Data linkage for injury surveillance and research in Australia: Perils, pitfalls and potential

Australian and New Zealand Journal of Public Health

Volumn 38, Issue 3, 2014, Pages 275-280

  Mitchell, Rebecca J ^a   Cameron, Cate M ^b   Bambach, Mike R ^a  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

^b GRIFFITH UNIVERSITY   (Australia)

Author keywords

data linkage; injury surveillance; research

Indexed keywords

AUSTRALIA; HEALTH SURVEY; HUMAN; INFORMATION PROCESSING; MEDICAL RECORD; MEDICAL RESEARCH; PROCEDURES; WOUNDS AND INJURIES;

AUSTRALIA; BIOMEDICAL RESEARCH; DATA COLLECTION; HUMANS; MEDICAL RECORD LINKAGE; POPULATION SURVEILLANCE; WOUNDS AND INJURIES;

EID: 84901839220     PISSN: 13260200     EISSN: 17536405     Source Type: Journal    
DOI: 10.1111/1753-6405.12234     Document Type: Review

References (51)

1. Thacker S, Berkelman R,. Public health surveillance in the United States. Epidemiol Rev. 1988; 10: 164-90.
2. Harrison J, Tyson D,. Injury surveillance in Australia. Acta Paediatr Jpn. 1993; 35 (3): 171-8.
3. Langley J,. The role of surveillance in reducing morbidity and mortality from injuries. MMWR Recomm Rep. 1992; 41 (Suppl): 181-91.
4. Dunn H,. Record Linkage. Am J Public Health. 1946; 36: 1412-16.
5. Baldwin J,. The Oxford Record Linkage Study as a Medical Information System. Proc R Soc Med. 1972; 65: 237-9.
6. Sibthorpe B, Kliewer E, Smith L,. Record linkage in Australia epidemiological research: Health benefits, privacy safeguards and future potential. Aust J Public Health. 1995; 19 (3): 250-6.
7. Hobbs M, McCall M,. Health statistics and record linkage in Australia. J Chronic Dis. 1970; 23: 375-81.
8. Kelman C, Bass A, Holman C,. Research use of linked health data-a 'best practice' protocol. Aust N Z J Public Health. 2002; 26: 251-5.
9. Clarke D,. Practical introduction to record linkage for injury research. Inj Prev. 2004; 10: 186-91.
10. Centre for Health Record Linkage. CHeReL: Quality Assurance [Internet]. North Sydney (AUST): CHRL; 2012 [cited 2012 Jul 14]. Available from: http://www.cherel.org.au/quality-assurance.
11. Holman D, Bass J, Rouse I, Hobbs M,. Population-based linkage of health records in Western Australia: development of a health services research linked database. Aust N Z J Public Health. 1999; 23 (5): 453-9.
12. Sundararajan V, Henderson T, Ackland M, Marshall R,. Linkage of the Victoria Admitted Episodes Dataset. In: Proceedings of the Symposium on Health Data Linkage; 2002 Mar 20-21; Potts Point, Sydney, New South Wales. Adelaide: Public Health Information Development Unit; 2003.
13. Lujic S, Finch C, Boufous S, Hayen A, Dunsmuir W,. How comparable are road traffic crash cases in hospital admissions data and police records? An examination of data linkage rates. Aust N Z J Public Health. 2008; 32 (1): 28-33.
14. Bambach M, Mitchell R, Watson W, Grzebieta R,. Data Linkage and Road Traffic Injury Estimates in NSW. Sydney (AUST): University of New South Wales Transport and Road Safety (TARS) Research; 2012.
15. Wilson S, Begg D, Samaranayaka A,. Validity of using linked hospital and police traffic crash records to analyse motorcycle injury crash characteristics. Accid Anal Prev. 2012; 49: 30-5.
16. Roadsand Traffic Authority. Traffic Accident Database System Data Manual. Sydney (AUST): University of New South Wales; 2003.
17. Langley J, Dow N, Stephenson S, Kypri K,. Missing cyclists. Inj Prev. 2003; 9 (4): 376-9.
18. Amoros E, Martin J, Laumon B,. Under-reporting of road crash casualties in France. Accid Anal Prev. 2006; 38: 627-35.
19. Jones S, McGlone K,. An Introduction to the Mental Health Ambulatory Data Collection, The Latest Addition to the CHeReL MLK. Sydney (AUST): Health Data Linkage Special Interest Group Meeting; 2013.
20. McKenzie K, Enraght-Moony E, Waller G, Walker S, Harrison J, McClure R,. Causes of injuries resulting in hospitalisation in Australia: Assessing coder agreement on external causes. Inj Prev. 2009; 15: 188-96.
21. McKenzie K, Harding L, Walker S, Harrison J, Enraght-Moony E, Waller G,. The quality of cause-of-injury data: Where hospital records fall down. Aust N Z J Public Health. 2006; 30 (6): 509-13.
22. McKenzie K, Enraght-Moony E, Harding L, Walker S, Waller G, Chen L,. Coding external causes of injuries: Problems and solutions. Accid Anal Prev. 2008; 40: 714-18.
23. NSW Centre for Road Safety. Road Traffic Crashes in New South Wales: Statistical Statement for the Year Ended 31 December 2009. Sydney (AUST): Roads and Traffic Authority; 2010.
24. Mitchell R, Bambach M, Williamson A, Grzebieta R,. In-depth Characteristics of Injurious Road Trauma in NSW, 2001-2011. Sydney (AUST): University of New South Wales Transport and Road Safety (TARS) Research, 2013.
25. Amoros E, Martin J, Chiron M, Laumon B,. Road crash casualties: Characteristics of police injury severity misclassification. J Trauma. 2007; 62 (2): 482-90.
26. Lyons RA, Ward H, Brunt H, Macey S, Thoreau R, Bodger O, Woodford M,. Using multiple datasets to understand trends in serious road traffic casualties. Accid Anal Prev. 2008; 40 (4): 1406-10.
27. Department of Infrastructureand Transport. Road Deaths Australia May 2012. Canberra (AUST): Commonwealthh of Australia; 2012.
28. Langley J, Stephenson S, Cryer C,. Measuring road traffic safety performance: Monitoring trends in nonfatal injury. Traffic Inj Prev. 2003; 4: 291-6.
29. Cryer C, Westrup S, Cook A, Ashwell V, Bridger P, Clarke C,. Investigation of bias after data linkage of hospital admissions data to police road traffic crash reports. Inj Prev. 2001; 7: 234-41.
30. Cameron C, Purdie D, Kliewer E, Wajda A, McClure R,. Population health and clinical data linkage: The importance of a population registry. Aust N Z J Public Health. 2007; 31 (5): 459-63.
31. Killesteyn E,. Welcoming Address by the Australian Electoral Commissioner, Mr Ed Killesteyn PSM [Internet]. Canberra (AUST): Australian Electoral Commission; 2011 [cited 2012 Jun 25]. Available from: http://www.aec.gov.au/about-aec/Publications/speeches/colloquium.htm.
32. Australian Electoral Commission. Annual Report 2011-12. Canberra (AUST): Australian Electoral Commission; 2012.
33. Australian Electoral Commission. Supply of Elector Information for Use in Medical Research [Internet]. Canberra (AUST): AEC; 2011 [cited 2012 Jun 2012]. Available from: http://www.aec.gov.au/Enrolling-to-vote/About-Electoral-Roll/ medical-research.htm.
34. Loff B, Campbell E, Glass D, Kelsall H, Siegers C, Zion D, et al. Access to the Commonwealth electoral roll for medical research. Med J Aust. 2013; 199 (2): 128-30.
35. Department of Human Services. Annual Report 2011-12. Canberra (AUST): Commonwealth of Australia; 2012.
36. Christen P, Pudjijono, A,. Accurate synthetic generation of realistic personal information. Proceedings of the Pacific-Asia Conference on Knowledge Discovery and Data Mining (PAKDD'09); 2009 Apr 27-30; Bangkok, Thailand. Berlin: Springer; 2009.
37. Li Z, Hilder Z, Sullivan E,. Australia's Mothers and Babies. Canberra (AUST): Australian Institute of Health and Welfare; 2010.
38. Sorensen H, Sabroe S, Olsen J,. A framework for evaluation of secondary data sources for epidemiological research. Int J Epidemiol. 1996; 25 (2): 435-42.
39. Preen D, Holman CD, Spilsbury K, Semmens J, Brameld K,. Length of comorbidity lookback period affected regression model performance of administrative health data. J Clin Epidemiol. 2006; 59 (9): 940-46.
40. Australian Institute of Healthand Welfare. National Best Practice Guidelines for Data Linkage Activities Relating to Aboriginal and Torres Strait Islander People. Canberra (AUST): AIHW; 2012.
41. Mitchell R, Bambach M,. Characteristics of Road Trauma Involving Aboriginal People in NSW, 2001-2011. Sydney (AUST): University of New South Wales Transport and Road Safety (TARS) Research; 2014.
42. UK Department for Transport. Linking Police and Hospital Data on Road Accidents in England: 1999 to 2009 Results. London (UK): UK Department for Transport; 2011.
43. Bambach M, Mitchell R, Grzebieta R, Williamson A, Watson W,. Injury Severity Indicators and their Impact on Data Linkage. Sydney (AUST): University of New South Wales Transport and Road Safety (TARS) Research; 2012.
44. Bunn T, Singleton M, Nicholson V, Slavova S,. Concordance of motor vehicle crash, emergency department, and inpatient hospitalization data sets in the identification of drugs in injured drivers. Traffic Inj Prev. 2013; 14: 680-9.
45. Australian Institute of Healthand Welfare. The Hospital Dementia Services Project. Canberra (AUST): AIHW; 2011.
46. Redelmeier D, Tibshirani R,. Association between cellular telephone calls and motor vehicle collisions. N Engl J Med. 1997; 336 (7): 453-8.
47. Rauscher S, Messner G, Baur P, Augenstein J, Digges K, Perdeck E, et al. Enhanced Automatic Collision Notification System-Improved Rescue Care Due to Injury Prediction-First Field Experience. Proceedings of the 21st International Technical Conference on the Enhanced Safety of Vehicles; 2009 Jun 15-18; Stuttgart, Germany. Washington: National Highway Traffric Safety Administration; 2010.
48. Vos P, Jacobs B, Andriessen T, Lamers K, Borm G, Beems T, et al. GFAP and S100B are biomarkers of traumatic brain injury: An observational cohort study. Neurology. 2010; 75 (20): 1786-93.
49. Smith G, Dischinger P, Marques P, Howland J,. Challenges in assessing if hangovers increase the risk of motor vehicle crash injuries: Is alcohol's influence greater than expected? Proceedings of the 10th World Conference on Injury Prevention and Safety Promotion; 2010 Sep 21-24; London, United Kigdom. Geneva: World Health Organisation; 2011.
50. Ford D, Jones K, Middleton R,. The UK Multiple Sclerosis Register. Proceedings of the 2012 International Data Linkage Conference; 2012 May 2-4; Perth, Australia. Canberra: Australian Institute of Health and Wlefare; 2013.
51. Biogrid Australia. Biogrid Australia. Health through information. 2013 [cited 2013 21 August 2013]; Available from: http://site.biogrid.org.au/.