The Process of Advance Care Planning in HCT Candidates and Proxies: Self-Efficacy, Locus of Control, and Anxiety Levels

American Journal of Hospice and Palliative Medicine

Volumn 31, Issue 7, 2014, Pages 710-716

  Duckworth, Katharine E ^a   Forti, Allison M ^b   Russell, Gregory B ^a   Naik, Seema ^a   Hurd, David ^a   McQuellon, Richard P ^a  

^a WAKE FOREST BAPTIST HEALTH   (United States)

^b WAKE FOREST UNIVERSITY   (United States)

Author keywords

advance care planning; advance directive; end of life care; hematopoietic cell transplant candidates; proxy

Indexed keywords

ADOLESCENT; ADULT; ADVANCE CARE PLANNING; AGE; AGED; COMPARATIVE STUDY; DECISION MAKING; FEMALE; HEMATOPOIETIC STEM CELL TRANSPLANTATION; HUMAN; LIVING WILL; MALE; MIDDLE AGED; NORTH CAROLINA; ORGANIZATION AND MANAGEMENT; PROXY; PSYCHOLOGY; QUESTIONNAIRE; SEX DIFFERENCE; SOCIOECONOMICS; TERMINAL CARE; VERY ELDERLY; YOUNG ADULT;

ADOLESCENT; ADULT; ADVANCE CARE PLANNING; ADVANCE DIRECTIVES; AGE FACTORS; AGED; AGED, 80 AND OVER; DECISION MAKING; FEMALE; HEMATOPOIETIC STEM CELL TRANSPLANTATION; HUMANS; MALE; MIDDLE AGED; NORTH CAROLINA; PROXY; SEX FACTORS; SOCIOECONOMIC FACTORS; SURVEYS AND QUESTIONNAIRES; TERMINAL CARE; YOUNG ADULT;

EID: 84908566057     PISSN: 10499091     EISSN: 19382715     Source Type: Journal    
DOI: 10.1177/1049909113499815     Document Type: Article

References (22)

1. Sudore RL,Fried TR.Redefining the “planning” in advance care planning: preparing for end-of-life decision making.Ann Intern Med. 2010;153 (4): 256-261
2. http://www.nia.nih.gov/health/publication/advance-care-planning. NIH2013. Accessed March 12, 2013.
3. Omnibus Budget Reconciliation Act of 1990, Pub. L. No. 101-508. Sec. 4206-4751. 1990.
4. Halpern NA,Pastores SM,Chou JF,Chawla S,Thaler HT.Advance directives in an oncologic intensive care unit: a contemporary analysis of their frequency, type, and impact.J Palliat Med. 2011;14 (4): 483-489
5. Cardenas-Turanzas M,Gaeta S,Ashoori A,Price KJ,Nates JL.Demographic and clinical determinants of having do not resuscitate orders in the intensive care unit of a comprehensive cancer center.J Palliat Med. 2011;14 (1): 45-50
6. Perkins HS.Controlling death: the false promise of advance directives.Ann Intern Med. 2007;147 (1): 51-57
7. Teno J,Lynn J,Wenger N, et al.Advance directives for seriously ill hospitalized patients: effectiveness with the patient self-determination act and the SUPPORT intervention. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment.J Am Geriatr Soc. 1997;45 (4): 500-507
8. Saraiya B,Bodnar-Deren S,Leventhal E,Leventhal H.End-of-life planning and its relevance for patients' and oncologists' decisions in choosing cancer therapy.Cancer. 2008;113 (suppl 12): 3540-3547
9. Alano GJ,Pekmezaris R,Tai JY, et al.Factors influencing older adults to complete advance directives.Palliat Support Care. 2010;8 (3): 267-275
10. Zager BS,Yancy M.A call to improve practice concerning cultural sensitivity in advance directives: a review of the literature.Worldviews Evid Based Nurs. 2011;8 (4): 202-211
11. Cohen MJ,McCannon JB,Edgman-Levitan S,Kormos WA.Exploring attitudes toward advance care directives in two diverse settings.J Palliat Med. 2010;13 (12): 1427-1432
12. Joffe S,Mello MM,Cook EF,Lee SJ.Advance care planning in patients undergoing hematopoietic cell transplantation.Biol Blood Marrow Transplant. 2007;13 (1): 65-73
13. Ganti AK,Lee SJ,Vose JM, et al.Outcomes after hematopoietic stem-cell transplantation for hematologic malignancies in patients with or without advance care planning.J Clin Oncol. 2007;25 (35): 5643-5648
14. Duckworth KE,Forti A,Russell G, et al.Advance care planning information and distress in hematopoietic cell transplant candidates and proxies.Psycho-Oncology. 2013;22 (suppl 2): 100-101
15. Nolan MT,Bruder M.Patients' attitudes toward advance directives and end-of-life treatment decisions.Nurs Outlook. 1997;45 (5): 204-208
16. Wallston KA,Stein MJ,Smith CA.Form C of the MHLC scales: a condition-specific measure of locus of control.J Pers Assess. 1994;63 (3): 534-553
17. Nolan MT,Hughes MT,Kub J, et al.Development and validation of the Family Decision-Making Self-Efficacy Scale.Palliat Support Care. 2009 September;7 (3): 315-21
18. Spielberger CD,Gorsuch RL,Lushene RDSTAI: Manual for the State-Trait Anxiety Inventory. Palo Alto, CA: Consulting Psychologists Press; 1970:
19. Mystakidou K,Parpa E,Panagiotou I,Tsilika E,Galanos A,Gouliamos A.Caregivers' anxiety and self-efficacy in palliative care.Eur J Cancer Care (Engl). 2013;22 (2): 188-195
20. Ahles TA,Tope DM,Furstenberg C,Hann D,Mills L.Psychologic and neuropsychologic impact of autologous bone marrow transplantation.J Clin Oncol. 1996;14 (5): 1457-1462
21. Kuehlmeyer K,Borasio GD,Jox RJ.How family caregivers' medical and moral assumptions influence decision making for patients in the vegetative state: a qualitative interview study.J Med Ethics. 2012;38 (6): 332-337
22. Greene CA,Murdock KK.Multidimensional control beliefs, socioeconomic status, and health.Am J Health Behav. 2013;37 (2): 227-237