Young and uninsured: Insurance patterns of recently diagnosed adolescent and young adult cancer survivors in the AYA HOPE study

Cancer

Volumn 120, Issue 15, 2014, Pages 2352-2360

  Parsons, Helen M ^a   Schmidt, Susanne ^a   Harlan, Linda C ^b   Kent, Erin E ^b   Lynch, Charles F ^c   Smith, Ashley W ^b   Keegan, Theresa H M ^d  

^a UNIVERSITY OF TEXAS HEALTH SCIENCE CENTER AT SAN ANTONIO   (United States)

^b NATIONAL CANCER INSTITUTE   (United States)

^c UNIVERSITY OF IOWA   (United States)

^d CANCER PREVENTION INSTITUTE OF CALIFORNIA   (United States)

Author keywords

adolescents and young adults; insurance; Patient Protection and Affordable Care Act; Surveillance, Epidemiology, and End Results (SEER)

Indexed keywords

ADOLESCENT; ADULT; AGE DISTRIBUTION; ARTICLE; CANCER SURVIVOR; COHORT ANALYSIS; CONTROLLED STUDY; EDUCATIONAL STATUS; EMPLOYER; FEMALE; GRADUATE; HEALTH INSURANCE; HEALTH INSURANCE ELIGIBILITY; HUMAN; MAJOR CLINICAL STUDY; MALE; MEDICALLY UNINSURED; PRIORITY JOURNAL; PUBLIC HEALTH INSURANCE; SCHOOL; AGE; CANCER REGISTRY; ECONOMICS; HEALTH CARE POLICY; INSURANCE; NEOPLASM; SURVIVOR; UNITED STATES; YOUNG ADULT;

ADULT; AGE FACTORS; FEMALE; HUMANS; INSURANCE COVERAGE; MALE; MEDICALLY UNINSURED; NEOPLASMS; PATIENT PROTECTION AND AFFORDABLE CARE ACT; SEER PROGRAM; SURVIVORS; UNITED STATES; YOUNG ADULT;

EID: 84904725881     PISSN: 0008543X     EISSN: 10970142     Source Type: Journal    
DOI: 10.1002/cncr.28685     Document Type: Article

References (28)

1. Health Insurance Coverage of Young Adults Aged 19 to 25: 2008, 2009, and 2011. Washington, DC: US Census Bureau; 2012. census.gov/prod/2012pubs/acsbr11- 11.pdf. Accessed March 20, 2013.
2. Casillas J, Castellino SM, Hudson MM, et al. Impact of insurance type on survivor-focused and general preventive health care utilization in adult survivors of childhood cancer: the Childhood Cancer Survivor Study (CCSS). Cancer. 2011; 117: 1966-1975.
3. Park ER, Li FP, Liu Y, et al. Health insurance coverage in survivors of childhood cancer: the Childhood Cancer Survivor Study. J Clin Oncol. 2005; 23: 9187-9797.
4. Nathan PC, Greenberg ML, Ness KK, et al. Medical care in long-term survivors of childhood cancer: a report from the childhood cancer survivor study. J Clin Oncol. 2008; 26: 4401-4409.
5. Oeffinger KC, Mertens AC, Hudson MM, et al. Health care of young adult survivors of childhood cancer: a report from the Childhood Cancer Survivor Study. Ann Fam Med. 2004; 2: 61-70.
6. Robison LL, Mertens AC, Boice JD, et al. Study design and cohort characteristics of the Childhood Cancer Survivor Study: a multi-institutional collaborative project. Med Pediatr Oncol. 2002; 38: 229-239.
7. Kirchhoff AC, Lyles CR, Fluchel M, Wright J, Leisenring W,. Limitations in health care access and utilization among long-term survivors of adolescent and young adult cancer. Cancer. 2012; 118: 5964-5972.
8. Adams SH, Newacheck PW, Park MJ, Brindis CD, Irwin CE Jr,. Health insurance across vulnerable ages: patterns and disparities from adolescence to the early 30s. Pediatrics. 2007; 119: e1033-e1039.
9. Adolescent and Young Adult Oncology Progress Review Group. Closing the Gap: Research and Care Imperatives for Adolescents and Young Adults With Cancer. Bethesda, MD: National Institutes of Health; 2006.
10. Bleyer A, Ulrich C, Martin S,. Young adults, cancer, health insurance, socioeconomic status, and the Patient Protection and Affordable Care Act. Cancer. 2012; 118: 6018-6021.
11. Cancer Survivorship Research: Estimated U.S. Cancer Prevalence. cancercontrol.cancer.gov/ocs/prevalence/prevalence.html#age. Accessed October 14, 2013.
12. Harlan LC, Lynch CF, Keegan TH, et al. AYA HOPE Study Collaborative Group. Recruitment and follow-up of adolescent and young adult cancer survivors: the AYA HOPE study. J Cancer Surviv. 2011; 5: 305-314.
13. Surveillance, Epidemiology, and End Results Program. seer.cancer.gov/. Accessed date January 3, 2014.
14. Behavioral Risk Factor Surveillance System. aspe.hhs.gov/hsp/06/catalog- ai-an-na/brfss.htm. Accessed date January 3, 2014.
15. Parsons HM, Harlan LC, Lynch CF, et al. Impact of cancer on work and education among adolescent and young adult cancer survivors. J Clin Oncol. 2012; 30: 2393-2400.
16. Keegan TH, Lichtensztajn DY, Kato I, et al. Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study. J Cancer Surviv. 2012; 6: 239-250.
17. Miilunpalo S, Vuori I, Oja P, Pasanen M, Urponen H,. Self-rated health status as a health measure: the predictive value of self-reported health status on the use of physician services and on mortality in the working-age population. J Clin Epidemiol. 1997; 50: 517-528.
18. Parsons HM, Harlan LC, Seibel NL, Stevens JL, Keegan TH,. Clinical trial participation and time to treatment among adolescents and young adults with cancer: does age at diagnosis or insurance make a difference? J Clin Oncol. 2011; 29: 4045-4053.
19. Werba BE, Hobbie W, Kazak AE, Ittenbach RF, Reilly AF, Meadows AT,. Classifying the intensity of pediatric cancer treatment protocols: the intensity of treatment rating scale 2.0 (ITR-2). Pediatr Blood Cancer. 2007; 48: 673-677.
20. Crom DB, Lensing SY, Rai SN, Snider MA, Cash DK, Hudson MM,. Marriage, employment, and health insurance in adult survivors of childhood cancer. J Cancer Surviv. 2007; 1: 237-245.
21. Wolfson J, Ruccione K, Reaman GH,. Health care reform 2010: expected favorable impact on childhood cancer patients and survivors. Cancer J. 2010; 16: 554-562.
22. Moy B, Polite BN, Halpern MT, et al. American Society of Clinical Oncology policy statement: opportunities in the Patient Protection and Affordable Care Act to reduce cancer care disparities. J Clin Oncol. 2011; 29: 3816-3824.
23. Henry J,. Kaiser Family Foundation. Summary of the New Health Reform Law. Menlo Park, CA: The Henry J. Kaiser Family Foundation; 2011. kff.org/healthreform/upload/8061.pdf. Accessed March 20, 2013.
24. Sommers BD, Buchmueller T, Decker SL, Carey C, Kronick R,. The Affordable Care Act has led to significant gains in health insurance and access to care for young adults. Health Aff (Millwood). 2013; 32: 165-174.
25. Gruber J, Perry I,. Will the Affordable Care Act make health insurance affordable? Issue Brief (Commonw Fund). 2011; 2: 1-15.
26. Park ER, Kirchhoff AC, Zallen JP, et al. Childhood Cancer Survivor Study participants' perceptions and knowledge of health insurance coverage: implications for the Affordable Care Act. J Cancer Surviv. 2012; 6: 251-259.
27. Nicholson JL, Collins SR,. Young, uninsured, and seeking change: health coverage of young adults and their views on health reform. Findings from the Commonwealth fund Survey of Young Adults (2009). Issue Brief (Commonw Fund). 2009; 73: 1-22.
28. Kent EE, Forsythe LP, Yabroff KR, et al. Are survivors who report cancer-related financial problems more likely to forgo or delay medical care? Cancer. 2013; 119: 3710-3717.