Head injury and family carers: A pilot study to investigate an innovative community-based educational programme for family carers and patients

Brain Injury

Volumn 19, Issue 4, 2005, Pages 283-308

  Sinnakaruppan, I ^a   Downey, B ^a   Morrison, S ^a  

^a Ayrshire Central Hospital   (United Kingdom)

Author keywords

Carers; Community; Family; Head injury; Needs

Indexed keywords

ADOLESCENT; ADULT; AGED; ARTICLE; CLINICAL ARTICLE; CLINICAL TRIAL; COGNITION; COMMUNITY CARE; CONTROLLED CLINICAL TRIAL; CONTROLLED STUDY; COPING BEHAVIOR; DISTRESS SYNDROME; EDUCATION PROGRAM; EXPERIMENTAL DESIGN; FAMILY COUNSELING; FEMALE; FOLLOW UP; HEAD INJURY; HUMAN; LONGITUDINAL STUDY; MALE; MEDICAL ASSESSMENT; PATIENT EDUCATION; PILOT STUDY; POPULATION RESEARCH; RELATIVE; STATISTICAL SIGNIFICANCE;

EID: 13844316473     PISSN: 02699052     EISSN: None     Source Type: Journal    
DOI: 10.1080/02699050400003924     Document Type: Article

References (33)

1. Hickey AM, O'Boyle CA, McGee HM. Head injury: Looking beyond the patient. Irish Medical Journal 1992;4:109-10.
2. Wenden FJ, Crawford S, Wade DT, King NS, Moss NEG. Assault, post-traumatic amnesia & other variables related to the outcome following head injury. Clinical Rehabilitation 1998;12:53-63.
3. Jacobs HE. The Los Angeles head injury survey: Procedures and initial findings. Archives of Physical Medicine and Rehabilitation 1988;69:425-31.
4. Flanaghan DA. A retrospective analysis of expressed emotions (EE) and affective distress in a sample of relatives caring for traumatically brain-injured (TBI) family members. British Journal of Clinical Psychology 1998;37:431-9.
5. DeJong G, Batavia AI, Williams JM, et al. Who is responsible for the lifelong wellbeing of a person with a head injury? Journal of Head Trauma Rehabilitation 1990;5:9-22.
6. Gillen R, Tennen H, Affleck G, Steinpreis R. Distress, depressive symptoms, and depressive disorder among caregivers of patients with brain injury. Journal of Head Trauma Rehabilitation 1998;13:31-43.
7. Semlyen JK, Summers SJ, Barnes MP. Aspects of caregiver distress after severe head injury. Journal of Neurological Rehabilitation, 1998;12:53-9.
8. Douglas JM, Spellacy FJ. Indicators of long-term family functioning following severe traumatic brain injury in adults. Brain Injury 1996;10:819-39.
9. Kreutzer JS, Gervasio AH, Camplair PS. Patient correlates of caregivers' distress and family functioning after traumatic brain injury. Brain Injury 1994;8:222-30.
10. Kreutzer JS, Serio CD, Bergquist S. Family needs after brain injury: A qualitative analysis. Journal of Head Trauma Rehabilitation 1994;9:104-15.
11. Kreutzer JS, Kolakowsky-Hayner SA, Demm S, Meade MA. The structured approach to family intervention after brain injury. Journal of Head Trauma Rehabilitation 2002;17:349-67.
12. Campbell C. Needs of relatives and helpfulness of support groups in severe head injury. Rehabilitation Nursing 1988;13:320-5.
13. Acorn S. Head-injured survivors: Caregivers and support groups. Journal of Advanced Nursing 1993;18:39-4.
14. Acorn S. Assisting families of head-injured survivors through a family support programme. Journal of Advanced Nursing 1995;21:872-7.
15. Bowen A, Tennant A, Neumann V, Chamberlain, AM. Neuropsychological rehabilitation for traumatic brain injury: Do carers benefit? Brain Injury 2001;15:29-38.
16. Carnevale GJ. Natural-setting behaviour management for individuals with traumatic brain injury: Results of a three-year caregiver training program. Journal of Head Trauma Rehabilitation 1996;11:27-38.
17. Carnevale GJ, Anselmi V, Busichio K, Millis SR. Changes in ratings of caregiver burden following a community-based behaviour management program for persons with traumatic brain injury. Journal of Head Trauma Rehabilitation 2002;17:83-95.
18. Pace GM, Schlund MW, Hazard-Haupt T, Christensen JR, Lashno M, McIver J, Peterson K, Morgan YA. Characteristics and outcomes of a home and community-based neuro-rehabilitation programme. Brain Injury 1999; 13:535-46.
19. Morris KC. Psychological distress in carers of head injured individuals: The provision of written information. Brain Injury 2001;15:239-54.
20. Liamaki G, Bach L. Group intervention for carers of brain injured relatives: Thoughts and suggestions. Clinical Psychology 2003;26:28-3.
21. Rose F, Johnson PA. Brain injury and after. Towards an improved outcome. Chichester: Wiley; 1996.
22. Zigmond AS, Snaith RP. The Hospital anxiety and depression scale. Acta Psychiatrica Scandinavia 1983; 67:361-71.
23. Goldberg D. Manual of the General Health Questionnaire. Slough: NFER; 1978.
24. Rosenberg M. Society and the adolescent self-image (reprint edition). Middletown, CT: Wesleyan University Press; 1989.
25. Carver CS, Scheier M, Weintraub JK. Assessing coping strategies: A theoretically based approach. Journal of Personality and Social Psychology 1989;36:267-83.
26. Granger CV, Gresham, GE. Functional assessment in rehabilitation medicine. Baltimore: Williams and Wilkins; 1984.
27. Wecshler D. Adult intelligence scale - Third Edition. San Antonio, The Psychological Corporation, Harcourt Brace & Co; 1997.
28. Wilson B, Cockburn J, Baddeley A. The Rivermead behavioural memory test. Suffolk, UK: Thames Valley Test Company; 1991.
29. Wilson BA, Alderman N, Burgess PW, Emslie B, Evans JJ. The Behavioural assessment of dysexecutive syndrome. Suffolk, UK: Thames Valley Test Company; 1996.
30. McKinlay WW, Brooks DN, Bond MR, Martinage DP, Marshall MM. The short-term outcome of severe blunt head injury as reported by relatives of the injured persons. Journal of Neurology, Neurosurgery and Psychiatry 1981;44:527-33.
31. Brooks N, Campsie L, Symington C, Beattie A, McKinlay W. The effects of severe head injury on patient and relative within seven years of injury. Journal of Head Trauma Rehabilitation 1986;2:1-13.
32. Marsh NV, Kersel DA, Havil JH, Sleigh JW. Care giver burden at 1 year following severe traumatic brain injury. Brain Injury 1998;12:1045-59.
33. Kubler-Ross E. On death and dying. New York: McMillan Publishing; 1969.