Tetralogy of Fallot in men: Quality of life, family, education, and employment

Cardiology in the Young

Volumn 22, Issue 4, 2012, Pages 417-423

  Bygstad, Elisabeth ^a   Pedersen, Lia C V M ^a   Pedersen, Thais A L ^a   Hjortdal, Vibeke E ^a  

^a AARHUS UNIVERSITY HOSPITAL   (Denmark)

Author keywords

Congenital heart disease; grown up congenital heart; reproduction

Indexed keywords

ADULT; ARTICLE; CARDIOVASCULAR RISK; CONGENITAL HEART DISEASE; CONTROLLED STUDY; EDUCATIONAL STATUS; EMPLOYMENT STATUS; FALLOT TETRALOGY; FAMILY LIFE; FEMALE; GENETIC RISK; HEALTH STATUS; HEART REHABILITATION; HEART SURGERY; HUMAN; INSURANCE; MAJOR CLINICAL STUDY; MALE; MEN'S HEALTH; PAIN ASSESSMENT; PENSIONER; PHYSICAL CAPACITY; PROGENY; QUALITY OF LIFE; REPRODUCTION; SCORING SYSTEM; SEX RATIO; SHORT FORM 36;

ADOLESCENT; ADULT; CASE-CONTROL STUDIES; EDUCATIONAL STATUS; EMPLOYMENT; FAMILY CHARACTERISTICS; FEMALE; HUMANS; MALE; MIDDLE AGED; QUALITY OF LIFE; QUESTIONNAIRES; REPRODUCTION; TETRALOGY OF FALLOT;

EID: 84863636536     PISSN: 10479511     EISSN: 14671107     Source Type: Journal    
DOI: 10.1017/S1047951111001934     Document Type: Article

References (20)

1. Apitz C, Webb GD, Redington AN. Tetralogy of Fallot. Lancet 2009; 374: 1462-1471.
2. Pradat P, Francannet C, Harris JA, Robert E. The epidemiology of cardiovascular defects, part I: a study based on data from three large registries of congenital malformations. Pediatr Cardiol 2003; 24: 195-221.
3. Hickey EJ, Veldtman G, Bradley TJ, et al. Late risk of outcomes for adults with repaired tetralogy of Fallot from an inception cohort spanning four decades. Eur J Cardiothorac Surg 2009; 35: 156-164.
4. Larsen SH, McCrindle BW, Jacobsen EB, Johnsen SP, Emmertsen K, Hjortdal VE. Functional health status in children following surgery for congenital heart disease: a population-based cohort study. Cardiol Young 2010: 1-10.
5. Pedersen LM, Pedersen TA, Ravn HB, Hjortdal VE. Outcomes of pregnancy in women with tetralogy of Fallot. Cardiol Young 2008; 18: 423-429.
6. Garratt A, Schmidt L, Mackintosh A, Fitzpatrick R. Quality of life measurement: bibliographic study of patient assessed health outcome measures. BMJ 2002; 324: 1417.
7. Ware JE Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992; 30: 473-483.
8. Danmarks Statistik. Befolkningens udvikling 2008. Vital statistics 2008, 2009.
9. Burn J, Brennan P, Little J, et al. Recurrence risks in offspring of adults with major heart defects: results from first cohort of British collaborative study. Lancet 1998; 351: 311-316.
10. Hargrove A, Penny DJ, Sawyer SM. Sexual and reproductive health in young people with congenital heart disease: a systematic review of the literature. Pediatr Cardiol 2005; 26: 805-811.
11. Vigl M, Hager A, Bauer U, et al. Sexuality and subjective wellbeing in male patients with congenital heart disease. Heart 2009; 95: 1179-1183.
12. Wray J, Sensky T. Congenital heart disease and cardiac surgery in childhood: effects on cognitive function and academic ability. Heart 2001; 85: 687-691.
13. Murphy JG, Gersh BJ, Mair DD, et al. Long-term outcome in patients undergoing surgical repair of tetralogy of Fallot. N Engl J Med 1993; 329: 593-599.
14. Gatzoulis MA, Balaji S, Webber SA, et al. Risk factors for arrhythmia and sudden cardiac death late after repair of tetralogy of Fallot: a multicentre study. Lancet 2000; 356: 975-981.
15. Bailliard F, Anderson RH. Tetralogy of Fallot. Orphanet J Rare Dis 2009; 4: 2.
16. Moons P, Van DK, De GS, Gewillig M, Budts W. Is the severity of congenital heart disease associated with the quality of life and perceived health of adult patients? Heart 2005; 91: 1193-1198.
17. van Rijen EH, Utens EM, Roos-Hesselink JW, et al. Current subjective state of health, and longitudinal psychological wellbeing over a period of 10 years, in a cohort of adults with congenital cardiac disease. Cardiol Young 2005; 15: 168-175.
18. Ternestedt BM, Wall K, Oddsson H, Riesenfeld T, Groth I, Schollin J. Quality of life 20 and 30 years after surgery in patients operated on for tetralogy of Fallot and for atrial septal defect. Pediatr Cardiol 2001; 22: 128-132.
19. Moons P, Van DK, De BL, et al. Quality of life and health status in adults with congenital heart disease: a direct comparison with healthy counterparts. Eur J Cardiovasc Prev Rehabil 2006; 13: 407-413.
20. Gratz A, Hess J, Hager A. Self-estimated physical functioning poorly predicts actual exercise capacity in adolescents and adults with congenital heart disease. Eur Heart J 2009; 30: 497-504.