Quality of life of young adults and adolescents with chronic kidney disease

Journal of Pediatrics

Volumn 163, Issue 4, 2013, Pages

  Tong, Allison ^a,b   Wong, Germaine ^b,c   McTaggart, Steve ^d   Henning, Paul ^e   Mackie, Fiona ^f   Carroll, Robert P ^g   Howard, Kirsten ^b   Craig, Jonathan C ^a,b  

^a CHILDREN S HOSPITAL AT WESTMEAD   (Australia)

^b UNIVERSITY OF SYDNEY   (Australia)

^c WESTMEAD HOSPITAL   (Australia)

^d MATER CHILDREN S HOSPITAL   (Australia)

^e WOMEN S AND CHILDREN S HOSPITAL   (Australia)

^f SYDNEY CHILDREN'S HOSPITAL   (Australia)

^g ROYAL ADELAIDE HOSPITAL   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ADOLESCENT; ADOLESCENT DISEASE; ADULT; ADULT DISEASE; ARTICLE; CHILD; CHRONIC KIDNEY DISEASE; CLINICAL ARTICLE; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; FEMALE; HUMAN; MALE; MULTICENTER STUDY; PRIORITY JOURNAL; SCHOOL CHILD; SHORT FORM 12; VISUAL ANALOG SCALE;

EID: 84884671963     PISSN: 00223476     EISSN: 10976833     Source Type: Journal    
DOI: 10.1016/j.jpeds.2013.04.066     Document Type: Article

References (30)

1. S.P. McDonald, and J.C. Craig Long-term survival of children with end-stage renal disease New Eng J Med 350 2004 2654 2662
2. L. Tjaden, A. Tong, P. Henning, J. Groothoff, and J.C. Craig Children's experiences of dialysis: a systematic review of qualitative studies Arch Dis Child 97 2012 395 402
3. M.E. Roumelioti, A. Wentz, M.F. Schneider, A.C. Gerson, S. Hooper, and M. Benfield Sleep and fatigue symptoms in children and adolescents with CKD: a cross-sectional analysis from the chronic kidney disease in children (CKiD) study Am J Kidney Dis 55 2010 269 280
4. J. Heath, D. MacKinley, A.R. Watson, A. Hames, L. Wirz, and S. Scott Self-reported quality of life in children and young people with chronic kidney disease Pediatr Nephrol 26 2011 767 773
5. G.W. Torrance Measurement of quality of life for economic appraisal J Health Econ 5 1986 1 30
6. A. Tong, L. Tjaden, K. Howard, G. Wong, R. Morton, and J.C. Craig Quality of life of adolescent kidney transplant recipients J Pediatr 159 2011 670 675
7. M. Wyld, R.L. Morton, A. Hayen, K. Howard, and A.C. Webster A systematic review and meta-analysis of utility-based quality of life in chronic kidney disease treatments PLOS Med 9 2012 e1001307
8. J. Horsman, W. Furlong, and D.A. Walker The health utilities index (HUI): concepts, measurement properties and applications Health Qual Life Outcomes 1 2006 54
9. R.D. Hays, J.D. Kallich, D.L. Mapes, S.J. Coons, and W.B. Carter Development of the Kidney Disease Quality of Life (KDQOL) instrument Qual Life Res 3 1994 329 338
10. J.E. Ware, M. Kosinski, and S.D. Keller How to score the SF-12 physical and mental health summary scales 3rd ed. 1998 The Health Institute, New England Medical Center Boston, MA
11. E. Lacson, J. Xu, S. Lin, S.G. Dean, J.M. Lazarus, and R.M. Hakim A comparison of SF-36 and SF-12 composite scores and subsequent hospitalization and mortality risks in long-term dialysis patients Clin J Am Soc Nephrol 5 2009 252 260
12. M.S. Yi, M.T. Britto, R.W. Wilmott, U.R. Kotagal, M.H. Eckman, and D.W. Nielson Health values of adolescents with cystic fibrosis J Paediatr Psychol 142 2003 133 140
13. L.A. Lenert, D.J. Cher, M.L. Goldstein, M.E. Bergen, and A. Garber The effect of search procedures on utility elicitations Med Dec Making 18 1998 76 83
14. G. Wong, K. Howard, J.R. Chapman, C. Pollock, S. Chadban, and G. Salkeld How do people with chronic kidney disease value cancer-related quality of life? Nephrology 17 2012 32 41
15. Y.S. Liem, J.L. Bosche, and M.G. Hunink Preference-based quality of life of patients on renal replacement therapy: a systematic review and meta-analysis Value Health 11 2008 733 741
16. J.H. Macdonald, L. Fearn, M. Jibani, and S.M. Marcora Exertional fatigue in patients with CKD Am J Kidney Dis 60 2012 930 939
17. S.D. Cohen, S.S. Patel, P. Khetpal, R.A. Peterson, and P.L. Kimmel Pain, sleep disturbance, and quality of life in patients with chronic kidney disease Clin J Am Soc Nephrol 2 2007 919 925
18. K.J. Stevens Working with children to develop dimensions for a preference-based, generic, pediatric health-related quality of life measure Qual Health Res 20 2010 340 351
19. K.M. Beusterien Development of the multi-attribute adolescent health utility measure (AHUM) Health Qual Life Outcomes 10 2012 102
20. J. Richardson, N. Day, G. Hawthorne, S. Peacock, and A. Iezzi AQoL-6D questionnaire Center for Health Economics 2009 Monash University Victoria, Australia
21. K. Griva, N. Mooppil, P. Seet, D.S. Krishnan, H. James, and S.P. Newman The NKF-NUS hemodialysis trial protocol: a randomized controlled trial to determine the effectiveness of a self mana gement intervention for hemodialysis patients BMC Nephrol 12 2011 4
22. J.N. Stinson, P.J. McGrath, E.D. Hodnett, B.M. Feldman, C.M. Duffy, and A.M. Huber An internet-based self-management program with telephone support for adolescents with arthritis: a pilot randomized controlled trial J Rheumatol 37 2010 1944 1952
23. S.D. Kauer, S.C. Reid, A.H. Crooke, A. Khor, S.J. Hearps, and A.F. Jorm Self-monitoring using mobile phones in the early stages of adolescent depression: randomized controlled trial J Med Internet Res 14 2012 e67
24. V.L. Franklin, A. Greene, A. Waller, S.A. Greene, and C. Pagliari Patients' engagement with "Sweet Talk" - a text messaging support system for young people with diabetes J Med Internet Res 10 2008 e20
25. S. Boini, L. Frimat, M. Kessler, S. Briançon, and N. Thilly Predialysis therapeutic care and health-related quality of life at dialysis onset (The pharmacoepidemiologic AVENIR study) Health Qual Life Outcomes 9 2011 7
26. UK Renal Registry The Thirteenth Annual Report 2010 The Renal Association Bristol, England
27. S. Ajarmeh, L. Er, G. Brin, O. Djurdjev, and J.M. Dionne The effect of a multidisciplinary care clinic on the outcomes in pediatric chronic kidney disease Pediatr Nephrol 27 2012 1921 1927
28. S.M. Sawyer, S. Drew, M.S. Yeo, and M.T. Britto Adolescents with a chronic condition: challenges living, challenges treating Lancet 369 2007 1481 1489
29. A. Tong, G. Wong, E. Hodson, R.G. Walker, L. Tjaden, and J.C. Craig Adolescent views on transition in diabetes and nephrology Eur J Paediatr 172 2012 293 330
30. P.N. Harden, G. Walsh, N. Bandler, S. Bradley, D. Lonsdale, and J. Taylor Bridging the gap: an integrated paediatric to adult clinical service for young adults with kidney failure Br Med J 344 2012 e3718