Mental health and exposure to patient distress among families of nursing home residents with advanced dementia

Journal of Pain and Symptom Management

Volumn 42, Issue 2, 2011, Pages 183-191

  Givens, Jane L ^a,b   Prigerson, Holly G ^c   Jones, Rich N ^b   Mitchell, Susan L ^a,b  

^a BETH ISRAEL DEACONESS MEDICAL CENTER   (United States)

^b Hebrew SeniorLife Institute for Aging Research   (United States)

^c DANA FARBER CANCER INSTITUTE   (United States)

Author keywords

caregivers; Dementia; mental health; nursing home

Indexed keywords

ADULT; AGED; AIRWAY OBSTRUCTION; ARTICLE; CAREGIVER BURDEN; COHORT ANALYSIS; COMPOSITE INTERNATIONAL DIAGNOSTIC INTERVIEW SHORT FORM; DEATH; DEMENTIA; DEPRESSION; FAMILY ATTITUDE; FAMILY COPING; FAMILY STRESS; FEAR; FEMALE; HELPLESSNESS; HUMAN; K6 SCORE; MAJOR CLINICAL STUDY; MALE; MENTAL HEALTH; MENTAL STRESS; NURSING HOME PATIENT; OUTCOME ASSESSMENT; PAIN; PROSPECTIVE STUDY; RATING SCALE; SCORING SYSTEM; SHORT FORM 12; STRESSFUL CAREGIVING ADULT REACTIONS TO EXPERIENCES OF DYING SCALE;

AGED; AGED, 80 AND OVER; DEMENTIA; EMOTIONS; FAMILY; FEMALE; HUMANS; MALE; MENTAL HEALTH; MIDDLE AGED; NURSING HOMES; PROSPECTIVE STUDIES;

EID: 79961016527     PISSN: 08853924     EISSN: 18736513     Source Type: Journal    
DOI: 10.1016/j.jpainsymman.2010.10.259     Document Type: Article

References (27)

1. Kris AE, Cherlin EJ, Prigerson H, et al. Length of hospice enrollment and subsequent depression in family caregivers: 13-month follow-up study. Am J Geriatr Psychiatry 2006;14:264-269.
2. Bradley EH, Prigerson H, Carlson MD, et al. Depression among surviving caregivers: does length of hospice enrollment matter? Am J Psychiatry 2004;161:2257-2262.
3. Wright AA, Zhang B, Ray A, et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 2008;300:1665-1673.
4. Miaskowski C, Kragness L, Dibble S, Wallhagen M. Differences in mood states, health status, and caregiver strain between family caregivers of oncology outpatients with and without cancer-related pain. J Pain Symptom Manage 1997;13:138-147. (Pubitemid 27172871)
5. Prigerson HG, Cherlin E, Chen JH, et al. The Stressful Caregiving Adult Reactions to Experiences of Dying (SCARED) Scale: a measure for assessing caregiver exposure to distress in terminal care. Am J Geriatr Psychiatry 2003;11:309-319. (Pubitemid 36523299)
6. Heron MP. Deaths: Leading causes for 2004. National Vital Statistics Reports, Vol. 56, No 5. Hyattsville, MD: National Center for Health Statistics, 2007.
7. Mitchell SL, Teno JM, Miller SC, Mor V. A national study of the location of death for older persons with dementia. J Am Geriatr Soc 2005;53:299-305. (Pubitemid 41632558)
8. Mitchell SL, Teno JM, Kiely DK, et al. The clinical course of advanced dementia. N Engl J Med 2009;361:1529-1538.
9. Mitchell SL, Morris JN, Park PS, Fries BE. Terminal care for persons with advanced dementia in the nursing home and home care settings. J Palliat Med 2004;7:808-816. (Pubitemid 40075664)
10. Mitchell SL, Kiely DK, Hamel MB. Dying with advanced dementia in the nursing home. Arch Intern Med 2004;164:321-326. (Pubitemid 38176474)
11. Mitchell SL, Kiely DK, Jones RN, et al. Advanced dementia research in the nursing home: the CASCADE study. Alzheimer Dis Assoc Disord 2006;20:166-175. (Pubitemid 44259791)
12. Reisberg B, Ferris SH, de Leon MJ, Crook T. The Global Deterioration Scale for assessment of primary degenerative dementia. Am J Psychiatry 1982;139:1136-1139. (Pubitemid 12051593)
13. Kessler RC, Andrews G, Mroczek DK, Ustun B, Wittche H. The World Health Organization Composite International Diagnostic Interview Short Form (CIDI-SF). Int J Methods Psychiatr Res 2006;7:171-185.
14. Kessler RC, Andrews G, Colpe LJ, et al. Short screening scales to monitor population prevalences and trends in non-specific psychological distress. Psychol Med 2002;32:959-976.
15. Ware J Jr, Kosinski M, Keller SD. A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity. Med Care 1996;34:220-233. (Pubitemid 126433231)
16. Albert M, Cohen C. The Test for Severe Impairment: an instrument for the assessment of patients with severe cognitive dysfunction. J Am Geriatr Soc 1992;40:449-453.
17. Volicer L, Hurley AC, Lathi DC, Kowall NW. Measurement of severity in advanced Alzheimer's disease. J Gerontol 1994;49:M223-M226. (Pubitemid 24282305)
18. Volicer L, Hurley AC, Blasi ZV. Scales for evaluation of end-of-life care in dementia. Alzheimer Dis Assoc Disord 2001;15:194-200. (Pubitemid 33117035)
19. Covinsky KE, Newcomer R, Fox P, et al. Patient and caregiver characteristics associated with depression in caregivers of patients with dementia. J Gen Intern Med 2003;18:1006-1014. (Pubitemid 38091395)
20. Schulz R, Belle SH, Czaja SJ, et al. Long-term care placement of dementia patients and caregiver health and well-being. JAMA 2004;292:961-967. (Pubitemid 39097206)
21. Huber P. The behavior of maximum likelihood estimates under nonstandard conditions. In: Lecam L, Neyman J, eds, Proceedings of the Fifth Berkeley Symposium on Mathematical Statistics and Probability, Vol. 1. Berkeley, CA: University of California Press, 1967: 221-233.
22. White H. A heteroskedasticity-consistent covariance matrix estimator and a direct test for heteroskedasticity. Econometrica 1980;48:817-830.
23. Volicer L, Collard A, Hurley A, et al. Impact of special care unit for patients with advanced Alzheimer's disease on patients' discomfort and costs. J Am Geriatr Soc 1994;42:597-603. (Pubitemid 24180957)
24. Engel SE, Kiely DK, Mitchell SL. Satisfaction with end-of-life care for nursing home residents with advanced dementia. J Am Geriatr Soc 2006;54:1567-1572. (Pubitemid 44564153)
25. Schulz R, McGinnis KA, Zhang S, et al. Dementia patient suffering and caregiver depression. Alzheimer Dis Assoc Disord 2008;22:170-176.
26. Schulz R, O'Brien AT, Bookwala J, Fleissner K. Psychiatric and physical morbidity effects of dementia caregiving: prevalence, correlates, and causes. Gerontologist 1995;35:771-791.
27. Hebert LE, Scherr PA, Bienias JL, Bennett DA, Evans DA. Alzheimer disease in the US population: prevalence estimates using the 2000 census. Arch Neurol 2003;60:1119-1122.