메뉴 건너뛰기




Volumn 6, Issue 3, 2005, Pages 209-214

Ethical aspects of home long term ventilation in children with neuromuscular disease

Author keywords

Duchenne muscular dystrophy; Ethics; Long term ventilation; Spinal muscular atrophy

Indexed keywords

ARTICLE; ARTIFICIAL VENTILATION; BENEFICENCE; CHILD; CHILDHOOD DISEASE; CLINICAL PRACTICE; COHORT ANALYSIS; DUCHENNE MUSCULAR DYSTROPHY; GENE MUTATION; GENETIC RISK; GENETIC SUSCEPTIBILITY; HEREDITARY SPINAL MUSCULAR ATROPHY; HOME CARE; HUMAN; HUMAN RIGHTS; LONG TERM CARE; MEDICAL DECISION MAKING; MEDICAL ETHICS; NEUROMUSCULAR DISEASE; PRIORITY JOURNAL; QUALITY OF LIFE; RISK ASSESSMENT; SURVIVAL RATE; SURVIVAL TIME;

EID: 24344485476     PISSN: 15260542     EISSN: 15260550     Source Type: Journal    
DOI: 10.1016/j.prrv.2005.06.003     Document Type: Review
Times cited : (53)

References (24)
  • 1
    • 0242368431 scopus 로고    scopus 로고
    • Home mechanical ventilation in 16 European Countries - A major survey of custom and practice
    • S.J. Lloyd-Owen J.A. Wedzicha Home mechanical ventilation in 16 European Countries - a major survey of custom and practice Eur Respir J 20 2002 626s
    • (2002) Eur. Respir. J. , vol.20
    • Lloyd-Owen, S.J.1    Wedzicha, J.A.2
  • 2
    • 0025319713 scopus 로고
    • Gene for chronic proximal spinal muscular atrophies maps to chromosome 5 q
    • J. Melki S. Abdelhak P. Sheth et al. Gene for chronic proximal spinal muscular atrophies maps to chromosome 5 q Nature 344 1990 767-768
    • (1990) Nature , vol.344 , pp. 767-768
    • Melki, J.1    Abdelhak, S.2    Sheth, P.3
  • 3
    • 0002428443 scopus 로고
    • Disorders of the lower motor neurone: The spinal muscular atrophies
    • V. Dubowitz ed: W.B Saunders Company Ltd London
    • V. Dubowitz Disorders of the lower motor neurone: The spinal muscular atrophies In: V. Dubowitz ed: Muscle disoders in childhood 1995 W.B Saunders Company Ltd London 325-367
    • (1995) Muscle Disoders in Childhood , pp. 325-367
    • Dubowitz, V.1
  • 5
    • 4544350134 scopus 로고    scopus 로고
    • Respiratory capacity course in patients with infantile spinal muscular atrophy
    • C. Ioos D. Leclair-Richard S. Mrad A. Barois B. Estournet-Mathiaud Respiratory capacity course in patients with infantile spinal muscular atrophy Chest 126 2004 831-837
    • (2004) Chest , vol.126 , pp. 831-837
    • Ioos, C.1    Leclair-Richard, D.2    Mrad, S.3    Barois, A.4    Estournet-Mathiaud, B.5
  • 7
    • 0034007507 scopus 로고    scopus 로고
    • Spinal muscular atrophy Type I: A noninvasive respiratory management approach
    • J.R. Bach V. Niranjan B. Weaver Spinal muscular atrophy Type I: A noninvasive respiratory management approach Chest 117 2000 1100-1105
    • (2000) Chest , vol.117 , pp. 1100-1105
    • Bach, J.R.1    Niranjan, V.2    Weaver, B.3
  • 8
    • 0032077081 scopus 로고    scopus 로고
    • Treatment of Type I spinal muscular atrophy with non-invasive ventilation and gastrostomy feeding
    • D.J. Birnkrant J.F. Pope J.E. Martin A.H. Repucci R.M. Eiben Treatment of Type I spinal muscular atrophy with non-invasive ventilation and gastrostomy feeding Pediatr Neurol 18 1998 407-410
    • (1998) Pediatr. Neurol. , vol.18 , pp. 407-410
    • Birnkrant, D.J.1    Pope, J.F.2    Martin, J.E.3    Repucci, A.H.4    Eiben, R.M.5
  • 10
    • 0031759227 scopus 로고    scopus 로고
    • Impact of nasal ventilation on survival in hypercapnic Duchenne muscular dystrophy
    • A.K. Simonds F. Muntoni S. Heather S. Fielding Impact of nasal ventilation on survival in hypercapnic Duchenne muscular dystrophy Thorax 53 1998 949-952
    • (1998) Thorax , vol.53 , pp. 949-952
    • Simonds, A.K.1    Muntoni, F.2    Heather, S.3    Fielding, S.4
  • 11
    • 0036895043 scopus 로고    scopus 로고
    • Survival in Duchenne muscular dystrophy: Improvements in life expectancy since 1967 and the impact of home nocturnal ventilation
    • M. Eagle S. Baudouin C. Chandler D. Giddings R. Bullock K. Bushby Survival in Duchenne muscular dystrophy: Improvements in life expectancy since 1967 and the impact of home nocturnal ventilation Neuromusc Disord 12 2002 926-929
    • (2002) Neuromusc. Disord. , vol.12 , pp. 926-929
    • Eagle, M.1    Baudouin, S.2    Chandler, C.3    Giddings, D.4    Bullock, R.5    Bushby, K.6
  • 12
    • 0347480491 scopus 로고    scopus 로고
    • The Duchenne muscular dystrophy population in Denmark, 1977-2001: Prevalence, incidence and survival in relation to the introduction of ventilator use
    • J. Jeppesen A. Green B.F. Steffensen J. Rahbek The Duchenne muscular dystrophy population in Denmark, 1977-2001: Prevalence, incidence and survival in relation to the introduction of ventilator use Neuromusc Disord 13 2003 804-812
    • (2003) Neuromusc. Disord. , vol.13 , pp. 804-812
    • Jeppesen, J.1    Green, A.2    Steffensen, B.F.3    Rahbek, J.4
  • 13
    • 0033746324 scopus 로고    scopus 로고
    • Prevention of pulmonary morbidity for patients with neuromuscular disease
    • A.C. Tzeng J.R. Bach Prevention of pulmonary morbidity for patients with neuromuscular disease Chest 118 2000 1390-1396
    • (2000) Chest , vol.118 , pp. 1390-1396
    • Tzeng, A.C.1    Bach, J.R.2
  • 14
    • 0028291379 scopus 로고
    • Randomised trial of preventive nasal ventilation in Duchenne muscular dystrophy
    • J.-C. Raphael S. Chevret C. Chastang F. Bouvet Randomised trial of preventive nasal ventilation in Duchenne muscular dystrophy Lancet 343 1994 1600-1604
    • (1994) Lancet , vol.343 , pp. 1600-1604
    • Raphael, J.-C.1    Chevret, S.2    Chastang, C.3    Bouvet, F.4
  • 15
    • 18844474412 scopus 로고    scopus 로고
    • Respiratory support in spinal muscular atrophy type I: A survey of physician practices and attitudes
    • M.K.M. Hardart J. Burns R.D. Truog Respiratory support in spinal muscular atrophy type I: A survey of physician practices and attitudes Pediatrics 110 2002 e24
    • (2002) Pediatrics , vol.110
    • Hardart, M.K.M.1    Burns, J.2    Truog, R.D.3
  • 16
    • 0141859888 scopus 로고    scopus 로고
    • Spinal muscular atrophy - Type I. The challenge of defining the child's best interests
    • M.K.M. Hardart R.D. Truog Spinal muscular atrophy - type I. The challenge of defining the child's best interests Arch Dis Child 88 2003 848-850
    • (2003) Arch. Dis. Child , vol.88 , pp. 848-850
    • Hardart, M.K.M.1    Truog, R.D.2
  • 17
    • 0035092299 scopus 로고    scopus 로고
    • Long-term ventilation for patients with Duchenne muscular dystrophy. Physicians' beliefs and practices
    • B. Gibson Long-term ventilation for patients with Duchenne muscular dystrophy. Physicians' beliefs and practices Chest 119 2001 940-946
    • (2001) Chest , vol.119 , pp. 940-946
    • Gibson, B.1
  • 18
    • 0022399346 scopus 로고
    • Respirator use in progressive neuromuscular disease
    • A.P. Colbert N.C. Schock Respirator use in progressive neuromuscular disease Arch Phys Med Rehabil 66 1985 760-762
    • (1985) Arch. Phys. Med. Rehabil. , vol.66 , pp. 760-762
    • Colbert, A.P.1    Schock, N.C.2
  • 19
    • 0025835096 scopus 로고
    • Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support
    • J.R. Bach D.I. Campagnolo S. Hoeman Life satisfaction of individuals with Duchenne muscular dystrophy using long-term mechanical ventilatory support Am J Phys Med Rehabil 70 1991 129-135
    • (1991) Am. J. Phys. Med. Rehabil. , vol.70 , pp. 129-135
    • Bach, J.R.1    Campagnolo, D.I.2    Hoeman, S.3
  • 20
    • 24344452284 scopus 로고    scopus 로고
    • UK physicians' attitudes and practices of long term non-invaasive ventilation of children with Duchenne muscular dystrophy
    • (Abstract)
    • Kinali M, Mercuri E, Gibson BE et al. UK physicians' attitudes and practices of long term non-invasive ventilation of children with Duchenne muscular dystrophy. Thorax 2003; 58 (SIII); iii79. (Abstract).
    • (2003) Thorax , vol.58 , Issue.SUPPL. III
    • Kinali, M.1    Mercuri, E.2    Gibson, B.E.3
  • 21
    • 13844309580 scopus 로고    scopus 로고
    • ABC of adolescence. Consent, competence, and confidentiality
    • V. Larcher ABC of adolescence. Consent, competence, and confidentiality Br Med J 330 2005 353-356
    • (2005) Br. Med. J. , vol.330 , pp. 353-356
    • Larcher, V.1
  • 22
    • 0033846817 scopus 로고    scopus 로고
    • Long-term ventilator support in patients with Werdnig-Hoffman disease
    • Y. Sakakihara M. Kubota S. Kim A. Oka Long-term ventilator support in patients with Werdnig-Hoffman disease Pediatr Int 42 2000 359-363
    • (2000) Pediatr. Int. , vol.42 , pp. 359-363
    • Sakakihara, Y.1    Kubota, M.2    Kim, S.3    Oka, A.4
  • 23
    • 0041348964 scopus 로고    scopus 로고
    • Attitudes and preferences of intensivists regarding the role of family interests in medical decision making for incompetent patients
    • G.E. Hardart R.D. Truog Attitudes and preferences of intensivists regarding the role of family interests in medical decision making for incompetent patients Crit Care Med 31 2003 1895-1900
    • (2003) Crit. Care Med. , vol.31 , pp. 1895-1900
    • Hardart, G.E.1    Truog, R.D.2


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.