Growing up and moving on - Transition of care for patients with childhood-Onset rheumatic disease

Journal of Rheumatology

Volumn 41, Issue 5, 2014, Pages 829-831

  Hersh, Aimee ^a  

^a UNIVERSITY OF UTAH SCHOOL OF MEDICINE   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

CHILD; CHILD CARE; CHILDHOOD DISEASE; CHRONIC INFLAMMATION; EDITORIAL; HEALTH CARE DELIVERY; HEALTH CARE NEED; HEALTH CARE QUALITY; HEALTH PROGRAM; HUMAN; JUVENILE RHEUMATOID ARTHRITIS; ONSET AGE; PRIORITY JOURNAL; RHEUMATIC DISEASE; RHEUMATOLOGY; SYSTEMIC LUPUS ERYTHEMATOSUS; TRANSITION TO ADULT CARE; FEMALE; MALE; QUESTIONNAIRE; RHEUMATIC DISEASES; STANDARDS;

FEMALE; HUMANS; MALE; QUALITY OF HEALTH CARE; QUESTIONNAIRES; RHEUMATIC DISEASES; TRANSITION TO ADULT CARE;

EID: 84899725128     PISSN: 0315162X     EISSN: 14992752     Source Type: Journal    
DOI: 10.3899/jrheum.140140     Document Type: Editorial

References (19)

1. Blum RW, Garell D, Hodgman CH, Jorissen TW, Okinow NA, Orr DP, et al. Transition from child-centered to adult health-care systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine. J Adolesc Health 1993;14:570-6. (Pubitemid 23345069)
2. Minden K, Niewerth M, Listing J, Biedermann T, Bollow M, Schöntube M, et al, Long-term outcome in patients with juvenile idiopathic arthritis. Arthritis Rheum 2002;46:2392-401.
3. Oen K, Malleson PN, Cabral DA, Rosenberg AM, Petty RE, Cheang M. Disease course and outcome of juvenile rheumatoid arthritis in a multicenter cohort. J Rheumatol 2002;29:1989-99. (Pubitemid 34988711)
4. Hersh AO, Trupin L, Yazdany J, Panopalis P, Julian L, Katz P, et al. Childhood-onset disease as a predictor of mortality in an adult cohort of patients with systemic lupus erythematosus. Arthritis Care Res 2010;62:1152-9.
5. Hersh AO, von Scheven E, Yazdany J, Panopalis P, Trupin L, Julian L, et al. Differences in long-term disease activity and treatment of adult patients with childhood- and adult-onset systemic lupus erythematosus. Arthritis Rheum 2009;61:13-20.
6. Tucker LB, Uribe AG, Fernández M, Vilá LM, McGwin G, Apte M, et al. Adolescent onset of lupus results in more aggressive disease and worse outcomes: results of a nested matched case-control study within LUMINA, a multiethnic US cohort (LUMINA LVII). Lupus 2008;17:314-22. (Pubitemid 351655799)
7. McDonnell WM, Kocolas I, Roosevelt GE, Yetman AT. Pediatric emergency department use by adults with chronic pediatric disorders. Arch Pediatr Adolesc Med 2010;164:572-6.
8. Pinsky BW, Takemoto SK, Lentine KL, Burroughs TE, Schnitzler MA, Salvalaggio PR. Transplant outcomes and economic costs associated with patient noncompliance to immunosuppression. Am J Transplant 2009;9:2597-606.
9. Shrestha SS, Zhang P, Barker L, Imperatore G. Medical expenditures associated with diabetes acute complications in privately insured U.S. youth. Diabetes Care 2010;33:2617-22.
10. Scal P, Horvath K, Garwick A. Preparing for adulthood: health care transition counseling for youth with arthritis. Arthritis Rheum 2009;61:52-7.
11. Reid GJ, Irvine MJ, McCrindle BW, Sananes R, Ritvo PG, Siu SC, et al. Prevalence and correlates of successful transfer from pediatric to adult health care among a cohort of young adults with complex congenital heart defects. Pediatrics 2004;113 Pt 1:e197-205.
12. Callahan ST, Winitzer RF, Keenan P. Transition from pediatric to adult-oriented health care: a challenge for patients with chronic disease. Curr Opin Pediatr 2001;13:310-6. (Pubitemid 32701858)
13. Geenen SJ, Powers LE, Sells W. Understanding the role of health care providers during the transition of adolescents with disabilities and special health care needs. J Adolesc Health 2003;32:225-33. (Pubitemid 36279407)
14. Reiss JG, Gibson RW, Walker LR. Health care transition: youth, family, and provider perspectives. Pediatrics 2005;115:112-20. (Pubitemid 43046289)
15. Robertson LP, McDonagh JE, Southwood TR, Shaw KL; British Society of Paediatric and Adolescent Rheumatology. Growing up and moving on. A multicentre UK audit of the transfer of adolescents with juvenile idiopathic arthritis from paediatric to adult centred care. Ann Rheum Dis 2006;65:74-80.
16. Holmes-Walker DJ, Llewellyn AC, Farrell K. A transition care programme which improves diabetes control and reduces hospitaladmission rates in young adults with Type 1 diabetes aged 15-25 years. Diabet Med 2007;24:764-9. (Pubitemid 47012129)
17. Okumura MJ, Ong T, Dawson D, Nielson D, Lewis N, Richards M, et al. Improving transition from paediatric to adult cystic fibrosis care: programme implementation and evaluation. BMJ Qual Saf 2014; Jan 10 (E-pub ahead of print).
18. Shaw KL, Watanabe A, Rankin E, McDonagh JE. Walking the talk. Implementation of transitional care guidance in a UK paediatric and a neighbouring adult facility. Child Care Health Dev 2013; Oct 21 (E-pub ahead of print).
19. Chira P, Ronis T, Ardoin S, White P. Transitioning youth with rheumatic conditions: Perspectives of pediatric rheumatology providers in the United States and Canada. J Rheumatol 2014;41:768-79.