Trajectories of quality of life in early-stage dementia: Individual variations and predictors of change

International Journal of Geriatric Psychiatry

Volumn 29, Issue 6, 2014, Pages 616-623

  Clare, Linda ^a   Woods, Robert T ^a   Nelis, Sharon M ^a   Martyr, Anthony ^a   Marková, Ivana S ^b   Roth, Ilona ^c   Whitaker, Christopher J ^a   Morris, Robin G ^d  

^a BANGOR UNIVERSITY   (United Kingdom)

^b UNIVERSITY OF HULL   (United Kingdom)

^c OPEN UNIVERSITY   (United Kingdom)

^d KING'S COLLEGE LONDON   (United Kingdom)

Author keywords

Alzheimer's disease; caregiver; depression; quality of relationship; vascular dementia

Indexed keywords

CHOLINESTERASE INHIBITOR;

ADULT; AGED; ALZHEIMER DISEASE; ARTICLE; DEMENTIA; FEMALE; FOLLOW UP; HUMAN; MAJOR CLINICAL STUDY; MALE; MEMORY DISORDER; MIXED DEPRESSION AND DEMENTIA; MULTIINFARCT DEMENTIA; PREDICTION; QOL ALZHEIMER DISEASE SCALE; QUALITY OF LIFE; RATING SCALE; ANALYSIS OF VARIANCE; BRIEF PSYCHIATRIC RATING SCALE; DEPRESSION; HUMAN RELATION; MENTAL STRESS; MIDDLE AGED; PSYCHOLOGY; VERY ELDERLY;

AGED; AGED, 80 AND OVER; ANALYSIS OF VARIANCE; BRIEF PSYCHIATRIC RATING SCALE; DEMENTIA; DEPRESSION; FEMALE; FOLLOW-UP STUDIES; HUMANS; INTERPERSONAL RELATIONS; MALE; MIDDLE AGED; QUALITY OF LIFE; STRESS, PSYCHOLOGICAL;

EID: 84899909490     PISSN: 08856230     EISSN: 10991166     Source Type: Journal    
DOI: 10.1002/gps.4044     Document Type: Article

References (38)

1. Banerjee S, Samsi K, Petrie CD, et al,. 2009. What do we know about quality of life in dementia? A review of the emerging evidence on the predictive and explanatory value of disease specific measures of health-related quality of life in people with dementia. Int J Geriatr Psychiatry 24: 15-24.
2. Bengtson VL, Schrader SS,. 1982. Parent-child relationship. In Research Instruments in Social Gerontology (Vol 2), Mangen DJ, Peterson WA, (eds). University of Minnesota Press: Minneapolis, MN; 115-185.
3. Birks J,. 2006. Cholinesterase inhibitors for Alzheimer's disease. Cochrane Database Syst Rev 1: CD005593.
4. Burgener S, Twigg P,. 2002. Relationships among caregiver factors and quality of life in care recipients with irreversible dementia. Alzheimer Dis Assoc Disord 16: 88-102.
5. Burns A, Rossor M, Hecker J, et al,. 1999. The effects of donepezil in Alzheimer's disease-results from a multinational trial. Dement Geriatr Cogn Disord 10: 237-244.
6. Byrne-Davis LMT, Bennett PD, Wilcock GK,. 2006. How are quality of life ratings made? Toward a model of quality of life in people with dementia. Qual Life Res 15: 855-865.
7. Clare L, Nelis SM, Martyr A, et al,. 2011. Longitudinal trajectories of awareness in early-stage dementia. Alzheimer Dis Assoc Disord 26: 140-147.
8. Ettema TP, Droes RM, de Lange J, et al,. 2005. The concept of quality of life in dementia in the different stages of the disease. Int Psychogeriatr 17: 353-370.
9. Evans C, Margison F, Barkham M,. 1998. The contribution of reliable and clinically significant change methods to evidence-based mental health. Evid Base Ment Health 1: 70-72.
10. Folstein MF, Folstein SE, McHugh PR,. 1975. 'Mini-mental state' a practical method for grading the cognitive state of patients for the clinician. J Psychiatr Res 12: 189-198.
11. Greene JG, Smith R, Gardiner M, Timbury GC,. 1982. Measuring behavioural disturbance of elderly demented patients in the community and its effects on relatives a factor analytic study. Age Ageing 11: 121-126.
12. Hoe J, Hancock G, Livingston G, et al,. 2009. Changes in the quality of life of people with dementia living in care homes. Alzheimer Dis Assoc Disord 23: 285-290.
13. Hoe J, Katona C, Orrell M, Livingston G,. 2007. Quality of life in dementia: care recipient and caregiver perceptions of quality of life in dementia: the LASER-AD study. Int J Geriatr Psychiatry 22: 1031-1036.
14. Katsuno T,. 2005. Dementia from the inside: how people with early-stage dementia evaluate their quality of life. Ageing Soc 25: 197-214.
15. Kaufer DI, Cummings JL, Ketchel P, et al,. 2000. Validation of the NPI-Q a brief clinical form of the Neuropsychiatric Inventory. J Neuropsychiatry Clin Neurosci 12: 233-239.
16. Logsdon RG, Gibbons LE, McCurry SM, Teri L,. 1999. Quality of life in Alzheimer's disease: patient and caregiver reports. J Ment Health Aging 5: 21-32.
17. Lyketsos CG, Gonzales-Salvador T, Chin JJ, et al,. 2003. A follow-up study of change in quality of life among persons with dementia residing in a long-term care facility. Int J Geriatr Psychiatry 18: 275-281.
18. Martyr A, Clare L, Nelis SM, et al,. 2012. Verbal fluency and awareness of functional deficits in early-stage dementia. Clin Neuropsychol 26: 501-519.
19. Menne HL, Judge KS, Whitlatch CJ,. 2009. Predictors of quality of life for individuals with dementia: implications for intervention. Dementia 8: 543-560.
20. Missotten P, Ylieff M, Di Notte D, et al,. 2007. Quality of life in dementia a 2-year follow-up study. Int J Geriatr Psychiatry 26: 1202-1207.
21. Moniz-Cook E, Vernooij-Dassen M, Woods R, et al,. 2008. A European consensus on outcome measures for psychosocial intervention research in dementia care. Aging Ment Health 12: 14-29.
22. Moyle W, Kellett U, Ballantyne A, Gracia N,. 2011. Dementia and loneliness: an Australian perspective. J Clin Nurs 20: 1445-1453.
23. Murray LM, Boyd S,. 2009. Protecting personhood and achieving quality of life for older adults with dementia in the US health care system. J Aging Health 21: 350-373.
24. Naglie G, Hogan DB, Krahn M, et al,. 2011a. Predictors of patient self-ratings of quality of life in Alzheimer's disease: cross-sectional results from the Canadian Alzheimer's Disease Quality of Life Study. Am J Geriatr Psychiatry 19: 881-890.
25. Naglie G, Hogan DB, Krahn M, et al,. 2011b. Predictors of family caregiver ratings of patient quality of life in Alzheimer's disease: cross-sectional results from the Canadian Alzheimer's Disease Quality of Life Study. Am J Geriatr Psychiatry 19: 891-901.
26. O'Connor D, Phinney A, Smith A, et al,. 2007. Personhood in dementia care: developing a research agenda for broadening the vision. Dementia 6: 121-142.
27. Parse RR,. 1996. Quality of life for persons living with Alzheimer's disease: the human becoming perspective. Nurs Sci Q 9: 126-133.
28. Pfeffer RI, Kurosaki TT, Harrah CH Jr., Chance JM, Filos S,. 1982. Measurement of functional activities in older adults in the community. J Gerontol 37: 323-329.
29. Rogers SL, Farlow MR, Doody RS, et al,. 1998. A 24-week, double-blind, placebo-controlled trial of donepezil in patients with Alzheimer's disease. Donepezil Study Group. Neurology 50: 136-145.
30. Selwood A, Thorgrimsen L, Orrell M,. 2005. Quality of life in dementia-a one-year follow-up study. Int J Geriatr Psychiatry 20: 232-237.
31. Smith SC, Murray J, Banerjee S, et al,. 2005. What constitutes health-related quality of life in dementia? Development of a conceptual framework for people with dementia and their carers. Int J Geriatr Psychiatry 20: 889-895.
32. Snaith RP, Zigmond AS,. 1994. HADS: Hospital Anxiety and Depression Scale. NFER-Nelson: Windsor.
33. St John PD, Montgomery PR,. 2010. Cognitive impairment and life satisfaction in older adults. Int J Geriatr Psychiatry 25: 814-821.
34. Tatsumi H, Nakaaki S, Torii K, et al,. 2009. Neuropsychiatric symptoms predict change in quality of life of Alzheimer's disease patients a two-year follow-up study. Psychiatry Clin Neurosci 63: 374-384.
35. Venturato L., 2010. Dignity, dining and dialogue: reviewing the literature on quality of life for people with dementia. Int J Older People Nurs 5: 228-234.
36. Vogel A, Bhattacharya S, Waldorff FB, Waldemar G,. 2012. Proxy-rated quality of life in Alzheimer's disease a three-year longitudinal study. Int Psychogeriatr 24: 82-89.
37. WHOQOL Group. 1994. Development of the WHOQOL: rationale and current status. Int J Ment Health 23: 24-56.
38. World Health Organisation. 1992. The ICD-10 Classification of Mental and Behavioural Disorders: Clinical Descriptions and Diagnostic Guidelines. World Health Organisation, Division of Mental Health: Geneva.