Informed decision-making in prenatal screening for Down's syndrome: What knowledge is relevant?

Patient Education and Counseling

Volumn 84, Issue 2, 2011, Pages 265-270

  Schoonen, H M H J D ^a   van Agt, H M E ^a   Essink Bot, M L ^b   Wildschut, H I ^a   Steegers, E A P ^a   de Koning, H J ^a  

^a ERASMUS MEDICAL CENTER   (Netherlands)

^b UNIVERSITY OF AMSTERDAM   (Netherlands)

Author keywords

Antenatal; Down's syndrome; Evaluation; Information; Informed choice; Informed decision making; Knowledge; Measure; Prenatal; Questionnaire; Screening

Indexed keywords

ARTICLE; CONSENSUS; DECISION MAKING; DOWN SYNDROME; FEMALE; HUMAN; PREGNANT WOMAN; PRENATAL SCREENING; PREVALENCE; PRIORITY JOURNAL; QUESTIONNAIRE; SCORING SYSTEM; SCREENING TEST;

ADULT; DECISION MAKING; DOWN SYNDROME; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INFANT, NEWBORN; INFORMED CONSENT; MASS SCREENING; PREGNANCY; PRENATAL CARE; PRENATAL DIAGNOSIS; PSYCHOMETRICS; QUALITATIVE RESEARCH; QUESTIONNAIRES;

EID: 79959991989     PISSN: 07383991     EISSN: 18735134     Source Type: Journal    
DOI: 10.1016/j.pec.2010.07.037     Document Type: Article

References (21)

1. Health council of The Netherlands: committee genetic screening. Genet Screen 1994, 22.
2. Health Council of the Netherlands. Prenatal screening (2); Down's syndrome, neural tube defects, Health Council of the Netherlands; 2004, 2004/06.
3. Health Council of the Netherlands, Population screening act: inition of a national programme for prenatal screening: Down's syndrome and neural tube defects [Wet Bevolkingsonderzoek: aanzet voor een landelijk programma voor prenatale screening]; 2006, 2006/03.
4. Health Council of the Netherlands: Committee on the Population Screening Act, Population screening act: the assessment of permit applications; 1996, P 09WBO.
5. Grijseels E.W.M., Laudy J.A.M., Galjaard R.J.H., Wildschut H.I.J. [Prenatal testing for Down's syndrome: medico-technical considerations and dilemmas arising from current opportunities. In Dutch] Prenataal onderzoek naar Down syndroom: medisch-technische overwegingen en dilemma's voortkomend uit de huidige toepassingsmogelijkheden. Ned Tijdschr Geneeskd 2004, 148:2166-2171.
6. Marteau T.M., Dormandy E., Michie S. A measure of informed choice. Health Expect 2001, 4:99-108.
7. Michie S., Dormandy E., Marteau T.M. The multi-dimensional measure of informed choice: a validation study. Patient Educ Couns 2002, 48:87-91.
8. Michie S., Dormandy E., Marteau T.M. Informed choice: understanding knowledge in the context of screening uptake. Patient Educ Couns 2003, 50:247-253.
9. Green J.M., Hewison J., Bekker H.L., Bryant L.D., Cuckle H.S. Psychosocial aspects of genetic screening of pregnant women and newborns: a systematic review. Health Technol Assess 2004, 8:1-109.
10. Wald N. Information leaflets in medical screening. J Med Screen 2006, 13:109.
11. Kohut R.J., Dewey D., Love E.J. Women's knowledge of prenatal ultrasound and informed choice. J Genet Couns 2002, 11:265-276.
12. Smith R.P., Titmarsh S., Overton T.G. Improving patients' knowledge of the fetal anomaly scan. Ultrasound Obstet Gynecol 2004, 24:740-744.
13. Zapka J.G., Geller B.M., Bulliard J.L., Fracheboud J., Sancho-Garnier H., Ballard-Barbash R., Group I.C.W. Print information to inform decisions about mammography screening participation in 16 countries with population-based programs. Patient Educ Couns 2006, 63:126-137.
14. Royal College of Obstetricians and Gynaecologists. Report of the working party on biochemical markers and the detection of Down's syndrome. RCOG Press; 1993.
15. Dutch National Institute for Public Health and the Environment (RIVM). Information about screening for Down's Syndrome and the 20-week ultrasound; 2010. http://www.rivm.nl/pns_en/down_ultrasound/information/.
16. Hak T, van der Veer K, Jansen H. The Three-Step Test-Interview (TSTI): an observational instrument for pretesting self-completion questionnaires. Report Series Research in Management; 2004.
17. Hunt L.M., de Voogd K.B., Castaneda H. The routine and the traumatic in prenatal genetic diagnosis: does clinical information inform patient decision-making?. Patient Educ Couns 2005, 56:302-312.
18. Goel V., Glazier R., Holzapfel S., Pugh P., Summers A. Evaluating patient's knowledge of maternal serum screening. Prenat Diagn 1996, 16:425-430.
19. van den Berg M., Timmermans D.R., Ten Kate L.P., van Vugt J.M., van der Wal G. Are pregnant women making informed choices about prenatal screening?. Genet Med 2005, 7:332-338.
20. van den Berg M., Timmermans D.R., ten Kate L.P., van Vugt J.M., van der Wal G. Informed decision making in the context of prenatal screening. Patient Educ Couns 2006, 63:110-117.
21. Chilaka V.N., Konje J.C., Stewart C.R., Narayan H., Taylor D.J. Knowledge of Down syndrome in pregnant women from different ethnic groups. Prenat Diagn 2001, 21:159-164.