Multicentric study of medical care and practices in spinal muscular atrophy type 1over two 10-year periods;Amyotrophie spinale type 1: Enquête multicentrique des pratiques de soins et d'accompagnement palliatif sur deux périodes successives de 10ans

Archives de Pediatrie

Volumn 21, Issue 4, 2014, Pages 347-354

  Barnerias C ^a   Quijano, S ^b   Mayer, M ^c   Estournet, B ^b   Cuisset, J M ^d   Sukno, S ^e   Peudenier, S ^f   Laroche, C ^g   Chabrier, S ^h   Sabouraud, P ⁱ   Vuillerot, C ^j   Chabrol, B ^k   Halbert, C ^k   Cances C ^l   Beze Beyrie, P ^m   Ledivenah, A ⁿ   Viallard, M L ⁿ   Desguerre, I ^a  

^a Unité de neuropédiatrie HÔpital Necker enfants malades AP HP   (France)

^b Serv de Reanimation Med   (France)

^c Service de neuropédiatrie HÔpital Armand Trousseau AP HP   (France)

^d Service de neuropédiatrie HÔpital Jeanne de Flandres   (France)

^e HÔPITAL SAINT VINCENT DE PAUL   (France)

^f CHU MORVAN   (France)

^g Service d'Histologie et de Cytogénétique Hôpital de la Mère et de l'Enfant   (France)

^h HÔPITAL NORD   (France)

ⁱ AMERICAN MEMORIAL HOSPITAL   (France)

^j CENTRE HOSPITALIER LYON SUD   (France)

^k Service de neuropédiatrie HÔpital Gui de Chauliac   (France)

^l Unité de neuropédiatrie HÔpital des Enfants   (France)

^m CENTRE HOSPITALIER DE PAU   (France)

ⁿ Necker Enfants malades   (France)

more..

Author keywords

[No Author keywords available]

Indexed keywords

ANALGESIC AGENT; BENZODIAZEPINE DERIVATIVE; MORPHINE; OXYGEN; SEDATIVE AGENT;

ARTICLE; ASSISTED VENTILATION; CHILD; CHILD DEATH; CLINICAL FEATURE; CLINICAL PRACTICE; DRUG USE; ENTERIC FEEDING; GASTROSTOMY; HOME; HUMAN; INFANT; INTUBATION; MAJOR CLINICAL STUDY; MEDICAL CARE; MOTOR SUPPORT; NASAL CANNULA; NASOGASTRIC TUBE; NASOPHARYNGEAL ASPIRATION; NONINVASIVE VENTILATION; ONSET AGE; OXYGEN THERAPY; PALLIATIVE THERAPY; PEDIATRIC WARD; PHARYNGEAL ASPIRATION; PHYSIOTHERAPY; RETROSPECTIVE STUDY; SPINAL MUSCULAR ATROPHY; SPINAL MUSCULAR ATROPHY TYPE 1; TREND STUDY; CLINICAL TRIAL; FEMALE; FRANCE; KINESIOTHERAPY; MALE; MORTALITY; MULTICENTER STUDY; NEWBORN; PROCEDURES; SPINAL MUSCULAR ATROPHIES OF CHILDHOOD; SURVIVAL;

ENTERAL NUTRITION; EXERCISE THERAPY; FEMALE; FRANCE; GASTROSTOMY; HUMANS; INFANT; INFANT, NEWBORN; MALE; NONINVASIVE VENTILATION; OXYGEN INHALATION THERAPY; PALLIATIVE CARE; RETROSPECTIVE STUDIES; SPINAL MUSCULAR ATROPHIES OF CHILDHOOD; SURVIVAL ANALYSIS;

EID: 84897039497     PISSN: 0929693X     EISSN: 1769664X     Source Type: Journal    
DOI: 10.1016/j.arcped.2014.01.017     Document Type: Article

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