Effects of a Psychosocial Intervention on Caregivers of Recently Placed Nursing Home Residents: A Randomized Controlled Trial

Clinical Gerontologist

Volumn 37, Issue 4, 2014, Pages 347-367

  Schulz, Richard ^a   Rosen, Jules ^a   Klinger, Julie ^a   Musa, Donald ^a   Castle, Nicholas G ^a   Kane, April L ^a   Lustig, Amy ^b  

^a UNIVERSITY OF PITTSBURGH   (United States)

^b VETERANS AFFAIRS MEDICAL CENTER   (United States)

Author keywords

caregiving; complicated grief; long term care

Indexed keywords

EID: 84902305380     PISSN: 07317115     EISSN: 15452301     Source Type: Journal    
DOI: 10.1080/07317115.2014.907594     Document Type: Article

References (44)

1. Andresen, E. M., Malmgren, J. A., Carter, W. B., & Patrick, D. L. (1994). Screening for depression in well older adults: Evaluation of a short form of the CES-D (Center for Epidemiologic Studies Depression Scale). American Journal of Preventive Medicine, 10(2), 77-84.
2. Bedard, M., Molloy, W., Squire, L., Dubois, S., Lever, J. A., & O'Donnell. M. (2001). The Zarit burden interview: A new short version and screening version. The Gerontologist, 41, 652-657. doi:10.1093/geront/41.5.652
3. Belle, S. H., Burgio, L., Burns, R., Coon, D., Czaja, S. J., Gallagher-Thompson, D., Zhang, S., the Resources for Enhancing Alzheimer's Caregiver Health (REACH) II Investigators. (2006). Enhancing the quality of life of dementia caregivers from different ethnic or racial groups: A randomized, controlled trial. Annals of Internal Medicine, 145, 727-738.
4. Davies, S., & Nolan, M. (2004). "Making the move": Relatives' experiences of the transition to a care home. Health & Social Care in the Community, 12(6), 517-526. doi:10.1111/j.1365-2524.2004.00535.x
5. Davis, J. D., Tremont, G., Bishop, D. S., & Fortinsky, R. H. (2011). A telephone-delivered psychosocial intervention improves dementia caregiver adjustment following nursing home placement. International Journal of Geriatric Psychiatry,26, 380-387. doi:10.1002/gps.2537
6. Friedemann, M. L., Montgomery, R. J., Maiberger, B., & Smith, A. A. (1997). Family involvement in the nursing home: Family-oriented practices and staff-family relationships. Research in Nursing and Health, 20, 527-537. PMID: 9397132. doi:10.1002/(SICI)1098-240X
7. Gaugler, J. E. (2005). Staff perceptions of residents across the long-term care landscape. Journal of Advanced Nursing, 49, 377-386. doi:10.1111/j.1365-2648.2004.03301.x
8. Gaugler, J. E., Anderson, K. A., Zarit, S. H., & Pearlin, L. I. (2004). Family involvement in nursing homes: effects on stress and well-being. Aging and Mental Health, 8(1), 65-75. doi:10.1080/13607860310001613356
9. Gaugler, J. E., Duval, S., Anderson, K. A., & Kane, R. L. (2007). Predicting nursing home admission in the U.S.: A meta-analysis. BMC Geriatrics, 7(13). doi:10.1186/1471-2318-7-13
10. Gaugler, J. E., & Holmes, H. H. (2003). Families' experiences of long-term care placement: Adaptation and intervention. Clinical Psychologist, 7(1), 32-43. doi:10.1080/13284200410001707463
11. Gaugler, J. E., Roth, D. L., Haley, W. E., & Mittelman, M. S. (2008). Can counseling and support reduce Alzheimer's caregivers' burden and depressive symptoms during the transition to institutionalization? Results from the NYU caregiver intervention study. Journal of the American Geriatrics Society, 53, 421-428. doi:10.1111/j.1532-5415.2007.01593.x
12. Givens, J. L., Lopez, R. P., Mazor, K. M., & Mitchell, S. L. (2012). Sources of stress for family members of nursing home residents with advanced dementia. Alzheimer Disease and Associated Disorders, 26, 254-259. doi:10.1097/WAD.0b013e31823899e4
13. Givens, J. L., Prigerson, H. G., Jones, R. N., & Mitchell, S. L. (2011). Mental health and exposure to patient distress among families of nursing home residents with advanced dementia. Journal of Pain and Symptom Management, 42, 183-191. doi:10.1016/j.jpainsymman.2010.10.259
14. Grabowski, D. C., & Mitchell, S. L. (2009). Family oversight and the quality of nursing home care for residents with advanced dementia. Medical Care, 47, 568-574. doi:10.1097/MLR.0b013e318195fce7
15. Irwin, M., Artin, K. H., & Oxman, M. N. (1999). Screening for depression in the older adult: Criterion validity of the 10-item Center for Epidemiological Studies Depression Scale (CES-D). Archives of Internal Medicine, 159, 1701-1704. doi:10.1001/archinte.159.15.1701
16. Kaplan, L., & Boss, P. (1999). Depressive symptoms among spousal caregivers of institutionalized mates with Alzheimer's: Boundary ambiguity and mastery as predictors. Family Process, 38(1), 85-103. doi:10.1111/j.1545-5300.1999.00085.x
17. Katz, S., Ford, A. B., Moskowitz, R. W., Jackson, B. A., & Jaffe, M. W. (1963). Studies of illness in the aged. The index of ADL: A standardized measure of biological and psychosocial function. JAMA, 185, 914-919.
18. Keefe, J., & Fancey, P. (2000). The care continues: Responsibility for elderly relatives before and after admission to a long-term care facility. Family Relations, 49, 235-244. DOI:10.1111/j.1741-3729.2000.00235.x
19. Lawton, M. P., & Brody, E. M. (1969). Assessment of older people: Self-maintaining and instrumental activities of daily living. The Gerontologist, 9(3), 179-186.
20. Liang, K., & Zeger, S. L. (1986). Longitudinal data analysis using generalized linear models. Biometrika, 73(1), 13-22.
21. Lindman Port, C. (2004). Identifying changeable barriers to family involvement in the nursing home for cognitively impaired residents. The Gerontologist, 44(6), 770-778. doi:10.1093/geront/44.6.770
22. McCallion, P., Toseland, R. W., & Freeman, K. (1999). An evaluation of a family visit education program. Journal of the American Geriatrics Society, 47, 203-214.
23. Montgomery, R. J., & Kosloski, K. (1994). A longitudinal analysis of nursing home placement for dependent elders cared for by spouses vs. adult children. Journal of Gerontology, 49(2), S62-S74. doi:10.1093/geronj/49.2.S62
24. Pillemer, K., Hegeman, C. R., Albright, B., & Henderson, C. (1998). Building bridges between families and nursing home staff: The Partners in Caregiving Program. The Gerontologist, 38, 499-503. doi:10.1093/geront/38.4.499
25. Pillemer, K., Suitor, J. J., Henderson, C. R. Jr., Meador, R., Schultz, L., Robison, J., & Hegeman, C. (2003). A cooperative communication intervention for nursing home staff and family members of residents. The Gerontologist, 43(Spec No 2), 96-106. doi:10.1093/geront/43.suppl_2.96
26. Prigerson, H. G., Maciejewski, P. K., Reynolds, C. F. III, Bierhals, A. J., Newsom, J. T.,Fasiczka, A., Miller, M. (1995). The inventory of complicated grief: A scale to measure maladaptive symptoms of loss. Psychiatry Research, 59(1-2), 65-79. doi:10.1016/0165-1781(95)02757-2.
27. Radloff, L.S. (1977). The CES-D Scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385-401. doi:10.1177/014662167700100306
28. Robison, J., Curry, L., Gruman, C., Porter, M., Henderson, C. H. Jr., & Pillemer, K. (2007). Partners in caregiving in a special care environment: Cooperative communication between staff and families on dementia units. The Gerontologist, 47, 504-515. doi:10.1093/geront/47.4.504
29. Ryan, A. A., & Scullion, H. F. (2000). Family and staff perceptions of the role of families in nursing homes. Journal of Advanced Nursing, 32, 626-634. doi:10.1046/j.1365-2648.2000.01521.x
30. Schulz, R., Belle, S. H., Czaja, S. J., McGinnis, K. A., Stevens, A., & Zhang, S. (2004). Long-term care placement of dementia patients and caregiver health and well-being. JAMA, 292, 961-967. PMID: 15328328. doi:10.1001/jama.292.8.961
31. Schulz, R., Boerner, K., & Hebert, R. S. (2008). Caregiving and bereavement. In M. S. Stroebe, R. O. Hansson, H. Schut, & W. Stroebe (Eds.), Handbook of bereavement research and practice: 21st century perspectives (pp. 265-285). Washington, DC: American Psychological Association Press.
32. Schulz, R., Boerner, K., Shear, K., Zhang, S., & Gitlin, L.N. (2006). Predictors of complicated grief among dementia caregivers: A prospective study of bereavement. American Journal of Geriatric Psychiatry, 14, 650-658.
33. Schulz, R., Czaja, S. J., Lustig, A., Zdaniuk, B., Martire, L. M., & Perdomo, D. (2009). Improving the quality of life of caregivers of persons with spinal cord injury: A randomized controlled Trial. Rehabilitation Psychology, 54(1), 1-15. doi:10.1037/a0014932
34. Shear, K., Frank, E., Houck, P. R., & Reynolds, C. F. (2005). Treatment of complicated grief. JAMA, 293, 2601-2608. doi:10.1001/jama.293.21.2601
35. Spielberger, C. D., Gorsuch, R. L., Lushene, R., Vagg, P R., & Jacobs, G. A. (1983). Manual for the State-Trait Anxiety Inventory. Palo Alto, CA: Consulting Psychologists Press.
36. Teno, J. M., Clarridge, B., Casey, V., Edgman-Levitan, S., & Fowler, J. (2001). Validation of toolkit after-death bereaved family member interview. Journal of Pain and Symptom Management, 22, 752-758. doi:10.1016/S0885-3924(01)00331-1
37. Tornatore, J. B., & Grant, L.A. (2002). Burden among family caregivers of persons with Alzheimer's disease in nursing homes. The Gerontologist, 42, 497-506. doi:10.1093/geront/42.4.497
38. Tornatore, J. B., & Grant, L. A. (2004). Family caregiver satisfaction with the nursing home after placement of a relative with dementia. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 59(2), S80-S88. doi:10.1093/geronb/59.2.S80
39. Whitlatch, C. J., Schur, D., Noelker, L. S., Ejaz, F. K., & Looman, W.J. (2001). The stress process of family caregiving in institutional settings. The Gerontologist, 41, 462-473. doi:10.1093/geront/41.4.462
40. Williams, S. W., Zimmerman, S., & Williams, C. S. (2012). Family caregiver involvement for long-term care residents at the end of life. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 67, 595-604. doi:10.1093/geronb/gbs065
41. Winzelberg, G. S., Williams, C. S., Preisser, J. S., Zimmerman, S., & Sloane, P. D. (2005). Factors associated with nursing assistant quality-of-life ratings for residents with dementia in long-term care facilities. The Gerontologist, 45 (Special Issue 1), 106-114. doi:10.1093/geront/45.suppl_1.106
42. Yamamoto-Mitani, N., Aneshensel, C. S., & Levy-Storms, L. (2002). Patterns of family visiting with institutionalized elders: The case of dementia. The Journals of Gerontology. Series B, Psychological Sciences and Social Sciences, 57(4), S234-S246. doi:10.1093/geronb/57.4.S234
43. Zarit, S. H., Orr, N. K., & Zarit, J. M. (1985). Families under stress: Caring for the patient with Alzheimer's disease and related disorders. New York, NY: University Press.
44. Zarit, S.H., & Whitlatch, C.J. (1992). Institutional placement: Phase of the transition. The Gerontologist, 32, 665-672. doi:10.1093/geront/32.5.665