Deciding about fertility preservation after specialist counselling

Human Reproduction

Volumn 29, Issue 8, 2014, Pages 1721-1729

  Bastings, L ^a   Baysal, O ^a   Beerendonk, C C M ^a   IntHout, J ^a   Traas, M A F ^b   Verhaak, C M ^a   Braat, D D M ^a   Nelen, W L D M ^a  

^a RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^b GELRE HOSPITALS   (Netherlands)

Author keywords

Cancer; Decisional conflict; Fertility preservation; Patients' experiences; Regret

Indexed keywords

ADULT; ARTICLE; CONSULTATION; FEMALE; FERTILITY PRESERVATION; FERTILIZATION IN VITRO; GYNECOLOGIST; HUMAN; INTRACYTOPLASMIC SPERM INJECTION; MAJOR CLINICAL STUDY; NURSE PRACTITIONER; PATIENT COUNSELING; PATIENT DECISION MAKING; QUESTIONNAIRE; ADOLESCENT; CONFLICT; COUNSELING; DECISION MAKING; EMOTION; PSYCHOLOGY; RETROSPECTIVE STUDY;

ADOLESCENT; ADULT; CONFLICT (PSYCHOLOGY); COUNSELING; DECISION MAKING; EMOTIONS; FEMALE; FERTILITY PRESERVATION; HUMANS; RETROSPECTIVE STUDIES;

EID: 84904293830     PISSN: 02681161     EISSN: 14602350     Source Type: Journal    
DOI: 10.1093/humrep/deu136     Document Type: Article

References (25)

1. Balthazar U, Fritz MA, Mersereau JE. Fertility preservation: a pilot study to assess previsit patient knowledge quantitatively. Fertil Steril 2011; 95:1913-1916.
2. Charmaz K. Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis. London: Sage, 2006.
3. COSA. Clinical Oncological Society of Australia. Fertility preservation for AYAs diagnosed with cancer: guidance for health professionals. http://wiki.cancer.org.au/australia/COSA:AYA-cancer-fertility-preservation (6 May 2014, date last accessed).
4. Donnez J, Dolmans MM, Pellicer A, Diaz-Garcia C, Sanchez Serrano M, Schmidt KT, Ernst E, Luyckx V, Andersen CY. Restoration of ovarian activity and pregnancy after transplantation of cryopreserved ovarian tissue: a review of 60 cases of reimplantation. Fertil Steril 2013; 99:1503-1513.
5. Friedler S, Koc O, Gidoni Y, Raziel A, Ron-El R. Ovarian response to stimulation for fertility preservation in women with malignant disease: a systematic review and meta-analysis. Fertil Steril 2012;97:125-133.
6. Garcia-Velasco JA, Domingo J, Cobo A, Martinez M, Carmona L, Pellicer A. Five years' experience using oocyte vitrification to preserve fertility for medical and nonmedical indications. Fertil Steril 2013;99: 1994-1999.
7. GarvelinkMM,Ter KuileMM,Bakker RM, Geense WJ, Jenninga E, LouweLA, Hilders CG, Stiggelbout AM. Women's experiences with information provision and deciding about fertility preservation in the Netherlands: 'satisfaction in general, but unmet needs'. Health Expect 2013a; doi: 10.1111/hex.12068.
8. Garvelink MM, ter Kuile MM, Fischer MJ, Louwe LA, Hilders CG, Kroep JR, Stiggelbout AM. Development of a decision aid about fertility preservation for women with breast cancer in The Netherlands. J Psychosom Obstet Gynaecol 2013b;34:170-178.
9. Gilovich T, Medvec VH. The experience of regret: what, when, and why. Psychol Rev 1995;102:379-395.
10. Hertwig R, Fanselow C, Hoffrage U. Hindsight bias: how knowledge and heuristics affect our reconstruction of the past. Memory (Hove, England) 2003;11:357-377.
11. Hill KA, Nadler T, Mandel R, Burlein-Hall S, Librach C, Glass K,Warner E. Experience of young women diagnosed with breast cancer who undergo fertility preservation consultation. Clin Breast Cancer 2012;12:127-132.
12. Joshi S, Savani BN, Chow EJ, Gilleece MH, Halter J, Jacobsohn DA, Pidala J, Quinn GP, Cahn JY, Jakubowski AA et al. Clinical guide to fertility preservation in hematopoietic cell transplant recipients. Bone Marrow Transplant 2014; 49:477-84.
13. Kim J, Deal AM, Balthazar U, Kondapalli LA, Gracia C, Mersereau JE. Fertility preservation consultation for women with cancer: are we helping patients make high-quality decisions? Reprod Biomed Online 2013;27:96-103.
14. Koedoot N, Molenaar S, Oosterveld P, Bakker P, de Graeff A, Nooy M, Varekamp I, de Haes H. The decisional conflict scale: further validation in two samples of Dutch oncology patients. Patient Educ Couns 2001; 45:187-193.
15. Larsen EC, Muller J, Schmiegelow K, Rechnitzer C, Andersen AN. Reduced ovarian function in long-term survivors of radiation- and chemotherapy-treated childhood cancer. J Clin Endocrinol Metab 2003;88:5307-5314.
16. Letourneau JM, Ebbel EE, Katz PP, Katz A, Ai WZ, Chien AJ, Melisko ME, Cedars MI, Rosen MP. Pretreatment fertility counseling and fertility preservation improve quality of life in reproductive age women with cancer. Cancer 2012;118:1710-1717.
17. Loren AW, Mangu PB, Beck LN, Brennan L, Magdalinski AJ, Partridge AH, Quinn G, Wallace WH, Oktay K, American Society of Clinical O. Fertility preservation for patients with cancer: American Society of Clinical Oncology clinical practice guideline update. J Clin Oncol 2013; 31:2500-2510.
18. Mersereau JE,GoodmanLR, DealAM,Gorman JR, WhitcombBW, Su HI.To preserve or not to preserve: how difficult is the decision about fertility preservation? Cancer 2013; doi: 10.1002/cncr.28317.
19. Morgan S, Anderson RA, Gourley C, Wallace WH, Spears N. How do chemotherapeutic agents damage the ovary? Hum Reprod Update 2012; 18:525-535.
20. O'Connor AM. User manual-decision regret scale, 2003, http:// decisionaid.ohri.ca/eval-regret.html (6 May 2014, date last accessed).
21. O'ConnorAM.Usermanual-decisional conflict scale,2010, https://decision aid.ohri.ca/docs/develop/User-Manuals/UM-Decisional-Conflict.pdf (6 May 2014, date last accessed).
22. Peate M, Meiser B, Friedlander M, Zorbas H, Rovelli S, Sansom-Daly U, Sangster J, Hadzi-Pavlovic D, Hickey M. It's now or never: fertilityrelated knowledge, decision-making preferences, and treatment intentions in young women with breast cancer-an Australian fertility decision aid collaborative group study. J Clin Oncol 2011;29: 1670-1677.
23. Peate M, Meiser B, Cheah BC, Saunders C, Butow P, Thewes B, Hart R, Phillips KA, Hickey M, Friedlander M. Making hard choices easier: a prospective, multicentre study to assess the efficacy of a fertility-related decision aid in young women with early-stage breast cancer. Br J Cancer 2012;106:1053-1061.
24. Thewes B, Meiser B, Taylor A, Phillips KA, Pendlebury S, Capp A, Dalley D, Goldstein D, Baber R, Friedlander ML. Fertility- and menopause-related information needs of younger women with a diagnosis of early breast cancer. J Clin Oncol 2005;23:5155-5165.
25. Tschudin S, Bitzer J. Psychological aspects of fertility preservation in men and womenaffected by cancer and other life-threatening diseases.HumReprod Update 2009;15:587-597.