Assessments of coping after acquired brain injury: A systematic review of instrument conceptualization, feasibility, and psychometric properties

Journal of Head Trauma Rehabilitation

Volumn 29, Issue 3, 2014, Pages

  Gregório, Gisela Wolters ^a   Brands, Ingrid ^c   Stapert, Sven ^b   Verhey, Frans R ^a   Van Heugten, Caroline M ^b  

^a MAASTRICHT UNIVERSITY   (Netherlands)

^b MAASTRICHT UNIVERSITY   (Netherlands)

^c Rehabilitation Centre Blixembosch   (Netherlands)

Author keywords

brain injuries; coping; psychometrics; questionnaires; review

Indexed keywords

ACQUIRED BRAIN INJURY; BRAIN INJURY; COPING BEHAVIOR; HUMAN; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; PSYCHOMETRY; REVIEW; SYSTEMATIC REVIEW; ADAPTATION; ADAPTIVE BEHAVIOR; PATHOPHYSIOLOGY; PSYCHOLOGY; QUESTIONNAIRE;

ADAPTATION, PHYSIOLOGICAL; ADAPTATION, PSYCHOLOGICAL; BRAIN INJURIES; HUMANS; PSYCHOMETRICS; QUESTIONNAIRES;

EID: 84900497876     PISSN: 08859701     EISSN: 1550509X     Source Type: Journal    
DOI: 10.1097/HTR.0b013e31828f93db     Document Type: Review

References (113)

1. Ponsford JL, Sloan S, Snow P. Traumatic Brain Injury: Rehabilitation for Everyday Adaptive Living. 2nd ed. Hove and New York: Psychology Press; 2012.
2. Anson K, Ponsford J. Coping and emotional adjustment following traumatic brain injury. J Head Trauma Rehabil. 2006;21:248-259.
3. Dawson DR, Schwartz ML, Winocur G, Stuss DT. Return to productivity following traumatic brain injury: cognitive, psychological, physical, spiritual, and environmental correlates. Disabil Rehabil. 2007;29:301-313.
4. Finset A, Andersson S. Coping strategies in patients with acquired brain injury: relationships between coping, apathy, depression and lesion location. Brain Inj. 2000;14:887-905.
5. Wolters G, Stapert S, Brands I, van Heugten C. Coping styles in relation to cognitive rehabilitation and quality of life after brain injury. Neuropsychol Rehabil. 2010;20:587-600.
6. de Ridder D. What is wrong with coping assessment? A review of conceptual and methodological issues. Psychol Health. 1997;12:417-431.
7. Ptacek JT, Pierce GR. Issues in the study of stress and coping in rehabilitation settings. Rehabil Psychol. 2003;48:113-124.
8. Folkman S. Dynamics of a stressful encounter: cognitive appraisal, coping, and encounter outcomes. J Pers Soc Psychol. 1986;50:992-1003.
9. Schreurs PJ, Tellegen B, Willige GV. Health, stress and coping: the development of the Utrecht Coping Scale. Gedrag: Tijdschrift voor Psychologie. 1984;12:101-117.
10. Schreurs PJ, van de Willege G, Brosschot JF, Tellegen B, Graus GM. The Utrecht Coping List: UCL. Dealing With Problems and Events. Utrecht: Swets en Zeitlinger; 1993.
11. Frydenberg E, Lewis R. The Coping Scale for Adults: correlates of productive and nonproductive coping. Aust Educ Dev Psychol. 2002;19:5-17.
12. Taylor MM, Schaeffer JN, Blumenthal FS, Grisell JL. Perceptual training in patients with left hemiplegia. Arch Phys Med Rehabil. 1971;52:163.
13. Zuckerman M, Gagne M. The COPE revised: proposing a 5-factor model of coping strategies. J Res Pers. 2003;37:169-204.
14. Parker JD, Endler NS, Bagby RM. If it changes, it might be unstable: examining the factor structure of the Ways of Coping Questionnaire. Psychol Assess. 1993;5:361-368.
15. Martz E, Livneh H, eds. Coping With Chronic Illness and Disability. Theoretical, Empirical, and Clinical Aspects. New York, NY: Springer; 2007.
16. Schwarzer R, Schwarzer C. A critical survey of coping instruments. In: Zeidner M, Endler NS, eds. Handbook of Coping: Theory, Research and Applications. New York: Wiley; 1996: 107-132.
17. Donnellan C, Hevey D, Hickey A, O'Neill D. Defining and quantifying coping strategies after stroke: a review. J Neurol Neurosurg Psychiatry. 2006;77:1208-1218.
18. Smeets SM, Ponds RW, Verhey FR, van Heugten CM. Psychometric properties and feasibility of instruments used to assess awareness of deficits after acquired brain injury: a systematic review. J Head Trauma Rehabil. 2012;27: 433-442.
19. Visser-Meily JM, Post MW, Riphagen II, Lindeman E. Measures used to assess burden among caregivers of stroke patients: a review. Clin Rehabil. 2004;18:601-623.
20. Dennis M, O'Rourke S, Slattery J, Staniforth T, Warlow C. Evaluation of a stroke family care worker: results of a randomised controlled trial. BMJ. 1997;314:1071-1076.
21. Easton KL, Rawl SM, Zemen D, Kwiatkowski S, Burczyk B. The effects of nursing follow-up on the coping strategies used by rehabilitation patients after discharge. Rehabil Nurs Res. 1995;4:119-127.
22. Johnson J, Pearson V. The effects of a structured education course on stroke survivors living in the community. Rehabil Nurs. 2000;25:79-65.
23. Lewis SC, Dennis MS, O'Rourke SJ, Sharpe M. Negative attitudes among short-term stroke survivors predict worse long-term survival. Stroke. 2001;32:1640-1645.
24. Sinyor D, Amato P, Kaloupek DG, Becker R, Goldenberg M, Coopersmith H. Poststroke depression: relationships to functional impairment, coping strategies, and rehabilitation outcome. Stroke. 1986;17:1102-1107.
25. Snell DL, Siegert RJ, Hay-Smith EJ, Surgenor LJ. Factor structure of the brief COPE in people with mild traumatic brain injury. J Head Trauma Rehabil. 2011;26:468-477.
26. Dawson DR, Catanzaro AM, Firestone J, Schwartz M, Stuss DT. Changes in coping style following traumatic brain injury and their relationship to productivity status. Brain Cogn. 2006;60:214-216.
27. Frydenberg E, Lewis R. Manual, the Adolescent Coping Scale. Melbourne, Australia: Australian Council for Educational Research; 1993.
28. Watson M, Greer S, Young J, Inayat Q, Burgess C, Robertson B. Development of a questionnaire measure of adjustment to cancer: the MAC scale. Psychol Med. 1988;18: 203-209.
29. Malia K, Powell G, Torode S. Coping and psychosocial function after brain injury. Brain Inj. 1995;9:607-618.
30. Boynton De Sepulveda LI, Chang B. Effective coping with stroke disability in a community setting: the development of a causal model. J Neurosci Nurs. 1994;26:193-203.
31. Hepp U, Moergeli H, Büchi S, Wittmann L, Schnyder U. Coping with serious accidental injury: a one-year follow-up study. Psychother Psychosom. 2005;74:379-386.
32. Schnyder U, Morgeli H, Nigg C, et al. Early psychological reactions to life-threatening injuries. Crit Care Med. 2000;28:86-92.
33. Schnyder U, Wittmann L, Friedrich-Perez J, Hepp U, Moergeli H. Posttraumatic stress disorder following accidental injury: rule or exception in Switzerland? Psychother Psychosom. 2008;77:111-118.
34. Kortte KB, Wegener ST, Chwalisz K. Anosognosia and denial: their relationship to coping and depression in acquired brain injury. Rehabil Psychol. 2003;48:131-136.
35. Wahl HW, Martin P, Minnemann E, Martin S, Oster P. Predictors of well-being and autonomy before and after geriatric rehabilitation. J Health Psychol. 2001;6:339-354.
36. King RB, Shade-Zeldow Y, Carlson CE, Feldman JL, Philip M. Adaptation to stroke: a longitudinal study of depressive symptoms, physical health, and coping process. Top Stroke Rehabil. 2002;9:46-66.
37. Rochette A, Bravo G, Desrosiers J, St-Cyr/Tribble D, Bourget A. Adaptation process, participation and depression over six months in first-stroke individuals and spouses. Clin Rehabil. 2007;21:554-562.
38. Wood RL, Rutterford NA. Demographic and cognitive predictors of long-term psychosocial outcome following traumatic brain injury. J Int Neuropsychol Soc. 2006;12:350-358.
39. Rutterford NA, Wood RL. Evaluating a theory of stress and adjustment when predicting long-term psychosocial outcome after brain injury. JInt Neuropsychol Soc. 2006;12:359-367.
40. Moore AD, Stambrook M. Coping following traumatic brain injury (TBI): derivation and validation of TBI sample Ways of Coping-Revised subscales. Can J Rehabil. 1994;7:193-200.
41. Sinnakaruppan I, Downey B, Morrison S. Head injury and family carers: a pilot study to investigate an innovative community-based educational programme for family carers and patients. Brain Inj. 2005;19:283-308.
42. Hofer H, Holtforth MG, Frischknecht E, Znoj HJ. Fostering adjustment to acquired brain injury by psychotherapeutic interventions: a preliminary study. Appl Neuropsychol. 2010;17:18-26.
43. Wolters G, Stapert S, Brands I, van Heugten C. Coping following acquired brain injury: predictors and correlates. J Head Trauma Rehabil. 2011;26:150-157.
44. Bradbury CL, Christensen BK Lau MA, Ruttan LA, Arundine AL, Green RE. The efficacy of cognitive behavior therapy in the treatment of emotional distress after acquired brain injury. Arch Phys Med Rehabil. 2008;89:S61-S68.
45. Tomberg T, Toomela A, Ennok M, Tikk A. Changes in coping strategies, social support, optimism and health-related quality of life following traumatic brain injury: a longitudinal study. Brain Inj. 2007;21:479-488.
46. Anson K, Ponsford J. Evaluation of a coping skills group following traumatic brain injury. Brain Inj. 2006;20:167-178.
47. Moore AD, Stambrook M. Cognitive moderators of outcome following traumatic brain injury: a conceptual model and implications for rehabilitation. Brain Inj. 1995;9:109-130.
48. Folkman S, Lazarus RS. If it changes it must be a process: study of emotion and coping during three stages of a college examination. JPers Soc Psychol. 1985;48:150-170.
49. Bouchard G, Guillemette A, Landry-Leger N. Situational and dispositional coping: an examination of their relation to personality, cognitive appraisals, and psychological distress. Eur J Pers. 2004;18:221-238.
50. Carver CS, Scheier MF, Weintraub JK Assessing coping strategies-a theoretically based approach. J Pers Soc Psychol. 1989;56:267-283.
51. Clark KK, Bormann CA, Cropanzano RS, James K. Validation evidence for three coping measures. JPers Assess. 1995;65:434-455.
52. Endler NS, Courbasson CM, Fillion L. Coping with cancer: the evidence for the temporal stability of the French-Canadian version of the Coping With Health Injuries and Problems (CHIP). Pers Individ Differences. 1998;25:711-717.
53. Fillion L, Kovacs AH, Gagnon P, Endler NS. Validation of the shortened COPE for use with breast cancer patients undergoing radiation therapy. Curr Psychol. 2002;21:17-34.
54. Pakenham KI. Coping with multiple sclerosis: development of a measure. Psychol Health Med. 2001;6:411-428.
55. Tennen H, Herzberger S. The Ways of Coping Scale. In: Keyser DJ, Sweetland RC, eds. Test Critiques. Vol 3. Kansas City: Test Corporation of America; 1985:686-697.
56. Parker JD, Endler NS. Coping with coping assessment: a critical review. Eur J Pers. 1992;6:321-344.
57. Krpan KM, Stuss DT, Anderson ND. Planful versus avoidant coping: behavior of individuals with moderate-to-severe traumatic brain injury during a psychosocial stress test. J Int Neuropsychol Soc. 2011;17:248-255.
58. Krpan KM, Stuss DT, Anderson ND. Coping behaviour following traumatic brain injury: what makes a planner plan and an avoider avoid? Brain Inj. 2011;25:989-996.
59. Strom TQ, Kosciulek J. Stress, appraisal and coping following mild traumatic brain injury. Brain Inj. 2007;21:1137-1145.
60. Coyne JC, Gottlieb BH. The mismeasure of coping by checklist. J Pers. 1996;64:959-991.
61. McNett SC. Social support, threat, and coping responses and effectiveness in the functionally disabled. Nurs Res. 1987;36:98-103.
62. Reeve DK, Lincoln NB. Coping with the challenge of transition in older adolescents with epilepsy. Seizure. 2002;11:33-39.
63. Armengol CG. A multimodal support group with Hispanic traumatic brain injury survivors. J. Head Trauma Rehabil. 1999;14:233-246.
64. Chipperfield JG, Perry RP, Bailis DS, Ruthig JC, Loring PC. Gender differences in use of primary and secondary control strategies in older adults with major health problem. Psychol Health. 2007;22:83-105.
65. Backhaus SL, Ibarra SL, Klyce D, Trexler LE, Malec JF. Brain injury coping skills group: a preventative intervention for patients with brain injury and their caregivers. Arch Phys Med Rehabil. 2010;91:840-848.
66. Abjornsson GL, Karlson BA, Orbaek PH. Education for men with solvent-induced chronic toxic encephalopathy and their spouses. Patient Educ Couns. 2005;58:88-95.
67. Feigin R. The relationship between the sense of coherence and adjustment to disability studied in the context of marital interrelations. Marr Fam Rev. 1998;27:71-90.
68. Karlson B, Seger L, Osterberg K, Abjornsson G, Orbaek P. Stress management in men with solvent-induced chronic toxic encephalopathy. J Occup Environ Med. 2000;42:670-675.
69. Nilsson B, Holmgren L, Westman Gr. Sense of coherence in different stages of health and disease in northern Sweden: gender and psychosocial differences. Scand J Prim Health Care. 2000;18:14-20.
70. Nilsson I, Axelsson K, Gustafson Y, Lundman B, Norberg A. Well-being, sense of coherence, and burnout in stroke victims and spouses during the first few months after stroke. Scand J Caring Sci. 2001;15:203-214.
71. Rena F, Moshe S, Abraham O. Couples' adjustment to one partner's disability: the relationship between sense of coherence and adjustment. Soc Sci Med. 1996;43:163-171.
72. DuBay MF, Laures-Gore JS, Matheny K, Romski MA. Coping resources in individuals with aphasia. Aphasiology. 2011;25:1016-1029.
73. Laures-Gore J, Hamilton A, Matheny K Coping resources, perceived stress, and recent life experiences in individuals with aphasia. J Med Speech-Lang Pathol. 2007;15:423-431.
74. Riley GA, Dennis RK, Powell T. Evaluation of coping resources and self-esteem as moderators of the relationship between threat appraisals and avoidance of activities after traumatic brain injury. Neuropsychol Rehabil. 2010;20:869-882.
75. Rosenbaum M, Palmon N. Helplessness and resourcefulness in coping with epilepsy.J Consult Clin Psychol. 1984;52:244-253.
76. Vungkhanching M, Heinemann AW, Langley MJ, Ridgely M, Kramer KM. Feasibility of a skills-based substance abuse prevention program following traumatic brain injury. J. Head Trauma Rehabil. 2007;22:167-176.
77. Gurr B, Moffat N. Psychological consequences of vertigo and the effectiveness of vestibular rehabilitation for brain injury patients. Brain Inj. 2001;15:387-400.
78. Iezzi T, Duckworth MP, Mercer V, Vuong L. Chronic pain and head injury following motor vehicle collisions: a double whammy or different sides of a coin. Psychol Health Med. 2007;12: 197-212.
79. Leach LR, Frank RG, Bouman DE, Farmer J. Family functioning, social support and depression after traumatic brain injury. Brain Inj. 1994;8:599-606.
80. Hibbard MR, Cantor J, Charatz H, et al. Peer support in the community: initial findings of a mentoring program for individuals with traumatic brain injury and their families. J Head Trauma Rehabil. 2002;17:112-131.
81. Douglas JM, Spellacy FJ. Indicators of long-term family functioning following severe traumatic brain injury in adults. Brain Inj. 1996;10:819-839.
82. Hinkeldey NS, Corrigan JD. The structure of head-injured patients' neurobehavioural complaints: a preliminary study. Brain Inj. 1990;4:115-133.
83. Poissant L, Mayo NE, Wood-Dauphinee S, Clarke AE. The development and preliminary validation of a Preference-Based Stroke Index (PBSI). Health Qual Life Outcomes. 2003;1:43.
84. Sveen U, Thommessen B, Bautz-Holter E, Wyller TB, Laake K Well-being and instrumental activities of daily living after stroke. Clin Rehabil. 2004;18:267-274.
85. Beck KD, Franks SF, Hall JR. Postinjury personality and outcome in acquired brain injury: the Millon Behavioral Medicine Diagnostic. PMR. 2010;2:195-201.
86. Coetzer R, Ruddle JA, Mulla F. The Brain Injury Grief Inventory: a follow-up study of emotional and functional outcome following traumatic brain injury.J Cogn Rehabil. 2006;24:7-11.
87. Middelboe T, Birket-Smith M, Andersen HS, Friis ML. Personality traits in patients with postconcussional sequelae. J Personal Disord. 1992;6:246-255.
88. Badke MB. The Health and Activity Limitation Index: determinants of health-related quality of life in persons with stroke. J Rehabil Outcomes Meas. 2000;4:1-16.
89. Kortte KB, Veiel L, Batten SV, Wegener ST. Measuring avoidance in medical rehabilitation. Rehabil Psychol. 2009;54:91-98.
90. Ownsworth T, McFarland K Investigation of psychological and neuropsychological factors associated with clinical outcome following a group rehabilitation programme. Neuropsychol Rehabil. 2004;14:535-562.
91. Ownsworth TL, McFarland K, Young RM. The investigation of factors underlying deficits in self-awareness and self-regulation. Brain Inj. 2002;16:291-309.
92. Davis JR, Gemeinhardt M, Gan C, Anstey K, Gargaro J. Crisis and its assessment after brain injury. Brain Inj. 2003;17:359-376.
93. Curran CA, Ponsford JL, Crowe S. Coping strategies and emotional outcome following traumatic brain injury: a comparison with orthopedic patients. J Head Trauma Rehabil. 2000;15:1256-1274.
94. Tiersky LA, Anselmi V, Johnston MV, et al. A trial of neuropsy-chologic rehabilitation in mild-spectrum traumatic brain injury. Arch Phys Med Rehabil. 2005;86:1565-1574.
95. Blais MC, Boisvert JM. Psychological adjustment and marital satisfaction following head injury: which critical personal characteristics should both partners develop? Brain Inj. 2007;21: 357-372.
96. Brunborg B, Wyller TB. Coping with stressful events during the first six months after a stroke. Norsk Tidsskrift For Sykepleieforskning. 2007;9:16-28.
97. Rochette A, Desrosiers J. Coping with the consequences of a stroke. Int J Rehabil Res. 2002;25:17-24.
98. Wheeler G, Krausher R, Cumming C, Jung V, Steadward R, Cumming D. Personal styles and ways of coping in individuals who use wheelchairs. Spinal Cord. 1996;34:351-357.
99. Kendall E, Terry D. Predicting emotional well-being following traumatic brain injury: a test of mediated and moderated models. Soc Sci Med. 2009;69:947-954.
100. Kendall E, Terry DJ. Understanding adjustment following traumatic brain injury: is the goodness-of-fit coping hypothesis useful? Soc Sci Med. 2008;67:1217-1224.
101. Gillespie DC. Poststroke anxiety and its relationship to coping and stage of recovery. Psychol Rep. 1997;80:1059-1064.
102. Brandtstädter J, Renner G. Tenacious goal pursuit and flexible goal adjustment: explication and age-related analysis of assimilative and accommodative strategies of coping. Psychol Aging. 1990;5:58-67.
103. Slangen-de Kort YA, van Wagenberg AF, Midden CJ. Adaptive problem solving processes of older persons in their homes. Stud Health Technol Inform. 1998;48:340-346.
104. Carver CS. You want to measure coping but your protocol's too long: consider the brief COPE. Int J Behav Med. 1997;4:92-100.
105. Endler NS, Parker JD. CHIP: Coping With Health Injuries and Problems. Toronto, Ontario, Canada: Multi-Health Systems; 1992.
106. Endler NS, Parker JD. Coping Inventory for Stressful Situations (CISS): Manual. Toronto, Ontario, Canada: Multi-Health Systems; 1990.
107. Frydenberg E, Lewis R. Coping Scale for Adults. Melbourne, Australia: The Australian Council for Educational Research; 1997.
108. Billings AG, Moos RH. The role of coping responses and social resources in attenuating the stress of life events. J Behav Med. 1981;4:139-157.
109. Muthny FA. [Frieburg Coping Questionnaire: Manual]. Wein-heim, Germany: Beltz; 1989.
110. Watson M, Greer S, Bliss JM. Mental Adjustment to Cancer (MAC) Scale Users' Manual. Sutton, Surrey: Cancer Research Campaign Medical Research Group, Royal Marsden Hospital; 1989.
111. Klauer T, Filipp SH. [Trier Scales for Coping (TSK)]. Göttingen, Germany: Hogrefe; 1993.
112. Schreurs PJ, van de Willige G, Tellegen B, Brosschot JF. [The Utrecht Coping List: Manual of the UCL]. Lisse, Netherlands: Swets & Zeitlinger; 1988.
113. Folkman S, Lazarus R. Ways of Coping Questionnaire Manual. Palo Alto, CA: Consulting Psychologists Press, Inc; 1988.