Research use of linked health data - A best practice protocol

Australian and New Zealand Journal of Public Health

Volumn 26, Issue 3, 2002, Pages 251-255

  Kelman, Christopher W ^a   Bass, A J ^a   Holman, C D J ^b  

^a Department of Health and Ageing ^*  (Australia)

^b UNIVERSITY OF WESTERN AUSTRALIA   (Australia)

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; AUSTRALIA; CLINICAL PROTOCOL; COMMUNITY CARE; DATA ANALYSIS; HEALTH CARE ACCESS; HEALTH CARE MANAGEMENT; HEALTH SERVICES RESEARCH; INFORMATION PROCESSING; INFORMATION RETRIEVAL; MEDICAL ASSESSMENT; MEDICAL INFORMATION; MEDICAL PRACTICE; MEDICAL RECORD; MEDICAL RESEARCH; METHODOLOGY; PRIVACY;

EID: 0036450652     PISSN: 13260200     EISSN: None     Source Type: Journal    
DOI: 10.1111/j.1467-842X.2002.tb00682.x     Document Type: Article

References (12)

1. Stanley FJ, Croft ML, Gibbins J, Read AW. A population database for maternal and child health research in Western Australia using record linkage. Paediatr Perinat Epidemiol 1994;8(4):433-47.
2. Holman CD, Bass AJ, Rouse IL, Hobbs MS. Population-based linkage of health records in Western Australia: Development of a health services research linked database. Aust N Z J Public Health 1999;23(5):453-9.
3. Mortensen PB. The untapped potential of case registers and record-linkage studies in psychiatric epidemiology. Epidemiol Rev 1995;17(1):205-9.
4. Mathiesen EB, Ahlbom A, Bermann G, Lindgren JU. Total hip replacement and cancer. A cohort study. J Bone Joint Surg Br 1995;77(3):345-50.
5. Westerholm P, Ahlmark A, Maasing R, Segelberg I. Silicosis and risk of lung cancer or lung tuberculosis: A cohort study. Environ Res 1986;41(1):339-50.
6. Acheson E.D. Medical Record Linkage. London: Oxford University Press, 1967.
7. Kelman C, Smith L. It's time: Record linkage - The vision and the reality [comment]. Aust N Z J Public Health 2002;24(1):100-1.
8. Breen KJ. Consent for the linkage of data for public health research: Is it (or should it be) an absolute prerequisite? Aust N Z J Public Health 2001;25(5):423-25.
9. National Statement on Ethical Conduct in Research Involving Humans. Canberra: Commonwealth of Australia, 1999.
10. Holman CD. The impractical nature of consent for research use of linked administrative health records. Aust N Z J Public Health 2001;25(5):421-22.
11. Roos LL, Wajda A. Record linkage strategies. Part I: Estimating information and evaluating approaches. Methods Inf Med 1991;30(2):117-23.
12. Canada Human Resources Development Committee. HRDC Dismantles Longitudinal Labour Force Databank. Press Release, Ottawa 2000 May 29.