Potential triggers for the holistic assessment of people with severe chronic obstructive pulmonary disease: Analysis of multiperspective, serial qualitative interviews

BMJ Supportive and Palliative Care

Volumn 4, Issue 2, 2014, Pages 152-160

  Cawley, Declan ^a   Billings, J ^a   Oliver, D ^a   Kendall, M ^b   Pinnock, H ^b  

^a UNIVERSITY OF KENT   (United Kingdom)

^b UNIVERSITY OF EDINBURGH   (United Kingdom)

Author keywords

[No Author keywords available]

Indexed keywords

EID: 84914670833     PISSN: 2045435X     EISSN: 20454368     Source Type: Journal    
DOI: 10.1136/bmjspcare-2013-000629     Document Type: Article

References (39)

1. Global Initiative for Chronic Obstructive Lung Disease (GOLD). Global Strategy for the Diagnosis, Management and Prevention of COPD. 2013. http://www.goldcopd.org (accessed Apr 2013).
2. National Institute for Health and Clinical Excellence. Management of chronic obstructive pulmonary disease in adults in primary and secondary care ( partial update 2010). http://www.nice.org.uk (accessed Aug 2011).
3. Murray CJ, Lopez AD. Alternative projections of mortality and disability by cause 1990-2020: global burden of disease study. Lancet 1997;349:1498-504.
4. Gore JM, Brophy CJ, Greenstone MA. How well do we care for patients with end stage chronic obstructive pulmonary disease (COPD)? A comparison of palliative care and quality of life in COPD and lung cancer. Thorax 2000;55:1000-6.
5. Habraken JM, Willems DL, de Kort SJ, et al. Health care needs in end-stage COPD: A structured literature review. Pat Ed Counsel 2007;68:121-30.
6. Blinderman CD, Homel P, Billings JA, et al. Symptom distress and quality of life in patients with advanced chronic obstructive pulmonary disease. J Pain Symptom Manage 2009;38:115-23.
7. World Health Organization, WHO Definition of Palliative Care. http://www.who.int/cancer/palliative/definition/en/ (accessed Jun 2013).
8. Nurmatov U, Buckingham S, Kendall M, et al. Effectiveness of holistic interventions for people with severe chronic obstructive pulmonary disease: systematic review of controlled clinical trials. Plos ONE 2012;7:e46433.
9. Hall S, Petkova H, Tsouros AD, et al. Palliative care for older people: better practices. Copenhagen:World Health Organization, 2011. http://www.euro.who.int/en/what-we-publish /abstracts/palliative-care-for-older-people-better-practices (accessed Jun 2013).
10. Lorenz KA, Lynn J, Dy SM, et al. Evidence for improving palliative care at the end of life: a systematic review. Ann Intern Med 2008;148:147-59.
11. Shipman C, Gysels M, White P, et al. Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups. BMJ 2008;337:a1720.
12. Soler-Cataluna JJ, Martinez-Garcia MA, Roman Sanchez P, et al. Severe acute exacerbations and mortality in patients with chronic obstructive pulmonary disease. Thorax 2005;60:925-31.
13. Coventry PA, Grande GE, Richards DA, et al. Prediction of appropriate timing of palliative care for older adults with non-malignant life-threatening disease: a systematic review. Age Ageing 2005;34:218-27.
14. Almagro P, Calbo E, de Echagüen AO, et al. Mortality after hospitalization for COPD. Chest 2002;121:1441-8.
15. Jones R, Donaldson GC, Chavannes NH, et al. Derivation and validation of a composite index of severity in chronic obstructive pulmonary disease the DOSE index. Am J Respir Crit Care Med 2009;180:1189-95.
16. Celli B, MacNeeW, Agusti A, et al. The body-mass index, airflow obstruction, dyspnea, and exercise capacity index in chronic obstructive pulmonary disease. NEngl J Med 2004;350: 1005-12.
17. Giacomini M, DeJean D, Simeonov D, et al. Experiences of living and dying with COPD: a systematic review and synthesis of the qualitative empirical literature. Ont Health Technol Assess Ser 2012;13:1-47.
18. Murray SA, Kendall M, Boyd K, et al. Illness trajectories and palliative care. BMJ 2005;330:1007-11.
19. Connors AF, Dawson NV, Thomas C, et al. Outcomes following acute exacerbation of chronic obstructive lung disease. The SUPPORT investigators. Am J Respir Crit Care Med 1996;154:959-67.
20. Christakis NA, Lamont EB. Extent and determinants of error in doctor's prognosis in terminally ill patients: prospective cohort study. BMJ 2000;320:469-72.
21. Murray SA, Boyd K, Sheikh A. Palliative care in chronic illness. We need to move from prognostic paralysis to active total care. BMJ 2005;330:611-12.
22. Murray S, Pinnock H, Sheikh A. Palliative care for people with COPD: we need to meet the challenge. Prim Care Respir J 2006;15:362-4.
23. Pinnock H, Kendall M, Murray S, et al. Living and dying with severe chronic obstructive pulmonary disease: multi-perspective longitudinal qualitative study. BMJ 2011;342:d142.
24. Thomas C. Cancer narratives and methodological uncertainties. Qualitative Research, 2008;3:423-33.
25. Bell SE. Experiencing illness in/and narrative. In: Bird CE, Conrad P, Fremont AM. eds Handbook of Medical Sociology. 5th Edn. Upper Saddle River, NJ: Prentice Hall, 2000:1509-20.
26. Williams G. The genesis of chronic illness: narrative reconstruction. Soc Health Illn 1984;6:175-200.
27. Lester H, Campbell S. Developing Quality and Outcomes Framework (QOF) indicators and the concept of 'QOFability'. Quality in Primary Care 2010;2:103-9.
28. Hardin KA, Meyers F, Louie S. Integrating palliative care in severe chronic obstructive pulmonary lung disease. COPD 2008;5:207-20.
29. Heaton J. Reworking qualitative data. London: Sage, 2000:1-160.
30. Emslie C, Ridge D, Ziebland S, et al. Men's accounts of depression: reconstructing or resisting hegemonic masculinity? Soc Sci Med 2005;62:2246-57.
31. Mays N, Pope C. Qualitative research in health care: assessing quality in qualitative research. BMJ 2000;320:50-2.
32. Murray SA, Kendall M, Carduff E, et al. Use of serial qualitative interviews to understand patients' evolving experiences and needs. BMJ 2009;339:958-60.
33. Denzin NK. Interpretative interactionism. Newbury Park, CA: Sage Publications, 1989. Pg 83.
34. Boland J, Martin J, Wells UW, et al. Palliative care for people with non-malignant lung disease: summary of current evidence and future direction. Palliative Med 2013;9: 811-16.
35. Lanken PN, Terry PB, Delisser HM, for the American Thoracic Society End-of-Life Care Task Force. An official American Thoracic Society clinical policy statement: Palliative care for patients with respiratory diseases and critical illnesses. Am J Respir Crit Care Med 2008;177:912-27.
36. Rocker G, Sinuft T, Horton R, et al. Advanced chronic obstructive pulmonary disease: innovative approaches to palliation. J Palliative Med 2007;3:783-97.
37. Seamark DA, Seamark CJ, Halpin D. Palliative care in chronic obstructive pulmonary disease: a review for clinicians. J R Soc Med 2007;100:225-33.
38. Habraken JM, Pols J, Bindels JPG, et al. The silence of patients with end-stage COPD: a qualitative study. Br J Gen Pract 2008;58:844-9.
39. Lehman R. How long can I go on like this? Dying from cardiorespiratory disease. Br J Gen Pract 2004;509:892-3.