-
1
-
-
84949637599
-
-
Bethesda MD: Cystic Fibrosis Foundation on 12 December 2012
-
Cystic Fibrosis Foundation. About Cystic Fibrosis. Bethesda, MD: Cystic Fibrosis Foundation; 2012. Accessed at www.cff.org/AboutCF on 12 December 2012.
-
(2012)
About Cystic Fibrosis
-
-
-
2
-
-
0027395872
-
The changing epidemiology of cystic fibrosis
-
[PMID: 8419592]
-
FitzSimmons SC. The changing epidemiology of cystic fibrosis. J Pediatr. 1993;122:1-9. [PMID: 8419592]
-
(1993)
J Pediatr.
, vol.122
, pp. 1-9
-
-
Fitzsimmons, S.C.1
-
3
-
-
0035814353
-
Survival effect of lung transplantation among patients with cystic fibrosis
-
[PMID: 11730443]
-
Liou TG, Adler FR, Cahill BC, FitzSimmons SC, Huang D, Hibbs JR, et al. Survival effect of lung transplantation among patients with cystic fibrosis. JAMA. 2001;286:2683-9. [PMID: 11730443]
-
(2001)
JAMA
, vol.286
, pp. 2683-2689
-
-
Liou, T.G.1
Adler, F.R.2
Cahill, B.C.3
Fitzsimmons, S.C.4
Huang, D.5
Hibbs, J.R.6
-
4
-
-
0037115262
-
Developing cystic fibrosis lung transplant referral criteria using predictors of 2-year mortality
-
[PMID: 12406843]
-
Mayer-Hamblett N, Rosenfeld M, Emerson J, Goss CH, Aitken ML. Developing cystic fibrosis lung transplant referral criteria using predictors of 2-year mortality. Am J Respir Crit Care Med. 2002;166:1550-5. [PMID: 12406843]
-
(2002)
Am J Respir Crit Care Med.
, vol.166
, pp. 1550-1555
-
-
Mayer-Hamblett, N.1
Rosenfeld, M.2
Emerson, J.3
Goss, C.H.4
Aitken, M.L.5
-
5
-
-
77953635880
-
Association between respiratory tract methicillin-resistant Staphylococcus aureus and survival in cystic fibrosis
-
[PMID: 20551409]
-
Dasenbrook EC, Checkley W, Merlo CA, Konstan MW, Lechtzin N, Boyle MP. Association between respiratory tract methicillin-resistant Staphylococcus aureus and survival in cystic fibrosis. JAMA. 2010;303:2386-92. [PMID: 20551409]
-
(2010)
JAMA
, vol.303
, pp. 2386-2392
-
-
Dasenbrook, E.C.1
Checkley, W.2
Merlo, C.A.3
Konstan, M.W.4
Lechtzin, N.5
Boyle, M.P.6
-
6
-
-
0013279518
-
Cystic fibrosis of the pancreas
-
[PMID: 13491678]
-
Andersen DH. Cystic fibrosis of the pancreas. J Chronic Dis. 1958;7:58-90. [PMID: 13491678]
-
(1958)
J Chronic Dis.
, vol.7
, pp. 58-90
-
-
Andersen, D.H.1
-
7
-
-
84893915106
-
-
Bethesda MD: Cystic Fibrosis Foundation on 12 December 2012
-
Cystic Fibrosis Foundation. Cystic Fibrosis Patient Registry. Bethesda, MD: Cystic Fibrosis Foundation; 2012. Accessed at www.cff.org/UploadedFiles/ research/ClinicalResearch/PatientRegistryReport/2012-CFF-Patient-Registry.pdf on 12 December 2012.
-
(2012)
Cystic Fibrosis Patient Registry
-
-
-
8
-
-
36248953255
-
Cystic fibrosis pulmonary guidelines: Chronic medications for maintenance of lung health
-
Cystic Fibrosis Foundation, Pulmonary Therapies Committee. [PMID: 17761616]
-
Flume PA, O'Sullivan BP, Robinson KA, Goss CH, Mogayzel PJ Jr, Willey- Courand DB, et al; Cystic Fibrosis Foundation, Pulmonary Therapies Committee. Cystic fibrosis pulmonary guidelines: chronic medications for maintenance of lung health. Am J Respir Crit Care Med. 2007;176:957-69. [PMID: 17761616]
-
(2007)
Am J Respir Crit Care Med.
, vol.176
, pp. 957-969
-
-
Flume, P.A.1
O'sullivan, B.P.2
Robinson, K.A.3
Goss, C.H.4
Mogayzel Jr., P.J.5
Willey-Courand, D.B.6
-
9
-
-
42649103313
-
Evidence-based practice recommendations for nutrition-related management of children and adults with cystic fibrosis and pancreatic insufficiency: Results of a systematic review
-
[PMID: 18442507]
-
Stallings VA, Stark LJ, Robinson KA, Feranchak AP, Quinton H; Clinical Practice Guidelines on Growth and Nutrition Subcommittee. Evidence-based practice recommendations for nutrition-related management of children and adults with cystic fibrosis and pancreatic insufficiency: results of a systematic review. J Am Diet Assoc. 2008;108:832-9. [PMID: 18442507]
-
(2008)
J Am Diet Assoc.
, vol.108
, pp. 832-839
-
-
Stallings, V.A.1
Stark, L.J.2
Robinson, K.A.3
Feranchak, A.P.4
Quinton, H.5
-
10
-
-
78651369030
-
Clinical care guidelines for cystic fibrosis-related diabetes: A position statement of the American Diabetes Association and a clinical practice guideline of the Cystic Fibrosis Foundation, endorsed by the Pediatric Endocrine Society
-
CFRD Guidelines Committee. [PMID: 21115772]
-
Moran A, Brunzell C, Cohen RC, Katz M, Marshall BC, Onady G, et al; CFRD Guidelines Committee. Clinical care guidelines for cystic fibrosis-related diabetes: a position statement of the American Diabetes Association and a clinical practice guideline of the Cystic Fibrosis Foundation, endorsed by the Pediatric Endocrine Society. Diabetes Care. 2010;33:2697-708. [PMID: 21115772]
-
(2010)
Diabetes Care.
, vol.33
, pp. 2697-2708
-
-
Moran, A.1
Brunzell, C.2
Cohen, R.C.3
Katz, M.4
Marshall, B.C.5
Onady, G.6
-
11
-
-
77449089874
-
Improving the care of infants identified through cystic fibrosis newborn screening
-
[PMID: 19914444]
-
Marshall BC, Campbell PW 3rd. Improving the care of infants identified through cystic fibrosis newborn screening. J Pediatr. 2009;155:S71-2. [PMID: 19914444]
-
(2009)
J Pediatr.
, vol.155
-
-
Marshall, B.C.1
Campbell III, P.W.2
-
13
-
-
0024949804
-
The needs, concerns and coping of mothers of children with cystic fibrosis
-
[PMID: 2740666]
-
Andersson-Segesten K, Plos K. The needs, concerns and coping of mothers of children with cystic fibrosis. Scand J Caring Sci. 1989;3:35-41. [PMID: 2740666]
-
(1989)
Scand J Caring Sci.
, vol.3
, pp. 35-41
-
-
Andersson-Segesten, K.1
Plos, K.2
-
14
-
-
34247540874
-
Fertility and pregnancy: Common concerns of the aging cystic fibrosis population
-
[PMID: 17467558]
-
Sueblinvong V, Whittaker LA. Fertility and pregnancy: common concerns of the aging cystic fibrosis population. Clin Chest Med. 2007;28:433-43. [PMID: 17467558]
-
(2007)
Clin Chest Med.
, vol.28
, pp. 433-443
-
-
Sueblinvong, V.1
Whittaker, L.A.2
-
15
-
-
73149116816
-
What is the perceived nature of parental care and support for young people with cystic fibrosis as they enter adult health services?
-
[PMID: 19637994]
-
Iles N, Lowton K. What is the perceived nature of parental care and support for young people with cystic fibrosis as they enter adult health services? Health Soc Care Community. 2010;18:21-9. [PMID: 19637994]
-
(2010)
Health Soc Care Community
, vol.18
, pp. 21-29
-
-
Iles, N.1
Lowton, K.2
-
16
-
-
77957712666
-
Effects of gender and age at diagnosis on disease progression in long-term survivors of cystic fibrosis
-
[PMID: 20448091]
-
Nick JA, Chacon CS, Brayshaw SJ, Jones MC, Barboa CM, St Clair CG, et al. Effects of gender and age at diagnosis on disease progression in long-term survivors of cystic fibrosis. Am J Respir Crit Care Med. 2010;182:614-26. [PMID: 20448091]
-
(2010)
Am J Respir Crit Care Med.
, vol.182
, pp. 614-626
-
-
Nick, J.A.1
Chacon, C.S.2
Brayshaw, S.J.3
Jones, M.C.4
Barboa, C.M.5
St Clair, C.G.6
-
17
-
-
78651429274
-
The application of current lifetable methods to compare cystic fibrosis median survival internationally is limited
-
[PMID: 20888308]
-
Jackson AD, Daly L, Kelleher C, Marshall BC, Quinton HB, Foley L, et al. The application of current lifetable methods to compare cystic fibrosis median survival internationally is limited. J Cyst Fibros. 2011;10:62-5. [PMID: 20888308]
-
(2011)
J Cyst Fibros.
, vol.10
, pp. 62-65
-
-
Jackson, A.D.1
Daly, L.2
Kelleher, C.3
Marshall, B.C.4
Quinton, H.B.5
Foley, L.6
-
18
-
-
77953024756
-
Risk factors for aminoglycoside ototoxicity in adult cystic fibrosis patients [Letter]
-
[PMID: 20382508]
-
O'Donnell EP, Scarsi KK, Scheetz MH, Postelnick MJ, Cullina J, Jain M. Risk factors for aminoglycoside ototoxicity in adult cystic fibrosis patients [Letter]. Int J Antimicrob Agents. 2010;36:94-5. [PMID: 20382508]
-
(2010)
Int J Antimicrob Agents.
, vol.36
, pp. 94-95
-
-
O'donnell, E.P.1
Scarsi, K.K.2
Scheetz, M.H.3
Postelnick, M.J.4
Cullina, J.5
Jain, M.6
-
19
-
-
10344219968
-
Renal impairment in cystic fibrosis patients due to repeated intravenous aminoglycoside use
-
[PMID: 15521084]
-
Al-Aloul M, Miller H, Alapati S, Stockton PA, Ledson MJ, Walshaw MJ. Renal impairment in cystic fibrosis patients due to repeated intravenous aminoglycoside use. Pediatr Pulmonol. 2005;39:15-20. [PMID: 15521084]
-
(2005)
Pediatr Pulmonol.
, vol.39
, pp. 15-20
-
-
Al-Aloul, M.1
Miller, H.2
Alapati, S.3
Stockton, P.A.4
Ledson, M.J.5
Walshaw, M.J.6
-
20
-
-
34247580823
-
Microvascular complications in cystic fibrosis-related diabetes
-
[PMID: 17322485]
-
Schwarzenberg SJ, Thomas W, Olsen TW, Grover T, Walk D, Milla C, et al. Microvascular complications in cystic fibrosis-related diabetes. Diabetes Care. 2007;30:1056-61. [PMID: 17322485]
-
(2007)
Diabetes Care.
, vol.30
, pp. 1056-1061
-
-
Schwarzenberg, S.J.1
Thomas, W.2
Olsen, T.W.3
Grover, T.4
Walk, D.5
Milla, C.6
-
21
-
-
55149114403
-
Prevalence and impact of depression in cystic fibrosis
-
[PMID: 18812836]
-
Quittner AL, Barker DH, Snell C, Grimley ME, Marciel K, Cruz I. Prevalence and impact of depression in cystic fibrosis. Curr Opin Pulm Med. 2008; 14:582-8. [PMID: 18812836]
-
(2008)
Curr Opin Pulm Med.
, vol.14
, pp. 582-588
-
-
Quittner, A.L.1
Barker, D.H.2
Snell, C.3
Grimley, M.E.4
Marciel, K.5
Cruz, I.6
-
22
-
-
33847711906
-
Cystic fibrosis mortality and survival in the UK: 1947-2003
-
[PMID: 17182652]
-
Dodge JA, Lewis PA, Stanton M, Wilsher J. Cystic fibrosis mortality and survival in the UK: 1947-2003. Eur Respir J. 2007;29:522-6. [PMID: 17182652]
-
(2007)
Eur Respir J.
, vol.29
, pp. 522-526
-
-
Dodge, J.A.1
Lewis, P.A.2
Stanton, M.3
Wilsher, J.4
-
23
-
-
47049115524
-
Guidelines for diagnosis of cystic fibrosis in newborns through older adults: Cystic Fibrosis Foundation consensus report
-
Cystic Fibrosis Foundation. [PMID: 18639722]
-
Farrell PM, Rosenstein BJ, White TB, Accurso FJ, Castellani C, Cutting GR, et al; Cystic Fibrosis Foundation. Guidelines for diagnosis of cystic fibrosis in newborns through older adults: Cystic Fibrosis Foundation consensus report. J Pediatr. 2008;153:S4-S14. [PMID: 18639722]
-
(2008)
J Pediatr.
, vol.153
-
-
Farrell, P.M.1
Rosenstein, B.J.2
White, T.B.3
Accurso, F.J.4
Castellani, C.5
Cutting, G.R.6
-
24
-
-
0038809884
-
Improved survival among young patients with cystic fibrosis
-
[PMID: 12838190]
-
Kulich M, Rosenfeld M, Goss CH, Wilmott R. Improved survival among young patients with cystic fibrosis. J Pediatr. 2003;142:631-6. [PMID: 12838190]
-
(2003)
J Pediatr.
, vol.142
, pp. 631-636
-
-
Kulich, M.1
Rosenfeld, M.2
Goss, C.H.3
Wilmott, R.4
-
25
-
-
0036163928
-
Case-mix adjustment for evaluation of mortality in cystic fibrosis
-
Northern New England Cystic Fibrosis Consortium. [PMID: 11802245]
-
O'Connor GT, Quinton HB, Kahn R, Robichaud P, Maddock J, Lever T, et al; Northern New England Cystic Fibrosis Consortium. Case-mix adjustment for evaluation of mortality in cystic fibrosis. Pediatr Pulmonol. 2002;33:99-105. [PMID: 11802245]
-
(2002)
Pediatr Pulmonol.
, vol.33
, pp. 99-105
-
-
O'connor, G.T.1
Quinton, H.B.2
Kahn, R.3
Robichaud, P.4
Maddock, J.5
Lever, T.6
-
26
-
-
0038663174
-
Effect of genotype on phenotype and mortality in cystic fibrosis: A retrospective cohort study
-
[PMID: 12767731]
-
McKone EF, Emerson SS, Edwards KL, Aitken ML. Effect of genotype on phenotype and mortality in cystic fibrosis: a retrospective cohort study. Lancet. 2003;361:1671-6. [PMID: 12767731]
-
(2003)
Lancet
, vol.361
, pp. 1671-1676
-
-
McKone, E.F.1
Emerson, S.S.2
Edwards, K.L.3
Aitken, M.L.4
-
27
-
-
0029616734
-
Cystic fibrosis: Genotypic and phenotypic variations
-
[PMID: 8825494]
-
Zielenski J, Tsui LC. Cystic fibrosis: genotypic and phenotypic variations. Annu Rev Genet. 1995;29:777-807. [PMID: 8825494]
-
(1995)
Annu Rev Genet.
, vol.29
, pp. 777-807
-
-
Zielenski, J.1
Tsui, L.C.2
-
28
-
-
0026316543
-
Cystic fibrosis: Current survival and population estimates to the year 2000
-
[PMID: 1792634]
-
Elborn JS, Shale DJ, Britton JR. Cystic fibrosis: current survival and population estimates to the year 2000. Thorax. 1991;46:881-5. [PMID: 1792634]
-
(1991)
Thorax
, vol.46
, pp. 881-885
-
-
Elborn, J.S.1
Shale, D.J.2
Britton, J.R.3
-
29
-
-
79960592523
-
Validation and use of a parametric model for projecting cystic fibrosis survivorship beyond observed data: A birth cohort analysis
-
[PMID: 21653925]
-
Jackson AD, Daly L, Jackson AL, Kelleher C, Marshall BC, Quinton HB, et al. Validation and use of a parametric model for projecting cystic fibrosis survivorship beyond observed data: a birth cohort analysis. Thorax. 2011;66: 674-9. [PMID: 21653925]
-
(2011)
Thorax.
, vol.66
, pp. 674-679
-
-
Jackson, A.D.1
Daly, L.2
Jackson, A.L.3
Kelleher, C.4
Marshall, B.C.5
Quinton, H.B.6
-
30
-
-
0037093814
-
Jointly modelling the relationship between survival and pulmonary function in cystic fibrosis patients
-
[PMID: 12111878]
-
Schluchter MD, Konstan MW, Davis PB. Jointly modelling the relationship between survival and pulmonary function in cystic fibrosis patients. Stat Med. 2002;21:1271-87. [PMID: 12111878]
-
(2002)
Stat Med.
, vol.21
, pp. 1271-1287
-
-
Schluchter, M.D.1
Konstan, M.W.2
Davis, P.B.3
-
31
-
-
0036320272
-
Pseudomonas aeruginosa and other predictors of mortality and morbidity in young children with cystic fibrosis
-
[PMID: 12112774]
-
Emerson J, Rosenfeld M, McNamara S, Ramsey B, Gibson RL. Pseudomonas aeruginosa and other predictors of mortality and morbidity in young children with cystic fibrosis. Pediatr Pulmonol. 2002;34:91-100. [PMID: 12112774]
-
(2002)
Pediatr Pulmonol.
, vol.34
, pp. 91-100
-
-
Emerson, J.1
Rosenfeld, M.2
McNamara, S.3
Ramsey, B.4
Gibson, R.L.5
-
32
-
-
34447530328
-
Risk factors for rate of decline in forced expiratory volume in one second in children and adolescents with cystic fibrosis
-
Scientific Advisory Group and the Investigators and Coordinators of the Epidemiologic Study of Cystic Fibrosis, 139.e1. [PMID: 17643762]
-
Konstan MW, Morgan WJ, Butler SM, Pasta DJ, Craib ML, Silva SJ, et al; Scientific Advisory Group and the Investigators and Coordinators of the Epidemiologic Study of Cystic Fibrosis. Risk factors for rate of decline in forced expiratory volume in one second in children and adolescents with cystic fibrosis. J Pediatr. 2007;151:134-9, 139.e1. [PMID: 17643762]
-
(2007)
J Pediatr.
, vol.151
, pp. 134-139
-
-
Konstan, M.W.1
Morgan, W.J.2
Butler, S.M.3
Pasta, D.J.4
Craib, M.L.5
Silva, S.J.6
-
33
-
-
41349123735
-
The influence of parental supervision on medical adherence in adolescents with cystic fibrosis: Developmental shifts from pre to late adolescence
-
Modi AC, Marciel KK, Slater SK, Drotar D, Quittner AL. The influence of parental supervision on medical adherence in adolescents with cystic fibrosis: Developmental shifts from pre to late adolescence. Child Health Care. 2008;37: 78-92.
-
(2008)
Child Health Care.
, vol.37
, pp. 78-92
-
-
Modi, A.C.1
Marciel, K.K.2
Slater, S.K.3
Drotar, D.4
Quittner, A.L.5
-
34
-
-
0030967472
-
Gender gap in cystic fibrosis mortality
-
[PMID: 9143209]
-
Rosenfeld M, Davis R, FitzSimmons S, Pepe M, Ramsey B. Gender gap in cystic fibrosis mortality. Am J Epidemiol. 1997;145:794-803. [PMID: 9143209]
-
(1997)
Am J Epidemiol.
, vol.145
, pp. 794-803
-
-
Rosenfeld, M.1
Davis, R.2
Fitzsimmons, S.3
Pepe, M.4
Ramsey, B.5
-
35
-
-
84857433891
-
Association between socioeconomic status sex and age at death from cystic fibrosis in England and Wales (1959 to 2008): Cross sectional study
-
[PMID: 21862532]
-
Barr HL, Britton J, Smyth AR, Fogarty AW. Association between socioeconomic status, sex, and age at death from cystic fibrosis in England and Wales (1959 to 2008): cross sectional study. BMJ. 2011;343:d4662. [PMID: 21862532]
-
(2011)
BMJ
, vol.343
-
-
Barr, H.L.1
Britton, J.2
Smyth, A.R.3
Fogarty, A.W.4
-
36
-
-
0028219059
-
Treatment compliance in adults with cystic fibrosis
-
[PMID: 8128399]
-
Abbott J, Dodd M, Bilton D, Webb AK. Treatment compliance in adults with cystic fibrosis. Thorax. 1994;49:115-20. [PMID: 8128399]
-
(1994)
Thorax.
, vol.49
, pp. 115-120
-
-
Abbott, J.1
Dodd, M.2
Bilton, D.3
Webb, A.K.4
-
37
-
-
84865837418
-
Are measures of body habitus associated with mortality in cystic fibrosis?
-
[PMID: 22362875]
-
Fogarty AW, Britton J, Clayton A, Smyth AR. Are measures of body habitus associated with mortality in cystic fibrosis? Chest. 2012;142:712-7. [PMID: 22362875]
-
(2012)
Chest.
, vol.142
, pp. 712-717
-
-
Fogarty, A.W.1
Britton, J.2
Clayton, A.3
Smyth, A.R.4
-
38
-
-
57449104934
-
17beta-Estradiol inhibits Ca2+dependent homeostasis of airway surface liquid volume in human cystic fibrosis airway epithelia
-
[PMID: 19033671]
-
Coakley RD, Sun H, Clunes LA, Rasmussen JE, Stackhouse JR, Okada SF, et al. 17beta-Estradiol inhibits Ca2+dependent homeostasis of airway surface liquid volume in human cystic fibrosis airway epithelia. J Clin Invest. 2008;118: 4025-35. [PMID: 19033671]
-
(2008)
J Clin Invest.
, vol.118
, pp. 4025-4035
-
-
Coakley, R.D.1
Sun, H.2
Clunes, L.A.3
Rasmussen, J.E.4
Stackhouse, J.R.5
Okada, S.F.6
-
39
-
-
57449098489
-
Cystic fibrosis and estrogens: A perfect storm
-
[PMID: 19033654]
-
Zeitlin PL. Cystic fibrosis and estrogens: a perfect storm. J Clin Invest. 2008;118:3841-4. [PMID: 19033654]
-
(2008)
J Clin Invest.
, vol.118
, pp. 3841-3844
-
-
Zeitlin, P.L.1
-
40
-
-
81455138216
-
Risk factors for chronic kidney disease in adults with cystic fibrosis
-
[PMID: 21799076]
-
Quon BS, Mayer-Hamblett N, Aitken ML, Smyth AR, Goss CH. Risk factors for chronic kidney disease in adults with cystic fibrosis. Am J Respir Crit Care Med. 2011;184:1147-52. [PMID: 21799076]
-
(2011)
Am J Respir Crit Care Med.
, vol.184
, pp. 1147-1152
-
-
Quon, B.S.1
Mayer-Hamblett, N.2
Aitken, M.L.3
Smyth, A.R.4
Goss, C.H.5
-
41
-
-
0036106187
-
Abnormal lipid concentrations in cystic fibrosis
-
[PMID: 12036806]
-
Figueroa V, Milla C, Parks EJ, Schwarzenberg SJ, Moran A. Abnormal lipid concentrations in cystic fibrosis. Am J Clin Nutr. 2002;75:1005-11. [PMID: 12036806]
-
(2002)
Am J Clin Nutr.
, vol.75
, pp. 1005-1011
-
-
Figueroa, V.1
Milla, C.2
Parks, E.J.3
Schwarzenberg, S.J.4
Moran, A.5
-
42
-
-
51349120601
-
Colon cancer in cystic fibrosis patients: Is this a growing problem?
-
[PMID: 18374636]
-
Hernandez-Jimenez I, Fischman D, Cheriyath P. Colon cancer in cystic fibrosis patients: is this a growing problem? J Cyst Fibros. 2008;7:343-6. [PMID: 18374636]
-
(2008)
J Cyst Fibros.
, vol.7
, pp. 343-346
-
-
Hernandez-Jimenez, I.1
Fischman, D.2
Cheriyath, P.3
-
43
-
-
34447519298
-
The association between depression, lung function, and health-related quality of life among adults with cystic fibrosis
-
[PMID: 17625085]
-
Riekert KA, Bartlett SJ, Boyle MP, Krishnan JA, Rand CS. The association between depression, lung function, and health-related quality of life among adults with cystic fibrosis. Chest. 2007;132:231-7. [PMID: 17625085]
-
(2007)
Chest.
, vol.132
, pp. 231-237
-
-
Riekert, K.A.1
Bartlett, S.J.2
Boyle, M.P.3
Krishnan, J.A.4
Rand, C.S.5
-
44
-
-
60449117029
-
High treatment burden in adults with cystic fibrosis: Challenges to disease self-management
-
[PMID: 18952504]
-
Sawicki GS, Sellers DE, Robinson WM. High treatment burden in adults with cystic fibrosis: challenges to disease self-management. J Cyst Fibros. 2009; 8:91-6. [PMID: 18952504]
-
(2009)
J Cyst Fibros.
, vol.8
, pp. 91-96
-
-
Sawicki, G.S.1
Sellers, D.E.2
Robinson, W.M.3
-
45
-
-
84896501109
-
The Cystic Fibrosis Foundation Patient Registry as a tool for use in quality improvement
-
[PMID: 24443584]
-
Schechter MS, Fink AK, Homa K, Goss CH. The Cystic Fibrosis Foundation Patient Registry as a tool for use in quality improvement. BMJ Qual Saf. 2014;23 Suppl 1:i9-14. [PMID: 24443584]
-
(2014)
BMJ Qual Saf.
, vol.23
, Issue.SUPPL. 1
-
-
Schechter, M.S.1
Fink, A.K.2
Homa, K.3
Goss, C.H.4
-
46
-
-
84896514136
-
The interdependent roles of patients, families and professionals in cystic fibrosis: A system for the coproduction of healthcare and its improvement
-
[PMID: 24608555]
-
Sabadosa KA, Batalden PB. The interdependent roles of patients, families and professionals in cystic fibrosis: a system for the coproduction of healthcare and its improvement. BMJ Qual Saf. 2014;23 Suppl 1:i90-4. [PMID: 24608555]
-
(2014)
BMJ Qual Saf.
, vol.23
, Issue.SUPPL. 1
-
-
Sabadosa, K.A.1
Batalden, P.B.2
-
47
-
-
84896515711
-
Accelerating the rate of improvement in cystic fibrosis care: Contributions and insights of the learning and leadership collaborative
-
[PMID: 24608547]
-
Godfrey MM, Oliver BJ. Accelerating the rate of improvement in cystic fibrosis care: contributions and insights of the learning and leadership collaborative. BMJ Qual Saf. 2014;23 Suppl 1:i23-i32. [PMID: 24608547]
-
(2014)
BMJ Qual Saf.
, vol.23
, Issue.SUPPL. 1
-
-
Godfrey, M.M.1
Oliver, B.J.2
-
48
-
-
84896523530
-
Improving transition from paediatric to adult cystic fibrosis care: Programme implementation and evaluation
-
[PMID: 24415776]
-
Okumura MJ, Ong T, Dawson D, Nielson D, Lewis N, Richards M, et al. Improving transition from paediatric to adult cystic fibrosis care: programme implementation and evaluation. BMJ Qual Saf. 2014;23 Suppl 1:i64-i72. [PMID: 24415776]
-
(2014)
BMJ Qual Saf.
, vol.23
, Issue.SUPPL. 1
-
-
Okumura, M.J.1
Ong, T.2
Dawson, D.3
Nielson, D.4
Lewis, N.5
Richards, M.6
-
49
-
-
84908213779
-
Improved screening for cystic fibrosis-related diabetes by an integrated care team using an algorithm
-
16 Jan. [Epub ahead of print] [PMID: 24436252]
-
Rayas MS, Willey-Courand DB, Lynch JL, Guajardo JR. Improved screening for cystic fibrosis-related diabetes by an integrated care team using an algorithm. Pediatr Pulmonol. 16 Jan 2014. [Epub ahead of print] [PMID: 24436252]
-
(2014)
Pediatr Pulmonol.
-
-
Rayas, M.S.1
Willey-Courand, D.B.2
Lynch, J.L.3
Guajardo, J.R.4
-
50
-
-
6344231597
-
Clinical manifestations of cystic fibrosis among patients with diagnosis in adulthood
-
[PMID: 15486385]
-
Gilljam M, Ellis L, Corey M, Zielenski J, Durie P, Tullis DE. Clinical manifestations of cystic fibrosis among patients with diagnosis in adulthood. Chest. 2004;126:1215-24. [PMID: 15486385]
-
(2004)
Chest.
, vol.126
, pp. 1215-1224
-
-
Gilljam, M.1
Ellis, L.2
Corey, M.3
Zielenski, J.4
Durie, P.5
Tullis, D.E.6
-
53
-
-
0025172157
-
A partially parametric estimator of survival in the presence of randomly censored data
-
[PMID: 2242415]
-
Klein JP, Lee SC, Moeschberger ML. A partially parametric estimator of survival in the presence of randomly censored data. Biometrics. 1990;46:795-811. [PMID: 2242415]
-
(1990)
Biometrics.
, vol.46
, pp. 795-811
-
-
Klein, J.P.1
Lee, S.C.2
Moeschberger, M.L.3
-
54
-
-
0022036730
-
A comparison of several methods of estimating the survival function when there is extreme right censoring
-
[PMID: 4005379]
-
Moeschberger ML, Klein JP. A comparison of several methods of estimating the survival function when there is extreme right censoring. Biometrics. 1985;41: 253-9. [PMID: 4005379]
-
(1985)
Biometrics.
, vol.41
, pp. 253-259
-
-
Moeschberger, M.L.1
Klein, J.P.2
|