Psychosocial well-being in young adults with chronic illness since childhood: The role of illness cognitions

Child and Adolescent Psychiatry and Mental Health

Volumn 8, Issue 1, 2014, Pages

  Verhoof, Eefje J A ^a   Maurice Stam, Heleen ^a,d   Heymans, Hugo S A ^b   Evers, Andrea W M ^c   Grootenhuis, Martha A ^a  

^a ACADEMIC MEDICAL CENTER   (Netherlands)

^b UNIVERSITY OF AMSTERDAM   (Netherlands)

^c LEIDEN UNIVERSITY   (Netherlands)

^d EMMA CHILDREN S HOSPITAL   (Netherlands)

Author keywords

Anxiety and depression; Chronic illness; Health related quality of life; Illness cognitions; Young adults

Indexed keywords

ADULT; ADULT DISEASE; AGE; ANXIETY; ANXIETY DISORDER; ARTICLE; CHILDHOOD DISEASE; CHRONIC DISEASE; COGNITION; CONTROLLED STUDY; CROSS-SECTIONAL STUDY; DEPRESSION; FEMALE; GENDER; HELPLESSNESS; HUMAN; LINEAR REGRESSION ANALYSIS; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; PSYCHOLOGICAL WELL BEING; PSYCHOSOCIAL WELL BEING; QUALITY OF LIFE; QUESTIONNAIRE; STATISTICS;

EID: 84900437689     PISSN: None     EISSN: 17532000     Source Type: Journal    
DOI: 10.1186/1753-2000-8-12     Document Type: Article

References (42)

1. Mokkink LB, van der Lee JH, Grootenhuis MA, Offringa M, van Praag BMS, Heymans HSA. Omvang en gevolgen van chronische aandoeningen bij kinderen [Extent and Consequences of Chronic Conditions in Children] 2006, Amsterdam, The Netherlands: Emma Childrens Hospital Academic Medical Center.
2. Perrin JM, Bloom SR, Gortmaker SL. The increase of childhood chronic conditions in the United States. JAMA 2007, 297:2755-2759. 10.1001/jama.297.24.2755, 17595277.
3. Hallum A. Disability and the transition to adulthood: issues for the disabled child, the family, and the pediatrician. Curr Probl Pediatr 1995, 25:12-50.
4. Stam H, Hartman EE, Deurloo JA, Groothoff J, Grootenhuis MA. Young adult patients with a history of pediatric disease: impact on course of life and transition into adulthood. J Adolesc Health 2006, 39:4-13.
5. Law M, King G, King S, Kertoy M, Hurley P, Rosenbaum P, Young N, Hanna S. Patterns of participation in recreational and leisure activities among children with complex physical disabilities. Dev Med Child Neurol 2006, 48:337-342. 10.1017/S0012162206000740, 16608540.
6. Hartman A, DePoy E, Francis C, Gilmer D. Adolescents with special health care needs in transition: three life histories. Soc Work Health Care 2000, 31:43-57. 10.1300/J010v31n04_03, 11140342.
7. Verhoof E, Maurice-Stam H, Heymans H, Grootenhuis M. Growing into disability benefits? Psychosocial course of life of young adults with a chronic somatic disease or disability. Acta Paediatr 2012, 101:e19-e26. 10.1111/j.1651-2227.2011.02418.x, 21767313.
8. Stam H, Grootenhuis MA, Last BF. The course of life of survivors of childhood cancer. Psycho Oncol 2005, 14:227-238.
9. Maslow GR, Haydon A, McRee AL, Ford CA, Halpern CT. Growing up with a chronic illness: social success, educational/vocational distress. J Adolesc Health 2011, 49:206-212. 3414253, 21783055.
10. Calsbeek H, Rijken M, Bekkers MJ, Kerssens JJ, Dekker J, van Berge Henegouwen GP. Social position of adolescents with chronic digestive disorders. Eur J Gastroenterol Hepatol 2002, 14:543-549. 10.1097/00042737-200205000-00012, 11984153.
11. Lindsay S. Employment status and work characteristics among adolescents with disabilities. Disabil Rehabil 2011, 33:843-854. 10.3109/09638288.2010.514018, 20804406.
12. Blomquist KB. Health, education, work, and independence of young adults with disabilities. Orthop Nurs 2006, 25:168-187.
13. Gurney JG, Krull KR, Kadan-Lottick N, Nicholson HS, Nathan PC, Zebrack B, Tersak JM, Ness KK. Social outcomes in the childhood cancer survivor study cohort. J Clin Oncol 2009, 27:2390-2395. 10.1200/JCO.2008.21.1458, 2677924, 19224833.
14. Boot CR, Heijmans M, Van Der Gulden JW, Rijken M. The role of illness perceptions in labor participation of the chronically ill. Int Arch Occup Environ Health 2008, 82:13-20. 10.1007/s00420-007-0298-5, 2467500, 18188579.
15. Hoving JL, van der Meer M, Volkova AY, Frings-Dresen MH. Illness perceptions and work participation: a systematic review. Int Arch Occup Environ Health 2010, 83:595-605. 10.1007/s00420-010-0506-6, 2902734, 20130906.
16. Evers AW, Kraaimaat FW, van Lankveld W, Jongen PJ, Jacobs JW, Bijlsma JW. Beyond unfavorable thinking: the illness cognition questionnaire for chronic diseases. J Consult Clin Psychol 2001, 69:1026-1036.
17. Evers AW, Lu Y, Duller P, van der Valk PG, Kraaimaat FW, van de Kerkhof PC. Common burden of chronic skin diseases? Contributors to psychological distress in adults with psoriasis and atopic dermatitis. Br J Dermatol 2005, 152:1275-1281. 10.1111/j.1365-2133.2005.06565.x, 15948993.
18. Vriezekolk J, Eijsbouts A, Evers A, Stenger A, Van Den Hoogen F, van Lankveld W. Poor psychological health status among patients with inflammatory rheumatic diseases and osteoarthritis in multidisciplinary rehabilitation: need for a routine psychological assessment. Disabil Rehabil 2010, 32:836-844. 10.3109/09638280903323250, 19817662.
19. Voerman GE, Erren-Wolters CV, Fleuren JF, Hermens HJ, Geurts AC. Perceived spasticity in chronic spinal cord injured patients: associations with psychological factors. Disabil Rehabil 2010, 32:775-780. 10.3109/09638280903304490, 20302444.
20. Lauwerier E, Crombez G, Van DS, Goubert L, Vogelaers D, Evers AW. The construct validity of the illness cognition questionnaire: the robustness of the three-factor structure across patients with chronic pain and chronic fatigue. Int J Behav Med 2010, 17:90-96. 10.1007/s12529-009-9059-z, 19757084.
21. Aaronson NK, Muller M, Cohen PD, Essink-Bot ML, Fekkes M, Sanderman R, Sprangers MA, te Velde A, Verrips E. Translation, validation, and norming of the Dutch language version of the SF-36 health survey in community and chronic disease populations. J Clin Epidemiol 1998, 51:1055-1068. 10.1016/S0895-4356(98)00097-3, 9817123.
22. van der Zee KI, Sanderman R, Heyink JW, de Haes H. Psychometric qualities of the RAND 36-Item Health Survey 1.0: a multidimensional measure of general health status. Int J Behav Med 1996, 3:104-122. 10.1207/s15327558ijbm0302_2, 16250758.
23. Ware JE, Kosinski M. Interpreting SF-36 summary health measures: a response. Qual Life Res 2001, 10:405-413. 10.1023/A:1012588218728, 11763203.
24. Stam H, Grootenhuis MA, Caron HN, Last BF. Quality of life and current coping in young adult survivors of childhood cancer: positive expectations about the further course of the disease were correlated with better quality of life. Psychooncol 2006, 15:31-43.
25. Bjelland I, Dahl AA, Haug TT, Neckelmann D. The validity of the hospital anxiety and depression scale: an updated literature review. J Psychosom Res 2002, 52:69-77. 10.1016/S0022-3999(01)00296-3, 11832252.
26. Spinhoven P, Ormel J, Sloekers PP, Kempen GI, Speckens AE, Van Hemert AM. A validation study of the Hospital Anxiety and Depression Scale (HADS) in different groups of Dutch subjects. Psychol Med 1997, 27:363-370. 10.1017/S0033291796004382, 9089829.
27. Hatzmann J, Maurice-Stam H, Heymans HS, Grootenhuis MA. A predictive model of health related quality of life of parents of chronically ill children: the importance of care-dependency of their child and their support system. Health Qual Life Outcomes 2009, 7:72. 10.1186/1477-7525-7-72, 2731060, 19638197.
28. Cohen J. Statistical power analysis for the behavioral sciences 1988, New York: Academy Press.
29. Samwel HJ, Evers AW, Crul BJ, Kraaimaat FW. The role of helplessness, fear of pain, and passive pain-coping in chronic pain patients. Clin J Pain 2006, 22:245-251. 10.1097/01.ajp.0000173019.72365.f5, 16514324.
30. Currier JM, Hermes S, Phipps S. Brief report: children's response to serious illness: perceptions of benefit and burden in a pediatric cancer population. J Pediatr Psychol 2009, 34:1129-1134. 10.1093/jpepsy/jsp021, 2782252, 19342537.
31. Maurice-Stam H, Broek A, Kolk AM, Vrijmoet-Wiersma JM, Meijer-van den Bergh E, van Dijk EM, Phipps S, Grootenhuis MA. Measuring perceived benefit and disease-related burden in young cancer survivors: validation of the Benefit and Burden Scale for Children (BBSC) in The Netherlands. Support Care Cancer 2011, 19:1249-1253. 10.1007/s00520-011-1206-9, 3128272, 21667049.
32. Evers AW, Kraaimaat FW, Geenen R, Jacobs JW, Bijlsma JW. Longterm predictors of anxiety and depressed mood in early rheumatoid arthritis: a 3 and 5 year followup. J Rheumatol 2002, 29:2327-2336.
33. van Koulil S, van Lankveld W, Kraaimaat FW, van Riel PL, Evers AW. Risk factors for longer term psychological distress in well-functioning fibromyalgia patients: a prospective study into prognostic factors. Patient Educ Couns 2010, 80:126-129. 10.1016/j.pec.2009.08.001, 19744816.
34. Kroft EB, de Jong EM, Evers AW. Psychological distress in patients with morphea and eosinophilic fasciitis. Arch Dermatol 2009, 145:1017-1022.
35. Borghouts-van de Pas IW, Pennings FJ. Arbeidsparticipatie van jonggehandicapten: een onderzoek naar Europese systemen en praktijken [Workforce participation of young disabled: a study of European systems and practices] 2008, Tilburg: OSA - Institute for Labour Studies.
36. Snel N, van Wensveen D. Het eerste jaar nieuwe Wajong: kwantitatief onderzoek onder Wajongers ten behoeve van de monitor nieuwe Wajong [The first year new Wajong: quantitative survey in Wajongers for the new Wajong monitor] 2011, Amsterdam: TNS NIPO.
37. Regioplan Beleidsonderzoek Werk moet lonen: onderzoek onder Wajongers naar de financiele baten van werk [Work should pay: research in Wajongers for financial benefits of working] 2008, Amsterdam: Regioplan Beleidsonderzoek, Regioplan Beleidsonderzoek.
38. Sinnema G. Youths with chronic illness and disability on their way to social and economic participation: a health-care perspective. J Adolesc Health 1992, 13:369-371.
39. van Staa AL, Jedeloo S, van Meeteren J, Latour JM. Crossing the transition chasm: experiences and recommendations for improving transitional care of young adults, parents and providers. Child Care Health Dev 2011, 6:821-832.
40. Haverman L, Engelen V, van Rossum MA, Heymans HS, Grootenhuis MA. Monitoring health-related quality of life in paediatric practice: development of an innovative web-based application. BMC Pediatr 2011, 11:3. 10.1186/1471-2431-11-3, 3025868, 21226913.
41. Engelen V, Detmar S, Koopman H, Maurice-Stam H, Caron H, Hoogerbrugge P, Egeler RM, Kaspers G, Grootenhuis M. Reporting health-related quality of life scores to physicians during routine follow-up visits of pediatric oncology patients: is it effective?. Pediatr Blood Canc 2012, 58:766-774.
42. Haverman L, van Rossum MA, van Veenendaal M, van den Berg JM, Dolman KM, Swart J, Kuijpers TW, Grootenhuis MA. Effectiveness of a web-based application to monitor health-related quality of life. Pediatrics 2013, 131:e533-e543. 10.1542/peds.2012-0958, 23296436.