The influence of stressors, appraisal and personal conditions on the burden of spousal caregivers of persons with dementia

Aging and Mental Health

Volumn 11, Issue 6, 2007, Pages 626-636

  Wijngaart, M A G Van Den ^a,c   Vernooij Dassen, M J F J ^b   Felling, A J A ^a  

^a RADBOUD UNIVERSITY NIJMEGEN   (Netherlands)

^b RADBOUD UNIVERSITY MEDICAL CENTER   (Netherlands)

^c ITS   (Netherlands)

Author keywords

[No Author keywords available]

Indexed keywords

AGED; ARTICLE; BEHAVIOR DISORDER; CAREGIVER; CAREGIVER BURDEN; CONCEPTUAL FRAMEWORK; COPING BEHAVIOR; DEMENTIA; FEMALE; HEALTH STATUS; HUMAN; MAJOR CLINICAL STUDY; MALE; PRIORITY JOURNAL; QUALITY OF LIFE; SELF CONCEPT; SOCIOPATHY;

AGED; ATTITUDE; CAREGIVERS; COST OF ILLNESS; DEMENTIA; DEMOGRAPHY; FEMALE; HUMANS; LIFE CHANGE EVENTS; MALE;

EID: 37049032518     PISSN: 13607863     EISSN: 13646915     Source Type: Journal    
DOI: 10.1080/13607860701368463     Document Type: Article

References (52)

1. Almberg, B., Grafström, M., & Winblad, B. (1997). Major strain and coping strategies as reported by family members who care for aged demented relatives. Journal of Advanced Nursing, 26, 683-691.
2. Aneshensel, C. S., Pearlin, L. I., Mullan, J. T., Zarit, S. H., & Whitlach, C. J. (1995). Profiles in caregiving: The unexpected career. San Diego, CA: Academic Press.
3. Anthony-Bergstone, C. R., Zarit, S. H., & Gatz, M. (1988). Symptoms of psychological distress among caregivers of dementia patients. Psychology and Aging, 3, 245-248.
4. Bedard, M., Kuzik, R., Chambers, L., Molloy, D. W., Dubois, S., & Lever, J. A. (2005). Understanding burden differences between men and women caregivers: The contribution of care-recipient problem behaviors. International Psychogeriatrics, 17, 99-118.
5. Blom, M., & Duijnstee, M. (1995). Zorgkompas. Interviewschema om de belasting van familieleden van dementerenden in kaart te brengen. [Care Compass. An interview manual to measure the burden of family members of persons with dementia]. Utrecht: NIZW.
6. Bosscher, R. J., Smit, J. H., & Kempen, G. I. J. M. (1997). Algemene competentieverwachtingen bij ouderen. Een onderzoek naar de psychometrische kenmerken van de Algemene Competentieschaal (ALCOS). [Self-efficacy beliefs among elderly. A research to the psychometric properties of the Self-Efficacy Scale]. Nederlands Tijdschrift voor de Psychologie, 52, 239-248.
7. Chappel, N. L., & Reid, R. C. (2002). Burden and well-being among caregivers: Examining the distinction. Gerontologist, 42, 772-780.
8. Chou, K. R., Lamontagne, L. L., & Hepworth, J. T. (1999). Burden experienced by caregivers of relatives with dementia in Taiwan. Nursing Research, 48, 206-214.
9. Cohen, C., Teresi, J., & Blum, C. (1994). The role of caregiver social networks in Alzheimer's disease. Social Science & Medicine, 38, 1483-1490.
10. Donaldson, C., Tarrier, N., & Burns, A. (1997). The impact of the symptoms of dementia on caregivers. British Journal of Psychiatry, 170, 62-68.
11. Droës, R. M. (1996). Amsterdamse ontmoetingscentra: een nieuwe vorm van ondersteuning voor dementerende mensen en hun verzorgers. Eindrapport. [Amsterdam Meeting Centres: A new support program for demented persons and their caregivers. Final report] Amsterdam: Thesis Publishers.
12. Folkman, S., & Lazarus, R. S. (1988). Coping as a mediator of emotion. Journal of Personality and Social Psychology, 54, 466-475.
13. Fortinsky, R. H., Kercher, K., & Burant, C. J. (2002). Measurement and correlates of family caregiver self-efficacy for managing dementia. Aging & Mental Health, 6, 153-160.
14. Gaugler, J. E., Davey, A., Pearlin, L. I., & Zarit, S. H. (2000). Modeling caregiver adaptation over time: The longitudinal impact of behavior problems. Psychology and Aging, 15, 437-450.
15. George, L. K., & Gwyther, L. P. (1986). Caregiver well-being: A multidimensional examination of family caregivers of demented adults. Gerontologist, 26, 253-260.
16. Gilliam, C. M., & Steffen, A. M. (2006). The relationship between caregiving self-efficacy and depressive symptoms in dementia family caregivers. Aging & Mental Health, 10, 79-86.
17. Gonyea, J. G., O'connor, M., Carruth, A., & Boyle, P. A. (2005). Subjective appraisal of Alzheimer's disease caregiving: The role of self-efficacy and depressive symptoms in the experience of burden. American Journal Alzheimer's Diseases and Other Dementia, 20, 273-280.
18. Goode, K. T., Haley, W. E., Roth, D. L., & Ford, G. R. (1998). Predicting longitudinal changes in caregiver physical and mental health: A stress process model. Health Psychology, 17, 190-198.
19. Graham, C., Ballard, C., & Sham, P. (1997). Carers' knowledge of dementia, their coping strategies and morbidity. International Journal of Geriatric Psychiatry, 12, 931-936.
20. Haley, W. E., Levine, E. G., Brown, S. L., & Bartolucci, A. A. (1987). Stress, appraisal, coping, and social support as predictors of adaptational outcome among dementia caregivers. Psychology and Aging, 2, 323-330.
21. Haley, W. E., Roth, D. L., Coleton, M. I., Ford, G. R., West, C. A. C., Collins, R. P., et al. (1996). Appraisal, coping, and social support as mediators of well-being in black and white family caregivers of patients with Alzheimer's disease. Journal of Consulting and Clinical Psychology, 64, 121-129.
22. Intrieri, R. C., & Rapp, S. R. (1994). Self-control skillfulness and caregiver burden among help-seeking elders. Journal of Gerontology: Psychological Sciences, 49, P19-P23.
23. Kempen, G. I. J. M., Doeglas, D. M., & Suurmeijer, T. P. B. M. (1993). Het meten van problemen met zelfredzaamheid op verzorgend en huishoudelijk gebied met de Groningen Activiteiten Restrictie Schaal (GARS). Een handleiding [The Groningen Activity Restriction Scale. A manual]. Groningen: NCG.
24. Kneebone, I. I., & Martin, P. R. (2003). Coping and caregivers of people with dementia. British Journal of Health Psychology, 8, 1-17.
25. Knight, B. G., Silverstein, M., Mccallum, T. J., & Fox, L. S. (2000). A sociocultural stress and coping model for mental health outcomes among African American caregivers in Southern California. Journal of Gerontology: Psychological Sciences, 55B, P142-P150.
26. Lazarus, R. S., & Folkman, S. (1984). Stress, appraisal and coping. New York: Springer.
27. Lazarus, R. S. (1993). Coping theory and research: Past, present and future. Psychosomatic Medicine, 55, 234-247.
28. Lutzky, S. M., & Knight, B. G. (1994). Explaining gender differences in caregiver distress: The roles of emotional attentiveness and coping styles. Psychology and Aging, 9, 513-519.
29. Matsuda, O. (1995). The effect of coping on the caregiver of elderly patients with dementia. Psychiatry and Clinical Neurosciences, 49, 209-212.
30. Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. Gerontologist, 30, 583-591.
31. Pinquart, M., & Sörensen, S. (2003). Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: A meta-analysis. Journal of Gerontology: Psychology Sciences, 58B, P112-P128.
32. Pot, A. M., Van Dyck, R., & Deeg, D. J. H. (1995). Ervaren druk door informele zorg. Constructie van een schaal. [Self-perceived pressure from informal care. Construction of a scale]. Tijdschrift voor Gerontologie en Geriatrie, 26, 214-219.
33. Proctor, R., Martin, C., & Hewison, J. (2002). When a little knowledge is a dangerous thing: A study of carers' knowledge about dementia, preferred coping style and psychological distress. International Journal of Geriatric Psychiatry, 17, 1133-1139.
34. Pruchno, R. A., & Resch, N. L. (1989). Mental health of caregiving spouses: Coping as a mediator, moderator or main effect? Psychology and Aging, 4, 454-463.
35. Schreurs, P. J. G., Van De Willige, G., Brosschot, J. F., Tellegen, B., & Graus, G. M. H. (1988). De Utrechtse Coping Lijst: UCL. Omgaan met problemen en gebeurtenissen. [The Utrecht Coping List: UCL. Coping with problems and events]. Lisse: Swets & Zeitlinger.
36. Schulz, R., & Williamson, G. M. (1991). A 2-year longitudinal study of depression among Alzheimer's caregivers. Psychology and Aging, 6, 569-578.
37. Schulz, R., O'Brien, A. T., Bookwala, J., & Fleissner, K. (1995). Psychiatric and physical morbidity effects of dementia caregiving: Prevalence, correlates and causes. Gerontologist, 35, 771-791.
38. Schulz, R., & Beach, S. R. (1999). Caregiving as a risk factor for mortality. The caregiver health effects study. Journal of the American Medical Association, 282, 2215-2219.
39. Shurgot, G. R., & Knight, B. G. (2005). Influence of neuroticism, ethnicity, familism and social support on perceived burden in dementia caregivers: Pilot test of the transactional stress and social support model. Journal of Gerontology: Psychological Sciences, 60B, P331-P334.
40. Stal, P. (1990). Psychosociale problemen, omstandigheden en reacties. Een onderzoek naar de wijze waarop mensen met psychosociale problemen omgaan. [Psychosocial problems, circumstances and reactions. A study regarding the way people cope with psychosocial problems]. Nijmegen: ITS.
41. Thompson, R. L., Lewis, S. L., Murphy, M. R., Hale, J. M., Blackwell, P. H., Acton, G. J., et al. (2004). Are there sex differences in emotional and biological responses in spousal caregivers of patients with Alzheimer's disease? Biological Research for Nursing, 5, 319-330.
42. Van Eijk, L. M., Kempen, G. I. J. M., & Van Sonderen, F. L. P. (1994). Een korte schaal voor het meten van sociale steun bij ouderen: De SSL12-I. [A short scale for measuring social support in the elderly: The SSL12-I]. Tijdschrift voor Gerontologie en Geriatrie, 25, 192-196.
43. Van Weel, C., König-Zahn, C., Touw-Otten, F. W. M. M., Van Duijn, N. P., & Meyboom-De Jong, B. (1995). Measuring functional health status with the COOP/WONCA Charts. A manual. Groningen: NCG.
44. Vernooij-Dassen, M. J. F. J., Persoon, J. M. G., & Felling, A. J. A. (1996). Predictors of sense of competence in caregivers of demented persons. Social Science & Medicine, 43, 41-49.
45. Vernooij-Dassen, M., Felling, A., & Persoon, J. (1997). Predictors of change and continuity in home care for dementia patients. International Journal of Geriatric Psychiatry, 12, 671-677.
46. Vernooij-Dassen, M. J. F. J., Van Hout, H. P. J., Hund, K. L. M., Hoefnagels, W. H. L., & Grol, R. P. T. M. (2003). Information for dementia patients and their caregivers: What information does a memory clinic pass on, and to whom? Aging & Mental Health, 7, 34-38.
47. Vitaliano, P. P., Russo, J., Young, H. M., Teri, L., & Maiuro, R. D. (1991). Predictors of burden in spouse caregivers of individuals with Alzheimer's Disease. Psychology and Aging, 6, 392-402.
48. Vitaliano, P. P., Zhang, J., & Scanlan, J. M. (2003). Is caregiving hazardous to one's physical health? A meta-analysis. Psychological Bulletin, 129, 946-972.
49. Winslow, B. W. (1997). Effects of formal support on stress outcomes in family caregivers of Alzheimer's patients. Research in Nursing & Health, 20, 27-37.
50. Wright, S. D., Pratt, C. C., & Schmall, V. L. (1985). Spiritual support for caregivers of dementia patients. Journal of Religion and Health, 24, 31-38.
51. Zanetti, O., Frisoni, G. B., Bianchetti, A., Tamanza, G., Cigoli, V., & Trabucchi, M. (1998). Depressive symptoms of Alzheimer caregivers are mainly due to personal rather than patient factors. International Journal of Geriatric Psychiatry, 13, 358-367.
52. Zarit, S. H., Todd, P. A., & Zarit, J. M. (1986). Subjective burden of husbands and wives as caregivers: A longitudinal study. Gerontologist, 26, 260-266.