메뉴 건너뛰기




Volumn 41, Issue 6, 2014, Pages 1206-1211

Patient participation in psoriasis and psoriatic arthritis outcome research: A report from the GRAPPA 2013 annual meeting

Author keywords

Outcome research; Patient involvement; Patient research partner; Patient reported outcomes; Psoriatic arthritis

Indexed keywords

CLINICAL ASSESSMENT TOOL; CLINICAL RESEARCH; CONFERENCE PAPER; DISEASE ACTIVITY; HUMAN; OUTCOME ASSESSMENT; OUTCOMES RESEARCH; PATIENT PARTICIPATION; PERSONAL EXPERIENCE; PRACTICE GUIDELINE; PRIORITY JOURNAL; PSORIASIS; PSORIATIC ARTHRITIS; QUALITY OF LIFE; RESEARCH SUBJECT; SELF REPORT; SYSTEMATIC REVIEW (TOPIC); TREATMENT PLANNING; MEDICAL RESEARCH;

EID: 84901712548     PISSN: 0315162X     EISSN: 14992752     Source Type: Journal    
DOI: 10.3899/jrheum.140171     Document Type: Conference Paper
Times cited : (14)

References (32)
  • 1
    • 0031839915 scopus 로고    scopus 로고
    • Review of community-based research: Assessing partnership approaches to improve public health
    • DOI 10.1146/annurev.publhealth.19.1.173
    • Israel BA, Schulz AJ, Parker EA, Becker AB. Review of community-based research: assessing partnership approaches to improve public health. Ann Rev Public Health 1998;19:173-202. (Pubitemid 28279929)
    • (1998) Annual Review of Public Health , vol.19 , pp. 173-202
    • Israel, B.A.1    Schulz, A.J.2    Parker, E.A.3    Becker, A.B.4
  • 3
    • 79953319283 scopus 로고    scopus 로고
    • [updated 2012 May] [Internet. Accessed March 18, 2014.] Available from
    • Richards P, de Wit MPT. OMERACT glossary 2012 [updated 2012 May] [Internet. Accessed March 18, 2014.] Available from: www.omeract.org/pdf/ OMERACT11%20Glossary.pdf
    • (2012) OMERACT Glossary
    • Richards, P.1    De Wit, M.P.T.2
  • 5
    • 84901716764 scopus 로고    scopus 로고
    • Home page; Internet. Accessed March 18, 2014. Available from
    • OMERACT. Outcome measures in rheumatology. Home page; 2013 [Internet. Accessed March 18, 2014.] Available from: www.omeract.org/
    • (2013) Outcome Measures in Rheumatology
  • 7
    • 84901715930 scopus 로고    scopus 로고
    • Elaboration and preliminary validation of the psoriatic arthritis impact of disease (PSAID) questionnaire. A 13-country EULAR initiative with involvement of patient research partners from each country
    • abstract
    • Gossec L, de Wit M, Heiberg T, Maccarone M, Balanescu A, Balint P, et al. Elaboration and preliminary validation of the psoriatic arthritis impact of disease (PSAID) questionnaire. A 13-country EULAR initiative with involvement of patient research partners from each country [abstract]. Ann Rheum Dis 2013;72 Suppl 3:89.
    • (2013) Ann Rheum Dis , vol.72 , Issue.SUPPL. 3 , pp. 89
    • Gossec, L.1    De Wit, M.2    Heiberg, T.3    Maccarone, M.4    Balanescu, A.5    Balint, P.6
  • 9
    • 78751701276 scopus 로고    scopus 로고
    • Development of a preliminary composite disease activity index in psoriatic arthritis
    • Mumtaz A, Gallagher P, Kirby B, Waxman R, Coates LC, Veale JD, et al. Development of a preliminary composite disease activity index in psoriatic arthritis. Ann Rheum Dis 2011;70:272-7.
    • (2011) Ann Rheum Dis , vol.70 , pp. 272-277
    • Mumtaz, A.1    Gallagher, P.2    Kirby, B.3    Waxman, R.4    Coates, L.C.5    Veale, J.D.6
  • 10
    • 84877636515 scopus 로고    scopus 로고
    • The development of candidate composite disease activity and responder indices for psoriatic arthritis (GRACE project)
    • Helliwell PS, FitzGerald O, Fransen J, Gladman DD, Kreuger GG, Callis-Duffin K, et al. The development of candidate composite disease activity and responder indices for psoriatic arthritis (GRACE project). Ann Rheum Dis 2013;72:986-91.
    • (2013) Ann Rheum Dis , vol.72 , pp. 986-991
    • Helliwell, P.S.1    FitzGerald, O.2    Fransen, J.3    Gladman, D.D.4    Kreuger, G.G.5    Callis-Duffin, K.6
  • 11
    • 84878391110 scopus 로고    scopus 로고
    • Involving patient research partners has a significant impact on outcomes research: A responsive evaluation of the international OMERACT conferences
    • pii:e002241
    • de Wit M, Abma T, Koelewijn-van Loon M, Collins S, Kirwan J. Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences. BMJ Open 2013;3 pii:e002241.
    • (2013) BMJ Open , vol.3
    • De Wit, M.1    Abma, T.2    Koelewijn-van Loon, M.3    Collins, S.4    Kirwan, J.5
  • 12
    • 84885348617 scopus 로고    scopus 로고
    • Facilitating and inhibiting factors for long-term involvement of patients at outcome conferences - Lessons learnt from a decade of collaboration in OMERACT: A qualitative study
    • de Wit M, Abma T, Koelewijn-van Loon M, Collins S, Kirwan J. Facilitating and inhibiting factors for long-term involvement of patients at outcome conferences - lessons learnt from a decade of collaboration in OMERACT: a qualitative study. BMJ Open 2013;3:e003311.
    • (2013) BMJ Open , vol.3
    • De Wit, M.1    Abma, T.2    Koelewijn-van Loon, M.3    Collins, S.4    Kirwan, J.5
  • 13
    • 84864091493 scopus 로고    scopus 로고
    • Differences in the patient's and the physician's perspective of disease in psoriatic arthritis
    • Dandorfer SW, Rech J, Manger B, Schett G, Englbrecht M. Differences in the patient's and the physician's perspective of disease in psoriatic arthritis. Semin Arthritis Rheum 2012;42:32-41.
    • (2012) Semin Arthritis Rheum , vol.42 , pp. 32-41
    • Dandorfer, S.W.1    Rech, J.2    Manger, B.3    Schett, G.4    Englbrecht, M.5
  • 14
    • 79953301130 scopus 로고    scopus 로고
    • European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects
    • de Wit MP, Berlo SE, Aanerud GJ, Aletaha D, Bijlsma JW, Croucher L, et al. European League Against Rheumatism recommendations for the inclusion of patient representatives in scientific projects. Ann Rheum Dis 2011;70:722-6.
    • (2011) Ann Rheum Dis , vol.70 , pp. 722-726
    • De Wit, M.P.1    Berlo, S.E.2    Aanerud, G.J.3    Aletaha, D.4    Bijlsma, J.W.5    Croucher, L.6
  • 16
    • 14244257107 scopus 로고    scopus 로고
    • Preliminary identification of core domains for outcome studies in psoriatic arthritis using Delphi methods
    • DOI 10.1136/ard.2004.030874
    • Taylor WJ. Preliminary identification of core domains for outcome studies in psoriatic arthritis using Delphi methods. Ann Rheum Dis 2005;64 Suppl 2:ii110-2. (Pubitemid 40288538)
    • (2005) Annals of the Rheumatic Diseases , vol.64 , Issue.SUPPL. 2
    • Taylor, W.J.1
  • 17
    • 14244269339 scopus 로고    scopus 로고
    • Consensus exercise on domains in psoriatic arthritis
    • DOI 10.1136/ard.2004.030882
    • Gladman DD. Consensus exercise on domains in psoriatic arthritis. Ann Rheum Dis 2005;64 Suppl 2:ii113-4. (Pubitemid 40288539)
    • (2005) Annals of the Rheumatic Diseases , vol.64 , Issue.SUPPL. 2
    • Gladman, D.D.1
  • 19
    • 0034793428 scopus 로고    scopus 로고
    • Health-related quality of life of patients with psoriatic arthritis: A comparison with patients with rheumatoid arthritis
    • Husted JA, Gladman DD, Farewell VT, Cook RJ. Health-related quality of life of patients with psoriatic arthritis: a comparison with patients with rheumatoid arthritis. Arthritis Rheum 2001;45:151-8. (Pubitemid 32954441)
    • (2001) Arthritis Care and Research , vol.45 , Issue.2 , pp. 151-158
    • Husted, J.A.1    Gladman, D.D.2    Farewell, V.T.3    Cook, R.J.4
  • 21
    • 84856092780 scopus 로고    scopus 로고
    • Work disability in psoriatic arthritis: A systematic review
    • Tillett W, de-Vries C, McHugh NJ. Work disability in psoriatic arthritis: a systematic review. Rheumatology 2012;51:275-83.
    • (2012) Rheumatology , vol.51 , pp. 275-283
    • Tillett, W.1    De-Vries, C.2    McHugh, N.J.3
  • 24
    • 78049288337 scopus 로고    scopus 로고
    • Patient preferences and satisfaction in the treatment of rheumatoid arthritis with biologic therapy
    • Barton JL. Patient preferences and satisfaction in the treatment of rheumatoid arthritis with biologic therapy. Patient Prefer Adherence 2009;3:335-44.
    • (2009) Patient Prefer Adherence , vol.3 , pp. 335-344
    • Barton, J.L.1
  • 25
    • 24944464277 scopus 로고    scopus 로고
    • Beliefs about medications: A questionnaire survey of people with rheumatoid arthritis
    • DOI 10.1093/rheumatology/keh587
    • Neame R, Hammond A. Beliefs about medications: a questionnaire survey of people with rheumatoid arthritis. Rheumatology 2005;44:762-7. (Pubitemid 41487205)
    • (2005) Rheumatology , vol.44 , Issue.6 , pp. 762-767
    • Neame, R.1    Hammond, A.2
  • 26
    • 77957599569 scopus 로고    scopus 로고
    • Compliance with methotrexate treatment in patients with rheumatoid arthritis: Influence of patients' beliefs about the medicine. A prospective cohort study
    • de Thurah A, Norgaard M, Harder I, Stengaard-Pedersen K. Compliance with methotrexate treatment in patients with rheumatoid arthritis: influence of patients' beliefs about the medicine. A prospective cohort study. Rheumatol Int 2010;30:1441-8.
    • (2010) Rheumatol Int , vol.30 , pp. 1441-1448
    • De Thurah, A.1    Norgaard, M.2    Harder, I.3    Stengaard-Pedersen, K.4
  • 28
    • 0036353590 scopus 로고    scopus 로고
    • Female patients tend to alter their diet following the diagnosis of rheumatoid arthritis and breast cancer
    • DOI 10.1006/pmed.2002.1015
    • Salminen E, Heikkila S, Poussa T, Lagstrom H, Saario R, Salminen S. Female patients tend to alter their diet following the diagnosis of rheumatoid arthritis and breast cancer. Prev Med 2002;34:529-35. (Pubitemid 34971676)
    • (2002) Preventive Medicine , vol.34 , Issue.5 , pp. 529-535
    • Salminen, E.1    Heikkila, S.2    Poussa, T.3    Lagstrom, H.4    Saario, R.5    Salminen, S.6
  • 29
    • 4544285268 scopus 로고    scopus 로고
    • The role of perceived and actual disease status in adjustment to rheumatoid arthritis
    • DOI 10.1093/rheumatology/keh262
    • Groarke A, Curtis R, Coughlan R, Gsel A. The role of perceived and actual disease status in adjustment to rheumatoid arthritis. Rheumatology 2004;43:1142-9. (Pubitemid 39232820)
    • (2004) Rheumatology , vol.43 , Issue.9 , pp. 1142-1149
    • Groarke, A.1    Curtis, R.2    Coughlan, R.3    Gsel, A.4
  • 30
    • 77953113763 scopus 로고    scopus 로고
    • Prediction of nonspecific side effects in rheumatoid arthritis patients by beliefs about medicines
    • Nestoriuc Y, Orav EJ, Liang MH, Horne R, Barsky AJ. Prediction of nonspecific side effects in rheumatoid arthritis patients by beliefs about medicines. Arthritis Care Res 2010;62:791-9.
    • (2010) Arthritis Care Res , vol.62 , pp. 791-799
    • Nestoriuc, Y.1    Orav, E.J.2    Liang, M.H.3    Horne, R.4    Barsky, A.J.5
  • 31
    • 78649728581 scopus 로고    scopus 로고
    • Informing response criteria for psoriatic arthritis (PsA). II: Further considerations and a proposal - The PsA joint activity index
    • Gladman DD, Tom BD, Mease PJ, Farewell VT. Informing response criteria for psoriatic arthritis (PsA). II: Further considerations and a proposal - the PsA joint activity index. J Rheumatol 2010;37:2559-65.
    • (2010) J Rheumatol , vol.37 , pp. 2559-2565
    • Gladman, D.D.1    Tom, B.D.2    Mease, P.J.3    Farewell, V.T.4
  • 32
    • 77949456275 scopus 로고    scopus 로고
    • Evaluation of the appropriateness of composite disease activity measures for assessment of psoriatic arthritis
    • Nell-Duxneuner VP, Stamm TA, Machold KP, Pflugbeil S, Aletaha D, Smolen JS. Evaluation of the appropriateness of composite disease activity measures for assessment of psoriatic arthritis. Ann Rheum Dis 2010;69:546-9.
    • (2010) Ann Rheum Dis , vol.69 , pp. 546-549
    • Nell-Duxneuner, V.P.1    Stamm, T.A.2    Machold, K.P.3    Pflugbeil, S.4    Aletaha, D.5    Smolen, J.S.6


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.