메뉴 건너뛰기




Volumn 158 A, Issue 3, 2012, Pages 485-497

Informing on prenatal screening for Down syndrome prior to conception. An empirical and ethical perspective

Author keywords

Down syndrome; Information on prenatal screening; Informed decision making; Medical ethics; Preconception care consultation; Right not to know

Indexed keywords

ACCESS TO INFORMATION; ADULT; ARTICLE; DECISION MAKING; DOWN SYNDROME; FEMALE; GENETIC COUNSELING; HUMAN; INFORMATION DISSEMINATION; MATERNAL CARE; MEDICAL ETHICS; PATIENT PREFERENCE; PATIENT RIGHT; PREGNANT WOMAN; PRENATAL SCREENING; PRIORITY JOURNAL;

EID: 84857117330     PISSN: 15524825     EISSN: 15524833     Source Type: Journal    
DOI: 10.1002/ajmg.a.35213     Document Type: Article
Times cited : (11)

References (87)
  • 1
    • 34548667460 scopus 로고    scopus 로고
    • Late start of antenatal care among ethnic minorities in a large cohort of pregnant women
    • Alderliesten ME, Vrijkotte TG, van der Wal MF, Bonsel GJ. 2007. Late start of antenatal care among ethnic minorities in a large cohort of pregnant women. BJOG 114: 1232-1239.
    • (2007) BJOG , vol.114 , pp. 1232-1239
    • Alderliesten, M.E.1    Vrijkotte, T.G.2    van der Wal, M.F.3    Bonsel, G.J.4
  • 2
    • 0242489150 scopus 로고    scopus 로고
    • Prenatal screening, ethics and down's syndrome: A literature review
    • Alderson P. 2001. Prenatal screening, ethics and down's syndrome: A literature review. Nurs Ethics 8: 360-374.
    • (2001) Nurs Ethics , vol.8 , pp. 360-374
    • Alderson, P.1
  • 3
    • 0033957005 scopus 로고    scopus 로고
    • Survey of attitudes of pregnant women towards down syndrome screening
    • Al-Jader LN, Parry-Langdon N, Smith RJ. 2000. Survey of attitudes of pregnant women towards down syndrome screening. Prenat Diagn 20: 23-29.
    • (2000) Prenat Diagn , vol.20 , pp. 23-29
    • Al-Jader, L.N.1    Parry-Langdon, N.2    Smith, R.J.3
  • 4
    • 23944479744 scopus 로고    scopus 로고
    • ACOG committee opinion number 313, September 2005. the importance of preconception care in the continuum of women's health care
    • American College of Obstetricians and Gynecologists
    • American College of Obstetricians and Gynecologists. 2005. ACOG committee opinion number 313, September 2005. the importance of preconception care in the continuum of women's health care. Obstet Gynecol 106: 665-666.
    • (2005) Obstet Gynecol , vol.106 , pp. 665-666
  • 5
    • 33845942655 scopus 로고    scopus 로고
    • ACOG practice bulletin no. 77: Screening for fetal chromosomal abnormalities
    • American College of Obstetricians and Gynecologists
    • American College of Obstetricians and Gynecologists. 2007a. ACOG practice bulletin no. 77: Screening for fetal chromosomal abnormalities. Obstet Gynecol 109: 217-227.
    • (2007) Obstet Gynecol , vol.109 , pp. 217-227
  • 6
    • 38449105506 scopus 로고    scopus 로고
    • ACOG practice bulletin no. 88, december 2007. Invasive prenatal testing for aneuploidy
    • American College of Obstetricians and Gynecologists
    • American College of Obstetricians and Gynecologists. 2007b. ACOG practice bulletin no. 88, december 2007. Invasive prenatal testing for aneuploidy. Obstet Gynecol 110: 1459-1467.
    • (2007) Obstet Gynecol , vol.110 , pp. 1459-1467
  • 7
    • 6444221054 scopus 로고    scopus 로고
    • The right not to know: An autonomy based approach
    • discussion 439-40).
    • Andorno R. 2004. The right not to know: An autonomy based approach. J Med Ethics 30: 435-439 (discussion 439-40).
    • (2004) J Med Ethics , vol.30 , pp. 435-439
    • Andorno, R.1
  • 8
    • 0037080095 scopus 로고    scopus 로고
    • Health decision aids to facilitate shared decision making in office practice
    • Barry MJ. 2002. Health decision aids to facilitate shared decision making in office practice. Ann Intern Med 136: 127-135.
    • (2002) Ann Intern Med , vol.136 , pp. 127-135
    • Barry, M.J.1
  • 11
    • 1842632621 scopus 로고    scopus 로고
    • Applying decision analysis to facilitate informed decision making about prenatal diagnosis for down syndrome: A randomised controlled trial
    • Bekker HL, Hewison J, Thornton JG. 2004. Applying decision analysis to facilitate informed decision making about prenatal diagnosis for down syndrome: A randomised controlled trial. Prenat Diagn 24: 265-275.
    • (2004) Prenat Diagn , vol.24 , pp. 265-275
    • Bekker, H.L.1    Hewison, J.2    Thornton, J.G.3
  • 12
    • 77953807667 scopus 로고    scopus 로고
    • Reconsidering reproductive benefit through newborn screening: A systematic review of guidelines on preconception, prenatal and newborn screening
    • Bombard Y, Miller FA, Hayeems RZ, Avard D, Knoppers BM. 2010. Reconsidering reproductive benefit through newborn screening: A systematic review of guidelines on preconception, prenatal and newborn screening. Eur J Hum Genet. 18: 751-760.
    • (2010) Eur J Hum Genet. , vol.18 , pp. 751-760
    • Bombard, Y.1    Miller, F.A.2    Hayeems, R.Z.3    Avard, D.4    Knoppers, B.M.5
  • 13
  • 14
    • 41949130391 scopus 로고    scopus 로고
    • Survey of prenatal screening policies in Europe for structural malformations and chromosome anomalies, and their impact on detection and termination rates for neural tube defects and down's syndrome
    • EUROCAT Working Group
    • Boyd PA, Devigan C, Khoshnood B, Loane M, Garne E, Dolk H. EUROCAT Working Group. 2008. Survey of prenatal screening policies in Europe for structural malformations and chromosome anomalies, and their impact on detection and termination rates for neural tube defects and down's syndrome. BJOG 115: 689-696.
    • (2008) BJOG , vol.115 , pp. 689-696
    • Boyd, P.A.1    Devigan, C.2    Khoshnood, B.3    Loane, M.4    Garne, E.5    Dolk, H.6
  • 16
    • 56249135127 scopus 로고    scopus 로고
    • Wrongful deaths and rightful lives-Screening for down syndrome
    • Buckley F, Buckley S. 2008. Wrongful deaths and rightful lives-Screening for down syndrome. Downs Syndr Res Pract 12: 79-86.
    • (2008) Downs Syndr Res Pract , vol.12 , pp. 79-86
    • Buckley, F.1    Buckley, S.2
  • 17
    • 84857111079 scopus 로고    scopus 로고
    • Centers for Disease Control and Prevention (CDC). National Center on Birth Defects and Developmental Disabilities. Preconception health and care, 2006.
    • Centers for Disease Control and Prevention (CDC). 2006. National Center on Birth Defects and Developmental Disabilities. Preconception health and care, 2006.
    • (2006)
  • 18
    • 77949357352 scopus 로고    scopus 로고
    • Ethical considerations in first-trimester down syndrome risk assessment
    • Chervenak FA, McCullough LB. 2010. Ethical considerations in first-trimester down syndrome risk assessment. Curr Opin Obstet Gynecol 22: 135-138.
    • (2010) Curr Opin Obstet Gynecol , vol.22 , pp. 135-138
    • Chervenak, F.A.1    McCullough, L.B.2
  • 19
    • 23644460874 scopus 로고    scopus 로고
    • Clinical implications of the ethics of informed consent for first-trimester risk assessment for trisomy 21
    • Chervenak FA, McCullough LB, Chasen ST. 2005. Clinical implications of the ethics of informed consent for first-trimester risk assessment for trisomy 21. Semin Perinatol 29: 277-279.
    • (2005) Semin Perinatol , vol.29 , pp. 277-279
    • Chervenak, F.A.1    McCullough, L.B.2    Chasen, S.T.3
  • 20
    • 84857113578 scopus 로고    scopus 로고
    • Consensus Group Statement. (National Down Syndrome Society-NDSS, National Down Syndrome Congress-NDSC, American College of Obstetricians and Gynecologists-ACOG, American College of Medical Genetics-ACMG, National Society of Genetic Counselors-NSGC). 2009. Toward concurrence: Understanding prenatal screening and diagnosis of down syndrome from the health professional and advocacy community perspective.
    • Consensus Group Statement. (National Down Syndrome Society-NDSS, National Down Syndrome Congress-NDSC, American College of Obstetricians and Gynecologists-ACOG, American College of Medical Genetics-ACMG, National Society of Genetic Counselors-NSGC). 2009. Toward concurrence: Understanding prenatal screening and diagnosis of down syndrome from the health professional and advocacy community perspective.
  • 22
    • 0036424309 scopus 로고    scopus 로고
    • The past and present practices and continuing controversies of preconception care
    • de Weerd S, Steegers EA. 2002. The past and present practices and continuing controversies of preconception care. Community Genet 5: 50-60.
    • (2002) Community Genet , vol.5 , pp. 50-60
    • de Weerd, S.1    Steegers, E.A.2
  • 23
    • 18444378173 scopus 로고    scopus 로고
    • Low uptake of antenatal down syndrome screening in ethnic and socially deprived groups: A reflection of women's attitudes or a failure to facilitate informed choices
    • Dormandy E, Michie S, Hooper R, Marteau TM. 2005. Low uptake of antenatal down syndrome screening in ethnic and socially deprived groups: A reflection of women's attitudes or a failure to facilitate informed choices? Int J Epidemiol 34: 346-352.
    • (2005) Int J Epidemiol , vol.34 , pp. 346-352
    • Dormandy, E.1    Michie, S.2    Hooper, R.3    Marteau, T.M.4
  • 24
    • 62549084708 scopus 로고    scopus 로고
    • Screening for down syndrome: Changing practice of obstetricians
    • Driscoll DA, Morgan MA, Schulkin J. 2009. Screening for down syndrome: Changing practice of obstetricians. Am J Obstet Gynecol 200: 459.e1-459.e9.
    • (2009) Am J Obstet Gynecol , vol.200
    • Driscoll, D.A.1    Morgan, M.A.2    Schulkin, J.3
  • 25
    • 0024581423 scopus 로고
    • Measuring patients' desire for autonomy: Decision making and information-seeking preferences among medical patients
    • Ende J, Kazis L, Ash A, Moskowitz MA. 1989. Measuring patients' desire for autonomy: Decision making and information-seeking preferences among medical patients. J Gen Intern Med 4: 23-30.
    • (1989) J Gen Intern Med , vol.4 , pp. 23-30
    • Ende, J.1    Kazis, L.2    Ash, A.3    Moskowitz, M.A.4
  • 26
    • 84857119434 scopus 로고    scopus 로고
    • EUROCAT. Special report: Prenatal screening policies in europeEUROCAT Publications on Prenatal Diagnosis.
    • EUROCAT. 2010. Special report: Prenatal screening policies in europeEUROCAT Publications on Prenatal Diagnosis.
    • (2010)
  • 27
    • 77950656920 scopus 로고    scopus 로고
    • 'Reaching the hard to reach'-Lessons learned from the VCS (voluntary and community sector). A qualitative study
    • Flanagan SM, Hancock B. 2010. 'Reaching the hard to reach'-Lessons learned from the VCS (voluntary and community sector). A qualitative study. BMC Health Serv Res 10: 92.
    • (2010) BMC Health Serv Res , vol.10 , pp. 92
    • Flanagan, S.M.1    Hancock, B.2
  • 30
    • 33748699987 scopus 로고    scopus 로고
    • The history of preconception care: Evolving guidelines and standards
    • Freda MC, Moos MK, Curtis M. 2006. The history of preconception care: Evolving guidelines and standards. Matern Child Health J 10: S43-S52.
    • (2006) Matern Child Health J , vol.10
    • Freda, M.C.1    Moos, M.K.2    Curtis, M.3
  • 31
    • 37249053409 scopus 로고    scopus 로고
    • The impact of ethical beliefs on decisions about prenatal screening tests: Searching for justification
    • Garcia E, Timmermans DR, van Leeuwen E. 2008. The impact of ethical beliefs on decisions about prenatal screening tests: Searching for justification. Soc Sci Med 66: 753-764.
    • (2008) Soc Sci Med , vol.66 , pp. 753-764
    • Garcia, E.1    Timmermans, D.R.2    van Leeuwen, E.3
  • 32
    • 72449135740 scopus 로고    scopus 로고
    • Reconsidering prenatal screening: An empirical-ethical approach to understand moral dilemmas as a question of personal preferences
    • Garcia E, Timmermans DR, van Leeuwen E. 2009. Reconsidering prenatal screening: An empirical-ethical approach to understand moral dilemmas as a question of personal preferences. J Med Ethics 35: 410-414.
    • (2009) J Med Ethics , vol.35 , pp. 410-414
    • Garcia, E.1    Timmermans, D.R.2    van Leeuwen, E.3
  • 33
    • 61849085113 scopus 로고    scopus 로고
    • Comparison of different strategies in prenatal screening for down's syndrome: Cost effectiveness analysis of computer simulation
    • Gekas J, Gagne G, Bujold E, Douillard D, Forest JC, Reinharz D, Rousseau F. 2009. Comparison of different strategies in prenatal screening for down's syndrome: Cost effectiveness analysis of computer simulation. BMJ 338: b138.
    • (2009) BMJ , vol.338
    • Gekas, J.1    Gagne, G.2    Bujold, E.3    Douillard, D.4    Forest, J.C.5    Reinharz, D.6    Rousseau, F.7
  • 34
    • 0032900366 scopus 로고    scopus 로고
    • Informed consent to serum screening for down syndrome: Are women given adequate information
    • Gekas J, Gondry J, Mazur S, Cesbron P, Thepot F. 1999. Informed consent to serum screening for down syndrome: Are women given adequate information? Prenat Diagn 19: 1-7.
    • (1999) Prenat Diagn , vol.19 , pp. 1-7
    • Gekas, J.1    Gondry, J.2    Mazur, S.3    Cesbron, P.4    Thepot, F.5
  • 36
    • 79960105675 scopus 로고    scopus 로고
    • Informed decision making in maternity care
    • Goldberg H. 2009. Informed decision making in maternity care. J Perinat Educ 18: 32-40.
    • (2009) J Perinat Educ , vol.18 , pp. 32-40
    • Goldberg, H.1
  • 37
    • 43049181362 scopus 로고    scopus 로고
    • Do pregnant women in Greece make informed choices about antenatal screening for down's syndrome? A questionnaire survey
    • Gourounti K, Sandall J. 2008. Do pregnant women in Greece make informed choices about antenatal screening for down's syndrome? A questionnaire survey. Midwifery 24: 153-162.
    • (2008) Midwifery , vol.24 , pp. 153-162
    • Gourounti, K.1    Sandall, J.2
  • 38
    • 4544322158 scopus 로고    scopus 로고
    • Psychosocial aspects of genetic screening of pregnant women and newborns: A systematic review
    • ix-, 1-109.
    • Green JM, Hewison J, Bekker HL, Bryant LD, Cuckle HS. 2004. Psychosocial aspects of genetic screening of pregnant women and newborns: A systematic review. Health Technol Assess 8: iii, ix-x, 1-109.
    • (2004) Health Technol Assess , vol.8
    • Green, J.M.1    Hewison, J.2    Bekker, H.L.3    Bryant, L.D.4    Cuckle, H.S.5
  • 39
    • 0031801675 scopus 로고    scopus 로고
    • Patient participation in decision-making
    • Guadagnoli E, Ward P. 1998. Patient participation in decision-making. Soc Sci Med 47: 329-339.
    • (1998) Soc Sci Med , vol.47 , pp. 329-339
    • Guadagnoli, E.1    Ward, P.2
  • 40
    • 0030968786 scopus 로고    scopus 로고
    • The uptake and acceptability to patients of cystic fibrosis carrier testing offered in pregnancy by the GP
    • Hartley NE, Scotcher D, Harris H, Williamson P, Wallace A, Craufurd D, Harris R. 1997. The uptake and acceptability to patients of cystic fibrosis carrier testing offered in pregnancy by the GP. J Med Genet 34: 459-464.
    • (1997) J Med Genet , vol.34 , pp. 459-464
    • Hartley, N.E.1    Scotcher, D.2    Harris, H.3    Williamson, P.4    Wallace, A.5    Craufurd, D.6    Harris, R.7
  • 41
    • 84857119435 scopus 로고    scopus 로고
    • Health Council of the Netherlands. Prenatal screening: Down's syndrome, neural tube defects, routine-ultrasonography. 11.
    • Health Council of the Netherlands. 2001. Prenatal screening: Down's syndrome, neural tube defects, routine-ultrasonography. 11.
    • (2001)
  • 42
    • 84857116808 scopus 로고    scopus 로고
    • Health Council of the Netherlands. Prenatal screening (2); down's syndrome, neural tube defects. Health Council of the Netherlands 2004/06.
    • Health Council of the Netherlands. 2004. Prenatal screening (2); down's syndrome, neural tube defects. Health Council of the Netherlands 2004/06.
    • (2004)
  • 43
    • 84857111078 scopus 로고    scopus 로고
    • Health Council of the Netherlands. Population screening act. prenatal screening on down's syndrome and neural tube defects. Health Council of the Netherlands 2007/05.
    • Health Council of the Netherlands. 2007a. Population screening act. prenatal screening on down's syndrome and neural tube defects. Health Council of the Netherlands 2007/05.
    • (2007)
  • 44
    • 84857113579 scopus 로고    scopus 로고
    • Health Council of the Netherlands. Preconception care: A good beginning. The Hague: Health Council of the Netherlands.
    • Health Council of the Netherlands. 2007b. Preconception care: A good beginning. The Hague: Health Council of the Netherlands.
    • (2007)
  • 45
    • 70049095812 scopus 로고    scopus 로고
    • Ethnic health care advisors: A good strategy to improve the access to health care and social welfare services for ethnic minorities
    • Hesselink AE, Verhoeff AP, Stronks K. 2009. Ethnic health care advisors: A good strategy to improve the access to health care and social welfare services for ethnic minorities? J Community Health 34: 419-429.
    • (2009) J Community Health , vol.34 , pp. 419-429
    • Hesselink, A.E.1    Verhoeff, A.P.2    Stronks, K.3
  • 46
    • 0036717914 scopus 로고    scopus 로고
    • Improving informed consent: Insights from behavioral decision research
    • Holmes-Rovner M, Wills CE. 2002. Improving informed consent: Insights from behavioral decision research. Med Care 40: V30-V38.
    • (2002) Med Care , vol.40
    • Holmes-Rovner, M.1    Wills, C.E.2
  • 47
    • 33645882246 scopus 로고    scopus 로고
    • Recommendations to improve preconception health and health care-United States. A report of the CDC/ATSDR preconception care work group and the select panel on preconception care
    • CDC/ATSDR Preconception Care Work Group, Select Panel on Preconception Care
    • Johnson K, Posner SF, Biermann J, Cordero JF, Atrash HK, Parker CS, Boulet S, Curtis MG. CDC/ATSDR Preconception Care Work Group, Select Panel on Preconception Care. 2006. Recommendations to improve preconception health and health care-United States. A report of the CDC/ATSDR preconception care work group and the select panel on preconception care. MMWR Recomm Rep 55: 1-23.
    • (2006) MMWR Recomm Rep , vol.55 , pp. 1-23
    • Johnson, K.1    Posner, S.F.2    Biermann, J.3    Cordero, J.F.4    Atrash, H.K.5    Parker, C.S.6    Boulet, S.7    Curtis, M.G.8
  • 48
    • 84857119433 scopus 로고    scopus 로고
    • Joint Working Party of the Royal College of Obstetricians and Gynaecologists and the Royal College of Paediatrics and Child Health. Fetal abnormalities-guidelines for screening, diagnosis and management: Report of a joint working party of the Royal College of Obstetricians and Gynaecologists and the Royal College of Paediatrics and Child Health. RCOG Press.
    • Joint Working Party of the Royal College of Obstetricians and Gynaecologists and the Royal College of Paediatrics and Child Health. 1997. Fetal abnormalities-guidelines for screening, diagnosis and management: Report of a joint working party of the Royal College of Obstetricians and Gynaecologists and the Royal College of Paediatrics and Child Health. RCOG Press.
    • (1997)
  • 50
    • 0038281518 scopus 로고    scopus 로고
    • Women's knowledge of prenatal ultrasound and informed choice
    • Kohut RJ, Dewey D, Love EJ. 2002. Women's knowledge of prenatal ultrasound and informed choice. J Genet Couns 11: 265-276.
    • (2002) J Genet Couns , vol.11 , pp. 265-276
    • Kohut, R.J.1    Dewey, D.2    Love, E.J.3
  • 51
    • 77956166372 scopus 로고    scopus 로고
    • Performance of first-trimester serum screening for trisomy 21 before and from 11+0 weeks of gestational age in the Netherlands
    • Kuc S, Koster MP, Visser GH, Schielen PC. 2010. Performance of first-trimester serum screening for trisomy 21 before and from 11+0 weeks of gestational age in the Netherlands. Prenat Diagn 30: 906-908.
    • (2010) Prenat Diagn , vol.30 , pp. 906-908
    • Kuc, S.1    Koster, M.P.2    Visser, G.H.3    Schielen, P.C.4
  • 53
    • 56149089228 scopus 로고    scopus 로고
    • Take down syndrome out of the abortion debate
    • Lindeman R. 2008. Take down syndrome out of the abortion debate. CMAJ 179: 1088.
    • (2008) CMAJ , vol.179 , pp. 1088
    • Lindeman, R.1
  • 54
  • 56
    • 0036768317 scopus 로고    scopus 로고
    • The multi-dimensional measure of informed choice: A validation study
    • Michie S, Dormandy E, Marteau TM. 2002. The multi-dimensional measure of informed choice: A validation study. Patient Educ Couns 48: 87-91.
    • (2002) Patient Educ Couns , vol.48 , pp. 87-91
    • Michie, S.1    Dormandy, E.2    Marteau, T.M.3
  • 57
    • 79955851250 scopus 로고    scopus 로고
    • National Center for Health Statistics. . Hyattsville: National Center for Health Statistics.
    • National Center for Health Statistics. 2011. Health, United States, 2010. Hyattsville: National Center for Health Statistics.
    • (2011) Health, United States, 2010
  • 59
    • 33646219184 scopus 로고
    • The NSGC code of ethics
    • National Society of Genetic Counselors
    • National Society of Genetic Counselors. 1992. The NSGC code of ethics. J Genet Counsel 1: 41-44.
    • (1992) J Genet Counsel , vol.1 , pp. 41-44
  • 60
    • 0037541122 scopus 로고    scopus 로고
    • Screening for chromosomal defects
    • Nicolaides KH. 2003. Screening for chromosomal defects. Ultrasound Obstet Gynecol 21: 313-321.
    • (2003) Ultrasound Obstet Gynecol , vol.21 , pp. 313-321
    • Nicolaides, K.H.1
  • 61
    • 0001842451 scopus 로고
    • Decisional conflict.
    • McFarlane GK, McFarlane EA, editors. Toronto: Mosby
    • O'Connor A, O'Brien Pallas LL. 1989. Decisional conflict. In: McFarlane GK, McFarlane EA, editors. Nursing diagnosis and intervention. Toronto: Mosby. pp 486-496.
    • (1989) Nursing diagnosis and intervention , pp. 486-496
    • O'Connor, A.1    O'Brien Pallas, L.L.2
  • 62
    • 20444448875 scopus 로고    scopus 로고
    • Technical standards and guidelines: Prenatal screening for down syndrome
    • Down Syndrome Working Group, ACMG Laboratory Quality Assurance Committee
    • Palomaki GE, Bradley LA, McDowell GA. Down Syndrome Working Group, ACMG Laboratory Quality Assurance Committee. 2005. Technical standards and guidelines: Prenatal screening for down syndrome. Genet Med 7: 344-354.
    • (2005) Genet Med , vol.7 , pp. 344-354
    • Palomaki, G.E.1    Bradley, L.A.2    McDowell, G.A.3
  • 63
    • 0037222951 scopus 로고    scopus 로고
    • Disability rights critique of prenatal genetic testing: Reflections and recommendations
    • Parens E, Asch A. 2003. Disability rights critique of prenatal genetic testing: Reflections and recommendations. Ment Retard Dev Disabil Res Rev 9: 40-47.
    • (2003) Ment Retard Dev Disabil Res Rev , vol.9 , pp. 40-47
    • Parens, E.1    Asch, A.2
  • 64
    • 0033670831 scopus 로고    scopus 로고
    • Down's syndrome screening: A controversial test, with more controversy to come
    • Reynolds TM. 2000. Down's syndrome screening: A controversial test, with more controversy to come! J Clin Pathol 53: 893-898.
    • (2000) J Clin Pathol , vol.53 , pp. 893-898
    • Reynolds, T.M.1
  • 65
    • 0037394904 scopus 로고    scopus 로고
    • Down's syndrome screening is unethical: Views of today's research ethics committees
    • Reynolds TM. 2003. Down's syndrome screening is unethical: Views of today's research ethics committees. J Clin Pathol 56: 268-270.
    • (2003) J Clin Pathol , vol.56 , pp. 268-270
    • Reynolds, T.M.1
  • 66
    • 4143140995 scopus 로고    scopus 로고
    • Informed decision making: What is its role in cancer screening
    • Rimer BK, Briss PA, Zeller PK, Chan EC, Woolf SH. 2004. Informed decision making: What is its role in cancer screening? Cancer 101: 1214-1228.
    • (2004) Cancer , vol.101 , pp. 1214-1228
    • Rimer, B.K.1    Briss, P.A.2    Zeller, P.K.3    Chan, E.C.4    Woolf, S.H.5
  • 68
    • 70849118423 scopus 로고    scopus 로고
    • Royal College of Obstetricians and Gynaecologists. . London: Royal College of Obstetricians and Gynaecologists.
    • Royal College of Obstetricians and Gynaecologists. 2005. Amniocentesis and chorionic villus sampling. London: Royal College of Obstetricians and Gynaecologists.
    • (2005) Amniocentesis and chorionic villus sampling
  • 69
    • 66249085561 scopus 로고    scopus 로고
    • The moral obligation to create children with the best chance of the best life
    • Savulescu J, Kahane G. 2009. The moral obligation to create children with the best chance of the best life. Bioethics 23: 274-290.
    • (2009) Bioethics , vol.23 , pp. 274-290
    • Savulescu, J.1    Kahane, G.2
  • 70
    • 84861226955 scopus 로고    scopus 로고
    • The provision of information and informed decision-making on prenatal screening for Down syndrome: A questionnaire- and register-based survey in a non-selected population
    • Published Online 24 Oct 2011 at: DOI: 10.1016/2011.10.001.
    • Schoonen HM, Wildschut HIJ, Essink-Bot ML, Peters IA, Steegers E, de Koning HJ. 2011a. The provision of information and informed decision-making on prenatal screening for Down syndrome: A questionnaire- and register-based survey in a non-selected population. Patient Educ Couns Published Online 24 Oct 2011 at: DOI: 10.1016/2011.10.001.
    • (2011) Patient Educ Couns
    • Schoonen, H.M.1    Wildschut, H.I.J.2    Essink-Bot, M.L.3    Peters, I.A.4    Steegers, E.5    de Koning, H.J.6
  • 72
    • 57649208078 scopus 로고    scopus 로고
    • Challenging the rhetoric of choice in prenatal screening
    • Seavilleklein V. 2009. Challenging the rhetoric of choice in prenatal screening. Bioethics 23: 68-77.
    • (2009) Bioethics , vol.23 , pp. 68-77
    • Seavilleklein, V.1
  • 73
    • 0033781072 scopus 로고    scopus 로고
    • Prenatal screening for trisomy 21 with maternal serum markers: Information for decision-making in pregnant women
    • Seror V, Costet N, Ayme S. 2000. Prenatal screening for trisomy 21 with maternal serum markers: Information for decision-making in pregnant women. J Gynecol Obstet Biol Reprod (Paris) 29: 492-500.
    • (2000) J Gynecol Obstet Biol Reprod (Paris) , vol.29 , pp. 492-500
    • Seror, V.1    Costet, N.2    Ayme, S.3
  • 74
    • 78149407461 scopus 로고    scopus 로고
    • Antenatal screening and informed choice: A cross-sectional survey of parents and professionals
    • Skirton H, Barr O. 2009. Antenatal screening and informed choice: A cross-sectional survey of parents and professionals. Midwifery 26: 596-602.
    • (2009) Midwifery , vol.26 , pp. 596-602
    • Skirton, H.1    Barr, O.2
  • 75
    • 3042805474 scopus 로고    scopus 로고
    • Ideals of patient autonomy in clinical decision making: A study on the development of a scale to assess patients' and physicians' views
    • Stiggelbout AM, Molewijk AC, Otten W, Timmermans DR, van Bockel JH, Kievit J. 2004. Ideals of patient autonomy in clinical decision making: A study on the development of a scale to assess patients' and physicians' views. J Med Ethics 30: 268-274.
    • (2004) J Med Ethics , vol.30 , pp. 268-274
    • Stiggelbout, A.M.1    Molewijk, A.C.2    Otten, W.3    Timmermans, D.R.4    van Bockel, J.H.5    Kievit, J.6
  • 76
    • 0028519765 scopus 로고
    • Informed choice in prenatal screening
    • 1694-1697.
    • Summers AM. 1994. Informed choice in prenatal screening. Can Fam Physician 40: 1688-1691 1694-1697.
    • (1994) Can Fam Physician , vol.40 , pp. 1688-1691
    • Summers, A.M.1
  • 77
    • 77953052466 scopus 로고    scopus 로고
    • Prenatal testing for down syndrome: Comparison of screening practices in the UK and USA
    • Tapon D. 2010. Prenatal testing for down syndrome: Comparison of screening practices in the UK and USA. J Genet Couns 19: 112-130.
    • (2010) J Genet Couns , vol.19 , pp. 112-130
    • Tapon, D.1
  • 78
    • 84857119431 scopus 로고    scopus 로고
    • The Royal Australian and New Zealand College of Obstetricians and Gynaecologists. College statement: Prenatal screening tests for trisomy 21 (down syndrome), trisomy 18 (Edwards syndrome) and neural tube defects.
    • The Royal Australian and New Zealand College of Obstetricians and Gynaecologists. 2010. College statement: Prenatal screening tests for trisomy 21 (down syndrome), trisomy 18 (Edwards syndrome) and neural tube defects.
    • (2010)
  • 82
    • 0031297826 scopus 로고    scopus 로고
    • Genetic screening and the right not to know
    • Weaver KD. 1997. Genetic screening and the right not to know. Issues Law Med 13: 243-279.
    • (1997) Issues Law Med , vol.13 , pp. 243-279
    • Weaver, K.D.1
  • 83
    • 0036126149 scopus 로고    scopus 로고
    • Dilemmas encountered by health practitioners offering nuchal translucency screening: A qualitative case study
    • Williams C, Alderson P, Farsides B. 2002. Dilemmas encountered by health practitioners offering nuchal translucency screening: A qualitative case study. Prenat Diagn 22: 216-220.
    • (2002) Prenat Diagn , vol.22 , pp. 216-220
    • Williams, C.1    Alderson, P.2    Farsides, B.3
  • 85
    • 84857113576 scopus 로고    scopus 로고
    • World Health Organization. Statement of WHO expert advisory group on ethical issues in medical genetics.
    • World Health Organization. 1998. Statement of WHO expert advisory group on ethical issues in medical genetics.
    • (1998)
  • 86
    • 58049202879 scopus 로고    scopus 로고
    • The use of cell-free fetal nucleic acids in maternal blood for non-invasive prenatal diagnosis
    • Wright CF, Burton H. 2009. The use of cell-free fetal nucleic acids in maternal blood for non-invasive prenatal diagnosis. Hum Reprod Update 15: 139-151.
    • (2009) Hum Reprod Update , vol.15 , pp. 139-151
    • Wright, C.F.1    Burton, H.2
  • 87
    • 20444370229 scopus 로고    scopus 로고
    • Ethical decision making in first trimester pregnancy screening
    • quiz 132-133).
    • Zindler L. 2005. Ethical decision making in first trimester pregnancy screening. J Perinat Neonatal Nurs 19: 122-131 (quiz 132-133).
    • (2005) J Perinat Neonatal Nurs , vol.19 , pp. 122-131
    • Zindler, L.1


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.