Development and validation of a pediatric IBD knowledge inventory device: The IBD-KID

Journal of Pediatric Gastroenterology and Nutrition

Volumn 58, Issue 3, 2014, Pages 313-319

  Haaland, Derek ^a   Day, Andrew S ^b   Otley, Anthony ^a  

^a IWK HEALTH CENTRE   (Canada)

^b UNIVERSITY OF OTAGO   (New Zealand)

Author keywords

Children; Disease knowledge; IBD KID inflammatory bowel disease

Indexed keywords

ADOLESCENT; ARTICLE; CHILD; CROHN DISEASE; FEMALE; HUMAN; INFLAMMATORY BOWEL DISEASE; INFLAMMATORY BOWEL DISEASE KNOWLEDGE INVENTORY DEVICE; KNOWLEDGE; MAJOR CLINICAL STUDY; MALE; NAMED INVENTORIES, QUESTIONNAIRES AND RATING SCALES; NURSE; PARENT; PRIORITY JOURNAL; QUESTIONNAIRE; RESIDENT; SCHOOL CHILD; ULCERATIVE COLITIS; VALIDITY;

ADOLESCENT; ADULT; CHILD; COLITIS, ULCERATIVE; CROHN DISEASE; EDUCATIONAL STATUS; FEMALE; HEALTH KNOWLEDGE, ATTITUDES, PRACTICE; HUMANS; MALE; PARENTS; QUALITY OF LIFE; QUESTIONNAIRES; REGRESSION ANALYSIS; SEX FACTORS;

EID: 84896739285     PISSN: 02772116     EISSN: 15364801     Source Type: Journal    
DOI: 10.1097/MPG.0000000000000210     Document Type: Article

References (40)

1. Hughes DM, McLeod M, Garner B, et al. Controlled trial of a home and ambulatory program for asthmatic children. Pediatrics 1991;87: 54-61
2. Couper JJ, Taylor J, Fotheringham MJ, et al. Failure to maintain the benefits of home-based intervention in adolescents with poorly controlled type 1 diabetes. Diabetes Care 1999;22:1933-7
3. Lorig K, FP, Regan C, Ung E, et al. A comparison of lay-Taught and professional-Taught arthritis self-management courses. J Rheumatol 1986;13:763-7
4. Brown S. Effects of educational interventions in diabetes care: A metaanalysis of findings. Nurs Res 1988;37:223-30
5. Kappelman MD, Rifas-Shiman SL, Kleinman K, et al. The prevalence and geographic distribution of Crohn's disease and ulcerative colitis in the United States. Clin Gastroenterol Hepatol 2007;5:1424-9
6. Jones SC, Gallacher B, Lobo AJ, et al. A patient knowledge questionnaire in inflammatory bowel disease. J Clin Gastroenterol 1993;17:21-4
7. Eaden JA, Abrams K, Mayberry JF. The Crohn's and Colitis Knowledge Score: A test for measuring patient knowledge in inflammatory bowel disease. Am J Gastroenterol 1999;94:3560-6
8. Mansfield JC, Tanner AR, Bramble MG. Information for patients about inflammatory bowel disease. J R Coll Phys London 1997;31:184-7
9. Eaden JA, Ward B, Smith H, et al. Are we telling patients enough? A pilot study to assess patient information needs in a gastroenterology outpatient department. Eur J Gastroenterol Hepatol 1998;10:63-7
10. Hilsden RJ, Dunn C, Patten S, et al. Information needs and seeking behaviors of patients with inflammatory bowel disease. Gastroenterology 1998; Abstract G4078:A995
11. Scholmerich J, Sedlak P, Hoppe-Seyler P, et al. The information needs and fears of patients with inflammatory bowel disease. Hepatogastroenterology 1987;34:182-5
12. Moser G, Tillinger W, Sachs G, et al. Disease-related worries and concerns: A study on out-patients with inflammatory bowel disease. Eur J Gastroenterol Hepatol 1995;7:853-8
13. Otley AR. Validation of the IMPACT Questionnaire for Measuring Health-Related Quality of Life in Paediatric Inflammatory Bowel Disease: Sensibility, Validity and Reliability Testing in a Paediatric Cohort [Dissertation] Toronto: University of Toronto; 2004
14. Hubbard JPCW. Multiple Choice Examinations in Medicine. London: Henry Kimpton; 1961
15. Barton C, Abramson M, Aroni R, et al. What determines knowledge of asthma among young people and their families? J Asthma 2002;39: 701-9
16. Nolan T, Desmond K, Herlich R, et al. Knowledge of cystic fibrosis in patients and their parents. Pediatrics 1986;77:229-35
17. Emtner M, Hedin A, Andersson M, et al. Impact of patient characteristics, education and knowledge on emergency room visits in patients with asthma and COPD: A descriptive and correlative study. BMC Pulm Med 2009;9:43
18. Firestone DN, Jimenez-Briceno L, Reimann JO, et al. Predictors of diabetes-specific knowledge and treatment satisfaction among Costa Ricans. Diabetes Educ 2004;30:281-92
19. Streiner DL, Norman GR. Health Measurement Scales: A Practical Guide to Their Development and Use. 2nd ed. New York: Oxford University Press; 1995
20. Flesch RF. A new readability yardstick. J Appl Psychol 1948;32: 221-33
21. McHorney CA, Ware JE, Lu JFR, et al. The MOS 36-Item Short-Form Health Survey (SF-36): III. Tests of Data quality, scaling assumptions, and reliability across diverse patient groups. Med Care 1994;32:40-66
22. SPSS (for Windows) [computer program]. Version 10.0.5. Chicago, IL: SPSS Inc; 1999
23. Subasinghe D, Wijekoon NS, Nawarathne NM, et al. Disease-related knowledge in inflammatory bowel disease: Experience of a tertiary care centre in a developing country in South Asia. Singapore Med J 2014;51:484-9
24. Larsson K, Loof L, Ronnblom A, et al. Quality of life for patients with exacerbation in inflammatory bowel disease and how they cope with disease activity. J Psychosom Res 2008;64:139-48
25. Griffiths AM. Inflammatory bowel disease. Adolesc Med State Art Rev 1995;6:351-68
26. Lix LM, Graff LA, Walker JR, et al. Longitudinal study of quality of life and psychological functioning for active, fluctuating, and inactive disease patterns in inflammatory bowel disease. Inflamm Bowel Dis 2008;14:1575-84
27. Rankin D, Heller S, Lawton J. Understanding information and education gaps among people with type 1 diabetes: A qualitative investigation. Patient Educ Couns 2011;83:87-91
28. Hennell SL, Brownsell C, Dawson JK. Development, validation and use of a patient knowledge questionnaire (PKQ) for patients with early rheumatoid arthritis. Rheumatology 2004;43:467-71
29. Fishman LN, Houtman D, van Groningen J, et al. Medication knowledge: An initial step in self-management for youth with inflammatory bowel disease. J Pediatr Gastroenterol Nutr 2011;53:641-5
30. Knafl K, Zoeller L. Childhood chronic illness: A comparison of mothers'and fathers' experiences. J Fam Nurs 2000;6:287-302
31. Portney LG,Watkins MP. Statistical measures of reliability. In: Foundation of Clinical Research: Applications to Practice. Norwich, CT: Appleton and Lange; 1993
32. Hampson SE, Skinner TC, Hart J, et al. Effects of educational and psychosocial interventions for adolescents with diabetes mellitus: A systematic review. Health Technol Assess 2001;5:1-79
33. Loveman E, Cave C, Green C, et al. The clinical and cost-effectiveness of patient education models for diabetes: A systematic review and economic evaluation. Health Technol Assess 2003;7:1-190iii
34. Moradkhani A, Kerwin L, Dudley-Brown S, et al. Disease-specific knowledge, coping, and adherence in patients with inflammatory bowel disease. Dig Dis Sci 2011;56:2972-7
35. Waters BM, Jensen L, Fedorak RN. Effects of formal education for patients with inflammatory bowel disease: A randomized controlled trial. Can J Gastroenterol 2005;19:235-44
36. Hawthorne AB, Rubin G, Ghosh S. Review article: Medication nonadherence in ulcerative colitis: Strategies to improve adherence with mesalazine and other maintenance therapies. Aliment Pharmacol Ther 2008;27:1157-66
37. Červený P, Bortlík M, Kubéna A, et al. Nonadherence in inflammatory bowel disease: Results of factor analysis. Inflamm Bowel Dis 2007;13: 1244-9
38. Hait EJ, Barendse ReM, Arnold JH, et al. Transition of adolescents with inflammatory bowel disease from pediatric to adult care: A survey of adult gastroenterologists. J Pediatr Gastroenterol Nutr 2009;48:61-5
39. Fishman LN, Barendse ReM, Hait E, et al. Self-management of older adolescents with inflammatory bowel disease: A pilot study of behavior and knowledge as prelude to transition. Clin Pediatr 2010;49:1129-33
40. Benchimol EI, Walters TD, Kaufman M, et al. Assessment of knowledge in adolescents with inflammatory bowel disease using a novel transition tool. Inflamm Bowel Dis 2011;17:1131-7