메뉴 건너뛰기




Volumn 13, Issue 1, 2013, Pages 109-122

Health-related quality of life in older people with severe dementia: Challenges for measurement and management

Author keywords

scales; severe dementia

Indexed keywords

ALZHEIMER DISEASE; ALZHEIMER DISEASE HEALTH RELATED QUALITY OF LIFE SCALE; ATTITUDE TO ILLNESS; CLINICAL ASSESSMENT; COGNITIVE DEFECT; DAILY LIFE ACTIVITY; DEMENTIA; DISEASE SEVERITY; EARLY DIAGNOSIS; GLASGOW COMA SCALE; HEALTH CARE COST; HUMAN; LONG TERM CARE; PATIENT ATTITUDE; PSYCHOLOGICAL RATING SCALE; PSYCHOLOGICAL WELL BEING; PSYCHOMETRY; PUBLICATION; QUALITY OF LIFE; QUALITY OF LIFE IN LATE STAGE DEMENTIA SCALE; REVIEW; SELF REPORT; SENESCENCE; SOCIAL INTERACTION;

EID: 84873930677     PISSN: 14737167     EISSN: 17448379     Source Type: Journal    
DOI: 10.1586/erp.12.84     Document Type: Review
Times cited : (22)

References (50)
  • 2
    • 84862852341 scopus 로고    scopus 로고
    • World Health Organization, WHO, Geneva, Switzerland
    • World Health Organization. Dementia: A Public Health Priority. WHO, Geneva, Switzerland (2012).
    • (2012) Dementia: A Public Health Priority
  • 4
    • 84866932463 scopus 로고    scopus 로고
    • Living with grief: Alzheimer's disease
    • Doka KJ (Ed.) The Hospice Foundation of America, DC, USA
    • Jennings B. Living with grief: Alzheimer's disease. In: Alzheimer's Disease and the Quality of Life. Doka KJ (Ed.) The Hospice Foundation of America, DC, USA, 247-258 (2004).
    • (2004) Alzheimer's Disease and the Quality of Life , pp. 247-258
    • Jennings, B.1
  • 5
    • 84857662453 scopus 로고    scopus 로고
    • Factors infuencing quality of life for people with dementia: A qualitative perspective
    • Moyle W, Venturto L, Griffths S et al. Factors infuencing quality of life for people with dementia: a qualitative perspective. Aging Ment. Health 15(8), 970-977 (2011).
    • (2011) Aging Ment. Health , vol.15 , Issue.8 , pp. 970-977
    • Moyle, W.1    Venturto, L.2    Griffths, S.3
  • 6
    • 0027936197 scopus 로고
    • Quality of life in Alzheimer disease
    • Lawton MP. Quality of life in Alzheimer disease. Alzheimer Dis. Assoc. Disord. 8(Suppl. 3), 138-150 (1994).
    • (1994) Alzheimer Dis. Assoc. Disord. , vol.8 , Issue.SUPPL. 3 , pp. 138-150
    • Lawton, M.P.1
  • 7
    • 61749089957 scopus 로고    scopus 로고
    • What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specifc measures of health related quality of life in people with dementia
    • Banerjee S, Samsi K, Petrie CD et al. What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specifc measures of health related quality of life in people with dementia. Int. J. Geriatr. Psychiatry 24(1), 15-24 (2009).
    • (2009) Int. J. Geriatr. Psychiatry , vol.24 , Issue.1 , pp. 15-24
    • Banerjee, S.1    Samsi, K.2    Petrie, C.D.3
  • 10
    • 34250737368 scopus 로고    scopus 로고
    • Evaluating the outcome of interventions on quality of life in dementia: Selection of the appropriate scale
    • Schölzel-Dorenbos CJ, Ettema TP, Bos J et al. Evaluating the outcome of interventions on quality of life in dementia: selection of the appropriate scale. Int. J. Geriatr. Psychiatry 22 (6), 511-519 (2007).
    • (2007) Int. J. Geriatr. Psychiatry , vol.22 , Issue.6 , pp. 511-519
    • Schölzel-Dorenbos, C.J.1    Ettema, T.P.2    Bos, J.3
  • 11
    • 60249095437 scopus 로고    scopus 로고
    • Diagnosis and treatment of patients with severe Alzheimer's disease
    • Voisin T, Vellas B. Diagnosis and treatment of patients with severe Alzheimer's disease. Drugs Aging 26 (2), 135-144 (2009).
    • (2009) Drugs Aging , vol.26 , Issue.2 , pp. 135-144
    • Voisin, T.1    Vellas, B.2
  • 12
    • 0016823810 scopus 로고
    • 'Mini-Mental State'. A practical method for grading the cognitive state of patients for the clinician
    • Folstein MF, Folstein SE, McHugh PR. 'Mini-Mental State'. A practical method for grading the cognitive state of patients for the clinician. J. Psychiatr. Res. 12(3), 189-198 (1975).
    • (1975) J. Psychiatr. Res. , vol.12 , Issue.3 , pp. 189-198
    • Folstein, M.F.1    Folstein, S.E.2    McHugh, P.R.3
  • 13
    • 0019967975 scopus 로고
    • The Global Deterioration Scale for assessment of primary degenerative dementia
    • Reisberg B, Ferris SH, de Leon MJ, Crook T. The Global Deterioration Scale for assessment of primary degenerative dementia. Am. J. Psychiatry 139(9), 1136-1139 (1982).
    • (1982) Am. J. Psychiatry , vol.139 , Issue.9 , pp. 1136-1139
    • Reisberg, B.1    Ferris, S.H.2    De Leon, M.J.3    Crook, T.4
  • 14
    • 34250716464 scopus 로고    scopus 로고
    • QUALI-DEM: Development and evaluation of a dementia specifc quality of life instrument. Scalability, reliability and internal structure
    • Ettema TP, Dröes RM, de Lange J, Mellenbergh GJ, Ribbe MW. QUALI-DEM: development and evaluation of a dementia specifc quality of life instrument. Scalability, reliability and internal structure. Int. J. Geriatr. Psychiatry 22(6), 549-556 (2007).
    • (2007) Int. J. Geriatr. Psychiatry , vol.22 , Issue.6 , pp. 549-556
    • Ettema, T.P.1    Dröes, R.M.2    De Lange, J.3    Mellenbergh, G.J.4    Ribbe, M.W.5
  • 15
  • 16
    • 0032931094 scopus 로고    scopus 로고
    • Concepts and methods in the development of the ADRQL: An instrument for assessing health-related quality of life in persons with Alzheimer's disease
    • Rabins PV, Kasper JD, Kleinman L, Black B, Patrick DL. Concepts and methods in the development of the ADRQL: an instrument for assessing health-related quality of life in persons with Alzheimer's disease. J. Ment. Health Aging 5(1), 33-48 (1999).
    • (1999) J. Ment. Health Aging , vol.5 , Issue.1 , pp. 33-48
    • Rabins, P.V.1    Kasper, J.D.2    Kleinman, L.3    Black, B.4    Patrick, D.L.5
  • 17
    • 0031473138 scopus 로고    scopus 로고
    • Measuring quality of life in dementia: Conceptual and practical issues
    • Rabins PV, Kasper JD. Measuring quality of life in dementia: conceptual and practical issues. Alzheimer Dis. Assoc. Disord. 11(Suppl. 6), 100-104 (1997).
    • (1997) Alzheimer Dis. Assoc. Disord. , vol.11 , Issue.SUPPL. 6 , pp. 100-104
    • Rabins, P.V.1    Kasper, J.D.2
  • 19
    • 34047157134 scopus 로고    scopus 로고
    • Development of a new measure of health-related quality of life for people with dementia: DEMQoL
    • Smith SC, Lamping DL, Banerjee S et al. Development of a new measure of health-related quality of life for people with dementia: DEMQoL. Psychol. Med. 37(5), 737-746 (2007).
    • (2007) Psychol. Med. , vol.37 , Issue.5 , pp. 737-746
    • Smith, S.C.1    Lamping, D.L.2    Banerjee, S.3
  • 20
    • 0036113730 scopus 로고    scopus 로고
    • Assessing quality of life in older adults with cognitive impairment
    • Logsdon RG, Gibbons LE, McCurry SM, Teri L. Assessing quality of life in older adults with cognitive impairment. Psychosom. Med. 64(3), 510-519 (2002).
    • (2002) Psychosom. Med. , vol.64 , Issue.3 , pp. 510-519
    • Logsdon, R.G.1    Gibbons, L.E.2    McCurry, S.M.3    Teri, L.4
  • 21
    • 0032930246 scopus 로고    scopus 로고
    • Quality of life in alzheimer's disease: Patient and caregiver reports
    • Logsdon RG, Gibbons LE, McCurry SM, Teri L. Quality of life in alzheimer's disease: patient and caregiver reports. J. Ment. Health Aging 5(1), 21-32 (1999).
    • (1999) J. Ment. Health Aging , vol.5 , Issue.1 , pp. 21-32
    • Logsdon, R.G.1    Gibbons, L.E.2    McCurry, S.M.3    Teri, L.4
  • 22
    • 79954622957 scopus 로고    scopus 로고
    • Evaluation of QUALIDEM: A dementia-specifc quality of life instrument for persons with dementia in residential settings; Scalability and reliability of subscales in four Dutch feld surveys
    • Bouman AI, Ettema TP, Wetzels RB, van Beek AP, de Lange J, Dröes RM. Evaluation of QUALIDEM: a dementia-specifc quality of life instrument for persons with dementia in residential settings; scalability and reliability of subscales in four Dutch feld surveys. Int. J. Geriatr. Psychiatry 26(7), 711-722 (2011).
    • (2011) Int. J. Geriatr. Psychiatry , vol.26 , Issue.7 , pp. 711-722
    • Bouman, A.I.1    Ettema, T.P.2    Wetzels, R.B.3    Van Beek, A.P.4    De Lange, J.5    Dröes, R.M.6
  • 23
    • 61749091872 scopus 로고    scopus 로고
    • Neuropsychiatric symptoms and quality of life in patients in the fnal phase of dementia
    • Koopmans RT, van der Molen M, Raats M, Ettema TP. Neuropsychiatric symptoms and quality of life in patients in the fnal phase of dementia. Int. J. Geriatr. Psychiatry 24(1), 25-32 (2009).
    • (2009) Int. J. Geriatr. Psychiatry , vol.24 , Issue.1 , pp. 25-32
    • Koopmans, R.T.1    Van Der Molen, M.2    Raats, M.3    Ettema, T.P.4
  • 24
    • 0024262650 scopus 로고
    • Functional assessment staging (FA ST)
    • Reisberg B. Functional assessment staging (FA ST). Psychopharmacol. Bull. 24(4), 653-659 (1988).
    • (1988) Psychopharmacol. Bull. , vol.24 , Issue.4 , pp. 653-659
    • Reisberg, B.1
  • 25
    • 3042532459 scopus 로고    scopus 로고
    • Three new observational scales for use in Dutch nursing homes: Scales from the Resident Assessment Instrument for Activities of Daily Living cognition and depression
    • Gerritsen D, Ooms M, Steverink N, Frijters D, Bezemer D, Ribbe M. [Three new observational scales for use in Dutch nursing homes: scales from the Resident Assessment Instrument for Activities of Daily Living, cognition and depression]. Tijdschr. Gerontol. Geriatr. 35(2), 55-64 (2004).
    • (2004) Tijdschr Gerontol. Geriatr. , vol.35 , Issue.2 , pp. 55-64
    • Gerritsen, D.1    Ooms, M.2    Steverink, N.3    Frijters, D.4    Bezemer, D.5    Ribbe, M.6
  • 26
    • 83255194024 scopus 로고    scopus 로고
    • Validity, reliability, and feasibility of a quality of life questionnaire for people with dementia
    • Dichter M, Bartholomeyczik S, Nordheim J, Achterberg W, Halek M. Validity, reliability, and feasibility of a quality of life questionnaire for people with dementia. Z. Gerontol. Geriatr. 44(6), 405-410 (2011).
    • (2011) Z. Gerontol. Geriatr. , vol.44 , Issue.6 , pp. 405-410
    • Dichter, M.1    Bartholomeyczik, S.2    Nordheim, J.3    Achterberg, W.4    Halek, M.5
  • 28
    • 70349135941 scopus 로고    scopus 로고
    • Evaluation of the validity and reliability of the Alzheimer disease-related quality of life assessment instrument
    • Kasper JD, Black BS, Shore AD, Rabins PV. Evaluation of the validity and reliability of the Alzheimer disease-related quality of life assessment instrument. Alzheimer Dis. Assoc. Disord. 23(3), 275-284 (2009).
    • (2009) Alzheimer Dis. Assoc. Disord. , vol.23 , Issue.3 , pp. 275-284
    • Kasper, J.D.1    Black, B.S.2    Shore, A.D.3    Rabins, P.V.4
  • 29
    • 46849088780 scopus 로고    scopus 로고
    • Relationship between quality of life and cognitive decline in dementia
    • Missotten P, Squelard G, Ylieff M et al. Relationship between quality of life and cognitive decline in dementia. Dement. Geriatr. Cogn. Disord. 25(6), 564-572 (2008).
    • (2008) Dement. Geriatr. Cogn. Disord. , vol.25 , Issue.6 , pp. 564-572
    • Missotten, P.1    Squelard, G.2    Ylieff, M.3
  • 30
    • 79960581967 scopus 로고    scopus 로고
    • Quality of life in dementia patients in Athens, Greece: Predictive factors and the role of caregiver-r elated factors
    • Mougias AA, Politis A, Lyketsos CG, Mavreas VG. Quality of life in dementia patients in Athens, Greece: predictive factors and the role of caregiver-r elated factors. Int. Psychogeriatr. 23(3), 395-403 (2011).
    • (2011) Int. Psychogeriatr. , vol.23 , Issue.3 , pp. 395-403
    • Mougias, A.A.1    Politis, A.2    Lyketsos, C.G.3    Mavreas, V.G.4
  • 31
    • 78650140968 scopus 로고    scopus 로고
    • Quality of life in nursing home residents with advanced dementia
    • Cordner Z, Blass DM, Rabins PV, Black BS. Quality of life in nursing home residents with advanced dementia. J. Am. Geriatr. Soc. 58(12), 2394-2400 (2010).
    • (2010) J. Am. Geriatr. Soc. , vol.58 , Issue.12 , pp. 2394-2400
    • Cordner, Z.1    Blass, D.M.2    Rabins, P.V.3    Black, B.S.4
  • 32
    • 0029982846 scopus 로고    scopus 로고
    • A scale to measure impairment in severe dementia and similar conditions
    • Rabins PV, Steele CD. A scale to measure impairment in severe dementia and similar conditions. Am. J. Geriatr. Psychiatry 4(3), 247-251 (1996).
    • (1996) Am. J. Geriatr. Psychiatry , vol.4 , Issue.3 , pp. 247-251
    • Rabins, P.V.1    Steele, C.D.2
  • 33
    • 35349019805 scopus 로고    scopus 로고
    • A psychometric evaluation of a Swedish version of the Quality of Life in Late-Stage Dementia (QUALID) scale
    • Falk H, Persson LO, Wijk H. A psychometric evaluation of a Swedish version of the Quality of Life in Late-Stage Dementia (QUALID) scale. Int. Psychogeriatr. 19(6), 1040-1050 (2007).
    • (2007) Int. Psychogeriatr. , vol.19 , Issue.6 , pp. 1040-1050
    • Falk, H.1    Persson, L.O.2    Wijk, H.3
  • 34
    • 0034101427 scopus 로고    scopus 로고
    • Assessment by nurses of mood, general behaviour and functional ability in patients with dementia receiving nursing home care
    • Edberg AK. Assessment by nurses of mood, general behaviour and functional ability in patients with dementia receiving nursing home care. Scand. J. Caring Sci. 14(1), 52-61 (2000).
    • (2000) Scand. J. Caring Sci. , vol.14 , Issue.1 , pp. 52-61
    • Edberg, A.K.1
  • 35
    • 0020286558 scopus 로고
    • Development and validation of a geriatric depression screening scale: A preliminary report
    • Yesavage JA, Brink TL, Rose TL et al. Development and validation of a geriatric depression screening scale: a preliminary report. J. Psychiatr. Res. 17(1), 37-49 (1982).
    • (1982) J. Psychiatr. Res. , vol.17 , Issue.1 , pp. 37-49
    • Yesavage, J.A.1    Brink, T.L.2    Rose, T.L.3
  • 36
    • 0028286035 scopus 로고
    • A postal version of the barthel index
    • Gompertz P, Pound P, Ebrahim S. A postal version of the barthel index. Clin. Rehabil. 8(3), 233-239 (1994).
    • (1994) Clin. Rehabil. , vol.8 , Issue.3 , pp. 233-239
    • Gompertz, P.1    Pound, P.2    Ebrahim, S.3
  • 38
    • 39749188052 scopus 로고    scopus 로고
    • A European consensus on outcome measures for psychosocial intervention research in dementia care
    • INTERDEM Group.
    • Moniz-Cook E, Vernooij-Dassen M, Woods R et al.; INTERDEM Group. A European consensus on outcome measures for psychosocial intervention research in dementia care. Aging Ment. Health 12(1), 14-29 (2008).
    • (2008) Aging Ment. Health , vol.12 , Issue.1 , pp. 14-29
    • Moniz-Cook, E.1    Vernooij-Dassen, M.2    Woods, R.3
  • 39
    • 84865274424 scopus 로고    scopus 로고
    • Quality of life in dementia care-differences in quality of life measure ments performed by residents with dementia and by nursing staff Aging Ment
    • Gräske J, Fischer T, Kuhlmey A, Wolf-Ostermann K. Quality of life in dementia care-differences in quality of life measure ments performed by residents with dementia and by nursing staff Aging Ment. Health 16(7), 819-827 (2012).
    • (2012) Health , vol.16 , Issue.7 , pp. 819-827
    • Gräske J, F.1
  • 40
    • 84863463404 scopus 로고    scopus 로고
    • Patient and proxy measurement of quality of life among general hospital in-patients with dementia
    • Sheehan BD, Lall R, Stinton C et al. Patient and proxy measurement of quality of life among general hospital in-patients with dementia. Aging Ment. Health 16(5), 603-607 (2012).
    • (2012) Aging Ment. Health , vol.16 , Issue.5 , pp. 603-607
    • Sheehan, B.D.1    Lall, R.2    Stinton, C.3
  • 41
    • 0027425211 scopus 로고
    • The Clinical Dementia Rating (CDR): Current version and scoring rules
    • Morris JC. The Clinical Dementia Rating (CDR): current version and scoring rules. Neurology 43(11), 2412-2414 (1993).
    • (1993) Neurology , vol.43 , Issue.11 , pp. 2412-2414
    • Morris, J.C.1
  • 42
    • 78751638124 scopus 로고    scopus 로고
    • Conducting randomized controlled trials with older people with dementia in long-term care: Challenges and lessons learnt
    • Murfeld J, Cooke M, Moyle W, Shum D, Harrison S. Conducting randomized controlled trials with older people with dementia in long-term care: challenges and lessons learnt. Int. J. Nurs. Pract. 17(1), 52-59 (2011).
    • (2011) Int. J. Nurs. Pract. , vol.17 , Issue.1 , pp. 52-59
    • Murfeld, J.1    Cooke, M.2    Moyle, W.3    Shum, D.4    Harrison, S.5
  • 43
    • 70449486972 scopus 로고    scopus 로고
    • Reliability and validity in a nutshell
    • Bannigan K, Watson R. Reliability and validity in a nutshell. J. Clin. Nurs. 18 (23), 3237-3243 (2009).
    • (2009) J. Clin. Nurs. , vol.18 , Issue.23 , pp. 3237-3243
    • Bannigan, K.1    Watson, R.2
  • 44
    • 33846123640 scopus 로고    scopus 로고
    • Essential elements of questionnaire design and development
    • Rattray J, Jones MC. Essential elements of questionnaire design and development. J. Clin. Nurs. 16(2), 234-243 (2007).
    • (2007) J. Clin. Nurs. , vol.16 , Issue.2 , pp. 234-243
    • Rattray, J.1    Jones, M.C.2
  • 45
    • 77449084956 scopus 로고    scopus 로고
    • Small-scale, homelike facilities versus regular psychogeriatric nursing home wards: A cross-sectional study into residents' characteristics
    • Verbeek H, Zwakhalen SM, van Rossum E, Ambergen T, Kempen GI, Hamers JP. Small-scale, homelike facilities versus regular psychogeriatric nursing home wards: a cross-sectional study into residents' characteristics. BMC Health Serv. Res. 10 (30) (2010).
    • BMC Health Serv. Res. , vol.10 , Issue.30 , pp. 2010
    • Verbeek, H.1    Zwakhalen, S.M.2    Van Rossum, E.3    Ambergen, T.4    Kempen, G.I.5    Hamers, J.P.6
  • 46
    • 2642576076 scopus 로고    scopus 로고
    • Nursing home and nursing home physician: The Dutch experience
    • Schols JM, Crebolder HF, van Weel C. Nursing home and nursing home physician: the Dutch experience. J. Am. Med. Dir. Assoc. 5(3), 207-212 (2004).
    • (2004) J. Am. Med. Dir. Assoc. , vol.5 , Issue.3 , pp. 207-212
    • Schols, J.M.1    Crebolder, H.F.2    Van Weel, C.3
  • 47
    • 84859222353 scopus 로고    scopus 로고
    • Culture and end of life care: A scoping exercise in seven European countries
    • Project PRISMA
    • Gysels M, Evans N, Meñaca A et al.; Project PRISMA. Culture and end of life care: a scoping exercise in seven European countries. PLoS ONE 7(4), e34188 (2012).
    • (2012) PLoS ONE , vol.7 , Issue.4
    • Gysels, M.1    Evans, N.2    Meñaca, A.3
  • 48
    • 0036516520 scopus 로고    scopus 로고
    • Living with loss: Dementia and the family caregiver
    • Moyle W, Edwards H, Clinton M. Living with loss: dementia and the family caregiver. Aust. J. Adv. Nurs. 19(3), 25-31 (2002).
    • (2002) Aust. J. Adv. Nurs. , vol.19 , Issue.3 , pp. 25-31
    • Moyle, W.1    Edwards, H.2    Clinton, M.3
  • 49
    • 84857679157 scopus 로고    scopus 로고
    • A quasi-experimental design trial exploring the effect of a partnership intervention on family and staff well-being in long-term dementia care
    • Bramble M, Moyle W, Shum D. A quasi-experimental design trial exploring the effect of a partnership intervention on family and staff well-being in long-term dementia care. Aging Ment. Health 15 (8), 995-1007 (2011).
    • (2011) Aging Ment. Health , vol.15 , Issue.8 , pp. 995-1007
    • Bramble, M.1    Moyle, W.2    Shum, D.3
  • 50
    • 77955955695 scopus 로고    scopus 로고
    • Life stories and biography: A means of connecting family and staff to people with dementia
    • Kellett U, Moyle W, McAllister M, King C, Gallagher F. Life stories and biography: a means of connecting family and staff to people with dementia. J. Clin. Nurs. 19(11-12), 1707-1715 (2010).
    • (2010) J. Clin. Nurs. , vol.19 , Issue.11-12 , pp. 1707-1715
    • Kellett, U.1    Moyle, W.2    McAllister, M.3    King, C.4    Gallagher, F.5


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.