Developing the impact of vision impairment–very low vision (IVI-VLV) questionnaire as part of the LoVADA protocol

Investigative Ophthalmology and Visual Science

Volumn 55, Issue 10, 2014, Pages 6150-6158

  Finger, Robert P ^a   Tellis, Betty ^a   Crewe, Julie ^b   Keeffe, Jill E ^a   Ayton, Lauren N ^a   Guymer, Robyn H ^a  

^a UNIVERSITY OF MELBOURNE   (Australia)

^b CURTIN UNIVERSITY   (Australia)

Author keywords

Psychometric measurement; Quality of life; Questionnaire development; Severe vision impairment

Indexed keywords

ACTIVITIES OF DAILY LIVING, MOBILITY, AND SAFETY SUBSCALE; AGED; ARTICLE; DISEASE SEVERITY; EMOTIONAL WELL BEING SUBSCALE; FEMALE; HUMAN; IMPACT OF VISION IMPAIRMENT VERY LOW VISION QUESTIONNAIRE; MAJOR CLINICAL STUDY; MALE; MEASUREMENT PRECISION; OUTCOME ASSESSMENT; PSYCHOMETRY; QUALITY OF LIFE; QUESTIONNAIRE; RASCH ANALYSIS; RELIABILITY; SCORING SYSTEM; VISION RELATED QUALITY OF LIFE; VISUAL ACUITY; VISUAL FIELD; VISUAL IMPAIRMENT; AUSTRALIA; BLINDNESS; DAILY LIFE ACTIVITY; EPIDEMIOLOGY; FOLLOW UP; MIDDLE AGED; MORBIDITY; PROCEDURES; REPRODUCIBILITY; RETROSPECTIVE STUDY; SICKNESS IMPACT PROFILE; TRENDS; VERY ELDERLY; VISION, LOW;

ACTIVITIES OF DAILY LIVING; AGED; AGED, 80 AND OVER; BLINDNESS; FEMALE; FOLLOW-UP STUDIES; HUMANS; MALE; MIDDLE AGED; MORBIDITY; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCIBILITY OF RESULTS; RETROSPECTIVE STUDIES; SICKNESS IMPACT PROFILE; VICTORIA; VISION, LOW; VISUAL ACUITY;

EID: 84908101922     PISSN: 01460404     EISSN: 15525783     Source Type: Journal    
DOI: 10.1167/iovs.14-14731     Document Type: Article

References (30)

1. Varma R, Wu J, Chong K, Azen SP, Hays RD. Los Angeles Latino Eye Study G. Impact of severity and bilaterality of visual impairment on health-related quality of life. Ophthalmology. 2006;113:1846–1853.
2. Stelmack J. Quality of life of low-vision patients and outcomes of low-vision rehabilitation. Optom Vis Sci. 2001;78:335–342.
3. Finger RP, Fenwick E, Lamoureux EL. Impact of early and late age-related macular degeneration on quality of life. In: Scholl HPN, Massof RW, West S, eds. Ophthalmology and the Ageing Society. New York: Springer; 2013:181–192.
4. Finger RP, Fenwick E, Hirneiss CW, et al. Visual impairment as a function of visual acuity in both eyes and its impact on patient reported preferences. PLoS One. 2013;8:e81042.
5. Finger RP, Fleckenstein M, Holz FG, Scholl HP. Quality of life in age-related macular degeneration: a review of available visionspecific psychometric tools. Qual Life Res. 2008;17:559–574.
6. Langelaan M, de Boer MR, van Nispen RM, Wouters B, Moll AC, van Rens GH. Impact of visual impairment on quality of life: a comparison with quality of life in the general population and with other chronic conditions. Ophthalmic Epidemiol. 2007; 14:119–126.
7. Pesudovs K, Burr JM, Harley C, Elliott DB. The development, assessment, and selection of questionnaires. Optom Vis Sci. 2007;84:663–674.
8. Lamoureux E, Pesudovs K. Vision-specific quality-of-life research: a need to improve the quality. Am J Ophthalmol. 2011;151:195–197.e2.
9. Hassell JB, Weih LM, Keeffe JE. A measure of handicap for low vision rehabilitation: the impact of vision impairment profile. Clin Experiment Ophthalmol. 2000;28:156–161.
10. Lamoureux EL, Pallant JF, Pesudovs K, Rees G, Hassell JB, Keeffe JE. The impact of vision impairment questionnaire: an assessment of its domain structure using confirmatory factor analysis and Rasch analysis. Invest Ophthalmol Vis Sci. 2007; 48:1001–1006.
11. Lamoureux EL, Pallant JF, Pesudovs K, Hassell JB, Keeffe JE. The Impact of Vision Impairment Questionnaire: an evaluation of its measurement properties using Rasch analysis. Invest Ophthalmol Vis Sci. 2006;47:4732–4741.
12. Garamendi E, Pesudovs K, Stevens MJ, Elliott DB. The Refractive Status and Vision Profile: evaluation of psychometric properties and comparison of Rasch and summated Likertscaling. Vision Res. 2006;46:1375–1383.
13. Norquist JM, Fitzpatrick R, Dawson J, Jenkinson C. Comparing alternative Rasch-based methods vs raw scores in measuring change in health. Med Care. 2004;42:I25–I36.
14. Pesudovs K. Patient-centred measurement in ophthalmology— a paradigm shift. BMC Ophthalmol. 2006;6:25.
15. Pesudovs K. Autorefraction as an outcome measure of laser in situ keratomileusis. J Cataract Refract Surg. 2004;30:1921–1928.
16. Crewe JM, Morlet N, Morgan WH, et al. Quality of life of the most severely vision-impaired. Clin Experiment Ophthalmol. 2011;39:336–343.
17. Hassell JB, Lamoureux EL, Keeffe JE. Impact of age related macular degeneration on quality of life. Br J Ophthalmol. 2006;90:593–596.
18. Weih LM, Hassell JB, Keeffe J. Assessment of the impact of vision impairment. Invest Ophthalmol Vis Sci. 2002;43:927–935.
19. Lamoureux EL, Pallant JF, Pesudovs K, Rees G, Hassell JB, Keeffe JE. The effectiveness of low-vision rehabilitation on participation in daily living and quality of life. Invest Ophthalmol Vis Sci. 2007;48:1476–1482.
20. Keeffe JE, McCarty CA, Hassell JB, Gilbert AG. Description and measurement of handicap caused by vision impairment. Aust N Z J Ophthalmol. 1999;27:184–186.
21. Terwee CB, Bot SD, de Boer MR, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. 2007;60:34–42.
22. Ahmadian L, Massof R. Impact of general health status on validity of visual impairment measurement. Ophthalmic Epidemiol. 2008;15:345–355.
23. Finger RP, Fenwick E, Marella M, et al. The relative impact of vision impairment and cardiovascular disease on quality of life: the example of pseudoxanthoma elasticum. Health Qual Life Outcomes. 2011;9:113.
24. Evans JR, Fletcher AE, Wormald RP. Depression and anxiety in visually impaired older people. Ophthalmology. 2007;114: 283–288.
25. Rees G, Tee HW, Marella M, Fenwick E, Dirani M, Lamoureux EL. Vision-specific distress and depressive symptoms in people with vision impairment. Invest Ophthalmol Vis Sci. 2010;51: 2891–2896.
26. Horowitz A, Reinhardt JP. Development of the adaptation to age-related vision loss scale. J Vis Impair Blind. 1998;92:30–42.
27. Wahl HW, Becker S, Burmedi D, Schilling O. The role of primary and secondary control in adaptation to age-related vision loss: a study of older adults with macular degeneration. Psychol Aging. 2004;19:235–239.
28. Rovner BW, Casten RJ, Massof R., Leiby BE, Tasman WS. Wills Eye AMDS. Psychological and cognitive determinants of vision function in age-related macular degeneration. Arch Ophthalmol. 2011;129:885–890.
29. Pesudovs K, Noble BA. Improving subjective scaling of pain using Rasch analysis. J Pain. 2005;6:630–636.
30. Likert R. A technique for the measurement of attitudes. Archives of Psychology. 1932;140:1–55.