The development and preliminary validation of a Preference-based Stroke Index (PBSI)

Health and Quality of Life Outcomes

Volumn 1, Issue , 2003, Pages

  Poissant, Lise ^a   Mayo, Nancy E ^b   Wood Dauphinee, Sharon ^a   Clarke, Anne E ^c  

^a MCGILL UNIVERSITY   (Canada)

^b ROYAL VICTORIA HOSPITAL   (Canada)

^c MONTREAL GENERAL HOSPITAL   (Canada)

Author keywords

Health Index; Patients' Preferences; Stroke

Indexed keywords

ADULT; AGED; ARTICLE; CAR DRIVING; CAREGIVER; CLIMBING; CONTROLLED STUDY; COPING BEHAVIOR; CORRELATION ANALYSIS; COST BENEFIT ANALYSIS; DISEASE SEVERITY; EMOTION; FEMALE; FUNCTIONAL ASSESSMENT; HEALTH ECONOMICS; HUMAN; MAJOR CLINICAL STUDY; MALE; MEMORY; PHYSICAL ACTIVITY; PHYSICAL CAPACITY; PSYCHOMETRY; QUALITY OF LIFE; QUANTITATIVE ANALYSIS; RATING SCALE; RECREATION; SCORING SYSTEM; SELF ESTEEM; SOCIAL STATUS; SPEECH; SPORT; STROKE; TREATMENT OUTCOME; VALIDATION PROCESS; WALKING; WORK; CLASSIFICATION; FACTORIAL ANALYSIS; HOSPITALIZATION; MENTAL HEALTH; METHODOLOGY; MIDDLE AGED; PATHOPHYSIOLOGY; PATIENT SATISFACTION; PILOT STUDY; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; STATISTICS; VALIDATION STUDY;

AGED; AGED, 80 AND OVER; FACTOR ANALYSIS, STATISTICAL; FEMALE; HUMANS; MALE; MENTAL STATUS SCHEDULE; MIDDLE AGED; PATIENT SATISFACTION; PILOT PROJECTS; PSYCHOMETRICS; QUALITY OF LIFE; QUESTIONNAIRES; SEVERITY OF ILLNESS INDEX; STROKE;

EID: 4243049209     PISSN: 14777525     EISSN: None     Source Type: Journal    
DOI: 10.1186/1477-7525-1-43     Document Type: Article

References (62)

1. Patrick DL and Deyo RA: Generic and disease-specific measures in assessing health status and quality of life. Med Care 1989, 27:S217-S232.
2. Rubenstein LV: Quality of life for patients: diagnosis or screening, or to evaluate treatment. Quality of Life and Pharmacoeconomics in Clinical trials. Lippincott-Raven 1996:363-373.
3. Whiteneck GG: Measuring what matters: key rehabilitation outcomes. Arch Phys Med Rehabil 1994, 75:1073-1076.
4. Nunes JF: Economic evaluation of rehabilitation: The quality of life approach using EuroQol. Int Adv Econ Res 1998, 4:192-201.
5. Ware JE Jr and Sherbourne CD: The MOS 36-item Short-Form Health Survey (SF-36). I. Conceptual framework and item selection. Med Care 1992, 30:473-483.
6. Duncan PW, Wallace D and Lai SM et al.: The Stroke Impact Scale Version 2.0. Evaluation of reliability, validity, and sensitivity to change. Stroke 1999, 30:2131-2140.
7. Saladin LK: Measuring quality of life post-stroke. Neur Rep 2000, 24:133-139.
8. Duncan PW, Horner RD and Reker DA et al.: Adherence to post-acute rehabilitation guidelines is associated with functional recovery in stroke. Stroke 2002, 33:167-177.
9. Dorman PJ, Slattery J and Farrell B et al.: A randomised comparison of the EuroQol and Short Form-36 after stroke. Br Med J 1997, 23:461.
10. Dorman PJ, Waddell F and Slattery J et al.: Is the EuroQol a valid measure of health-related quality of life after stroke? Stroke 1997, 28:1876-1882.
11. Dorman PJ, Dennis M and Sandercock P: How do scores on the EuroQol relate to scores on the SF-36 after stroke? Stroke 1999, 30:2146-2151.
12. Cella DF: Quality of Life: Concepts and definition. J PainSymptom Manage 1994, 9:186-192.
13. Torrance GW, Furlong W and Feeny D et al.: Multi-attribute preference functions - Health Utilities Index. PharmaEcon 1995, 7:503-520.
14. Boyle MH, Furlong W and Feeny D et al.: Reliability of the Health Utilities Index - Mark III used in the 1991 cycle 6 Canadian general social survey health questionnaire. Qual Life Res 1995, 4:249-257.
15. EuroQol Group: EuroQol - a new facility for the measurement of health-related quality of life. Health Pol 1990, 16:199-208.
16. Kind P: The EuroQol Instrument: An index of health-related quality of life. Quality of Life and Pharmacoeconomics in Clinical trials. Lippincott-Raven 1996:191-201.
17. Kaplan RM, Bush JW and Berry CC: Health status: Types of validity and the index of well-being. Health Serv Res 1976, 11:478-507.
18. Brazier J, Jones N and Kind P: Testing the validity of the Euroqol and comparing it with the SF-36 health survey questionnaire. Qual Life Res 1993, 2:169-180.
19. Dorman P, Slattery J and Farrell B et al.: Qualitative comparison of the reliability of health status assessments with the Euro-Qol and SF-36 questionnaires after stroke. Stroke 1998, 29:63-68.
20. Dorman PJ, Waddell F and Slattery J et al.: Are proxy assessments of health status after stroke with the EuroQol questionnaire feasible, accurate, and unbiased? Stroke 1997, 28:1883-1887.
21. Grootendorst P, Feeny D and Furlong W: Health Utilities Index Mark 3: evidence of construct validity for stroke and arthritis in a population health survey. Med Care 2000, 38:290-299.
22. Mathias SD, Bates MM and Pasta DJ et al.: Use of the Health Utilities Index with stroke patients and their caregivers. Stroke 1997, 28:1888-1893.
23. ICIDH-2: International Classification of Functioning and Disability. Beta-2 draft 1999.
24. Pedersen PM, Jorgensen HS and Nakayama H et al.: Aphasia in acute stroke: Incidence, determinants and recovery. Ann Neur 1995, 38:659-666.
25. Kotila M, Waltimo O and Niemi ML et al.: The profile of recovery from stroke and factors influencing outcome. Stroke 1984, 15:1039-1044.
26. Pohjasvaara T, Erkinjuntti T and Vataja R et al.: Dementia three months after stroke. Baseline frequency and effect of different definitions of dementia in the helsinki stroke aging memory study (SAM) cohort. Stroke 1997, 28:785-792.
27. Anderson CS, Linto J and Stewart-Wynne EG: A population-based assessment of the impact and burden of caregiving for longterm stroke survivors. Stroke 1995, 26:843-849.
28. Revicki DA, Leidy NK and Brennan-Diemer F et al.: Integrating patient preferences into health outcomes assessment. Chest 1998, 114:998-1007.
29. Revicki DA, Leidy NK and Brennan-Diemer F et al.: Development and preliminary validation of the multiattribute Rhinitis Symptom Utility Index. Qual Life Res 1998, 7:693-702.
30. Mayo NE: Hospitalization and case-fatality rates for stroke in Canada from 1982 through 1991. The Canadian collaborative study group of stroke hospitalizations. Stroke 1996, 27:1215-1220.
31. Mayo NE, Wood-Dauphinee S and Ahmed S et al.: Disablement following stroke. Disabil Rehabil 1999, 21:258-268.
32. Mahoney FI and Barthel DW: Functional evaluation: The Barthel lndex. Maryland Med J 1965, 14:61-65.
33. McDowell I and Newell C: Measuring health: A guide to rating scales and Questionnaires. 1996.
34. Wood-Dauphinee S and Williams JI: Reintegration to Normal Living as a proxy to quality of life. J Chronic Dis 1987, 40:491-502.
35. Folstein MF, Folstein SE and McHugh PR: "Mini-mental state". A practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 1975, 12:189-198.
36. Fleiss JL: Statistical methods for rates and proportions. New York: Wiley 1981.
37. Juniper EF, Guyatt GH and Streiner DL et al.: Clinical impact versus factor analysis for quality of life questionnaire construction. J Clin Epid 1997, 50:233-238.
38. Langley GB and Shephard H: The visual analogue scale: Its use in pain measurement. Rheumatol Int 1985, 5:145-148.
39. Nunnally J: Psychometric Theory. New York: McGraw-Hill 1978.
40. Likert R: A technique for the measurement of attitudes. Arch Psy 1932, 140:5-55.
41. Mayo NE, Wood-Dauphinee S and Ct̂é R et al.: There's no place like home: An evaluation of early supported discharge for stroke. Stroke 2000, 31:1016-1023.
42. Dolan P: Modelling valuations for health states: The effect of duration. Health Pol 1996, 38:189-203.
43. Jorgensen HS, Nakayama H and Raaschou HO et al.: Outcome and time course of recovery in stroke. Part II: Time course of recovery:The Copenhagen stroke study. Arch Phys Med Rehabil 1995, 76:406-412.
44. Côté R, Battista RN and Wolfson C et al.: The Canadian Neurological Scale: validation and reliability assessment. Neuro 1989, 39:638-643.
45. Roy CW, Togneri J and Hay E et al.: An inter-rater reliability study of the Barthel Index. Int J Rehabil Res 1988, 11:67-70.
46. Desmond DW, Moroney JT and Sano M et al.: Recovery of cognitive function after stroke. Stroke 1996, 27:1798-1803.
47. Pohjasvaara T, Erkinjuntti T and Vataja R et al.: Comparison of stroke features and disability in daily life in patients with ischemic stroke aged 55 to 70 and 71 to 85 years. Stroke 1997, 28:729-735.
48. Montgomery H, Persson LO and Ryden A: Importance and attainment of life values among disabled and non-disabled people. Scand J Rehabil Med 1996, 28:233-240.
49. Fryback DG, Lawrence WF and Martin PA et al.: Predicting quality of well-being scores form the SF-36: Results from the Beaver Dam Health Outcomes Study. Med Dec Making 1997, 17:1-9.
50. Hobart JC, Williams LS and Moran K et al.: Quality of life measurement after stroke: uses and abuses of the SF-36. Stroke 2002, 33:1348-1356.
51. Samsa G, Edelman D, Rothman ML, Williams GR, Lipscomb J and Matchar D: Determining clinically important differences in health status measures: A general approach with illustration to the Health Utilities Index Mark2. Pharmacoeconomics 1999, 15:141-155.
52. Ruta DA, Garratt AM and Leng M et al.: A new approach to the measurement of quality of life. The Patient-Generated Index. Med Care 1994, 32:1109-1126.
53. Williams LS, Weinberger M and Harris LE et al.: Development of a stroke-specific quality of life scale. Stroke 1999, 30:1362-1369.
54. Wolfe F and Hawley DJ: Measurement of the quality of life in rheumatic disorders using the EuroQol. Bri J Rheumatol 1997, 36:786-793.
55. Fransen M and Edmonds J: Reliability and validity of the EuroQol in patients with osteoarthritis of the knee. Rheumatol (Oxford) 1999, 38:807-813.
56. Duncan PW, Samsa GP and Weinberger M et al.: Health status of individuals with mild stroke. Stroke 1997, 28:740-745.
57. Shin AY, Porter PJ and Wallace MC et al.: Quality of life of stroke in younger individuals. Utility assessment in patients with arteriovenous malformations. Stroke 1997, 28:2395-2399.
58. Samsa GP, Matchar DB and Goldstein L et al.: Utilities for major stroke: Results from a survey of preferences among persons at increased risk for stroke. Am Heart J 1980, 136:1703-713.
59. Gage BF, Cardinalli AB and Owens DK: The effect of stroke and stroke prophylaxis with aspirin or warfarin on quality of life. Arch Int Med 1996, 156:1829-1836.
60. Post PN, Stiggelbout AM and Wakker PP: The utility of health states after stroke - A systematic review of the literature. Stroke 2001, 32:1425-1429.
61. Boyle MH and Torrance GW: Developing multiattribute indexes. Med Care 1984, 22:1045-1057.
62. Kaplan RM, Ganiats T and Sieber W et al.: The Quality of Well-Being scale: critical similarities and differences with SF-36. Int J Qual Health Care 1998, 10:509-520.