Survival in SMA type 1

Neuromuscular Disorders

Volumn 19, Issue 1, 2009, Pages 76-

  Kaufmann, Petra ^a   Greiss, Christine ^b   Brown, Janice ^b  

^a Columbia University ^*  (United States)

^b UNIVERSITY OF MEDICINE AND DENTISTRY OF NEW JERSEY   (United States)

Author keywords

Spinal muscular atrophy type 1

Indexed keywords

ASSISTED VENTILATION; HEALTH CARE PERSONNEL; HUMAN; LETTER; PALLIATIVE THERAPY; PRIORITY JOURNAL; QUALITY OF LIFE; SPINAL MUSCULAR ATROPHY; SURVIVAL;

CAREGIVERS; CHILD; CHILD, PRESCHOOL; CLINICAL TRIALS AS TOPIC; HUMANS; INFANT; INFANT, NEWBORN; NETHERLANDS; PALLIATIVE CARE; QUALITY OF HEALTH CARE; QUALITY OF LIFE; RESPIRATORY INSUFFICIENCY; SPINAL MUSCULAR ATROPHIES OF CHILDHOOD; SURVIVAL RATE; UNITED STATES;

EID: 58849116696     PISSN: 09608966     EISSN: None     Source Type: Journal    
DOI: 10.1016/j.nmd.2008.10.010     Document Type: Letter

References (5)

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2. Wang C.H., Finkel R.S., Bertini E.S., Schroth M., et al. Consensus statement for standard of care in spinal muscular atrophy. J Child Neurol 22 (2007) 1027-1049
3. Bach J.R., Saltstein K., Sinquee D., Weaver B., and Komaroff E. Long-term survival in Werdnig-Hoffmann disease. Am J Phys Med Rehabil 86 (2007) 339-345
4. Oskoui M., Levy G., Garland C.J., Gray J.M., O'Hagen J., De Vivo D.C., et al. The changing natural history of spinal muscular atrophy type 1. Neurology 69 (2007) 1931-1936
5. Bach J.R., Vega J., Majors J., and Friedman A. Spinal muscular atrophy type I quality of life. Am J Phys Med Rehabil 82 2 (2003) 137-142