"i can't do this, it's too much": Building social inclusion in cancer diagnosis and treatment experiences of Aboriginal people, their carers and health workers

International Journal of Public Health

Volumn 59, Issue 2, 2014, Pages 373-379

  Treloar, Carla ^a   Gray, Rebecca ^a   Brener, Loren ^a   Jackson, Clair ^a   Saunders, Veronica ^a,c   Johnson, Priscilla ^a,b   Harris, Magdalena ^a,d   Butow, Phyllis ^e   Newman, Christy ^a  

^a UNIVERSITY OF NEW SOUTH WALES   (Australia)

^b Camperdown Community Health Centre   (Australia)

^c CANCER RESEARCH DIVISION   (Australia)

^d LONDON SCHOOL OF HYGIENE AND TROPICAL MEDICINE   (United Kingdom)

^e UNIVERSITY OF SYDNEY   (Australia)

Author keywords

Aborigine; Australia; Cancer; Diagnosis; Socio economic security; Treatment; Trust

Indexed keywords

ADULT; AGED; AUSTRALIA; ETHNOLOGY; FEMALE; HEALTH CARE DELIVERY; HUMAN; MALE; MIDDLE AGED; NEOPLASMS; OCEANIC ANCESTRY GROUP; PATIENT ATTITUDE; PSYCHOLOGY; QUALITATIVE RESEARCH; SOCIAL EXCLUSION;

ADULT; AGED; FEMALE; HEALTH SERVICES ACCESSIBILITY; HUMANS; MALE; MIDDLE AGED; NEOPLASMS; NEW SOUTH WALES; OCEANIC ANCESTRY GROUP; PATIENT ACCEPTANCE OF HEALTH CARE; QUALITATIVE RESEARCH; SOCIAL MARGINALIZATION;

EID: 84899437268     PISSN: 16618556     EISSN: 1420911X     Source Type: Journal    
DOI: 10.1007/s00038-013-0466-1     Document Type: Article

References (34)

1. Arthurson K, Jacobs K (2004) A critique of the concept of social exclusion and its utility for Australian social housing policy. Aust J Soc Issues 39(1):25-41
2. Atkinson A, Hills J (1998) Exclusion, employment and opportunity. LSE STICERD Research Paper No. CASE004. Centre for Analysis of Social Exclusion, London
3. Australian Bureau of Statistics and Australian Institute of Health and Welfare (2008) The health and welfare of Australia's Aboriginal and Torres Strait Islander peoples 2008. Canberra, ABS and AIHW (ABS Cat. No. 4704.0; AIHW Cat. No. IHW 21)
4. Australian Institute of Health and Welfare (2011) The health and welfare of Australia's Aboriginal and Torres Strait Islander people, an overview 2011. AIHW, Canberra
5. Center to Reduce Cancer Health Disparities. "Patient Navigation research program". http://crchd.cancer.gov/pnp/pnrp-index.html. Retrieved Accessed 16 Nov 2011
6. Commission of the European Communities (1993) Background Report: Social Exclusion - Poverty and Other Social Problems in the European Community, ISEC/B11/93. Office for Official Publications of the European Communities, Luxembourg
7. Commonwealth of Australia (2009) Closing the gap on indigenous disadvantage: the challenge for Australia. Commonwealth of Australia, Canberra
8. Couzos S, Murray R (2007) Aboriginal primary health care: An evidence-based approach. Oxford University Press, South Melbourne
9. Cunningham J, Rumbold A et al (2008) Incidence, aetiology, and outcomes of cancer in Indigenous peoples in Australia. Lancet Oncol 9:585-595 (Pubitemid 351722583)
10. Davidson P, Page K (2012) Research participation as work: comparing the perspectives of researchers and economically marginalized populations. Am J Public Health 102(7):1254-1259
11. Farmer P (1997) Social scientists and the new tuberculosis. Soc Sci Med 44(3):347-358 (Pubitemid 27032453)
12. Garvey G, Cunningham J et al (2011) Reducing the burden of cancer for Aboriginal and Torres Strait Islander Australians: time for a coordinated, collaborative, priority-driven, Indigenous-led research program. Med J Aust 194(10):530-531
13. Hunter B (2008) Indigenous social exclusion: insights and challenges for the concept of social inclusion. Social Inclusion Down Under Symposium, University of Melbourne, The Brotherhood of St Laurence
14. Hunter B, Jordan K (2010) Explaining social exclusion: towards social inclusion for Indigenous Australians. Aust J Social Issues 45(2):243-265
15. Kowal E, Paradies Y (2010) Enduring dilemmas of Indigenous health: recognising the tensions inherent in all efforts to bring about change in Indigenous health outcomes. MJA 192(10):599-600
16. Linda Burhansstipanov L, Bad Wound D et al (1998) Culturally relevant "Navigator" patient support the native sisters. Cancer Pract 6(3):191-194 (Pubitemid 28225642)
17. Loppie C, Wien F (2005) Our journey: first nations experience of navigating cancer care. Cancer Care Nova Scotia, Halifax
18. Marmot M (2003) Understanding social inequalities in health. Perspect Biol Med 46(3):S9-S23
19. Mechanic D, Meyer S (2000) Concepts of trust among patients with serious illness. Soc Sci Med 51:657-668 (Pubitemid 30316320)
20. Newman C, Butow P et al (2008) Cancer and Aboriginal people in Australia: A review of the literature. Crit Public Health 18(1):65-75 (Pubitemid 351637706)
21. Norris R (2001) Australian Indigenous Employment Disadvantage: What, why and where to from here? J Econ Social Policy 5(2): Article 2
22. Norris R (2011) The more things change the origins and impact of Australian Indigenous economic exclusion. Brisbane, Post Pressed
23. Saunders P, Naidoo Y et al (2008) Towards new indicators of disadvantage: deprivation and social exclusion in Australia. Aust J Soc Issues 43(2):175
24. Shahid S, Finn L et al (2009a) Understanding, beliefs and perspectives of Aboriginal people in Western Australia about cancer and its impact on access to cancer services. BMC Health Serv Res 9(132):1-9
25. Shahid S, Finn L et al (2009b) Barriers to participation of Aboriginal people in cancer care: communication in the hospital setting. Med J Aust 190(10):574-579
26. Shahid S, Bleam R et al (2010) If you don't believe it, it won't help you": use of bush medicine in treating cancer among Aboriginal people in Western Australia. J Ethnobiol Ethnomed 6:1-22
27. Shahid S, Finn L et al (2011) 'Nowhere to room... nobody told them': logistical and cultural impediments to Aboriginal peoples' participation in cancer treatment. Aust Health Rev 35:235-241
28. Thorne S (2008) Interpretive description. Left Coast Print, Inc, Walnut Creek
29. Thorne S, Reimer Kirkham S et al (2004) The analytic challenge in interpretive description. Int J Qual Methods 3(1):1-15
30. Ward P, Meyer S, et al (2011) Complex problems require complex solutions: the utility of social quality theory for addressing the Social Determinants of Health. BMC Pub Health 11:630
31. Wells K, Battaglia T et al (2008) Patient navigation: state of the art, or is it science? Cancer 15(113):8
32. Whop L, Valery P et al (2012) Navigating the cancer journey: A review of patient navigator programs for Indigenous cancer patients. Asia-Pac J Clin Oncol 8(4):e89-e96
33. Wilkinson R (1999) Putting the picture together: prosperity, redistribution, health and welfare. In: Marmot M, Wilkinson R (eds) Social determinants of health. Oxford University Press, Oxford
34. Zhao Y, Dempsey K (2006) Causes of inequality in life expectancy between Indigenous and non-Indigenous people in the Northern Territory, 1981-2000: A decomposition analysis. Med J Aust 184(10):490-494 (Pubitemid 43732933)