Speech-language pathologists' contribution to the assessment of decision-making capacity in aphasia: A survey of common practices

International Journal of Speech-Language Pathology

Volumn 16, Issue 3, 2014, Pages 231-241

  Aldous, Kerryn ^a   Tolmie, Rhiannon ^a   Worrall, Linda ^b,c   Ferguson, Alison ^a,b  

^a UNIVERSITY OF NEWCASTLE   (Australia)

^b Centre for Clinical Research Excellence (CCRE) in Aphasia Rehabilitation   (Australia)

^c UNIVERSITY OF QUEENSLAND   (Australia)

Author keywords

Aphasia; Decision making; Legal issues; Multidisciplinary team; Professional practice; Speech language pathology

Indexed keywords

APHASIA; ATTITUDE TO HEALTH; CLINICAL COMPETENCE; CONTINUING EDUCATION; COOPERATION; DECISION MAKING; DISABILITY; EDUCATION; HEALTH CARE SURVEY; HEALTH PERSONNEL ATTITUDE; HUMAN; IN SERVICE TRAINING; INTERDISCIPLINARY COMMUNICATION; INTERNET; PATIENT CARE; PROFESSIONAL STANDARD; PSYCHOLOGY; SPEECH DISORDER;

APHASIA; ATTITUDE OF HEALTH PERSONNEL; CLINICAL COMPETENCE; COOPERATIVE BEHAVIOR; DECISION MAKING; DISABILITY EVALUATION; EDUCATION, CONTINUING; HEALTH CARE SURVEYS; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; INSERVICE TRAINING; INTERDISCIPLINARY COMMUNICATION; INTERNET; PATIENT CARE TEAM; PROFESSIONAL ROLE; SPEECH-LANGUAGE PATHOLOGY;

EID: 84901001043     PISSN: 17549515     EISSN: 17549507     Source Type: Journal    
DOI: 10.3109/17549507.2013.871751     Document Type: Conference Paper

References (68)

1. Appelbaum, P. (2007). Assessment of patientscompetence to consent to treatment. New England Journal of Medicine, 357, 1834-1840.
2. Appelbaum, P., &Grisso, T. (2001). MacCAT-CR: MacArthur Competence Assessment Tool for Clinical Research. Sarasota, FL: Professional Resource Press.
3. ASHA. (2007). Scope of practice in speech-language pathology. Rockville Pike, MD: American Speech-Language-Hearing Association.
4. Baines, K., Martin, A., &Heeringa, H. (1999). ALFA: Assessment of Language-related Functional Activities. Austin, TX: Pro-ed.
5. Bal, C., Er, F., &Sonmez, H. (2009). A review of statistical techniques for 2x2 and RxC categorical data tables in SPSS. Journal of Pediatric Sciences, 1, 1-10.
6. Bellhouse, J., Holland, A., Clare, I., &Gunn, M. (2001). Decision-making capacity in adults: Its assessment in clinical practice. Advances in Psychiatric Treatment, 7, 294-301.
7. Benson, F., &Ardila, A. (1996). Aphasia: A clinical perspective. New York: Oxford University Press.
8. Brady Wagner, L. C. (2003). Clinical ethics in the context of language and cognitive impairment: Rights and protections. Seminars in Speech and Language, 24, 275-284.
9. Braunack-Mayer, A., &Hersh, D. (2001). An ethical voice in the silence of aphasia: Judging understanding and consent in people with aphasia. The Journal of Clinical Ethics, 12, 387-396.
10. Bray, R. (2008). Speech pathologistsassessment of decision-making capacity: Exploration of common practices and current beliefs. Unpublished Honours thesis, University of Newcastle, Australia.
11. Butt, P., &Bucks, R. (2004). The Butt Non-Verbal Reasoning Test (BNVRT). Milton Keynes, UK: Speechmark.
12. Christie, J., Clarke, W., &Mortensen, L. (1986). Mt Wilga Test for Higher Level Language Functioning. Mt Wilga Rehabilitation Centre, Sydney, NSW (unpublished).
13. Collier, B., Coyne, C., &Sullivan, K. (2005). Mental capacity: Powers of attorney and advance health directives. Annandale, Australia: Federation Press.
14. Connelly, J., Rosser, K., White, M., &Wilson, H. (1992). A question of rights: A guide to the law and rights of people with an intellectual disability. Sydney, Australia: Redfern Legal Centre Publishing.
15. Critchley, M. (1970). Aphasiology (pp. 288-295). London, UK: Edward Arnold.
16. Darzins, P. (2010). Can this patient go home? Assessment of decision-making capacity. Australian Occupational Therapy, 57, 65-67.
17. Darzins, P., Molloy, D. W., &Strang, D. (2000). Who can decide? the six step capacity assessment process. Adelaide, Australia: Memory Australia Press.
18. De Vaus, D. (1995). Surveys in social research (4th ed.). Sydney, Australia: Allen &Unwin.
19. Douglas, J., Bracy, C., &Snow, P. (2000). La Trobe Communication Questionnaire. Bundoora, Australia: School of Human Communication Sciences, La Trobe Univeristy.
20. Dunn, L., Nowrangi, M., Palmer, B., Jeste, D., &Saks, E. (2006). Assessing decisional capacity for clinical research or treatment: A review of instruments. American Journal of Psychiatry, 163, 1323-1334.
21. Ellmo, W., Graser, J., Krchnavek, B., Hauk, K., &Calabrese, D. (1995). Measure of Cognitive Linguistic Abilities (MCLA). Norcross, GA: The Speech Bin.
22. Enderby, P. (1994). The testamentary capacity of dysphasic patients. Medico-Legal Journal, 62, 70-80.
23. Fassassi, S., Bianchi, Y., Stiefel, F., &Waeber, G. (2009). Assessment of the capacity to consent to treatment in patients admitted to acute medical wards. BMC Medical Ethics, 10. http:// www.biomedcentral.com/content/ pdf/1472-6939-10-15.pdf.
24. Ferguson, A., Duffi eld, G., &Worrall, L. (2010). Legal decisionmaking by people with aphasia: Critical incidents for speech pathologists. International Journal of Language and Communication Disorders, 45, 244-258.
25. Ferguson, A., Worrall, L., McPhee, J., Buskell, R., Armstrong, E., &Togher, L. (2003). Testamentary capacity and aphasia: A descriptive case report with implications for clinical practice. Aphasiology, 17, 965-980.
26. Folstein, M. F., Folstein, S. E., &McHugh, P. R. (1975). "Mini-Mental State": A practical method for grading the cognitive state of patients for the clinician. Journal of Psychiatric Research, 12, 189-198.
27. Frattali, C. M., Thompson, C. K., Holland, A. L., Wohl, C. B., &Ferketic, M. M. (1995). Functional Assessment of Communication Skills for Adults (FACS). Rockville, MD: ASHA.
28. Ganzini, L., Volicer, L., Nelson, W., Fox, E., &Derse, A. R. (2004). Ten myths about decision-making capacity. Journal of the American Medical Directors Association, 5, 263-267.
29. Goodglass, H., Kaplan, E., &Barresi, B. (2000). Boston Diagnostic Aphasia Examination (BDAE-3) (3rd ed.). Austin, TX: ProEd.
30. Grisso, T., &Appelbaum, P. (1998a). The assessment of decisionmaking capacity: A guide for physicians and other health professionals Oxford, UK: Oxford University Press.
31. Grisso, T., &Appelbaum, P. (1998b). MacArthur Competence Assessment Tool for Treatment (MacCAT-T). Sarasota, FL: Professional Resource Press.
32. Grisso, T., Borum, R., Edens, J. F., Moye, J., &Otto, R. K. (2003). Evaluating competencies: Forensic assessments and instruments. New York: Kluwer Academic.
33. Helm-Estabrooks, N. (2001). Cognitive Linguistic Quick Test (CLQT): Examiner's manual. San Antonio, TX: Psychological Corporation.
34. Helm-Estabrooks, N. (2002). Cognition and aphasia: A discussion and a study. Journal of Communication Disorders, 35, 171-186.
35. Helmes, E., Lewis, V. E., &Allan, A. (2004). Australian lawyersviews on competency issues in older adults. Behavioral Sciences and the Law, 22, 823-831.
36. Holland, A., Frattali, C., &Fromm, D. (1999). Communication Activities of Daily Living (CADL-2) (2nd ed.). Austin, TX: Pro-Ed.
37. Huer, M. B., &Yaniv, K. (2006). Access to justice: An SLP's guide to helping persons with complex communication needs voice their case. ASHA Leader, December, 6-7, 28-29.
38. Ilieva, J., Baron, S., &Healey, M. (2002). Online surveys in marketing research: Pros and cons. International Journal of Market Research, 44, 361-382.
39. Jain, N. S., Layton, B. S., &Murray, P. K. (2000). Are aphasic patients who fail the GOAT in PTA? A modifi ed Galveston Orientation and Amnesia Test for persons with aphasia. Clinical Neuropsychologist, 14, 13-17.
40. Keil, K., &Kaszniak, A. (2002). Examining executive function in individuals with brain injury: A review. Aphasiology, 16, 305-335.
41. Kerridge, I., Lowe, M., &Stewart, C. (2009). Impairments of decision-making. In I. Kerridge, M. Lowe, &C. Stewart (Eds.), Ethics and law for the health professions (pp. 243-278 ). Annandale, Australia: Federation Press.
42. Kertesz, A. (2006). Western Aphasia Battery-Revised. San Antonio, TX: Harcourt Assessment.
43. Kiernan, R. J., Mueller, J., Langston, J. W., &Van Dyke, C. (1987). Neurobehavioral Cognitive Status Examination: A brief but differentiated approach to cognitive assessment. Annals of Internal Medicine, 107, 481-485.
44. Kirschner, K. L., Stocking, C., Brady Wagner, L., Foye, S. J., &Siegler, M. (2001). Ethical issues identifi ed by rehabilitation clinicians. Archives of Physical and Medical Rehabilitation, 82 (Suppl. 2), S2-S8.
45. Kirshner, H. S. (2012). Primary progressive aphasia and Alzheimer's disease: Brief history, recent evidence. Current Neurology and Neuroscience Reports, 12, 709-714.
46. Larkin, G. L., Marco, C. A., &Abbott, J. T. (2001). Emergency determination of decision-making capacity: Balancing autonomy and benefi cence in the emergency department. Academic Emergency Medicine, 8, 282-284.
47. Law Society of New South Wales. (2003). Client capacity guidelines: Civil and Family Law matters. Law Society Journal, 41, 50-57.
48. Likourezos, A., &Lantz, M. S. (2001). MMSE: Interpreting mental status examination scores in cases of mild dementia. Geriatrics 56, 55-56.
49. Lof, G. L., &Watson, M. M. (2008). A nationwide survey of nonspeech oral motor exercise use: Implications for evidencebased practice. Language, Speech, and Hearing Services in Schools, 39, 392-407.
50. Mullaly, E., Kinsella, G., Berberovic, N., Cohen, Y., Dedda, K., Froud, B., et al. (2007). Assessment of decision-making capacity: Exploration of common practices among neuropsychologists Australian Psychologist, 42, 178-186.
51. Nakase-Thompson, R. (2004). The Mississippi Aphasia Screening Test. San Jose, CA: The Center for Outcome Measurement in Brain Injury (retrieved from http://www.tbims.org/combi/ mast, September 8, 2013).
52. Nicholson, T. R. J., Cutter, W., &Hotopf, M. (2008). Assessing mental capacity: The Mental Capacity Act. British Medical Journal, 336, 322-325.
53. Patchet, A., Allan, L., &Erksine, L. (2012). Assessment of fl uctuating decision-making capacity in individuals with communication barriers: A case study. Topics in Stroke Rehabilitation, 19, 75-85.
54. Peacock, G., &Douglas, J. (2012). Brief assessment of language impairment in the Australian stroke population: Initial validation of the Australian Mississippi Aphasia Screening Test (AusMAST). Paper presented at the Speech Pathology Australian national conference, Hobart, Tasmania.
55. Purdy, M. (2002). Executive function ability in persons with aphasia. Aphasiology, 16, 549-557.
56. Raymont, V., Bingley, W., Buchanan, A., David, A. S., Hayward, P., Wessley, S., et al. (2004). Prevalence of mental incapacity in medical inpatients and associated risk factors: Cross-sectional study. Lancet, 364, 1421-1427.
57. Reid-Proctor, G. M., Galin, K., &Cummings, M. A. (2001). Evaluation of legal competency in patients with frontal lobe injury. Brain Injury, 15, 377-386.
58. Sapir, S., Ramig, L., &Fox, C. (2013). Speech therapy in the treatment of Parkinson's Disease. In R. F. Pfeiffer, Z. K. Wszolek, &M. Ebadi (Eds.), Parkinson's disease (pp. 945-957 ). Boca Raton, FL: Taylor and Francis.
59. Spar, J. E., &Garb, A. S. (1992). Assessing competency to make a will. American Journal of Psychiatry, 149, 169-174.
60. Speech Pathology Australia. (2003). Scope of practice in speech pathology. Melbourne, Australia: Author.
61. Stein, J., &Wagner, C. B. (2006). Is informed consent a ' yes or noresponse? Enhancing the shared decision-making process for persons with aphasia. Topics in Stroke Rehabilitation, 13, 42-46.
62. Udell, R., Sullivan, R. A., &Schlanger, P. H. (1980). Legal competency of aphasic patients: Role of speech-language pathologists. Archives of Physical Medicine and Rehabilitation, 61, 374-375.
63. Unsworth, C. (2004). Descriptive and exploratory data analysis. In V. Minichiello, G. Sullivan, K. Greenwood, &R. Axford (Eds.), Research methods for nursing and health science (pp. 516-542 ). Frenchs Forest, NSW: Prentice-Hall Health.
64. Verma, S., &Silberfi eld, M. (1997). Approaches to capacity and competency: The Canadian view. International Journal of Law and Psychiatry, 20, 35-46.
65. Wainwright, S. F., &McGinnis, P. Q. (2009). Factors that infl uence the clinical decision-making of rehabilitation professionals in long-term care settings. Journal of Allied Health, 38, 143-151.
66. White-Bateman, S. R., Schumacher, C., Sacco, R. L., &Appelbaum, P. (2007). Consent for intravenous thombolysis in acute stroke. Archives of Neurology, 64, 785-792.
67. Willinck, L. (1996). Language for cognition screening assessment (LFC). Melbourne: Caulfi eld General Medical Centre, Speech Pathology Department.
68. Wong, J. G., Clare, I. C. H., Gunn, M. J., &Holland, A. J. (1999). Capacity to make health care decisions: Its importance in clinical practice. Psychological Medicine, 29, 437-446.