I did it for us and i would do it again: Perspectives of rural latinos on providing biospecimens for research

American Journal of Public Health

Volumn 104, Issue 5, 2014, Pages 911-916

  Hohl, Sarah D ^a   Gonzalez, Claire ^a,b   Carosso, Elizabeth ^a   Ibarra, Genoveva ^a   Thompson, Beti ^a  

^a Fred Hutchinson Cancer Research Center   (United States)

^b UNIVERSITY OF WASHINGTON   (United States)

Author keywords

[No Author keywords available]

Indexed keywords

PESTICIDE;

ADULT; AGRICULTURE; ARTICLE; FEMALE; HISPANIC; HUMAN; MALE; METHODOLOGY; MIDDLE AGED; MOTIVATION; OCCUPATIONAL EXPOSURE; PARTICIPATORY RESEARCH; PSYCHOLOGICAL ASPECT; RESEARCH SUBJECT; RURAL POPULATION; SOCIOECONOMICS;

ADULT; AGRICULTURE; COMMUNITY-BASED PARTICIPATORY RESEARCH; FEMALE; HISPANIC AMERICANS; HUMANS; MALE; MIDDLE AGED; MOTIVATION; OCCUPATIONAL EXPOSURE; PESTICIDES; RESEARCH SUBJECTS; RURAL POPULATION; SOCIOECONOMIC FACTORS;

EID: 84898669968     PISSN: 00900036     EISSN: 15410048     Source Type: Journal    
DOI: 10.2105/AJPH.2013.301726     Document Type: Article

References (50)

1. Vaught JB. Biorepository and biospecimen science: a new focus for CEBP. Cancer Epidemiol Biomarkers Prev. 2006;15(9):1572-1573.
2. De Souza YG, Greenspan JS. Biobanking past, present and future: responsibilities and benefits. AIDS. 2013; 27(3):303-312.
3. James RD, Yu JH, Henrikson NB, Bowen DJ, Fullerton SM, Health Disparities Working Group. Strategies and stakeholders: minority recruitment in cancer genetics research. Community Genet. 2008;11(4):241-249.
4. Grann VR. Erasing barriers to minority participation in cancer research. J Womens Health (Larchmt). 2010; 19(5):837-838.
5. Grann VR, Jacobson JS, Troxel AB, et al. Barriers to minority participation in breast carcinoma prevention trials. Cancer. 2005;104(2):374-379.
6. Murthy VH, Krumholz HM, Gross CP. Participation in cancer clinical trials: race-, sex-, and age-based disparities. JAMA. 2004;291(22):2720-2726.
7. Durant RW, Davis RB, St George DM, Williams IC, Blumenthal C, Corbie-Smith GM. Participation in research studies: factors associated with failing to meet minority recruitment goals. Ann Epidemiol. 2007;17(8):634-642.
8. Frieden TR, Centers for Disease Control and Prevention. Forward: CDC health disparities and inequalities report - United States, 2011. MMWR Surveill Summ. 2011;60 (suppl):1-2.
9. Passel JS, Cohn D, Lopez MH. Hispanics Account for More than Half of Nation?s Growth in Past Decade. Washington, DC: Pew Hispanic Center; 2011.
10. Larkey LK, Ogden SL, Tenorio S, Ewell T. Latino recruitment to cancer prevention/screening trials in the Southwest: setting a research agenda. Appl Nurs Res. 2008;21(1):30-39.
11. American Cancer Society. Cancer Facts and Figures for Hispanics and Latinos Available at: http://www. cancer.org/acs/groups/content/@epidemiologysurveilance/ documents/document/acspc-034778.pdf. Accessed Januray 16, 2013.. 2012.
12. Canales MK, Weiner D, Samos M, Wampler NS. Multi-generational perspectives on health, cancer, and biomedicine: Northeastern Native American perspectives shaped by mistrust. J Health Care Poor Underserved. 2011;22(3):894-911.
13. Sheppard VB, Cox LS, Kanamori MJ, et al. Brief report: if you build it, they will come: methods for recruiting Latinos into cancer research. J Gen Intern Med. 2005;20(5):444-447.
14. Katz RV, Green BL, Kressin NR, Claudio C, Wang MQ, Russell SL. Willingness of minorities to participate in biomedical studies: confirmatory findings from a follow-up study using the Tuskegee Legacy Project Questionnaire. J Natl Med Assoc. 2007;99(9):1052-1060.
15. Hiratsuka VY, Brown JK, Hoeft TJ, Dillard DA. Alaska native people?s perceptions, understandings, and expectations for research involving biological specimens. Int J Circumpolar Health. 2012;71:18642.
16. Ulrich A, Thompson B, Livaudais JC, Espinoza N, Cordova A, CoronadoGD. Issues in biomedical research:what do Hispanics think? Am J Health Behav. 2013;37(1):80-85.
17. UyBico SJ, Pavel S, Gross C. Recruiting vulnerable populations into research: a systematic review of recruitment interventions. J Gen InternMed. 2007;22(6):852-863.
18. Khaliq W, Gross M, Thyagarajan B, Jones-Webb R. What motivates minorities to participate in research? Minn Med. 2003;86(10):39-42.
19. Yancey AK, Ortega AN, Kumanyika SK. Effective recruitment and retention of minority research participants. Annu Rev Public Health. 2006;27(1):1-28.
20. Corbie-Smith G, Thomas SB, Williams MV, Moody- Ayers S. Attitudes and beliefs of African Americans toward participation in medical research. J Gen Intern Med. 1999;14(9):537-546.
21. Corbie-Smith G, Williams IC, Blumenthal C, Dorrance J, Estroff SE, Henderson G. Relationships and communication in minority participation in research: multidimensional and multidirectional. J Natl Med Assoc. 2007;99(5):489-498.
22. Hiratsuka V, Brown J, Dillard D. Views of biobanking research among Alaska native people: the role of community context. Prog Community Health Partnersh. 2012;6(2):131-139.
23. Luque JS, Quinn GP, Montel-Ishino FA, et al. Formative research on perceptions of biobanking: what community members think. J Cancer Educ. 2012;27(1):91-99.
24. Murphy J, Scott J, Kaufman D, Geller G, LeRoy L, Hudson K. Public perspectives on informed consent for biobanking. Am J Public Health. 2009;99(12):2128-2134.
25. Christopher S, Watts V, McCormick AK, Young S. Building and maintaining trust in a community-based participatory research partnership. Am J Public Health. 2008;98(8):1398-1406.
26. Kiviniemi MT, Saad-Harfouche FG, Ciupak GL, et al. Pilot intervention outcomes of an educational program for biospecimen research participation. J Cancer Educ. 2013;28(1):52-59.
27. De Las Nueces D, Hacker K, DiGirolamo A, Hicks LS. A systematic review of community-based participatory research to enhance clinical trials in racial and ethnicminority groups. Health Serv Res. 2012;47(3 Pt 2):1363-1386.
28. Horowitz CR, Robinson M, Seifer S. Communitybased participatory research from the margin to the mainstream: are researchers prepared? Circulation. 2009;119(19):2633-2642.
29. Coronado GD, Holte SE, Vigoren EM, et al. Do workplace and home protective practices protect farm workers? Findings from the ?For Healthy Kids? Study. J Occup Environ Med. 2012;54(9):1163-1169.
30. Coronado GD, Thompson B, Strong L, Griffith WC, Islas I. Agricultural task and exposure to organophosphate pesticides among farmworkers. Environ Health Perspect. 2004;112(2):142-147.
31. Curl CL, Fenske RA, Kissel JC, et al. Evaluation of take-home organophosphorus pesticide exposure among agricultural workers and their children. Environ Health Perspect. 2002;110(12):A787-A792.
32. Strong LL, Thompson B, Coronado GD, Griffith WC, Vigoren EM, Islas I. Health symptoms and exposure to organophosphate pesticides in farmworkers. Am J Ind Med. 2004;46(6):599-606.
33. Strong LL, Thompson B, Koepsell TD, Meischke H. Factors associated with pesticide safety practices in farmworkers. Am J Ind Med. 2008;51(1):69-81.
34. Thompson B, Coronado G, Puschel K, Allen E. Identifying constituents to participate in a project to control pesticide exposure in children of farmworkers. Environ Health Perspect. 2001;109(Suppl 3):443-448.
35. Thompson B, Coronado GD, Grossman JE, et al. Pesticide take-home pathway among children of agricultural workers: study design, methods, and baseline findings. J Occup Environ Med. 2003;45(1):42-53.
36. Thompson B, Coronado GD, Vigoren EM, et al. Para niños saludables: a community intervention trial to reduce organophosphate pesticide exposure in children of farmworkers. Environ Health Perspect. 2008;116(5):687-694.
37. Bernard HR. Research Methods in Anthropology: Qualitative and Quantitative Approaches. 4th ed. Lanham, MD: AltaMira Press; 2006.
38. Sandelowski M. Sample size in qualitative research. Res Nurs Health. 1995;18(2):179-183.
39. DeCuir-Gunby J, Marshall PL, McCulloch AW. Developing and using a codebook for the analysis of interview data: an example from a professional development research project. Field Methods. 2011;23(2):136-155.
40. MacQueen KM, McLellan E, Kay K, Milstein B. Codebook development for team-based qualitative analysis. Cult Anthropol Methods. 1998;10(2):31-36.
41. Miles MB, Huberman AM. Qualitative Data Analysis: An Expanded Sourcebook. 2nd ed. Thousand Oaks, CA: Sage Publications; 1994.
42. Glaser BG, Strauss AL. The Discovery of Grounded Theory: Strategies for Qualitative Research. New Brunswick, NJ: Aldine Transaction; 2006.
43. Sheikh A. Why are ethnicminorities under-represented in US research studies? PLoS Med. 2006;3(2):e49.
44. Andrés-Hyman RC, Ortiz J, Añez LM, Paris M, Davidson L. Culture and clinical practice: recommendations for working with Puerto Ricans and other Latinas(os) in the United States. Prof Psychol Res Pr. 2006;37(6):694-701.
45. Flores G. Culture and the patient-physician relationship: Achieving cultural competency in health care. J Pediatr. 2000;136(1):14-23.
46. Luque JS, Quinn GP, Montel-Ishino FA, Arevalo M, Bynum SA, Noel-Thomas S, et al. Formative research on perceptions of biobanking: what community members think. J Cancer Educ. 2012;27(1):91-99.
47. Halverson CM, Ross LF. Incidental findings of therapeutic misconception in biobank-based research. Genet Med. 2012;14(6):611-615.
48. Wendler D, Kington R, Madans J, et al. Are racial and ethnic minorities less willing to participate in health research? PLoS Med. 2006;3(2):e19.
49. Hopwood CJ, Flato CG, Ambwani S, Garland BH, Morey LC. A comparison of Latino and Anglo socially desirable responding. J Clin Psychol. 2009;65(7):769-780.
50. Comas-Díaz L. Hispanics, Latinos, or Americanos: the evolution of identity. Cultur Divers Ethnic Minor Psychol. 2001;7(2):115.