Capacity to make health care decisions: Its importance in clinical practice

Psychological Medicine

Volumn 29, Issue 2, 1999, Pages 437-446

  Wong, J G ^a   Clare, I C H ^a   Gunn, M J ^a   Holland, A J ^a  

^a NONE

Author keywords

[No Author keywords available]

Indexed keywords

ARTICLE; CLINICAL PRACTICE; COMPREHENSION; DEMENTIA; HUMAN; INTELLECTUAL IMPAIRMENT; MEDICAL DECISION MAKING; MEDICAL INFORMATION; MEDICOLEGAL ASPECT; MENTAL CAPACITY; MENTAL DEFICIENCY; MENTAL DISEASE; PRACTICE GUIDELINE;

ADULT; DECISION MAKING; HUMANS; MENTAL COMPETENCY; MENTAL DISORDERS; MENTAL RETARDATION; PATIENT ACCEPTANCE OF HEALTH CARE;

EID: 0033052072     PISSN: 00332917     EISSN: None     Source Type: Journal    
DOI: 10.1017/S0033291798008113     Document Type: Article

References (68)

1. Ambalu, S. (1997). Communication. In Adults with Intellectual Disabilities. A Practical Approach for Health Professionals (ed. J. O'Hara and A. Sperlinger), pp. 45-60. John Wiley & Sons: Chichester.
2. Appelbaum, P. S. & Grisso, T. (1988). Assessing patient's capacity to consent to treatment. New England Journal of Medicine 319, 1635-1638.
3. Appelbaum, P. S. & Grisso, T. (1995). The MacArthur Treatment Competence Study. I. Mental illness and competence to consent to treatment. Law and Human Behavior 19, 105-126.
4. Audit Commission (1994). Finding a Place. A Review of Mental Health Services for Adults. HMSO: London.
5. Benson, D. F. & Ardila, A. (1996). Aphasia. A Clinical Perspective. Oxford University Press: New York.
6. Berg, J. W., Appelbaum. P. S. & Grisso, T. (1996). Constructing competence: formulating standards of legal competence to make medical decisions. Rutgers Law Review 48, 345-396.
7. Beukelman, D. R. & Mirenda, P. (1992). Augmentative and Alternative Communication. Management of Severe Communication Disorders in Children and Adults. Paul H. Brookes Publishing Co.: Baltimore.
8. Brabbins, C., Butler, J. & Bentall, R. (1996). Consent to neuroleptic medication for schizophrenia: clinical, ethical and legal issues. British Journal of Psychiatry 168, 540-544.
9. British Medical Association (1995). Code of Practice on Advance Statements about Medical Treatment. British Medical Association: London.
10. British Medical Association and The Law Society (1995). Assessment of Mental Capacity. Guidance for Doctors and Lawyers. British Medical Association: London.
11. Bursztajn, H. J., Harding, H. P., Gutheil, T. G. & Brodsky, A. (1991). Beyond cognition: the role of disordered affective states in impairing competence to consent to treatment. Bulletin of the American Academy of Psychiatry and Law 19, 383-388.
12. Carpenter, W. T., Bartko, J. J., Carpenter, C. L. & Strauss, J. S. (1976). Another view of schizophrenia subtypes: a report from the International Pilot Study of Schizophrenia. Archives of General Psychiatry 33, 508-516.
13. Carson, D. (1993). Disabling Process: The Law Commission's proposals on mentally incapacitated adults' decision-making. Journal of Social Welfare & Family Law 5, 304-320.
14. Chaplin, R. & Kent, A. (1998). Informing patients about tardive dyskinesia. Controlled trial of patient education. British Journal of Psychiatry 172, 78-81.
15. Creyke, R. (1995). Who Can Decide? Legal Decision-Making for Others. Australian Government Publishing Service: Canberra.
16. Department of Health (1993). Community Supervision Orders: Government Response to the Fifth Report from the Health Committee (Session 1992-1993). HMSO: London.
17. Department of Health and Welsh Office (1993). Mental Health Act 1983 Code of Practice. HMSO: London.
18. Dormer, R. J. (1997). Living wills: the Law. Dispatches 8, 1-3.
19. Drane, J. F. (1984). Competency to give an informed consent. A model for making clinical assessments. Journal of the American Medical Association 272, 925-927.
20. Freedman, M., Stuss, D. T. & Gordon, M. (1991). Assessment of competency : the role of neurobehavioral deficits. Annals of Internal Medicine 115, 203-208.
21. Glass, K. C. (1997). Redefining definitions and devising instruments: two decades of assessing mental competence. International Journal of Law and Psychiatry 20, 5-33.
22. Goldsmith, M. (1996). Hearing the Voice of People with Dementia. Jessica Kingsley Publishers: London.
23. Grisso, T. (1986). Evaluating Competencies: Forensic Assessments and Instruments. Plenum Press: New York.
24. Grisso, T. & Appelbaum, P. S. (1991). Mentally ill and non-mentally ill patients' abilities to understand informed consent disclosures for medication. Law and Human Behavior 15, 377-388.
25. Grisso, T. & Appelbaum, P. S. (1995a). The MacArthur Treatment Competence Study. III. Abilities of patients to consent to psychiatric and medical treatments. Law and Human Behavior 19, 149-174.
26. Grisso, T. & Appelbaum, P. S. (1995b). Comparison of standards for assessing patients' capacities to make treatment decisions. American Journal of Psychiatry 152, 1033-1036.
27. Grisso, T. & Appelbaum, P. S. (1998). Assessing Competence to Consent to Treatment: A Guide for Physicians and Other Health Professionals. Oxford University Press: New York.
28. Grossman, L. & Summers, F. (1980). A study of the capacity of schizophrenic patients to give informed consent. Hospital and Community Psychiatry 31, 205-206.
29. Gunn, M. (1994). The meaning of incapacity. Medical Law Review 2 (Spring), 8-29.
30. Halpern, A. & Szmukler, G. (1997). Psychiatric advance directives: reconciling autonomy and non-consensual treatment. Psychiatric Bulletin 21, 323-327.
31. Harris, T. (1997). Projections: a look into the future. Social Trends 27, 15-26.
32. Hoggett, B. (1994). Mentally incapacitated adults and decision-making. The Law Commission's project. In Decision-making and Problems of Incompetence (ed. A. Grubb), pp. 27-40. John Wiley & Sons: Chichester.
33. Hollins, S., Bernal, J. & Gregory, M. Illustrated by Webb, B. (1996). Going to the Doctor. Royal College of Psychiatrists/St George's Hospital Medical School: London.
34. Irwin, M., Lovitz, A., Marder, S. R., Mintz, J., Winslade, W. J., Van Putten, T. & Mills, M. J. (1985). Psychotic patients' understanding of informed consent. American Journal of Psychiatry 142, 1351-1354.
35. Jones, G. H. (1995). Informed consent in chronic schizophrenia? British Journal of Psychiatry 167, 565-568.
36. Jones, M. A. & Keywood, K. (1996). Assessing the patient's competence to consent to medical treatment. Medical Law International 2, 107-147.
37. Kay, D. W. K. (1991). The epidemiology of dementia: a review of recent work. Review of Clinical Gerontology 1, 55-66.
38. Kennedy, I. (1992). Consent to treatment: the capable person. In Doctors, Patients and the Law (ed. C. Dyer), pp. 44-71. Blackwell Scientific Publications: Oxford.
39. Kennedy, I. & Grubb, A. (1994). Medical Law: Text with Materials. 2nd edn. Butterworths; London.
40. Kiernan, C. (1985). Communication. In Mental Deficiency: The Changing Outlook 4th edn (ed. A. M. Clarke, A. D. B. Clarke and J. M. Berg), pp. 584-638. Methuen: London.
41. Kopelman, L. M. (1990). On the evaluative nature of competency and capacity judgements. International Journal of Law and Psychiatry 13, 309-329.
42. Law Commission (1991). Mentally Incapacitated Adults and Decision-Making: An Overview (Consultation Paper No. 119). HMSO: London.
43. Law Commission (1995). Mental Incapacity (Law Commission Report No. 231). HMSO: London,
44. Lord Chancellor's Department (1997). Who Decides? Making Decisions on Behalf of Mentally Incapacitated Adults (Cm 3803). The Stationery Office: London.
45. Maguire, C. P., Kirby, M., Coen, R., Coakley, D., Lawlor, B. A. & O'Neill, D. (1996). Family members' attitudes toward telling the patient with Alzheimer's disease their diagnosis. British Medical Journal; 313, 529-560.
46. Mansell, J. (1997). 'Better Services' 25 years on. Tizard Learning Disability Review 2 (1), 45-46.
47. Marson, D. C., Cody, H. A., Ingram, K. K. & Harrell, L. E. (1995a). Neuropsychologic predictors of competency in Alzheimer's disease using a rational reasons legal standard. Archives of Neurology 52, 955-959.
48. Marson, D. C., Ingram, K. K., Cody, H. A. & Harrell, L. E. (1995b). Assessing the competency of patients with Alzheimer's disease under different legal standards. A prototype instrument. Archives of Neurology 52, 949-954.
49. Marson, D. C., Schmitt, F. A., Ingram, K. K. & Harrell, L. E. (1994). Determining the competency of Alzheimer patients to consent to treatment and research. Alzheimer Disease and Associated Disorders 8, (suppl. 4), 5-18.
50. Morris, C. D., Niederbuhl, J. M. & Mahr, J. M. (1993). Determining the capability of individuals with mental retardation to give informed consent. American Journal of Mental Retardation 98, 263-272.
51. Murphy, G. H. & Clare, I. C. H. (1995). Adults' capacity to make decisions affecting the person: psychologists' contribution. In Handbook of Psychology in Legal Contexts (ed. R. Bull and D. Carson), pp. 97-128. John Wiley & Sons: Chichester.
52. Ouslander, J., Tymchuk, A. & Rahbar, B. (1989). Health care decisions among elderly long-term care residents and their potential proxies. Archives of Internal Medicine 149, 1367-1372.
53. President's Commission for the Study of Ethical Problems in Medicine and Biomedical and Behavioural Research (1983). Making Health Care Decisions. US Government Printing Office: Washington, DC.
54. Rapin, I. (1996). Practitioner review: Developmental language disorders: a clinical update. Journal of Child Psychology and Psychiatry 37, 643-655.
55. Roth, L. H., Miesel, A. & Lidz, C. W. (1977). Tests of competency to consent to treatment. American Journal of Psychiatry 134, 279-284.
56. Schachter, D., Kleinman, I., Pendergast, P., Remington, G. & Schertzer, S. (1994) The effect of psychopathology on the ability of schizophrenic patients to give informed consent. Journal of Nervous and Mental Disease 182, 360-362.
57. Schwartz, H. I. & Blank, K. (1986). Shifting competency during hospitalisation: a model for informed consent decisions. Hospital and Community Psychiatry 37, 1256-1260.
58. Scottish Law Commission (1995). Report on Incapable Adults (Scottish Law Commission Report No. 151). HMSO: Edinburgh.
59. Sonnenblick, M., Friedlander, Y. & Steinberg, A. (1993). Dissociation between the wishes of terminally ill parents and decisions by their offspring. Journal of American Geriatric Society 41, 599-604.
60. Sutherby, K. & Szmukler, G. (1998). Crisis cards and self-help crisis initiatives. Psychiatric Bulletin 22, 4-7.
61. Tancredi, L. (1982). Competency for informed consent. Conceptual limits of empirical data. International Journal of Law and Psychiatry 5, 51-63.
62. Todd, S. & Shearn, J. (1997). Family dilemmas and secrets: parents' disclosure of information to their adult offspring with learning disabilities. Disability and Society 12, 341-366.
63. Tymchuk, A. J., Ouslander, J. G. & Rader, N. (1986). Informing the elderly. A comparison of four methods. Journal of the American Geriatrics Society 34, 818-822.
64. United Nations (1979). Age and Sex Composition by Country 1960-2000. United Nations: New York.
65. United Nations (1994). The Standard Rules on the Equalization of Opportunities for Persons with Disabilities. United Nations: New York.
66. Verma, S. & Silberfeld, M. (1997). Approaches to capacity and competency: the Canadian view. International Journal of Law and Psychiatry 20, 35-34.
67. Weisstub, D. (1990). Enquiry on Mental Competency: Final Report. Queen's Printer: Toronto.
68. Wong, J. (1997). Assessment of capacity to make treatment decision in adults with learning disabilities. Tizard Learning Disability Review, 2 (3), 35-39.