551)
18. B.B. Strickland, P.C. van Dyck, and M.D. Kogan Assessing and ensuring a comprehensive system of services for children with special health care needs: a public health approach Am J Public Health 101 2011 224 231
19. S.J. Blumberg, E.M. Welch, and S.R. Chowdhury Design and operation of the National Survey of Children with Special Health Care Needs, 2005-2006 Vital Health Stat 1 45 2008 1 188
20. World Health Organization Summary: World Report on Disability 2011 World Health Organization Geneva, Switzerland
21. R. Andersen Revisiting the behavioral model and access to medical care: Does it matter J Health Soc Behav 36 1995 1 10
22. R. Andersen, and L.A. Aday Access to medical care in the U.S.: realized and potential Med Care 16 1978 533 546 (Pubitemid 8394846)
23. Medical Home Initiatives for Children With Special Needs Project Advisory Committee. The medical home Pediatrics 110 1 pt 1 2002 184 186
24. Child and Adolescent Health Measurement Initiative 2005/2006 National Survey of Children with Special Health Care Needs SPSS Codebook 2008 Child and Adolescent Health Measurement Initiative Portland, Or
25. P.W. Newacheck, Y.Y. Hung, and K.K. Wright Racial and ethnic disparities in access to care for children with special health care needs Ambul Pediatr 2 2002 247 254
26. S.T. Wong, A. Galbraith, S. Kim, and P.W. Newacheck Disparities in the financial burden of children's healthcare expenditures Arch Pediatr Adolesc Med 159 2005 1008 1013 (Pubitemid 41633357)
27. T.R. Coker, M.A. Rodriguez, and G. Flores Family-centered care for US children with special health care needs: who gets it and why Pediatrics 125 2010 1159 1167
28. J.L. Raphael, B.A. Guadagnolo, A.C. Beal, and A.P. Giardino Racial and ethnic disparities in indicators of a primary care medical home for children Acad Pediatr 9 2009 221 227
29. J.K. Bayer, H. Hiscock, and O.C. Ukoumunne Early childhood aetiology of mental health problems: a longitudinal population-based study J Child Psychol Psychiatry 49 2008 1166 1174
30. R.M. Andersen, A. McCutcheon, and L.A. Aday Exploring dimensions of access to medical care Health Serv Res 18 1983 49 74 (Pubitemid 13053731)
31. R.M. Turchi, M. Gatto, and R. Antonelli Children and youth with special healthcare needs: there is no place like (a medical) home Curr Opin Pediatr 19 2007 503 508 (Pubitemid 47075634)
32. M.D. Kogan, P.W. Newacheck, L. Honberg, and B. Strickland Association Between underinsurance and access to care among children with special health care needs in the United States Pediatrics 116 2005 1162 1169 (Pubitemid 46056422)
33. P.W. Newacheck, M. Inkelas, and S.E. Kim Health services use and health care expenditures for children with disabilities Pediatrics 114 2004 79 85 (Pubitemid 38857569)