Cultural correlates of burden in primary caregivers of older relatives: A Cross-sectional Study

Journal of Nursing Scholarship

Volumn 46, Issue 3, 2014, Pages 176-186

  Del Pino Casado, Rafael ^a   Millán Cobo, Martín David ^a   Palomino Moral, Pedro A ^a   Frías Osuna, Antonio ^a  

^a UNIVERSITY OF JAÉN   (Spain)

Author keywords

Burden; Caregivers; Cultural factors; Elderly; Nursing

Indexed keywords

ADULT; AGED; ARTICLE; BURDEN; CAREGIVER; CROSS-SECTIONAL STUDY; CULTURAL FACTOR; CULTURAL FACTORS; FEMALE; HUMAN; MALE; MENTAL STRESS; MIDDLE AGED; NURSING; PSYCHOLOGICAL ASPECT; QUALITATIVE RESEARCH; RISK FACTOR; SOCIAL SUPPORT; SPAIN; STATISTICS; VERY ELDERLY;

BURDEN; CAREGIVERS; CULTURAL FACTORS; ELDERLY; NURSING;

ADULT; AGED; AGED, 80 AND OVER; CAREGIVERS; CROSS-SECTIONAL STUDIES; CULTURAL CHARACTERISTICS; FEMALE; HUMANS; MALE; MIDDLE AGED; QUALITATIVE RESEARCH; RISK FACTORS; SOCIAL SUPPORT; SPAIN; STRESS, PSYCHOLOGICAL;

EID: 84899903315     PISSN: 15276546     EISSN: 15475069     Source Type: Journal    
DOI: 10.1111/jnu.12070     Document Type: Article

References (66)

1. Akaike, H. (1974). A new look at the statistical model identification. IEEE Transactions on Automatic Control, 19(6), 716-723.
2. Albert, S. M. (1992). Psychometric investigation of a belief system: Caregiving to the chronically ill parent. Social Science and Medicine, 35(5), 699-709.
3. Aneshensel, C. S., Pearlin, L. I., Mullan, J. T., Zarit, S. H., & Whitlatch, C. J. (1995). Profiles in caregiving. San Diego, CA: Academic Press.
4. Aranda, M. P., & Knight, B. G. (1997). The influence of ethnicity and culture on the caregiver stress and coping process: A sociocultural review and analysis. Gerontologist, 37(3), 342-354.
5. Baztán, J. J., Pérez, J., Alarcón, T., San Cristóbal, E., Izquierdo, G., & Manzarbeitia, I. (1993). Indice de Barthel: Instrumento válido para la valoración funcional de pacientes con enfermedad cerebrovascular [Barthel Index: A valid tool for functional assessment in stroke patients]. Revista Española de Geriatría y Gerontología, 28, 32-40.
6. Broadhead, W. E., Gehlbach, S. H., De Gruy, F. W., & Kaplan, B. H. (1988). The Duke-UNK functional social support questionnaire. Measurement of social support in family medicine patients. Medical Care, 26(7), 709-723.
7. Carretero, S., Garces, J., Rodenas, F., & Sanjose, V. (2009). The informal caregiver's burden of dependent people: Theory and empirical review. Archives of Gerontology and Geriatrics, 49(1), 74-79. doi:10.1016/j.archger.2008.05.004
8. Chang, B. L., Brecht, M-L., & Carter, P. A. (2001). Predictors of social support and caregiver outcomes. Women & Health, 33(1-2), 39-61. doi:10.1300/J013v33n01_04
9. Chiou, C. J., Chang, H. Y., Chen, I. P., & Wang, H. H. (2009). Social support and caregiving circumstances as predictors of caregiver burden in Taiwan. Archives of Gerontology and Geriatrics, 48(3), 419-424. doi:10.1016/j.archger.2008.04.001
10. Choi, H. (1993). Cultural and noncultural factors as determinants of caregiver burden for the impaired elderly in South Korea. Gerontologist, 33(1), 8-15.
11. Chou, K. R., LaMontagne, L. L., & Hepworth, J. T. (1999). Burden experienced by caregivers of relatives with dementia in Taiwan. Nursing Research, 48(4), 206-214.
12. Chun, M., Knight, B. G., & Youn, G. (2007). Differences in stress and coping models of emotional distress among Korean, Korean-American and White-American caregivers. Aging and Mental Health, 11(1), 20-29. doi:10.1080/13607860600736232
13. Cicirelli, V. G. (1993). Attachment and obligation as daughters' motives for caregiving behavior and subsequent effect on subjective burden. Psychology and Aging, 8(2), 144-155.
14. Cohen, J. (1988). Statistical power analysis for the behavioral sciences. Hillsdale, NJ: Lawrence Erlbaum.
15. Conde-Sala, J. L., Garre-Olmo, J., Turro-Garriga, O., Vilalta-Franch, J., & Lopez-Pousa, S. (2010). Differential features of burden between spouse and adult-child caregivers of patients with Alzheimer's disease: An exploratory comparative design. International Journal of Nursing Studies, 47(10), 1262-1273. doi:10.1016/j.ijnurstu.2010.03.001
16. Cooper, C., Balamurali, T. B., & Livingston, G. (2007). A systematic review of the prevalence and covariates of anxiety in caregivers of people with dementia. International Psychogeriatrics, 19(2), 175-195. doi:10.1017/S1041610206004297
17. Cummings, J. L., Mega, M., Gray, K., Roenberg-Thompson, S., Carusi, D. A., & Gornbein, J. (1994). The Neuropsychiatric Inventory: Comprehensive assessment of psychopathology in dementia. Neurology, 44, 2308-2314.
18. De-la-Revilla, L., Bailon, E., De-Dios, J., & Delgado, A. (1991). Validación de una escala de apoyo social funcional para su uso en al consulta del médico de familia [Validity of a scale of functional social support for use in family practice consultation]. Atención Primaria, 8(9), 688-692.
19. Del-Pino-Casado, R., Frias-Osuna, A., & Palomino-Moral, P. A. (2011). Subjective burden and cultural motives for caregiving in informal caregivers of older people. Journal of Nursing Scholarship, 43(3), 282-291. doi:10.1111/j.1547-5069.2011.01407.x
20. Del-Pino-Casado, R., Frias-Osuna, A., Palomino-Moral, P. A., & Ramon Martinez-Riera, J. (2012). Gender differences regarding informal caregivers of older people. Journal of Nursing Scholarship, 44(4), 349-357. doi:10.1111/j.1547-5069.2012.01477.x
21. Dilworth-Anderson, P., Goodwin, P. Y., & Williams, S. W. (2004). Can culture help explain the physical health effects of caregiving over time among African American caregivers? Journals of Gerontology. Series B: Psychological Science and Social Science, 59(3), 138-145.
22. Dwyer, J. W., Lee, G. R., & Jankowski, T. B. (1994). Reciprocity, elder satisfaction, and caregiver stress and burden: The exchange of aid in the family caregiving relationship. Journal of Marriage and the Family, 56(1), 35-43.
23. Dwyer, J. W., & Miller, M. K. (1990). Determinants of primary caregiver stress and burden: Area of residence and the caregiving networks of frail elders. Journal of Rural Health, 6(2), 161-184.
24. Gort, A. M., Mingot, M., Gomez, X., Soler, T., Torres, G., Sacristan, O. (2007). Use of the Zarit Scale for assessing caregiver burden and collapse in caregiving at home in dementias. International Journal of Geriatric Psychiatry, 22(10), 957-962. doi:10.1002/gps.1770
25. Hoffmann, R. L., & Mitchell, A. M. (1998). Caregiver burden: Historical development. Nursing Forum, 33(4), 5-11.
26. Houde, S. C. (2002). Methodological issues in male caregiver research: An integrative review of the literature. Journal of Advanced Nursing, 40(6), 626-640.
27. Hsu, H. C., & Shyu, Y. I. (2003). Implicit exchanges in family caregiving for frail elders in Taiwan. Qualitative Health Research, 13(8), 1078-1093.
28. Hughes, S. L., Giobbie-Hurder, A., Weaver, F. M., Kubal, J. D., & Henderson, W. (1999). Relationship between caregiver burden and health-related quality of life. Gerontologist, 39(5), 534-545.
29. Instituto de Mayores y Servicios Sociales. (2005). Cuidados a las personas mayores en los hogares españoles. El entorno familiar [Care for elder people in Spanish homes. Family environment]. Madrid, Spain: Author.
30. Kim, J. S., & Lee, E. H. (2003). Cultural and noncultural predictors of health outcomes in Korean daughter and daughter-in-law caregivers. Public Health Nursing, 20(2), 111-119.
31. Knight, B. G., Robinson, G. S., Longmire, C. V. F., Chun, M., Nakao, K., & Kim, J. H. (2002). Cross cultural issues in caregiving for persons with dementia: Do familism values reduce burden and distress? Ageing International, 27(3), 70-94.
32. Knight, B. G., & Sayegh, P. (2010). Cultural values and caregiving: The updated Sociocultural Stress and Coping Model. Journals of Gerontology. Series B: Psychological Science and Social Science, 65(1), 5-13. doi:10.1093/geronb/gbp096
33. Lai, D. W. L. (2010). Filial piety, caregiving appraisal, and caregiving burden. Research on Aging, 32(2), 200-223. doi:10.1177/0164027509351475
34. Landis, J. R., & Koch, G. G. (1977). The measurement of observer agreement for categorical data. Biometrics, 33(1), 159-174.
35. Lawshe, C. H. (1975). A quantitative approach to content validity. Personnel Psychology, 28(4), 563-575.
36. Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal and coping. New York: Springer.
37. López Alonso, S. R., & Moral Serrano, M. S. (2005). Validación del Índice de Esfuerzo del Cuidador en la población española [Validation of the Caregiver Strain Index in a Spanish population]. Enfermería Comunitaria, 1(1), 12-17.
38. Losada, A., Marquez-Gonzalez, M., Knight, B. G., Yanguas, J., Sayegh, P., & Romero-Moreno, R. (2010). Psychosocial factors and caregivers' distress: Effects of familism and dysfunctional thoughts. Aging and Mental Health, 14(2), 193-202. doi:10.1080/13607860903167838
39. Losada, A., Robinson Shurgot, G., Knight, B. G., Marquez, M., Montorio, I., Izal, M. (2006). Cross-cultural study comparing the association of familism with burden and depressive symptoms in two samples of Hispanic dementia caregivers. Aging and Mental Health, 10(1), 69-76. doi:10.1080/13607860500307647
40. Mahoney, F. I., & Barthel, D. W. (1965). Functional evaluation: The Barthel Index. Maryland State Medical Journal, 14, 61-65.
41. Martínez de la Iglesia, J., Duenas Herrero, R., Onis Vilches, M. C., Aguado Taberne, C., Albert Colomer, C., & Luque Luque, R. (2001). Adaptación y validación al castellano del cuestionario de Pfeiffer (SPMSQ) para detectar la existencia de deterioro cognitivo en personas mayores de 65 años [Spanish validation of the Pfeiffer test (SPMSQ) for assessing cognitive impairment in older people]. Medicina Clínica (Barc), 117(4), 129-134.
42. Organization for Economic Cooperation and Development. (2005). Long-term care for older people. Paris: Author.
43. Organization for Economic Cooperation and Development. (2009). The long-term care workforce: Overview and strategies to adapt supply to a growing demand. Paris, France: Author.
44. Pfeiffer, E. (1975). A short portable mental status questionnaire for the assessment of organic brain deficit in elderly patients. Journal of the American Geriatrics Society, 23(10), 433-441.
45. Pinquart, M., & Sorensen, S. (2003a). Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: A meta-analysis. Journals of Gerontology. Series B: Psychological Science and Social Science, 58(2), 112-128.
46. Pinquart, M., & Sorensen, S. (2003b). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18, 250-267.
47. Pinquart, M., & Sorensen, S. (2005). Ethnic differences in stressors, resources, and psychological outcomes of family caregiving: A meta-analysis. Gerontologist, 45(1), 90-106.
48. Pinquart, M., & Sorensen, S. (2006). Gender differences in caregiver stressors, social resources, and health: An updated meta-analysis. Journals of Gerontology. Series B: Psychological Science and Social Science, 61(1), 33-45.
49. Pinquart, M., & Sorensen, S. (2011). Spouses, adult children, and children-in-law as caregivers of older adults: A meta-analytic comparison. Psychology and Aging, 26(1), 1-14. doi:10.1037/a0021863
50. Pruchno, R. A., Brill, J. E., Shands, Y., Gordon, J. R., Genderson, M. W., & Rose, M. (2008). Convenience samples and caregiving research: How generalizable are the findings? Gerontologist, 48(6), 820-827.
51. Reid, C. E., Moss, S., & Hyman, G. (2005). Caregiver reciprocity: The effect of reciprocity, carer self-esteem and motivation on the experience of caregiver burden. Australian Journal of Psychology, 57(3), 186-196.
52. Robinson, B. C. (1983). Validation of a Caregiver Strain Index. Journal of Gerontology, 38(3), 344-348.
53. Romero-Moreno, R., Marquez-Gonzalez, M., Losada, A., & Lopez, J. (2011). Motives for caring: Relationship to stress and coping dimensions. International Psychogeriatrics, 23(4), 573-582. doi:10.1017/S1041610210001821
54. Ryan, R. M., & Deci, E. L. (2004). Overview of Self-Determination Theory: An organismic dialectical perspective. In E. Deci & R. Ryan (Eds.), Handbook of self-determination research (pp. 3-36). Rochester, NY: University of Rochester Press.
55. Sahlins, M. (1972). On the sociology of primitive exchange. In M. Sahlins (Ed.), Stone age economics (pp. 185-275). New York: Aldine-Atherton.
56. Sayegh, P., & Knight, B. G. (2011). The effects of familism and cultural justification on the mental and physical health of family caregivers. Journals of Gerontology. Series B: Psychological Science and Social Science, 66(1), 3-14. doi:10.1093/geronb/gbq061
57. Schneider, J., Murray, J., Banerjee, S., & Mann, A. (1999). EUROCARE: A cross-national study of co-resident spouse carers for people with Alzheimer's disease: I-Factors associated with carer burden. International Journal of Geriatric Psychiatry, 14(8), 651-661.
58. Serrano-Aguilar, P. G., Lopez-Bastida, J., & Yanes-Lopez, V. (2006). Impact on health-related quality of life and perceived burden of informal caregivers of individuals with Alzheimer's disease. Neuroepidemiology, 27(3), 136-142. doi:10.1159/000095760
59. Smerglia, V. L., Miller, N. B., Sotnak, D. L., & Geiss, C. A. (2007). Social support and adjustment to caring for elder family members: A multi-study analysis. Aging and Mental Health, 11(2), 205-217. doi:10.1080/13607860600844515
60. Stiens, G., Maeck, L., & Stoppe, G. (2006). Filial maturity as a predictor for the burden of demented parents' caregivers. Zeitschrift für Gerontologie und Geriatrie, 39(2), 120-125. doi:10.1007/s00391-006-0336-z
61. Van Den Wijngaart, M. A., Vernooij-Dassen, M. J., & Felling, A. J. (2007). The influence of stressors, appraisal and personal conditions on the burden of spousal caregivers of persons with dementia. Aging and Mental Health, 11(6), 626-636. doi:10.1080/13607860701368463
62. Venables, W. N., & Ripley, B. D. (2002). Modern applied statistics with S. New York: Springer.
63. Vilalta-Franch, J., Lozano-Gallego, M., Hernández-Ferrándiz, M., Llinás-Reglá, J., López-Pousa, S., & López, O. L. (1999). Neuropsychiatric Inventory. Propiedades psicométricas de su adaptación al español [Neuropsychiatric Inventory. Psychometric properties of its adaptation to Spanish]. Revista de Neurología, 29(1), 15-19.
64. Vrabec, N. J. (1997). Literature review of social support and caregiver burden, 1980 to 1995. Journal of Nursing Scholarship, 29(4), 383-388.
65. Wright, D. L., & Aquilino, W. S. (1998). Influence of emotional support exchange in marriage on caregiving wives' burden and marital satisfaction. Family Relations, 47(2), 195-204.
66. Zarit, S. H., Reever, K. E., & Bach-Peterson, J. (1980). Relatives of the impaired elderly: Correlates of feelings of burden. Gerontologist, 20(6), 649-654.