Patients' perspectives on hemodialysis vascular access: A systematic review of qualitative studies

American Journal of Kidney Diseases

Volumn 64, Issue 6, 2014, Pages 937-953

  Casey, Jordan R ^a,b   Hanson, Camilla S ^a,b   Winkelmayer, Wolfgang C ^c   Craig, Jonathan C ^a,b   Palmer, Suetonia ^d   Strippoli, Giovanni F M ^a,e,f   Tong, Allison ^a,b  

^a UNIVERSITY OF SYDNEY   (Australia)

^b CHILDREN S HOSPITAL AT WESTMEAD   (Australia)

^c STANFORD UNIVERSITY   (United States)

^d UNIVERSITY OF OTAGO   (New Zealand)

^e Diaverum Medical Scientific Office   (Sweden)

^f UNIVERSITY OF BARI   (Italy)

Author keywords

chronic kidney disease; Fistula First; hemodialysis; illness experiences; Patient perspectives; patient centered care; predialysis care; qualitative research; renal replacement therapy (RRT); thematic synthesis; vascular access

Indexed keywords

ARTICLE; BIBLIOGRAPHIC DATABASE; CANNULATION; CHRONIC KIDNEY DISEASE; DEFORMITY; DOCTOR PATIENT RELATION; FEAR; HEMODIALYSIS; HEMODIALYSIS PATIENT; HUMAN; PATIENT ATTITUDE; PERCEPTION; PERSONAL EXPERIENCE; QUALITATIVE RESEARCH; STIGMA; SYSTEMATIC REVIEW; THEMATIC ANALYSIS; VASCULAR ACCESS; ATTITUDE TO HEALTH; CATHETERIZATION; CENTRAL VENOUS CATHETER; DEVICES; PATIENT PREFERENCE; PROCEDURES; PSYCHOLOGY; RENAL INSUFFICIENCY, CHRONIC; RENAL REPLACEMENT THERAPY;

CATHETERIZATION; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; PATIENT PREFERENCE; RENAL DIALYSIS; RENAL INSUFFICIENCY, CHRONIC; VASCULAR ACCESS DEVICES;

EID: 84911451233     PISSN: 02726386     EISSN: 15236838     Source Type: Journal    
DOI: 10.1053/j.ajkd.2014.06.024     Document Type: Article

References (91)

1. H. Feldman, P. Held, J. Hutchinson, E. Stoiber, M. Hartigan, and J. Berlin Hemodialysis vascular access morbidity in the United States Kidney Int 43 5 1993 1091 1096
2. H. Feldman, S. Kobrin, and A. Wasserstein Hemodialysis vascular access morbidity J Am Soc Nephrol 7 4 1996 523 535
3. M.J. Oliver, D.N. Rothwell, K. Fung, J.E. Hux, and C.E. Lok Late creation of vascular access for hemodialysis and increased risk of sepsis J Am Soc Nephrol 15 7 2004 1936 1942
4. J. Avorn, W.C. Winkelmayer, and R.L. Bohn Delayed nephrologist referral and inadequate vascular access in patients with advanced chronic kidney failure J Clin Epidemiol 55 7 2002 711 716
5. M. Gorji, A. Mahdavi, and Y. Janati Physiological and psychosocial stressors among hemodialysis patients in educational hospitals of Northern Iran Indian J Palliat Care 19 3 2013 166 169
6. J.L. Welch, and J.K. Austin Factors associated with treatment-related stressors in hemodialysis patients ANNA J 26 3 1999 318 325
7. S. Pastan, J.M. Soucie, and W.M. McClellan Vascular access and increased risk of death among hemodialysis patients Kidney Int 62 2 2002 620 626
8. K.R. Polkinghorne, S.P. McDonald, R.C. Atkins, and P.G. Kerr Vascular access and all-cause mortality: a propensity score analysis J Am Soc Nephrol 15 2 2004 477 486
9. A. Moura, J. Madureira, and P. Alija Type of vascular access and location in online hemodiafiltration and its association with patient's perception of health-related quality of life J Vasc Access 15 3 2014 175 182
10. W. Xi, L. Harwood, and M.J. Diamant Patient attitudes towards the arteriovenous fistula: a qualitative study on vascular access decision making Nephrol Dial Transplant 26 10 2011 3302 3308
11. H. Wasse, N. Kutner, R. Zhang, and Y. Huang Association of initial hemodialysis vascular access with patient-reported health status and quality of life Clin J Am Soc Nephrol 2 4 2007 708 714
12. IPRO ESRD Network Coordinating Center. Fistula First. http://fistulafirst.org/AboutFistulaFirst/FisultaFirstCatheterLastFFCLData.aspx. 2014. Accessed May 1, 2014.
13. Arbor Research Collaborative for Health. DOPPS Practice Monitor. February 2014. http://www.dopps.org/DPM/DPMSlideBrowser.aspx?type=Topic&id=18. Accessed May 1, 2014.
14. A. Gomes, R. Schmidt, and J. Wish Re-envisioning Fistula First in a patient-centered culture J Am Soc Nephrol 8 10 2013 1791 1797
15. E. Lacson Jr., J. Lazarus, J. Himmelfarb, T. Ikizler, and R. Hakim Balancing Fistula First with catheters last Am J Kidney Dis 50 3 2007 379 395
16. National Kidney Foundation KDOQI clinical practice guidelines for vascular access Am J Kidney Dis 48 suppl 1 2006 S176 S247
17. A.W. Williams, A.C. Dwyer, and A.A. Eddy Critical and honest conversations: the evidence behind the "Choosing Wisely" campaign recommendations by the American Society of Nephrology Clin J Am Soc Nephrol 7 10 2012 1664 1672
18. C. Schneider Patients, Doctors, and Medical Decisions 1998 Oxford University Press New York, NY
19. M.K. Tamura, M.K. Goldstein, and E.J. Perez-Stable Preferences for dialysis withdrawal and engagement in advance care planning within a diverse sample of dialysis patients Nephrol Dial Transplant 25 1 2010 237 242
20. M.K. Giacomini, and D.J. Cook Users' guides to the medical literature: XXIII. Qualitative research in health care A. Are the results of the study valid? Evidence-Based Medicine Working Group JAMA 284 3 2000 357 362
21. J. Thomas, and A. Harden Methods for the thematic synthesis of qualitative research in systematic reviews BMC Med Res Methodol 8 1 2008 45
22. Tong A, Winkelmayer WC, Craig JC. Qualitative research in CKD: an overview of methods and applications [published online ahead of print April 22, 2014]. Am J Kidney Dis. http://dx.doi.org/10.1053/j.ajkd.2014.02.026.
23. A. Tong, K. Flemmin, E. McInnes, S. Oliver, and J.C. Craig Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ BMC Med Res Methodol 12 2012 181
24. A. Tong, P. Sainsbury, and J.C. Craig Consolidated Criteria for Reporting Qualitative Research (COREQ): a 32-item checklist for interviews and focus groups Int J Qual Health Care 19 6 2007 349 357
25. C.J. Richard Living With an Arterio-Venous Fistula for Hemodialysis 2008 University of Texas Health Science Center Houston, TX
26. C.J. Richard, and J. Engebretson Negotiating living with an arteriovenous fistula for hemodialysis Nephrol Nurs J 37 4 2010 363 374
27. M.C. Chen The Experiences of ESRD Patients' Decision-Making Process and Adaptation to a Dialysis Treatment Modality in Taiwan 2007 The Catholic University of America Washington, DC
28. C. Herlin, and C. Wann-Hansson The experience of being 30-45 years of age and depending on haemodialysis treatment: a phenomenological study Scand J Caring Sci 24 4 2010 693 699
29. M.T. Bevan Experiencing Dialysis: A Descriptive Phenomenological Study of Nurses and Patients in Dialysis Satellite Units 2007 University of Huddersfield Huddersfield, United Kingdom
30. J. Buck Barriers to the Elective Start of Renal Replacement Therapy: What Are They, Why Do They Occur and How Can We Overcome Them? 2009 University of Leicester Leicester, United Kingdom
31. A. Tong, P. Sainsbury, and S.M. Carter Patients' priorities for health research: focus group study of patients with chronic kidney disease Nephrol Dial Transplant 23 10 2008 3206 3214
32. E.J. Gordon Patients' decisions for treatment of end-stage renal disease and their implications for access to transplantation Soc Sci Med 53 8 2001 971 987
33. A.A. Whittaker, and B.J. Albee Factors influencing patient selection of dialysis treatment modality ANNA J 23 4 1996 369 375
34. S. Giles Transformations: a phenomenological investigation into the life-world of home haemodialysis Soc Work Health Care 38 2 2003 29 50
35. D.M. Brekenridge Patient's Choice...Is It? A Qualitative Study of Patients' Perceptions of Why, How, and By Whom Dialysis Treatment Modality Was Chosen 1995 University of Maryland Baltimore, MD
36. D.M. Brekenridge Patient's perceptions of why, how, and by whom dialysis treatment modality was chosen ANNA J 24 3 1997 313 319
37. M.L. Feild Patient Decision Making Regarding Life-Sustaining Treatment for End-Stage Renal Disease 1996 Boston College Boston, MA
38. H.J. Beanlands Engulfment Among Adults With Chronic Renal Disease: A Study of Self-loss and Its Correlates 2001 University of Toronto Toronto, Canada
39. C. Piyasut Thai Patient's Experiences of End-Stage Renal Disease: A Path Through an Unknown World 2010 University of San Diego San Diego, CA
40. C.M. Kierans, and N. Maynooth Sensory and narrative identity: the narration of illness process among chronic renal sufferers in Ireland Anthropol Med 8 2-3 2001 237 253
41. M.S. Tijerina Mexican-American Women's Perspective on End-Stage Renal Disease and the Hemodialysis Regimen: Psychosocial Influences on Compliance With Treatment Recommendations 2000 University of Texas Houston, TX
42. T.D. Bordelon An Examination of Empowerment at a Kidney Center as Experienced by Persons Who Recieve Hemodilaysis Treatment for End-Stage Renal Disease 1997 Montana State University Bozeman, MT
43. J.A. Cafazzo Facilitating Patient Self-Care Through Remote Patient Monitoring: Validation, Design, and Evaluation of an Intervention for Nocturnal Hemodialysis 2007 University of Toronto Toronto, Canada
44. P. Quinan Interview with Robert Holota - dialysis patient for the past 41 years CANNT J 18 3 2008 100
45. D.M.A. Fetherstonhaugh Hobson's Choice: Dialysis OR THE Coffin. A Study of Dialysis Decision-Making Amongst Older People 2007 University of Melbourne Melbourne, Australia
46. M.-L. Ekelund, and S.I. Andersson "I need to lead my own life in any case" - a study of patients in dialysis with or without a partner Patient Educ Couns 81 1 2010 30 36
47. S. Al-Arabi Quality of life: subjective descriptions of challenges to patients with end stage renal disease Nephrol Nurs J 33 3 2006 285 292
48. E. Bass, M. Jenckes, and N. Fink Use of focus groups to identify concerns about dialysis. Choice Study Med Decis Making 19 3 1999 287 295
49. A. Tong, G. Wong, and S. McTaggart Quality of life of young adults and adolescents with chronic kidney disease J Pediatr 163 4 2013 1179 1185
50. R.L. Morton, A. Tong, K. Howard, P. Snelling, and A.C. Webster The views of patients and carers in treatment decision making for chronic kidney disease: systematic review and thematic synthesis of qualitative studies BMJ 340 2010 c112
51. A.E. Tweed, and K. Ceaser Renal replacement therapy choices for pre- dialysis renal patients Br J Nurs 14 12 2005 659 664
52. W.H. Bay, S. Van Cleef, and M. Owens The hemodialysis access: preferences and concerns of patients, dialysis nurses and technicians, and physicians Am J Nephrol 18 5 1998 379 383
53. A. Lai, A. Loh, N. Mooppil, D. Krishnan, and K. Griva Starting on haemodialysis: a qualitative study to explore the experience and needs of incident patients Psychol Health Med 17 6 2012 674 684
54. K.L. Cavanaugh, R.L. Wingard, R.M. Hakim, T.A. Elasy, and T.A. Ikizler Patient dialysis knowledge is associated with permanent arteriovenous access use in chronic hemodialysis Clin J Am Soc Nephrol 4 5 2009 950 956
55. D. Cukor, N. Ver Halen, and D. Asher Psychosocial intervention improves depression, quality of life, and fluid adherence in hemodialysis J Am Soc Nephrol 25 1 2014 196 206
56. P. Duarte, M. Miyazaki, S. Blay, and R. Sesso Cognitive-behavioral group therapy is an effective treatment for major depression in hemodialysis patients Kidney Int 76 4 2009 414 421
57. N. Smart, and T. Titus Outcomes of early versus late nephrology referral in chronic kidney disease: a systematic review Am J Med 124 11 2011 1073 1080
58. M. Chaudhry, C. Bhola, and M. Joarder Seeing eye to eye: the key to reducing catheter use J Vasc Access 12 2 2011 120 126
59. B. Axley, and A. Rosenblum Learning why patients with central venous catheters resist permanent access placement Nephrol Nurs J 39 2 2012 99 103
60. B. Wilson, L. Harwood, A. Oudshoorn, and B. Thompson The culture of vascular access cannulation among nurses in a chronic hemodialysis unit CANNT J 20 3 2010 35 42
61. B. Wilson, L. Harwood, and A. Oudshoorn Moving beyond the "perpetual novice": understanding the experiences of novice hemodialysis nurses and cannulation of the arteriovenous fistula CANNT J 23 1 2013 11 18
62. L. Ball Improving arteriovenous fistula cannulation skills Nephrol Nurs J 32 6 2005 611 617
63. D. Brouwer Needle placement is paramount to achieving effective dialysis and preserving vascular accesses Nephrol Nurs J 32 2 2005 225 227
64. C. Schinstock, R. Albright, and A. Williams Outcomes of arteriovenous fistula creation after the Fistula First Initiative Clin J Am Soc Nephrol 6 8 2011 1996 2002
65. S. Tsay, and M. Healstead Self-care self-efficacy, depression, and quality of life among patients receiving hemodialysis in Taiwan Int J Nurs Stud 39 3 2002 245 251
66. C.E. Lok Fistula First Initiative: advantages and pitfalls Clin J Am Soc Nephrol 2 5 2007 1043 1053
67. S.M. Shechter, M.R. Skandari, and N. Zalunardo Timing of arteriovenous fistula creation in patients with CKD: a decision analysis Am J Kidney Dis 63 1 2014 95 103
68. R. Ramos, and M. Molina New models of integrated health care management in nephrology Nefrologia 33 3 2013 301 307
69. Y. Slinin, H. Guo, and S. Li Provider and care characteristics associated with timing of dialysis initiation Clin J Am Soc Nephrol 9 2 2014 310 317
70. O. Lenz, S. Sadhu, A. Fornoni, and A. Asif Overutilization of central venous catheters in incident hemodialysis patients: reasons and potential resolution strategies Semin Dial 19 6 2006 543 550
71. F.W. Maddux, S. McMurray, and A.R. Nissenson Toward population management in an integrated care model Clin J Am Soc Nephrol 8 4 2013 694 700
72. J.A. Cafazzo, K. Leonard, A.C. Easty, P.G. Rossos, and C.T. Chan Patient-perceived barriers to the adoption of nocturnal home hemodialysis Clin J Am Soc Nephrol 4 4 2009 784 789
73. D. Calvey, and L. Mee The lived experience of the person dependent on haemodialysis J Ren Care 37 4 2011 201 207
74. J.D. Cohen The Experience of Living on Maintenance Hemodialysis for Twenty Years and Beyond: Impact on the Patient and the Family 1995 The Union Graduate School Cincinnati, OH
75. T. Costello Conceptions of Illness and Adaptation in Adults With End-Stage Renal Disease: A Partnership Model of Inquiry 1999 Boston College Boston, MA
76. S.C. Curren Problem Solving and Coping Strategies Leading to Salutary Outcomes of Hemodialysis in Well Functioning Adults 1997 Institute for Clinical Social Work Chicago, IL
77. B.C. Curtin, D.L. Mapes, M. Petillo, and E. Oberley Long-term dialysis survivors: a transformational experience Qual Health Res 12 5 2002 609 624
78. Fatani EMS. Impact of End-Stage Renal Failure on the Everyday Life of Saudi Arabian Women. Surrey, United Kingdom: University of Surrey 2008.
79. C.A. Ford-Anderson The Impact of Demographics, Social Support and Health Beliefs on Adherence to Hemodialysis Treatment Regimen 2010 Yeshiva University New York, NY
80. M.H. Gibson The Quality of Life of Adult Hemodialysis Patients 1995 University of Texas Houston, TX
81. B. Hagren, I.M. Pettersen, E. Severinsson, K. Lutzen, and N. Clyne The haemodialysis machine as a lifeline: experiences of suffering from end-stage renal disease J Adv Nurs 34 2 2001 196 202
82. B. Hagren, I.M. Pettersen, E. Severinsson, K. Lutzen, and N. Clyne Maintenance haemodialysis: patients' experiences of their life situation J Clin Nurs 14 3 2005 294 300
83. J. Hughes, E. Wood, and G. Smith Exploring kidney patients' experiences of receiving individual peer support Health Expect 12 4 2009 396 406
84. S.L. Humphreys Shifting Life's Focus: African American Dialysis Patients' Experiences With Kidney Transplant Evaluation 2011 George Mason University Fairfax, VA
85. J.M. Ivie Developing an in-house resource for clinical social work services in the dialysis setting: a pilot program Adv Chronic Kidney Dis 13 3 2006 295 306
86. R. Morton, A. Tong, A. Webster, P. Snelling, and K. Howard Characteristics of dialysis important to patients and family caregivers: a mixed methods approach Nephrol Dial Transplant 26 12 2011 4038 4046
87. N. Polaschek Living on dialysis: concerns of clients in a renal setting J Adv Nurs 41 1 2003 44 52
88. A.J. Russ, J.K. Shim, and S.R. Kaufman "Is there life on dialysis?": time and aging in a clinically sustained existence Med Anthropol 24 4 2005 297 324
89. C.A. Schaumberg Subjective Quality of Life in Dialysis Dependent End Stage Renal Disease Patient 2012 University of Missoula, MT Missoula, MT
90. L.C. Shih, and M. Honey The impact of dialysis on rurally based Ma¯ori and their wha¯nau/families Nurs Prax N Z 27 2 2011 4 15
91. S.A. Wells Occupational Performance of Mexican Americans With End-Stage Renal Disease Living on Dialysis in the Lower Rio Grande Valley 2009 University of Texas Houston, TX