Long-term psychosocial outcome of adults with tetralogy of Fallot and transposition of the great arteries: A historical comparison

Cardiology in the Young

Volumn 24, Issue 4, 2014, Pages 593-604

  Opić, Petra ^a,b   Utens, Elisabeth M W J ^b   Ruys, Titia P E ^a   Van Domburg, Ron T ^a   Witsenburg, Maarten ^a   Bogers, Ad J J C ^a   Roos Hesselink, Jolien W ^a  

^a ERASMUS MEDICAL CENTER   (Netherlands)

^b SOPHIA CHILDREN S HOSPITAL   (Netherlands)

Author keywords

complex congenital heart disease; historical comparison; quality of life; tetralogy of Fallot; Transposition of the great arteries

Indexed keywords

ADULT; ARTERY SURGERY; CONTROLLED STUDY; DISEASE ASSOCIATION; EDUCATIONAL STATUS; FALLOT TETRALOGY; FEMALE; GREAT VESSELS TRANSPOSITION; HUMAN; HUMAN RELATION; INCOME; LEARNING DISORDER; MAJOR CLINICAL STUDY; MALE; MEDICAL HISTORY; MUSTARD OPERATION; OCCUPATIONAL HEALTH; OUTCOME ASSESSMENT; PROGENY; QUALITY OF LIFE; QUESTIONNAIRE; REVIEW; SHORT FORM 36; SOCIAL PSYCHOLOGY; COHORT ANALYSIS; COMPARATIVE STUDY; HEART SURGERY; PSYCHOLOGY; RETROSPECTIVE STUDY; TETRALOGY OF FALLOT; TRANSPOSITION OF GREAT VESSELS; YOUNG ADULT; ARTICLE; CROSS-SECTIONAL STUDY; OCCUPATION; SOCIAL INTERACTION; SOCIAL LIFE; THORAX SURGERY;

ADULT; CARDIAC SURGICAL PROCEDURES; COHORT STUDIES; FEMALE; HUMANS; LEARNING DISORDERS; MALE; QUALITY OF LIFE; QUESTIONNAIRES; RETROSPECTIVE STUDIES; TETRALOGY OF FALLOT; TRANSPOSITION OF GREAT VESSELS; YOUNG ADULT;

EID: 84903603742     PISSN: 10479511     EISSN: 14671107     Source Type: Journal    
DOI: 10.1017/S104795111300067X     Document Type: Review

References (30)

1. Warnes CA. The adult with congenital heart disease: born to be bad? J Am Coll Cardiol 2005; 46: 1-8. (Pubitemid 40905121)
2. Brickner ME, Hillis LD, Lange RA. Congenital heart disease in adults. First of two parts. N Engl J Med 2000; 342: 256-263. (Pubitemid 30058959)
3. Kovacs AH, Sears SF, Saidi AS. Biopsychosocial experiences of adults with congenital heart disease: review of the literature. Am Heart J 2005; 150: 193-201. (Pubitemid 41116240)
4. van Rijen EH, Utens EM, Roos-Hesselink JW, et al. Psychosocial functioning of the adult with congenital heart disease: a 20-33 years follow-up. Eur Heart J 2003; 24: 673-683. (Pubitemid 36343201)
5. van Rijen EH, Utens EM, Roos-Hesselink JW, et al. Current subjective state of health, and longitudinal psychological well-being over a period of 10 years, in a cohort of adults with congenital cardiac disease. Cardiol Young 2005; 15: 168-175. (Pubitemid 41388077)
6. Utens EMWJ, van Rijen EH, Erdman RAM, et al. Rotterdams Kwaliteit van Leven-Interview. 2000. Netherlands Central Bureau of Statistics 2010.
7. Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992; 30: 473-483.
8. Aaronson NK, Muller M, Cohen PD, et al. Translation, validation, and norming of the Dutch language version of the SF-36 Health Survey in community and chronic disease populations. J Clin Epidemiol 1998; 51: 1055-1068. (Pubitemid 28527161)
9. Moons P, Van Deyk K, De Bleser L, et al. Quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts. Eur J Cardiovasc Prev Rehabil 2006; 13: 407-413. (Pubitemid 44318652)
10. Kokkonen J, Paavilainen T. Social adaptation of young adults with congenital heart disease. Int J Cardiol 1992; 36: 23-29.
11. Sairanen HI, Nieminen HP, Jokinen EV. Late results and quality of life after pediatric cardiac surgery in Finland: a population-based study of 6, 461 patients with follow-up extending up to 45 years. Semin Thorac Cardiovasc Surg Pediatr Card Surg Annu 2005: 168-172. (Pubitemid 40468467)
12. Nieminen H, Sairanen H, Tikanoja T, et al. Long-term results of pediatric cardiac surgery in Finland: education, employment, marital status, and parenthood. Pediatrics 2003; 112: 1345-1350. (Pubitemid 37523418)
13. Moons P, De Bleser L, Budts W, et al. Health status, functional abilities, and quality of life after the Mustard or Senning operation. Ann Thorac Surg 2004; 77: 1359-1365; discussion 65. (Pubitemid 38452378)
14. Kamphuis M, Ottenkamp J, Vliegen HW, et al. Health related quality of life and health status in adult survivors with previously operated complex congenital heart disease. Heart 2002; 87: 356-362. (Pubitemid 34270949)
15. Moons P, Van Deyk K, Marquet K, De Bleser L, De Geest S, Budts W. Profile of adults with congenital heart disease having a good, moderate, or poor quality of life: a cluster analytic study. Eur J Cardiovasc Nurs 2009; 8: 151-157.
16. Utens EM, Verhulst FC, Erdman RA, et al. Psychosocial functioning of young adults after surgical correction for congenital heart disease in childhood: a follow-up study. J Psychosom Res 1994; 38: 745-758. (Pubitemid 24357698)
17. Simko LC, McGinnis KA, Schembri J. Educational needs of adults with congenital heart disease. J Cardiovasc Nurs 2006; 21: 85-94.
18. Ong L, Nolan RP, Irvine J, Kovacs AH. Parental overprotection and heart-focused anxiety in adults with congenital heart disease. Int J Behav Med 2011; 18: 260-267.
19. Zomer AC, Vaartjes I, Uiterwaal CS, et al. Social burden and lifestyle in adults with congenital heart disease. Am J Cardiol 2012; 109: 1657-1663.
20. Wernovsky G. Current insights regarding neurological and developmental abnormalities in children and young adults with complex congenital cardiac disease. Cardiol Young 2006; 16 (Suppl 1): 92-104.
21. Miatton M, De Wolf D, François K, Thiery E, Vingerhoets G. Neuroco gnitive consequences of surgically corrected congenital heart defects: a review. Neuropsychol Rev 2006; 16: 65-85. (Pubitemid 44386778)
22. Daliento L, Mapelli D, Russo G, et al. Health related quality of life in adults with repaired tetralogy of Fallot: psychosocial and cognitive outcomes. Heart 2005; 91: 213-218.
23. Ebenroth ES, Hurwitz RA. Long-term functional outcome of patients following the mustard procedure: the next decade of follow-up. Congenit Heart Dis 2007; 2: 235-241. (Pubitemid 47161795)
24. Bygstad E, Pedersen LC, Pedersen TA, Hjortdal VE. Tetralogy of Fallot in men: quality of life, family, education, and employment. Cardiol Young 2012; 22: 417-423.
25. Moons P, Gewillig M, Sluysmans T, et al. Long term outcome up to 30 years after the Mustard or Senning operation: a nationwide multicentre study in Belgium. Heart 2004; 90: 307-313. (Pubitemid 38250728)
26. Kovacs AH, Saidi AS, Kuhl EA, et al. Depression and anxiety in adult congenital heart disease: predictors and prevalence. Int J Cardiol 2009; 137: 158-164.
27. Görler H, Ono M, Thies A, et al. Long-term morbidity and quality of life after surgical repair of transposition of the great arteries: atrial versus arterial switch operation. Interact Cardiovasc Thorac Surg 2011; 12: 569-574.
28. Loup O, von Weissenfluh C, Gahl B, Schwerzmann M, Carrel T, Kadner A. Quality of life of grown-up congenital heart disease patients after congenital cardiac surgery. Eur J Cardiothorac Surg 2009; 36: 105-111; discussion 11.
29. Warnes CA, Williams RG, Bashore TM, et al. ACC/AHA 2008 guidelines for the management of adults with congenital heart disease: a report of the American College of Cardiology/American Heart Association Task Force on Practice Guidelines (Writing Committee to Develop Guidelines on the Management of Adults With Congenital Heart Disease). Developed in collaboration with the American Society of Echocardiography, Heart Rhythm Society, International Society for Adult Congenital Heart Disease, Society for Cardiovascular Angiography and Interventions, and Society of Thoracic Surgeons. J Am Coll Cardiol 2008; 52: e143-e263.
30. Marino BS, Lipkin PH, Newburger JW, et al. Neurodevelop-mental outcomes in children with congenital heart disease: evaluation and management: a scientific statement from the American Heart Association. Circulation 2012; 126: 1143-1172.