메뉴 건너뛰기




Volumn 9, Issue 1, 2014, Pages 17-27

Imperfect informed consent for prenatal screening: Lessons from the Quad screen

Author keywords

Clinical ethics; Genetic screening; Informed consent

Indexed keywords


EID: 84901436049     PISSN: 14777509     EISSN: 1758101X     Source Type: Journal    
DOI: 10.1177/1477750913511339     Document Type: Article
Times cited : (13)

References (42)
  • 1
    • 33748355113 scopus 로고    scopus 로고
    • Chorionic villus sampling compared with amniocentesis and the difference in the rate of pregnancy loss
    • Caughey AB, Hopkins LM and Norton ME. Chorionic villus sampling compared with amniocentesis and the difference in the rate of pregnancy loss. Obstet Gynecol 2006; 108: 612.
    • (2006) Obstet Gynecol , vol.108 , pp. 612
    • Caughey, A.B.1    Hopkins, L.M.2    Norton, M.E.3
  • 2
    • 0035142764 scopus 로고    scopus 로고
    • Estimates for the sensitivity and false-positive rates for second trimester serum screening for down syndrome and trisomy 18 with adjustment for cross-identification and doublepositive results
    • Benn PA, Ying J, Beazoglou T, et al. Estimates for the sensitivity and false-positive rates for second trimester serum screening for down syndrome and trisomy 18 with adjustment for cross-identification and doublepositive results. Prenat Diagn 2001; 21: 46-51.
    • (2001) Prenat Diagn , vol.21 , pp. 46-51
    • Benn, P.A.1    Ying, J.2    Beazoglou, T.3
  • 3
    • 33747961811 scopus 로고    scopus 로고
    • Empirical research on informed consent: An annotated bibliography
    • Sugarman J, McCrory DC, Powell D, et al. Empirical research on informed consent: An annotated bibliography. Hastings Center Rep 1999; 29: s1-s42.
    • (1999) Hastings Center Rep , vol.29
    • Sugarman, J.1    McCrory, D.C.2    Powell, D.3
  • 5
    • 79959991989 scopus 로고    scopus 로고
    • Informed decision-making in prenatal screening for down's syndrome: What knowledge is relevant?
    • Schoonen HM, van Agt HM, Essink-Bot ML, et al. Informed decision-making in prenatal screening for down's syndrome: What knowledge is relevant? Patient Educ Couns 2011; 84: 265-270.
    • (2011) Patient Educ Couns , vol.84 , pp. 265-270
    • Schoonen, H.M.1    van Agt, H.M.2    Essink-Bot, M.L.3
  • 6
    • 0033159671 scopus 로고    scopus 로고
    • Informed consent for PSA screening: Does it happen?
    • Federman DG, Goyal S, Kamina A, et al. Informed consent for PSA screening: Does it happen? Eff Clin Pract 1999; 2: 152-157.
    • (1999) Eff Clin Pract , vol.2 , pp. 152-157
    • Federman, D.G.1    Goyal, S.2    Kamina, A.3
  • 7
    • 42349089915 scopus 로고    scopus 로고
    • What about informed consent in first-trimester ultrasound screening for down syndrome?
    • Favre R, Moutel G, Duchange N, et al. What about informed consent in first-trimester ultrasound screening for down syndrome? Fetal Diagn Ther 2008; 23: 173-184.
    • (2008) Fetal Diagn Ther , vol.23 , pp. 173-184
    • Favre, R.1    Moutel, G.2    Duchange, N.3
  • 8
    • 82255175608 scopus 로고    scopus 로고
    • Meeting patients' education and decision-making needs for first trimester prenatal aneuploidy screening
    • Farrell RM, Nutter B and Agatisa PK. Meeting patients' education and decision-making needs for first trimester prenatal aneuploidy screening. Prenat Diagn 2011; 31: 1222-1228.
    • (2011) Prenat Diagn , vol.31 , pp. 1222-1228
    • Farrell, R.M.1    Nutter, B.2    Agatisa, P.K.3
  • 9
    • 84857117330 scopus 로고    scopus 로고
    • Informing on prenatal screening for down syndrome prior to conception. An empirical and ethical perspective
    • Schoonen M, van der Zee B, Wildschut H, et al. Informing on prenatal screening for down syndrome prior to conception. An empirical and ethical perspective. Am J Med Genet A 2012; 158A: 485-497.
    • (2012) Am J Med Genet A , vol.158 A , pp. 485-497
    • Schoonen, M.1    van der Zee, B.2    Wildschut, H.3
  • 10
    • 80051765380 scopus 로고    scopus 로고
    • Knowledge of prenatal screening and psychological management of test decisions
    • Dahl K, Hvidman L, Jørgensen FS, et al. Knowledge of prenatal screening and psychological management of test decisions. Ultrasound Obstet Gynecol 2011; 38: 152-157.
    • (2011) Ultrasound Obstet Gynecol , vol.38 , pp. 152-157
    • Dahl, K.1    Hvidman, L.2    Jørgensen, F.S.3
  • 11
    • 63249092175 scopus 로고    scopus 로고
    • Information preferences of high literacy pregnant women regarding informed consent models for genetic carrier screening
    • Ormond KE, Banuvar S, Daly A, et al. Information preferences of high literacy pregnant women regarding informed consent models for genetic carrier screening. Patient Educ Counsel 2009; 75: 244-250.
    • (2009) Patient Educ Counsel , vol.75 , pp. 244-250
    • Ormond, K.E.1    Banuvar, S.2    Daly, A.3
  • 12
    • 0036768317 scopus 로고    scopus 로고
    • The multidimensional measure of informed choice: A validation study
    • Michie S, Dormandy E and Marteau TM. The multidimensional measure of informed choice: A validation study. Patient Educ Counsel 2002; 48: 87-91.
    • (2002) Patient Educ Counsel , vol.48 , pp. 87-91
    • Michie, S.1    Dormandy, E.2    Marteau, T.M.3
  • 14
    • 0033015696 scopus 로고    scopus 로고
    • 'Because of the risks': How US pregnant women account for refusing prenatal screening
    • Markens S, Browner C and Press N. 'Because of the risks': How US pregnant women account for refusing prenatal screening. Soc Sci Med 1999; 49: 359-369.
    • (1999) Soc Sci Med , vol.49 , pp. 359-369
    • Markens, S.1    Browner, C.2    Press, N.3
  • 15
    • 70349258903 scopus 로고    scopus 로고
    • Cognitive interviewing. A tool for improving questionnaire design
    • McColl E. Cognitive interviewing. A tool for improving questionnaire design. Qual Life Res 2006; 15: 571-573.
    • (2006) Qual Life Res , vol.15 , pp. 571-573
    • McColl, E.1
  • 17
    • 0042878401 scopus 로고    scopus 로고
    • The importance of patient preferences in treatment decisions-challenges for doctors
    • Say RE and Thomson R. The importance of patient preferences in treatment decisions-challenges for doctors. BMJ 2003; 327: 542-545.
    • (2003) BMJ , vol.327 , pp. 542-545
    • Say, R.E.1    Thomson, R.2
  • 18
    • 0033018476 scopus 로고    scopus 로고
    • Decision-making in the physician-patient encounter: Revisiting the shared treatment decision-making model
    • Charles C, Gafni A and Whelan T. Decision-making in the physician-patient encounter: Revisiting the shared treatment decision-making model. Soc Sci Med 1999; 49: 651-661.
    • (1999) Soc Sci Med , vol.49 , pp. 651-661
    • Charles, C.1    Gafni, A.2    Whelan, T.3
  • 19
    • 59649122001 scopus 로고    scopus 로고
    • Prenatal screening for down syndrome: Women's involvement in decision-making and their attitudes to screening
    • Seror V and Ville Y. Prenatal screening for down syndrome: Women's involvement in decision-making and their attitudes to screening. Prenat Diagn 2009; 29: 120-128.
    • (2009) Prenat Diagn , vol.29 , pp. 120-128
    • Seror, V.1    Ville, Y.2
  • 21
    • 33947362961 scopus 로고    scopus 로고
    • How important is consent in maternal serum screening for down syndrome in france? Information and consent evaluation in maternal serum screening for down syndrome: A french study
    • Favre R, Duchange N, Vayssière C, et al. How important is consent in maternal serum screening for down syndrome in france? Information and consent evaluation in maternal serum screening for down syndrome: A french study. Prenat Diagn 2007; 27: 197-205.
    • (2007) Prenat Diagn , vol.27 , pp. 197-205
    • Favre, R.1    Duchange, N.2    Vayssière, C.3
  • 22
    • 48049120438 scopus 로고    scopus 로고
    • Understanding pregnant women's decision making concerning prenatal screening
    • van den Berg M, Timmermans DR, Knol DL, et al. Understanding pregnant women's decision making concerning prenatal screening. Health Psychol 2008; 27: 430-437.
    • (2008) Health Psychol , vol.27 , pp. 430-437
    • van den Berg, M.1    Timmermans, D.R.2    Knol, D.L.3
  • 23
    • 13844275639 scopus 로고    scopus 로고
    • The routine and the traumatic in prenatal genetic diagnosis: Does clinical information inform patient decision-making?
    • Hunt LM, de Voogd KB and Castañeda H. The routine and the traumatic in prenatal genetic diagnosis: Does clinical information inform patient decision-making? Patient Educ Counsel 2005; 56: 302-312.
    • (2005) Patient Educ Counsel , vol.56 , pp. 302-312
    • Hunt, L.M.1    de Voogd, K.B.2    Castañeda, H.3
  • 24
    • 0030803565 scopus 로고    scopus 로고
    • Why women say yes to prenatal diagnosis
    • Press N and Browner CH. Why women say yes to prenatal diagnosis. Soc Sci Med 1997; 45: 979-989.
    • (1997) Soc Sci Med , vol.45 , pp. 979-989
    • Press, N.1    Browner, C.H.2
  • 25
    • 0032418971 scopus 로고    scopus 로고
    • Objectives of genetic counselling: Differing views of purchasers, providers and users
    • Michie S, Allanson A, Armstrong D, et al. Objectives of genetic counselling: Differing views of purchasers, providers and users. J Public Health 1998; 20: 404.
    • (1998) J Public Health , vol.20 , pp. 404
    • Michie, S.1    Allanson, A.2    Armstrong, D.3
  • 26
    • 84873547792 scopus 로고    scopus 로고
    • Women's experiences receiving abnormal prenatal chromosomal microarray testing results
    • Bernhardt BA, Soucier D, Hanson K, et al. Women's experiences receiving abnormal prenatal chromosomal microarray testing results. Genet Med 2012; 15: 139-145.
    • (2012) Genet Med , vol.15 , pp. 139-145
    • Bernhardt, B.A.1    Soucier, D.2    Hanson, K.3
  • 27
    • 84879487413 scopus 로고    scopus 로고
    • Non-invasive prenatal testing for aneuploidy: Current status and future prospects
    • Benn P, Cuckle H and Pergament E. Non-invasive prenatal testing for aneuploidy: Current status and future prospects. Ultrasound Obstet Gynecol 2013; 42: 15-33.
    • (2013) Ultrasound Obstet Gynecol , vol.42 , pp. 15-33
    • Benn, P.1    Cuckle, H.2    Pergament, E.3
  • 28
    • 84878130004 scopus 로고    scopus 로고
    • Commercial landscape of noninvasive prenatal testing in the united states
    • Agarwal A, Sayres LC, Cho MK, et al. Commercial landscape of noninvasive prenatal testing in the united states. Prenat Diagn 2013; 33: 521-531.
    • (2013) Prenat Diagn , vol.33 , pp. 521-531
    • Agarwal, A.1    Sayres, L.C.2    Cho, M.K.3
  • 29
    • 84866899806 scopus 로고    scopus 로고
    • Non-invasive prenatal diagnosis for down syndrome: No paradigm shift, just better testing. and it is already here!
    • Verweij EJ, de Boer MA and Oepkes D. Non-invasive prenatal diagnosis for down syndrome: No paradigm shift, just better testing. and it is already here! Ultrasound Obstet Gynecol 2012; 40: 484-485.
    • (2012) Ultrasound Obstet Gynecol , vol.40 , pp. 484-485
    • Verweij, E.J.1    de Boer, M.A.2    Oepkes, D.3
  • 30
    • 67651124803 scopus 로고    scopus 로고
    • An offer you can't refuse? Ethical implications of non-invasive prenatal diagnosis
    • Schmitz D, Netzer C and Henn W. An offer you can't refuse? Ethical implications of non-invasive prenatal diagnosis. Nat Rev Genet 2009; 10: 515.
    • (2009) Nat Rev Genet , vol.10 , pp. 515
    • Schmitz, D.1    Netzer, C.2    Henn, W.3
  • 31
    • 77949371495 scopus 로고    scopus 로고
    • Ethical challenges in providing noninvasive prenatal diagnosis
    • Benn PA and Chapman AR. Ethical challenges in providing noninvasive prenatal diagnosis. Curr Opin Obstet Gynecol 2010; 22: 128-134.
    • (2010) Curr Opin Obstet Gynecol , vol.22 , pp. 128-134
    • Benn, P.A.1    Chapman, A.R.2
  • 32
    • 66149153067 scopus 로고    scopus 로고
    • Practical and ethical considerations of noninvasive prenatal diagnosis
    • Benn PA and Chapman AR. Practical and ethical considerations of noninvasive prenatal diagnosis. JAMA 2009; 301: 2154-2156.
    • (2009) JAMA , vol.301 , pp. 2154-2156
    • Benn, P.A.1    Chapman, A.R.2
  • 34
    • 0034342601 scopus 로고    scopus 로고
    • Consequences of reducing nonresponse in a national telephone survey
    • Keeter S, Miller C, Kohut A, et al. Consequences of reducing nonresponse in a national telephone survey. Public Opin Quart 2000; 64: 125-148.
    • (2000) Public Opin Quart , vol.64 , pp. 125-148
    • Keeter, S.1    Miller, C.2    Kohut, A.3
  • 35
    • 33845779335 scopus 로고    scopus 로고
    • Gauging the impact of growing nonresponse on estimates from a national RDD telephone survey
    • Keeter S, Kennedy C, Dimock M, et al. Gauging the impact of growing nonresponse on estimates from a national RDD telephone survey. Public Opin Quart 2006; 70: 759-779.
    • (2006) Public Opin Quart , vol.70 , pp. 759-779
    • Keeter, S.1    Kennedy, C.2    Dimock, M.3
  • 36
    • 33845759898 scopus 로고    scopus 로고
    • Using community-level correlates to evaluate nonresponse effects in a telephone survey
    • Johnson TP, Cho YI, Campbell RT, et al. Using community-level correlates to evaluate nonresponse effects in a telephone survey. Public Opin Quart 2006; 70: 704-719.
    • (2006) Public Opin Quart , vol.70 , pp. 704-719
    • Johnson, T.P.1    Cho, Y.I.2    Campbell, R.T.3
  • 37
    • 33644858480 scopus 로고    scopus 로고
    • Screening for down syndrome: Practice patterns and knowledge of obstetricians and gynecologists
    • Cleary-Goldman J, Morgan MA, Malone FD, et al. Screening for down syndrome: Practice patterns and knowledge of obstetricians and gynecologists. Obstet Gynecol 2006; 107: 11-17.
    • (2006) Obstet Gynecol , vol.107 , pp. 11-17
    • Cleary-Goldman, J.1    Morgan, M.A.2    Malone, F.D.3
  • 38
    • 62549084708 scopus 로고    scopus 로고
    • Screening for down syndrome: Changing practice of obstetricians
    • Driscoll DA, Morgan MA and Schulkin J. Screening for down syndrome: Changing practice of obstetricians. Am J Obstet Gynecol 2009; 200: 459. e1-e9.
    • (2009) Am J Obstet Gynecol , vol.200
    • Driscoll, D.A.1    Morgan, M.A.2    Schulkin, J.3
  • 39
    • 33750599952 scopus 로고    scopus 로고
    • Antenatal screening tests: Knowledge and practice patterns of obstetricians in utah
    • Fisher BM, Varner M and Rose NC. Antenatal screening tests: Knowledge and practice patterns of obstetricians in utah. Am J Med Genet Part A 2006; 140: 2464-2468.
    • (2006) Am J Med Genet Part A , vol.140 , pp. 2464-2468
    • Fisher, B.M.1    Varner, M.2    Rose, N.C.3
  • 40
    • 79955918621 scopus 로고    scopus 로고
    • Risk and uncertainty: Shifting decision making for aneuploidy screening to the first trimester of pregnancy
    • Farrell RM, Dolgin N, Flocke SA, et al. Risk and uncertainty: Shifting decision making for aneuploidy screening to the first trimester of pregnancy. Genet Med 2011; 13: 429.
    • (2011) Genet Med , vol.13 , pp. 429
    • Farrell, R.M.1    Dolgin, N.2    Flocke, S.A.3
  • 41
    • 0000794907 scopus 로고
    • Toward a new conceptualization and operationalization of risk perception within the genetic counseling domain
    • Palmer CGS and Sainfort F. Toward a new conceptualization and operationalization of risk perception within the genetic counseling domain. J Genet Counsel 1993; 2: 275-294.
    • (1993) J Genet Counsel , vol.2 , pp. 275-294
    • Palmer, C.G.S.1    Sainfort, F.2
  • 42
    • 77953326792 scopus 로고    scopus 로고
    • Re-conceptualizing risk in genetic counseling: Implications for clinical practice
    • Austin JC. Re-conceptualizing risk in genetic counseling: Implications for clinical practice. J Genet Counsel 2010; 19: 228-234.
    • (2010) J Genet Counsel , vol.19 , pp. 228-234
    • Austin, J.C.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.