Racial and ethnic disparities in functioning at discharge and follow-up among patients with motor complete spinal cord injury

Archives of Physical Medicine and Rehabilitation

Volumn 95, Issue 11, 2014, Pages 2140-2151

  Fyffe, Denise C ^a,b   Deutsch, Anne ^c,d   Botticello, Amanda L ^a,b   Kirshblum, Steven ^a,b,e   Ottenbacher, Kenneth J ^f  

^a KESSLER FOUNDATION   (United States)

^b RUTGERS NEW JERSEY MEDICAL SCHOOL   (United States)

^c REHABILITATION INSTITUTE OF CHICAGO   (United States)

^d RTI INTERNATIONAL   (United States)

^e KESSLER INSTITUTE FOR REHABILITATION   (United States)

^f UNIVERSITY OF TEXAS MEDICAL BRANCH   (United States)

Author keywords

Activities of daily living; Health status disparities; Motor activity; Rehabilitation; Spinal cord injuries

Indexed keywords

ADULT; AMERICAN SPINAL INJURY ASSOCIATION IMPAIRMENT SCALE; ARTICLE; COHORT ANALYSIS; DEMOGRAPHY; ETHNIC DIFFERENCE; FEMALE; FOLLOW UP; FUNCTIONAL INDEPENDENCE MEASURE; HOSPITAL DISCHARGE; HOSPITAL PATIENT; HUMAN; MAJOR CLINICAL STUDY; MALE; OUTCOME ASSESSMENT; PARALYSIS; PARAPLEGIA; QUADRIPLEGIA; RACE DIFFERENCE; REHABILITATION CENTER; REHABILITATION PATIENT; RETROSPECTIVE STUDY; SELF CARE; SELF REPORT; SPINAL CORD INJURY; ADOLESCENT; AFRICAN AMERICAN; CAUCASIAN; CERVICAL SPINE; ETHNOLOGY; HEALTH DISPARITY; HISPANIC; INJURY SCALE; MIDDLE AGED; PATHOPHYSIOLOGY; SPINAL CORD INJURIES; STATISTICS AND NUMERICAL DATA; UNITED STATES; VERTEBRA; WALKING DIFFICULTY; YOUNG ADULT;

ADOLESCENT; ADULT; AFRICAN AMERICANS; CERVICAL VERTEBRAE; EUROPEAN CONTINENTAL ANCESTRY GROUP; FEMALE; FOLLOW-UP STUDIES; HEALTH STATUS DISPARITIES; HISPANIC AMERICANS; HUMANS; MALE; MIDDLE AGED; MOBILITY LIMITATION; PARAPLEGIA; PATIENT DISCHARGE; QUADRIPLEGIA; RETROSPECTIVE STUDIES; SELF CARE; SPINAL CORD INJURIES; THORACIC VERTEBRAE; TRAUMA SEVERITY INDICES; UNITED STATES; YOUNG ADULT;

EID: 84908291226     PISSN: 00039993     EISSN: 1532821X     Source Type: Journal    
DOI: 10.1016/j.apmr.2014.07.398     Document Type: Article

References (62)

1. L. Noreau, P. Fougeyrollas, M. Post, and M. Asano Participation after spinal cord injury: the evolution of conceptualization and measurement J Neurol Phys Ther 29 2005 147 156
2. M. Post, and L. Noreau Quality of life after spinal cord injury J Neurol Phys Ther 29 2005 139 146
3. M.P. Dijkers Quality of life of individuals with spinal cord injury: a review of conceptualization, measurement, and research findings J Rehabil Res Dev 42 2005 87 110
4. M.J. Devivo Epidemiology of traumatic spinal cord injury: trends and future implications Spinal Cord 50 2012 365 372
5. M.J. DeVivo, and Y. Chen Trends in new injuries, prevalent cases, and aging with spinal cord injury Arch Phys Med Rehabil 92 2011 332 338
6. National Spinal Cord Injury Statistical Center Spinal cord injury facts and figures at a glance 2013 Univ of Alabama at Birmingham Birmingham
7. S.P. Lad, O.A. Umeano, and I.O. Karikari Racial disparities in outcomes after spinal cord injury J Neurotrauma 30 2013 492 497
8. L.K. Saladin, and J.S. Krause Pressure ulcer prevalence and barriers to treatment after spinal cord injury: comparisons of four groups based on race-ethnicity NeuroRehabilitation 24 2009 57 66
9. D.D. Cardenas, T.N. Bryce, K. Shem, J.S. Richards, and H. Elhefni Gender and minority differences in the pain experience of people with spinal cord injury Arch Phys Med Rehabil 85 2004 1774 1781
10. J.S. Krause, L.E. Broderick, J. Broyles, and L.K. Saladin Racial disparities in health outcomes after spinal cord injury: mediating effects of education and income J Spinal Cord Med 29 2006 17 25
11. J.S. Krause, L.K. Saladin, and R.H. Adkins Disparities in subjective well-being, participation, and health after spinal cord injury: a 6-year longitudinal study NeuroRehabilitation 24 2009 47 56
12. L. Myaskovsky, K.H. Burkitt, and A.M. Lichy The association of race, cultural factors, and health-related quality of life in persons with spinal cord injury Arch Phys Med Rehabil 92 2011 441 448
13. P.C. Hunt, M.L. Boninger, R.A. Cooper, R.D. Zafonte, S.G. Fitzgerald, and M.R. Schmeler Demographic and socioeconomic factors associated with disparity in wheelchair customizability among people with traumatic spinal cord injury Arch Phys Med Rehabil 85 2004 1859 1864
14. F. Ambrosio, M.L. Boninger, S.G. Fitzgerald, S.L. Hubbard, S.R. Schwid, and R.A. Cooper Comparison of mobility device delivery within Department of Veterans Affairs for individuals with multiple sclerosis versus spinal cord injury J Rehabil Res Dev 44 2007 693
15. Y. Chen, M.J. Devivo, and A.B. Jackson Pressure ulcer prevalence in people with spinal cord injury: age-period-duration effects Arch Phys Med Rehabil 86 2005 1208 1213
16. M.J. Fuhrer, S.L. Garber, D.H. Rintala, R. Clearman, and K.A. Hart Pressure ulcers in community-resident persons with spinal cord injury: prevalence and risk factors Arch Phys Med Rehabil 74 1993 1172 1177
17. B.J. Kemp, and J.S. Krause Depression and life satisfaction among people ageing with post-polio and spinal cord injury Disabil Rehabil 21 1999 241 249
18. J.S. Krause, B. Kemp, and J. Coker Depression after spinal cord injury: relation to gender, ethnicity, aging, and socioeconomic indicators Arch Phys Med Rehabil 81 2000 1099 1109
19. J.C. Arango-Lasprilla, J.M. Ketchum, and K. Francis Race, ethnicity, and employment outcomes 1, 5, and 10 years after spinal cord injury: a longitudinal analysis PM R 2 2010 901 910
20. J.S. Krause, and J.V. Terza Injury and demographic factors predictive of disparities in earnings after spinal cord injury Arch Phys Med Rehabil 87 2006 1318 1326
21. M.A. Meade, A. Lewis, M.N. Jackson, and D.W. Hess Race, employment, and spinal cord injury Arch Phys Med Rehabil 85 2004 1782 1792
22. Gage B, Ingber MJ, Morley M, et al. Post-acute care payment reform demonstration project: final report. March 2012. Available at: http://www.cms.gov/Research-Statistics-Data-and-Systems/Statistics-Trends-and-Reports/Reports/Downloads/PAC-PRD-FinalRpt-Vol4of4.pdf. Accessed April 21, 2014.
23. Consortium for Spinal Cord Medicine Outcomes following traumatic spinal cord injury: clinical practice guidelines for health-care professionals 1999 Paralyzed Veterans of America Washington (DC)
24. L. Teeter, J. Gassaway, and S. Taylor Relationship of physical therapy inpatient rehabilitation interventions and patient characteristics to outcomes following spinal cord injury: the SCIRehab project J Spinal Cord Med 35 2012 503 526
25. S.A. van Langeveld, M.W. Post, F.W. van Asbeck, K. Postma, D. Ten Dam, and K. Pons Development of a classification of physical, occupational, and sports therapy interventions to document mobility and self-care in spinal cord injury rehabilitation J Neurol Phys Ther 32 2008 2 7
26. R. Ozelie, J. Gassaway, and E. Buchman Relationship of occupational therapy inpatient rehabilitation interventions and patient characteristics to outcomes following spinal cord injury: the SCIRehab project J Spinal Cord Med 35 2012 527 546
27. W.J. Coster, S.M. Haley, P.L. Andres, L.H. Ludlow, T.L. Bond, and P.S. Ni Refining the conceptual basis for rehabilitation outcome measurement: personal care and instrumental activities domain Med Care 42 2004 I62 72
28. M.G. Stineman, A. Jette, R. Fiedler, and C. Granger Impairment-specific dimensions within the Functional Independence Measure Arch Phys Med Rehabil 78 1997 636 643
29. M.G. Stineman, J.A. Shea, and A. Jette The Functional Independence Measure: tests of scaling assumptions, structure, and reliability across 20 diverse impairment categories Arch Phys Med Rehabil 77 1996 1101 1108
30. D.M. Burnett, S.A. Kolakowsky-Hayner, J.M. White, and D.X. Cifu Impact of minority status following traumatic spinal cord injury NeuroRehabilitation 17 2002 187 194
31. M.A. Meade, D.X. Cifu, R.T. Seel, W.O. McKinley, and J.S. Kreutzer Medical procedures, complications, and outcomes for patients with spinal cord injury: a multicenter investigation comparing African Americans and whites Arch Phys Med Rehabil 85 2004 368 375
32. J.D. Putzke, B.L. Hicken, and J.S. Richards Race: predictor versus proxy variable? Outcomes after spinal cord injury Arch Phys Med Rehabil 83 2002 1603 1611
33. M.V. Johnston, K. Wood, S. Millis, S. Page, and D. Chen Perceived quality of care and outcomes following spinal cord injury: minority status in the context of multiple predictors J Spinal Cord Med 27 2004 241 251
34. S. Kirshblum, S. Millis, W. McKinley, and D. Tulsky Late neurologic recovery after traumatic spinal cord injury Arch Phys Med Rehabil 85 2004 1811 1817
35. S.C. Kirshblum, and K.C. O'Connor Levels of spinal cord injury and predictors of neurologic recovery Phys Med Rehabil Clin N Am 11 2000 1 27
36. Y. Chen, A. Deutsch, and M.J. DeVivo Current research outcomes from the Spinal Cord Injury Model Systems Arch Phys Med Rehabil 92 2011 329 331
37. M.J. DeVivo, and L.C. Vogel Epidemiology of spinal cord injury in children and adolescents J Spinal Cord Med 27 Suppl 1 2004 S4 10
38. A.B. Jackson, M. Dijkers, M.J. Devivo, and R.B. Poczatek A demographic profile of new traumatic spinal cord injuries: change and stability over 30 years Arch Phys Med Rehabil 85 2004 1740 1748
39. Consortium for Spinal Cord Medicine Outcomes following traumatic spinal cord injury: clinical practice guidelines for health-care professionals J Spinal Cord Med 23 2000 289 316
40. S. Aito Gruppo Italiano Studio Epidemiologico Mielolesioni GG Complications during the acute phase of traumatic spinal cord lesions Spinal Cord 41 2003 629 635
41. R.J. Marino, T. Barros, and F. Biering-Sorensen International standards for neurological classification of spinal cord injury J Spinal Cord Med 26 Suppl 1 2003 S50 S56
42. H.J. van Hedel, and A. Curt Fighting for each segment: estimating the clinical value of cervical and thoracic segments in SCI J Neurotrauma 23 2006 1621 1631
43. J.C. Arango-Lasprilla, J.M. Ketchum, K. Francis, P. Premuda, T. Stejskal, and J. Kreutzer Influence of race/ethnicity on divorce/separation 1, 2, and 5 years post spinal cord injury Arch Phys Med Rehabil 90 2009 1371 1378
44. J.S. Krause, L.L. Saunders, and M.J. DeVivo Income and risk of mortality after spinal cord injury Arch Phys Med Rehabil 92 2011 339 345
45. J.S. Krause, L.L. Saunders, D. Staten, and D.E. Rohe Vocational interests after recent spinal cord injury: comparisons related to sex and race Arch Phys Med Rehabil 92 2011 626 631
46. E. Kay, A. Deutsch, D. Chen, P. Semik, and D. Rowles Effects of gender on inpatient rehabilitation outcomes in the elderly with incomplete paraplegia from nontraumatic spinal cord injury J Spinal Cord Med 33 2010 379 386
47. A.J. Kozlowski, and A.W. Heinemann Using individual growth curve models to predict recovery and activities of daily living after spinal cord injury: an SCIRehab project study Arch Phys Med Rehabil 94 2013 S154 S164 e1-4
48. L.E. Kazis, J.J. Anderson, and R.F. Meenan Effect sizes for interpreting changes in health status Med Care 27 1989 S178 S189
49. R. Fitzpatrick, C. Davey, M.J. Buxton, and D.R. Jones Evaluating patient-based outcome measures for use in clinical trials Health Technol Assess 2 1998 i iv 1-74
50. J. Cohen Statistical power analysis for the behavioral sciences 1988 Lawrence Erlbaum Associates Hillsdale
51. J.D. Putzke, J.S. Richards, and M.J. Devivo Gunshot versus nongunshot spinal cord injury: acute care and rehabilitation outcomes Am J Phys Med Rehabil 80 2001 366 370
52. J.D. Putzke, J.S. Richards, and M.J. DeVivo Quality of life after spinal cord injury caused by gunshot Arch Phys Med Rehabil 82 2001 949 954
53. A.R. Nelson Unequal treatment: report of the Institute of Medicine on racial and ethnic disparities in healthcare Ann Thorac Surg 76 2003 S1377 S1381
54. Department of Education. Final guidance on maintaining, collecting and reporting racial and ethnic data to the U.S. Department of Education. Federal Register 2007;72.
55. D.C. Fyffe, A.L. Botticello, and L. Myaskovsky Vulnerable groups living with spinal cord injury Top Spinal Cord Inj Rehabil 17 2011 1 9
56. L. Franzini, J.C. Ribble, and A.M. Keddie Understanding the Hispanic paradox Ethn Dis 11 2001 496 518
57. A. Palloni, and J.D. Morenoff Interpreting the paradoxical in the Hispanic paradox: demographic and epidemiologic approaches Ann N Y Acad Sci 954 2001 140 174
58. B. Wirth, H.J.A. van Hedel, B. Kometer, V. Dietz, and A. Curt Changes in activity after a complete spinal cord injury as measured by the Spinal Cord Independence Measure II (SCIM II) Neurorehabil Neural Repair 22 2008 145 153
59. C.V. Granger, A.M. Karmarkar, and J.E. Graham The Uniform Data System for Medical Rehabilitation: report of patients with traumatic spinal cord injury discharged from rehabilitation programs in 2002-2010 Am J Phys Med Rehabil 91 2012 289 299
60. K. Anderson, S. Aito, and M. Atkins Functional recovery measures for spinal cord injury: an evidence-based review for clinical practice and research J Spinal Cord Med 31 2008 133 144
61. J.C. Furlan, V. Noonan, A. Singh, and M.G. Fehlings Assessment of disability in patients with acute traumatic spinal cord injury: a systematic review of the literature J Neurotrauma 28 2011 1413 1430
62. K.M. Hall, M.E. Cohen, J. Wright, M. Call, and P. Werner Characteristics of the Functional Independence Measure in traumatic spinal cord injury Arch Phys Med Rehabil 80 1999 1471 1476