Variables associated to quality of life among nursing home patients with dementia

Aging and Mental Health

Volumn 18, Issue 8, 2014, Pages 1013-1021

  Mjørud, Marit ^a   Kirkevold, Marit ^b   Røsvik, Janne ^a   Selbæk, Geir ^a,c,d   Engedal, Knut ^a  

^a VESTFOLD HOSPITAL TRUST   (Norway)

^b UNIVERSITY OF OSLO   (Norway)

^c INNLANDET HOSPITAL TRUST   (Norway)

^d AKERSHUS UNIVERSITY HOSPITAL   (Norway)

Author keywords

dementia; neuropsychiatric symptoms; nursing home; psychotropic drugs; quality of life

Indexed keywords

AGED; APATHY; CLINICAL TRIAL; CROSS-SECTIONAL STUDY; DAILY LIFE ACTIVITY; DEMENTIA; FEMALE; HUMAN; MALE; MULTICENTER STUDY; NORWAY; NURSING HOME; PATHOPHYSIOLOGY; PHYSIOLOGY; PSYCHOLOGY; QUALITY OF LIFE; VERY ELDERLY;

ACTIVITIES OF DAILY LIVING; AGED; AGED, 80 AND OVER; APATHY; CROSS-SECTIONAL STUDIES; DEMENTIA; FEMALE; HUMANS; MALE; NORWAY; NURSING HOMES; QUALITY OF LIFE;

EID: 84908567075     PISSN: 13607863     EISSN: 13646915     Source Type: Journal    
DOI: 10.1080/13607863.2014.903468     Document Type: Article

References (54)

1. Banerjee, S., Samsi, K., Petrie, C.D., Alvir, J., Treglia, M., Schwam, E.M., & Valle, M. (2009). What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health related quality of life in people with dementia. International Journal of Geriatric Psychiatry, 25, 15-24. doi:10.1002/gps.2090
2. Barca, M.L., Engedal, K., Laks, J., & Selbaek, G. (2011). Quality of life among elderly patients with dementia in institutions. Geriatric Cognitive Disorders, 31(6), 435-442. doi:000328969 [pii] 10.1159/000328969
3. Barca, M.L., Selbæk, G., Laks, J., & Engedal, K. (2009). Factors associated with depression in Norwegian nursing homes. Journal of Geriatric Psychiatry, 24(4), 417-425. doi:10.1002/ gps.2139
4. Beer, C., Flicker, L., Horner, B., Bretland, N., Scherer, S., Lautenschlager, N.T., . . . Almeida, O.P. (2010). Factors associated with self and informant ratings of the quality of life of people with dementia living in care facilities: A cross sectional study. PLoS One, 5(12), e15621. doi:10.1371/ journal.pone.0015621
5. Beerens, H.C., Zwakhalen, S.M., Verbeek, H., Ruwaard, D., & Hamers, J.P. (2013). Factors associated with quality of life of people with dementia in long-term care facilities: A systematic review. International Journal of Nursing Studies, 50(9), 1259-1270. doi:S0020-7489(13)00044-8 [pii] 10.1016/j.ijnurstu.2013.02.005
6. Bruvik, F.K., Ulstein, I.D., Ranhoff, A.H., & Engedal, K. (2012). The quality of life of people with dementia and their family carers. Geriatric Cognitive Disorders, 34(1), 7-14. doi:000341584 [pii] 10.1159/000341584
7. Cadigan, R.O., Grabowski, D.C., Givens, J.L., & Mitchell, S.L. (2012). The quality of advanced dementia care in the nursing home: The role of special care units. Med Care, 50(10), 856-862. doi:10.1097/MLR.0b013e31825dd713 [pii] 00005650-201210000-00006
8. Cummings, J.L., Mega, M., Gray, K., Rosenberg-Thompson, S., Carusi, D.A., & Gornbein, J. (1994). The neuropsychiatric inventory: Comprehensive assessment of psychopathology in dementia. Neurology, 44, 2308-2314.
9. Engedal, K., & Haugen, P.K. (1993). The prevalence of dementia in a sample of elderly Norwegians. International Journal of Geriatric Psychiatry, 8, 565-570.
10. Ettema, T.P., Droes, R.M., de Lange, J., Mellenbergh, G.J., & Ribbe, M.W. (2007). QUALIDEM: Development and evaluation of a dementia specific quality of life instrument validation. International Journal of Geriatric Psychiatry, 22(5), 424-430. doi:10.1002/gps.1692
11. Fillenbaum, G.G., Peterson, B., & Morris, J.C. (1996). Estimating the validity of the clinical Dementia Rating Scale: The CERAD experience. Consortium to Establish a Registry for Alzheimer's Disease. Aging (Milano), 8(6), 379-385.
12. Garre-Olmo, J., Planas-Pujol, X., Lopez-Pousa, S., Weiner, M. F., Turon-Estrada, A., Juvinya, D., . . . Vilalta-Franch, J. (2010). Cross-cultural adaptation and psychometric validation of a Spanish version of the Quality of Life in Late-Stage Dementia Scale. Quality of Life Research, 19(3), 445-453. doi:10.1007/s11136-010-9594-8
13. Gerritsen, D.L., Jongenelis, K., Steverink, N., Ooms, M.E., & Ribbe, M.W. (2005). Down and drowsy? Do apathetic nursing home residents experience low quality of life? Aging & Mental Health, 9(2), 135-141. doi:10.1080/ 13607860412331336797
14. Gonzalez-Salvador, T., Lyketsos, C.G., Baker, A., Hovanec, L., Roques, C., Brandt, J., & Steele, C. (2000). Quality of life in dementia patients in long-term care. International Journal of Geriatric Psychiatry, 15(2), 181-189.
15. Hoe, J., Hancock, G., Livingston, G., & Orrell, M. (2006). Quality of life of people with dementia in residential care homes. British Journal of Psychiatry, 188, 460-464. doi:188/5/460 [pii] 10.1192/bjp.bp.104.007658
16. Hoe, J., Hancock, G., Livingston, G., Woods, B., Challis, D., & Orrell, M. (2009). Changes in the quality of life of people with dementia living in care homes. Alzheimer Disease and Associated Disorders, 23(3), 285-290.
17. Hoe, J., Katona, C., Orrell, M., & Livingston, G. (2007). Quality of life in dementia: Care recipient and caregiver perceptions of quality of life in dementia: The LASER-AD study. International Journal of Geriatric Psychiatry, 22(10), 1031-1036. doi:10.1002/gps.1786
18. Hoe, J., Katona, C., Roch, B., & Livingston, G. (2005). Use of the QOL-AD for measuring quality of life in people with severe dementia- the LASER-AD study. Age & Ageing, 34, 130-135. doi:10.1093/ageing/afi030
19. Hughes, C.P., Berg, L., Danziger, W.L., Coben, L.A., & Martin, R.L. (1982). A new clinical scale for the staging of dementia. British Journal of Psychiatry, 140, 566-572.
20. Hurt, C., Bhattacharyya, S., Burns, A., Camus, V., Liperoti, R., Marriott, A., . . . Byrne, E.J. (2008). Patient and caregiver perspectives of quality of life in dementia. An investigation of the relationship to behavioural and psychological symptoms in dementia. Geriatric Cognitive Disorders, 26(2), 138-146. doi:000149584 [pii] 10.1159/000149584
21. Jongenelis, K., Pot, A.M., Eisses, A.M., Beekman, A.T., Kluiter, H., & Ribbe, M.W. (2004). Prevalence and risk indicators of depression in elderly nursing home patients: The AGED study. Journal of Affective Disorders, 83(2-3), 135-142. doi:10.1016/j.jad.2004.06.001
22. Kaufer, D.I., Cummings, J.L., Ketchel, P., Smith, V., MacMillan, A., Shelley, T., . . . DeKosky, S.T. (2000). Validation of the NPI-Q, a brief clinical form of the Neuropsychiatric Inventory. Journal of Neuropsychiatry and the Clinical Neurosciences, 12(2), 233-239.
23. Kirkevold, ;. (2005). Use of restraints in Norwegian nursing homes, focusing on persons with dementia. Oslo: Faculty of Medicine, University of Oslo.
24. Lawton, M.P. (1994). Quality of life in Alzheimer disease. Alzheimer Disease and Associated Disorders, 8 (Suppl 3), 138-150.
25. Lawton, M.P., & Brody, E.M. (1969). Assessment of older people: Self-maintaining and instrumental activities of daily living. Gerontologist, 9, 179-186.
26. Leon-Salas, B., Olazaran, J., Cruz-Orduna, I., Aguera-Ortiz, L., Dobato, J.L., Valenti-Soler, M., . . . Martinez-Martin, P. (2013). Quality of life (QOL) in community-dwelling and institutionalized Alzheimer's disease (AD) patients. Archives of Gerontology and Geriatrics, 57(3), 257-262. doi:10.1016/j.archger.2013.04.013
27. Logsdon, R.G., Gibbons, L.E., McCurry, S.M., & Teri, L. (2002). Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine, 64(3), 510-519.
28. Lyketsos, C.G., & Olin, J. (2002). Depression in Alzheimer's disease: Overview and treatment. Society of Biological Psychiatry, 52, 243-252.
29. Lyketsos, C.G., Steinberg, M., Tschanz, J.T., Norton, M.C., Steffens, D.C., & Breitner, J.C. (2000). Mental and behavioral disturbances in dementia: Findings from the Cache County Study on Memory in Aging. American Journal of Psychiatric, 157(5), 708-714.
30. Martin-Cook, K., Hynan, L.S., Rice-Koch, K., Svetlik, D.A., & Weiner, M.F. (2005). Responsiveness of the quality of life in late-stage dementia scale to psychotropic drug treatment in late-stage dementia. Geriatric Cognitive Disorders, 19 (2-3), 82-85. doi:82353 [pii] 10.1159/000082353
31. McKeith, I.G., Dickson, D.W., Lowe, J., Emre, M., O'Brien, J. T., Feldman, H., . . . Yamada, M. (2005). Diagnosis and management of dementia with Lewy bodies: Third report of the DLB Consortium. Neurology, 65(12), 1863-1872. doi:01.wnl.0000187889.17253.b1 [pii] 10.1212/01.wnl.0000187889.17253.b1
32. Mjørud, M., Kirkevold, M., Røsvik, J., & Engedal, K. (2013). Principal component analysis of the Norwegian version of the quality of life in late stage dementia (QUALID) scale. Dementia Geriatric Cognitive Disorders, 37(5-6), 265-275.
33. Moyle, W., & Murfield, J.E. (2013). Health-related quality of life in older people with severe dementia: Challenges for measurement and management. Expert Review of Pharmacoeconomics & Outcomes Research, 13(1), 109-122. doi:10.1586/erp.12.84
34. Nakanishi, K., Hanihara, T., Mutai, H., & Nakaaki, S. (2011). Evaluating the quality of life of people with dementia in residential care facilities. Geriatric Cognitive Disorders, 32(1), 39-44. doi:10.1159/000329443
35. Neary, D., Snowden, J.S., Gustafson, L., Passant, U., Stuss, D., Black, S., . . . Benson, D.F. (1998). Frontotemporal lobar degeneration: A consensus on clinical diagnostic criteria. Neurology, 51(6), 1546-1554.
36. Nygaard, H.A., & Ruths, S. (2003). Missing the diagnosis: Senile dementia in patients admitted to nursing homes. Scandinavian Journal of Primary Health Care, 21, 148-152.
37. Næss, S., Mastekaasa, A., Moum, T., & Sørensen, T. (2001). Livskvalitet som psykisk velvære [Quality of life as psychological wellbeing]. Norsk institutt for forskning om oppvekst, velferd og aldring (NOVA). (pp. 3-146). Oslo: Centre for Welfare and Labour Research.
38. O'Bryant, S.E., Waring, S.C., Cullum, C.M., Hall, J., Lacritz, L., Massman, P.J., . . . Texas Alzheimer's Research, Consortium. (2008). Staging dementia using Clinical Dementia Rating Scale Sum of Boxes scores: A Texas Alzheimer's Research Consortium study. Archives of Nneurology, 65(8), 1091-1095. doi:10.1001/archneur.65.8.1091
39. Rabins, P.V., Kasper, J.D., Kleinman, L., Black, B.S., & Patrick, D.L. (1999). Concepts and methods in development of the ADRQL: An instrument for assessing health-related quality of life in persons with Alzheimer's disease. Journal of Mental Health and Aging, 5(1), 33-48.
40. Rokstad, A.M., Rosvik, J., Kirkevold, O., Selbaek, G., Saltyte Benth, J., & Engedal, K. (2013). The effect of person-centred dementia care to prevent agitation and other neuropsychiatric symptoms and enhance quality of life in nursing home patients: A 10-month randomized controlled trial. Geriatric Cognitive Disorders, 36(5-6), 340-353. doi:10.1159/000354366
41. Røen, I. (2009). The reliability and validity of the Norwegian version of the Quality of Life in Late-stage Dementia (QUALID) scale. Paper presented at the IPA, Montreal, September.
42. Schiffczyk, C., Romero, B., Jonas, C., Lahmeyer, C., Muller, F., & Riepe, M.W. (2010). Generic quality of life assessment in dementia patients: A prospective cohort study. BioMedCentral Neurology, 10, 48. doi:10.1186/1471-2377-10-48
43. Selbaek, G., & Engedal, K. (2012). Stability of the factor structure of the Neuropsychiatric Inventory in a 31-month follow-up study of a large sample of nursing-home patients with dementia. International Psychogeriatrics, 24(1), 62-73. doi:10.1017/S104161021100086X
44. Selbaek, G., Kirkevold, O., & Engedal, K. (2007). The prevalence of psychiatric symptoms and behavioural disturbances and the use of psychotropic drugs in Norwegian nursing homes. International Journal of Geriatric Psychiatry, 22(9), 843-849. doi:10.1002/gps.1749
45. Selwood, A., Thorgrimsen, L., & Orrell, M. (2005). Quality of life in dementia - A one-year follow-up study. International Journal of Geriatric Psychiatry, 20, 232-237.
46. Shin, I.S., Carter, M., Masterman, D., Fairbanks, L., & Cummings, J.L. (2005). Neuropsychiatric symptoms and quality of life in Alzheimer disease. American Journal of Geriatric Psychiatry, 13(6), 469-474. doi:10.1176/appi.ajgp.13.6.469
47. Weiner, M.F., Martin-Cook, K., Svetlik, D.A., Saine, K., Foster, B., & Fountaine, C.S. (2000). The quality of life in late-stage dementia (QUALID) scale. Journal of the American Medical Directors Association, 1(3), 114-116.
48. Wetzels, R.B., Zuidema, S.U., de Jonghe, J.F., Verhey, F.R., & Koopmans, R.T. (2010a). Course of neuropsychiatric symptoms in residents with dementia in nursing homes over 2- year period. American Journal of Geriatric Psychiatry, 18 (12), 1054-1065.
49. Wetzels, R.B., Zuidema, S.U., de Jonghe, J.F., Verhey, F.R., & Koopmans, R.T. (2010b). Determinants of quality of life in nursing home residents with dementia. Geriatric Cognitive Disorders, 29(3), 189-197. doi:10.1159/000280437
50. Weyerer, S., Schaufele, M., & Hendlmeier, I. (2010). Evaluation of special and traditional dementia care in nursing homes: Results from a cross-sectional study in Germany. International Journal of Geriatric Psychiatry, 25(11), 1159-1167. doi:10.1002/gps.2455
51. Whitehouse, P.J., Orgogozo, J.M., Becker, R.E., Gauthier, S., Pontecorvo, M., Erzigkeit, H., . . . Dal-Bianco, P. (1997). Quality-of-life assessment in dementia drug development. Position paper from the International Working Group on Harmonization of Dementia Drug Guidelines. Alzheimer Disease and Associated Disorders, 11(Suppl 3), 56-60.
52. World Health Organization. (1993). The ICD-10 classification of mental and behavioural disorders: Diagnostic criteria for research. Geneva: World Health Organization.
53. World Health Organisation Quality of Life GROUP. (1995). The World Health Organisation Quality of Life assessment (WHOQOL): Position paper from the World Health Organization. Social Science & Medicine, 41(10), 1403-1409.
54. Zhao, H., Novella, J.L., Drame, M., Mahmoudi, R., Barbe, C., di Pollina, L., . . . Jolly, D. (2012). Factors associated with caregivers' underestimation of quality of life in patients with Alzheimer's disease. Geriatric Cognitive Disorders, 33(1), 11-17. doi:10.1159/000333070