Sense of coherence, rather than exercise capacity, is the stronger predictor to obtain health-related quality of life in adults with congenital heart disease

European Journal of Preventive Cardiology

Volumn 21, Issue 8, 2014, Pages 949-955

  Müller, Jan ^a   Hess, John ^a   Hager, Alfred ^a  

^a TECHNICAL UNIVERSITY OF MUNICH   (Germany)

Author keywords

Congenital heart disease; exercise capacity; quality of life; sense of coherence

Indexed keywords

ADOLESCENT; ADULT; AGE; AGED; AORTA COARCTATION; AORTA STENOSIS; ARTICLE; CARDIOPULMONARY EXERCISE TEST; CARDIOVASCULAR FUNCTION; CONGENITAL HEART DISEASE; CONTROLLED STUDY; DISEASE SEVERITY; EBSTEIN ANOMALY; EXERCISE; FALLOT TETRALOGY; FEMALE; HUMAN; KRUSKAL WALLIS TEST; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; QUALITY OF LIFE; REFERENCE VALUE; SENSE OF COHERENCE; SENSE OF COHERENCE SCALE; SHORT FORM 36; WELLBEING; YOUNG ADULT; CONGENITAL HEART MALFORMATION; EXERCISE TEST; EXERCISE TOLERANCE; MIDDLE AGED; PATHOPHYSIOLOGY; PHYSIOLOGY; PSYCHOLOGY; QUESTIONNAIRE;

ADOLESCENT; ADULT; AGED; EXERCISE TEST; EXERCISE TOLERANCE; FEMALE; HEART DEFECTS, CONGENITAL; HUMANS; MALE; MIDDLE AGED; QUALITY OF LIFE; SENSE OF COHERENCE; SURVEYS AND QUESTIONNAIRES;

EID: 84904869978     PISSN: 20474873     EISSN: 20474881     Source Type: Journal    
DOI: 10.1177/2047487313481753     Document Type: Article

References (27)

1. Müller J, Hess J and Hager A. General anxiety of adolescents and adults with congenital heart disease is comparable with that in healthy controls. Int J Cardiol 2011; 10.1016/j.ijcard.2011.08.005.
2. Fredriksen PM, Diseth TH, Thaulow E. Children and adolescents with congenital heart disease: assessment of behavioural and emotional problems. Eur Child Adolesc Psychiatry. 2009 ; 18: 292-300
3. Müller J, Hess J, Hager A. Minor symptoms of depression in patients with congenital heart disease have a larger impact on quality of life than limited exercise capacity. Int J Cardiol. 2012 ; 154: 265-269
4. Moons P, Van Deyk K, De Bleser L, et al. Quality of life and health status in adults with congenital heart disease: A direct comparison with healthy counterparts. Eur J Cardiovasc Prev Rehabil. 2006 ; 13: 407-413 (Pubitemid 44318652)
5. van Rijen EH, Utens EM, Roos-Hesselink JW, et al. Psychosocial functioning of the adult with congenital heart disease: A 20-33 years follow-up. Eur Heart J. 2003 ; 24: 673-683 (Pubitemid 36343201)
6. Loup O, von Weissenfluh C, Gahl B, et al. Quality of life of grown-up congenital heart disease patients after congenital cardiac surgery. Eur J Cardiothorac Surg. 2009 ; 36: 105-111
7. Moons P, Van Deyk K, De Geest S, et al. Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients?. Heart. 2005 ; 91: 1193-1198 (Pubitemid 41192398)
8. Spijkerboer AW, Utens EM, Bogers AJ, et al. Long-term behavioural and emotional problems in four cardiac diagnostic groups of children and adolescents after invasive treatment for congenital heart disease. Int J Cardiol. 2008 ; 125: 66-73 (Pubitemid 351305424)
9. Utens EM, Bieman HJ, Verhulst FC, et al. Psychopathology in young adults with congenital heart disease. Follow-up results. Eur Heart J. 1998 ; 19: 647-651 (Pubitemid 28224688)
10. Antonovsky A Health, stress and coping. San Francisco: Jossey-Bass ; 1979:
11. Antonovsky A Unraveling The Mystery of Health?-?How People Manage Stress and Stay Well. San Francisco: Jossey-Bass ; 1987:
12. Moons P, Norekval TM. Is sense of coherence a pathway for improving the quality of life of patients who grow up with chronic diseases? A hypothesis. Eur J Cardiovasc Nurs. 2006 ; 5: 16-20 (Pubitemid 43212977)
13. Eriksson M, Lindstrom B. Antonovsky's sense of coherence scale and its relation with quality of life: A systematic review. J Epidemiol Community Health. 2007 ; 61: 938-944 (Pubitemid 350032589)
14. Neuner B, Busch MA, Singer S, et al. Sense of coherence as a predictor of quality of life in adolescents with congenital heart defects: A register-based 1-year follow-up study. J Dev Behav Pediatr 2011; 32: 316-327.
15. Nio K. Sense of coherence in adolescents with congenital cardiac disease. Cardiol Young. 2010 ; 20: 538-546
16. Overgaard D, Schrader AM, Lisby KH, et al. Patient-reported outcomes in adult survivors with single-ventricle physiology. Cardiology. 2011 ; 120: 36-42
17. Warnes CA, Liberthson R, Danielson GK, et al. Task force 1: The changing profile of congenital heart disease in adult life. J Am Coll Cardiol. 2001 ; 37: 1170-1175
18. Eriksson M, Lindstrom B. Validity of Antonovsky's sense of coherence scale: A systematic review. J Epidemiol Community Health. 2005 ; 59: 460-466 (Pubitemid 40791030)
19. Schumacher J, Gunzelmann T, Brähler E. Deutsche Normierung der Sense of Coherence Scale von Antonovsky. Diagnostica. 2000 ; 46: 208-213
20. Müller J, Hess J, Hager A. Exercise performance and quality of life is more impaired in Eisenmenger syndrome than in complex cyanotic congenital heart disease with pulmonary stenosis. Int J Cardiol. 2011 ; 150: 177-181
21. Müller J, Hess J, Hager A. Daily physical activity in adults with congenital heart disease is positively correlated with exercise capacity but not with quality of life. Clin Res Cardiol. 2012 ; 101: 55-61
22. Bullinger M, Kirchberger I SF-36, Fragebogen zum Gesundheitszustand, Handanweisung. 36, Fragebogen zum Gesundheitszustand, Handanweisung, 1st edn. Göttingen: Hogrefe, 1998. Göttingen: Hogrefe ; 1998:
23. Gläser S, Koch B, Ittermann T, et al. Influence of age, sex, body size, smoking, and beta blockade on key gas exchange exercise parameters in an adult population. Eur J Cardiovasc Prev Rehabil. 2010 ; 17: 469-476
24. Cooper DM, Weiler-Ravell D. Gas exchange response to exercise in children. Am Rev Respir Dis. 1984 ; 129: S47 - S48
25. Kovacs AH, Saidi AS, Kuhl EA, et al. Depression and anxiety in adult congenital heart disease: Predictors and prevalence. Int J Cardiol. 2009 ; 137: 158-164
26. Gratz A, Hess J, Hager A. Self-estimated physical functioning poorly predicts actual exercise capacity in adolescents and adults with congenital heart disease. Eur Heart J. 2009 ; 30: 497-504
27. Utens EM, Verhulst FC, Meijboom FJ, et al. Behavioural and emotional problems in children and adolescents with congenital heart disease. Psychol Med. 1993 ; 23: 415-424 (Pubitemid 23209237)