Practical introduction to record linkage for injury research

Injury Prevention

Volumn 10, Issue 3, 2004, Pages 186-191

  Clark, D E ^a,b,c  

^a Maine Medical Center ^*  (United States)

^b MAINE MEDICAL CENTER   (United States)

^c HARVARD SCHOOL OF PUBLIC HEALTH   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

ANALYTICAL ERROR; COMPUTER ANALYSIS; COMPUTER PROGRAM; COMPUTER SYSTEM; DATA ANALYSIS; DATA BASE; DOCUMENTATION; EVALUATION; FATALITY; FIRST AID; GOVERNMENT; HEALTH SURVEY; HISTORY; HUMAN; INFORMATION PROCESSING; INJURY; MATHEMATICAL ANALYSIS; MATHEMATICS; MEDICAL ETHICS; MEDICAL INFORMATICS; MEDICAL INFORMATION; MEDICAL RECORD; MEDICAL RESEARCH; METHODOLOGY; MORTALITY; ORGANIZATION; PARAMETER; POLICE; POPULATION RESEARCH; PREDICTION; PROBABILITY; RECORDING; REVIEW; SIMULATION; STANDARD; STATISTICAL ANALYSIS; TECHNIQUE; THEORETICAL STUDY; ARTICLE; FACTUAL DATABASE; RESEARCH; RESEARCH ETHICS; THEORETICAL MODEL;

DATABASES, FACTUAL; ETHICS, RESEARCH; HUMANS; MEDICAL RECORD LINKAGE; MODELS, THEORETICAL; POPULATION SURVEILLANCE; PROBABILITY; RESEARCH; WOUNDS AND INJURIES;

EID: 4344570142     PISSN: 13538047     EISSN: None     Source Type: Journal    
DOI: 10.1136/ip.2003.004580     Document Type: Review

References (84)

1. Waien SA. Linking large administrative databases: a method for conducting emergency medical services cohort studies using existing data. Acad Emerg Med 1997;4:1087-95.
2. Weiss HB, Dill SM, Garrison HG, et al. The potential of using billing data for emergency department injury surveillance. Acad Emerg Med 1997;4:282-7.
3. Institute of Medicine Committee on Injury Prevention and Control. Reducing the burden of injury: advancing prevention and treatment. Washington, DC: National Academy Press, 1999.
4. Runge JW. Linking data for injury control research. Ann Emerg Med 2000;35:613-15.
5. Bell RM, Keesey J, Richards T. The urge to merge: linking vital statistics records and Medicaid claims. Med Care 1994;32:1004-18.
6. Roos LL Jr, Wajda A, Nicol JP. The art and science of record linkage: methods that work with few identifiers. Comput Biol Med 1986;16:45-57.
7. Jamieson E, Roberts J, Browne G. The feasibility and accuracy of anonymized record linkage to estimate shared clientele among three health and social service agencies. Methods Inf Med 1995;34:371-7.
8. Newcombe HB. Handbook of record linkage. Oxford: Oxford University Press, 1988.
9. Howe GR. Use of computerized record linkage in cohort studies. Epidemiol Rev 1998;20:112-21.
10. Neutel CI, Johansen HL, Walop W. "New data from old": epidemiology and record-linkage. Prog Food Nutr Sci 1991;15:85-116.
11. Federal Committee on Statistical Methodology. Record linkage techniques - 1985: Proceedings of the workshop on exact matching methodologies. Arlington, Virginia, 1985. Available at: www.fcsm.gov/working-papers/ RLT_1985 (accessed on 30 May 2002).
12. Federal Committee on Statistical Methodology. Record linkage techniques - 1997: Proceedings of an international workshop and exposition. Arlington, Virginia, 1997. Available at: www.fcsm.gov/working-papers/RLT_1997 (accessed on 30 May 2002).
13. Dunn HL. Record linkage. Am J Public Health 1946;36:1412-16.
14. Newcombe HB, Kennedy JM, Axford SJ, et al. Automatic linkage of vital records. Science 1959;130:954-9.
15. Smith ME, Newcombe HB. Accuracies of computer versus manual linkages of routine health records. Methods Inf Med 1979;18:89-97.
16. Acheson ED. Medical record linkage. London: Oxford University Press, 1967.
17. Gill L, Goldacre M, Simmons H, et al. Computerised linking of medical records: methodological guidelines. J Epidemiol Community Health 1993;47:316-19.
18. Gill LE. OX-LINK: The Oxford medical record linkage system - 1997: Proceedings of an international workshop and exposition. Arlington, Virginia, 1997:15-33. Available at: www.fcsm.gov/working-papers/RTL_1997 (accessed on 30 May 2002).
19. Howe GR, Lindsay J. A generalized iterative record linkage computer system for use in medical follow-up studies. Comput Biomed Res 1981;14:327-340.
20. Winkler WE. Record linkage software and methods for merging administrative lists. Bureau of the Census Statistical Research Report Series No RR2001/03. Available at: www.census.gov/srd/papers/pdf/rr2001-03.pdf (accessed on 31 May 2002).
21. Arellano MG, Petersen GR, Petitti DB, et al. The California Automated Mortality Linkage System (CAMLIS). Am J Public Health 1984;74:1324-30.
22. Wajda A, Roos LL, Layefsky M, et al. Record linkage strategies: part II. Portable software and deterministic matching. Methods Inf Med 1991;30:210-14.
23. Roos LL, Walld R, Wajda A, et al. Record linkage strategies, outpatient procedures, and administrative data. Med Care 1996;34:570-82.
24. Langley JD, Botha JL. Use of record linkage techniques to maintain the Leicestershire Diabetes Register. Comput Methods Programs Biomed 1994;41:287-95.
25. Jaro MA. Advances in record-linkage methodology as applied to matching the 1985 census of Tampa, Florida. J Am Statist Assoc 1989;84:414-20.
26. Jaro MA. Probabilistic linkage of large public health data files. Stat Med 1995;14:491-8.
27. Winkler WE. Matching and record linkage. Record linkage techniques - 1997: Proceedings of an international workshop and exposition. Arlington, Virginia, 1997:374-403. Available at: www.fcsm.gov/working-papers/ RLT_1997 (accessed on 30 May 2002).
28. US Department of Transportation, National Highway Traffic Safety Administration. Problems, solutions and recommendations for implementing CODES. Washington, DC: NHTSA, 2001. Technical report DOT HS 809 200.
29. Strategic Matching, Inc. Available at: www.linksolv.org (accessed on 16 May 2003).
30. Australian National University Data Mining Group. Available at: http:// datamining.anu.edu.au (accessed on 20 January 2004).
31. Clark DE, Katz MS, Campbell SM. Decreasing mortality and morbidity rates after the institution of a statewide burn program. J Burn Care Rehabil 1992;13:261-70.
32. Copes WS, Stark MM, Lawnick MM, et al. Linking data from national trauma and rehabilitation registries. J Trauma 1996;40:428-36.
33. Esposito TJ, Nania J, Maier RV. State trauma system evaluation: a unique and comprehensive approach. Ann Emerg Med 1992;21:351-7.
34. Russell J, Conroy C. Representativeness of deaths identified through the injury-at-work item on the death certificate: implications for surveillance. Am J Public Health 1991;81:1613-18.
35. James HF. Under-reporting of road traffic accidents. Traffic Engineering+Control 1991;32:574-73.
36. Fife D. Matching fatal accident reporting system cases with National Center for Health Statistics motor vehicle deaths. Accid Anal Prev 1989;21:79-83.
37. Clark DE. Development of a statewide trauma registry using multiple linked sources of data. Proc Annu Symp Comput Appl Med Care 1993:654-8.
38. Meyer S. Using Microsoft Access to perform exact record linkages. Record linkage techniques - 1997: Proceedings of an international workshop and exposition. Arlington, Virginia, 1997:280-6. Available at: www.fcsm.gov/ working-papers/RLT_1997 (accessed on 30 May 2002).
39. Ferrante AM, Rosman DL, Knuiman MW. The construction of a road injury database. Accid Anal Prev 1993;25:659-65.
40. Lopez DG, Rosman DL, Jelinek GA, et al. Complementing police road-crash records with trauma registry data - an initial evaluation. Accid Anal Prev 2000;32:771-7.
41. Rosman DL. The western Australian road injury database (1987-1996): Ten years of linked police, hospital and death records of road crashes and injuries. Accid Anal Prev 2001;33:81-8.
42. Clark DE, Hahn DR. Comparison of probabilistic and deterministic record linkage in the development of a statewide trauma registry. Proc Annu Symp Comput Appl Med Care 1995:397-401.
43. Alsop JC, Langley JD. Determining first admissions in a hospital discharge file via record linkage. Methods Inf Med 1998;37:32-7.
44. Johnson S. Technical issues related to the probabilistic linkage of population-based crash and injury data. Record linkage techniques - 1997: Proceedings of an international workshop and exposition. Arlington, Virginia, 1997:222-6. Available at: www.fcsm.gov/working-papers/RLT_1997 (accessed on 30 May 2002).
45. Utter D. Use of probabilistic linkage for an analysis of the effectiveness of safety belts and helmets. Record linkage techniques - 1997: Proceedings of an international workshop and exposition. Arlington, Virginia, 1997:67-70. Available at: www.fcsm.gov/working-papers/RLT_1997 (accessed on 30 May 2002).
46. Van Tuinen M. Unsafe driving behaviors and hospitalization. Mo Med 1994;91:172-5.
47. Farrell TM, Sutton JE, Clark DE, et al. Moose-motor vehicle collisions: an increasing hazard in northern New England. Arch Surg 1996;131:377-81.
48. Karlson TA, Quade C, Florey M. Nonfatal motor vehicle crash injuries: Wisconsin's experience with linked data systems. Wis Med J 1996;95:301-4.
49. Patterson L, Weiss H, Schano P. Combining multiple data bases for outcomes assessment. Am J Med Qual 1996;11:S73-7.
50. Moore M. Comparison of young and adult driver crashes in Alaska using linked traffic crash and hospital data. Alaska Med 1997;39:95-102.
51. Cook LJ, Knight S, Olson LM, et al. Motor vehicle crash characteristics and medical outcomes among older drivers in Utah, 1992-1995. Ann Emerg Med 2000;35:585-91.
52. Robertson LS. Injury epidemiology. New York: Oxford University Press, 1998.
53. Clark DE, Hahn DR. Hospital trauma registries linked with population-based data. J Trauma 1999;47:448-54.
54. Dean JM, Vernon DD, Cook L, et al. Probabilistic linkage of computerized ambulance and inpatient hospital discharge records: a potential tool for evaluation of emergency medical services. Ann Emerg Med 2001;37:616-26.
55. Fair ME, Lalonde P, Newcombe HB. Application of exact ODDS for partial agreements of names in record linkage. Comput Biomed Res 1991;24:58-71.
56. Brenner H, Schmidtmann I. Determinants of homonym and synonym rates of record linkage in disease registration. Methods Inf Med 1996;35:19-24.
57. Brenner H, Schmidtmann I, Stegmaier C. Effects of record linkage errors on registry-based follow-up studies. Stat Med 1997;16:2633-43.
58. Blakely T, Salmond C. Probabilistic record linkage and a method to calculate the positive predictive value. Int J Epidemiol 2002;31:1246-52.
59. Deming WE, Glasser GJ. On the problem of matching lists by samples. J Am Statist Assoc 1959;54:403-15.
60. DeGroot MH, Feder PI, Goel PK. Matchmaking. Ann Math Statist 1971;42:578-93.
61. Copas JB, Hilton FJ. Record linkage: statistical models for matching computer records. J R Statist Soc A 1990;153:287-320.
62. Belin TR, Rubin DB. A method for calibrating false-match rates in record linkage. J Am Statist Assoc 1995;90:694-707.
63. Winkler WE. The state of record linkage and current research problems. Available atwww.census.gov/srd/papers/pdf/rs99-04.pdf (accessed on 12 February 2002).
64. Fellegi IP, Sunter AB. A theory for record linkage. J Am Statist Assoc 1969;64:1183-210.
65. Newcombe HB. Age-related bias in probabilistic death searches due to neglect of the "prior likelihoods". Comput Biomed Res 1995;28:87-99.
66. Newcombe HB. Strategy and art in automated death searches. Am J Public Health 1984;74:1302-3.
67. Scheuren F, Oh HL. Fiddling around with nonmatches and mismatches. Record linkage techniques - 1985: Proceedings of the workshop on exact matching methodologies. Arlington, Virginia, 1985:79-88. Available at: www.fcsm.gov/working-papers/RLT_1985 (accessed on 30 May 2002).
68. Kelman CW, Bass AJ, Holman CD. Research use of linked health data - a best practice protocol. Aust N Z J Public Health 2002;26:251-5.
69. Brenner H, Schmidtmann I. Effects of record linkage errors on disease registration. Methods Inf Med 1998;37:69-74.
70. Muse AG, Mikl J, Smith PF. Evaluating the quality of anonymous record linkage using deterministic procedures with the New York State AIDS registry and a hospital discharge file. Stat Med 1995;14:499-509.
71. Gomatam S, Carter R, Ariet M, et al. An empirical comparison of record linkage procedures. Stat Med 2002;21:1485-96.
72. Wallman KK, Coffey JL. Sharing statistical information for statistical purposes. Record linkage techniques - 1997: Proceedings of an international workshop and exposition. Arlington, Virginia, 1997:268-78. Available at: www.fcsm.gov/working-papers/RLT_1997 (accessed on 30 May 2002).
73. Beebe GW. Record linkage systems - Canada vs the United States. Am J Public Health 1980;70:1246-8.
74. Fellegi IP. Record linkage and public policy - a dynamic evolution. Record linkage techniques - 1997: Proceedings of an international workshop and exposition. Arlington, Virginia, 1997:3-14. Available at: www.fcsm.gov/ working-papers/RLT_1997 (accessed on 30 May 2002).
75. Scheuren F. Linking health records: human rights concerns. Record linkage techniques - 1997: Proceedings of an international workshop and exposition. Arlington, Virginia, 1997:404-26. Available at: www.fcsm.gov/working-papers/ RLT_1997 (accessed on 30 May 2002).
76. Breen KJ. Consent for the linkage of data for public health research: is it (or should it be) an absolute pre-requisite? Aust N Z J Public Health 2001;25:423-5.
77. Annas GJ. Medical privacy and medical research - judging the new federal regulations. N Engl J Med 2002;346:216-20.
78. Califf RM, Muhlbaier LH. Health Insurance Portability and Accountability Act (HIPAA): must there be a trade-off between privacy and quality of health care, or can we advance both? Circulation 2003;108:915-18.
79. Guidance from CDC and the US Department of Health and Human Services. HIPAA privacy rule and public health. MMWR Morb Mortal Wkly Rep 2003;52(suppl May2):1-20.
80. Cover TM, Thomas JA. Elements of information theory. New York: John Wiley, 1991.
81. Roos LL, Wajda A. Record linkage strategies. Part I: estimating information and evaluating approaches. Methods Inf Med 1991;30:117-23.
82. O'Hagan A. Kendall's advanced theory of statistics, volume 2B: Bayesian inference. New York: Halsted Press, 1994.
83. Clarke JR. A scientific approach to surgical reasoning: II. Probability revision - odds ratios, likelihood ratios, and Bayes' theorem. Theor Surg 1990;5:206-10.
84. Cook LJ, Olson LM, Dean JM. Probabilistic record linkage: relationships between file sizes, identifiers and match weights. Methods Inf Med 2001;40:196-203.