Internet-based caregiver support for Chinese Canadians taking care of a family member with alzheimer disease and related dementia

Canadian Journal on Aging

Volumn 28, Issue 4, 2009, Pages 323-336

  Chiu, Teresa ^a   Marziali, Elsa ^b,c   Colantonio, Angela ^c,d   Carswell, Anne ^e   Gruneir, Marilyn ^a   Tang, Mary ^a   Eysenbach, Gunther ^c,f  

^a HONG KONG POLYTECHNIC UNIVERSITY   (Hong Kong)

^b ROTMAN RESEARCH INSTITUTE   (Canada)

^c UNIVERSITY OF TORONTO   (Canada)

^d TORONTO REHABILITATION INSTITUTE   (Canada)

^e DALHOUSIE UNIVERSITY   (Canada)

^f UNIVERSITY HEALTH NETWORK   (Canada)

Author keywords

Clinical informatics; Family caregivers; Multilingualism; Occupational therapy; Social work; Treatment outcome

Indexed keywords

ADULT; ALZHEIMER DISEASE; ARTICLE; CANADA; CAREGIVER; CHINA; CULTURAL ANTHROPOLOGY; DEMENTIA; EPIDEMIOLOGY; ETHNOLOGY; FEASIBILITY STUDY; FEMALE; HEALTH CARE QUALITY; HUMAN; INTERNET; INTERVENTION STUDY; INTERVIEW; LANGUAGE; MALE; MIDDLE AGED; PSYCHOLOGICAL ASPECT; QUESTIONNAIRE; SOCIAL SUPPORT;

ADULT; ALZHEIMER DISEASE; CANADA; CAREGIVERS; CHINA; CULTURE; DEMENTIA; FEASIBILITY STUDIES; FEMALE; HUMANS; INTERNET; INTERVENTION STUDIES; INTERVIEWS AS TOPIC; LANGUAGE ARTS; MALE; MIDDLE AGED; PROGRAM EVALUATION; QUESTIONNAIRES; SAMPLING STUDIES; SOCIAL SUPPORT;

EID: 76749088580     PISSN: 07149808     EISSN: 17101107     Source Type: Journal    
DOI: 10.1017/S0714980809990158     Document Type: Article

References (47)

1. Bass, D. M., McClendon, M. J., Brennan, P. F., & McCarthy, C. (1998). The buffering effect of a computer support network on caregiver strain. Journal of Aging and Health, 10, 20-43.
2. Belle, S. H., Burgio, L., Burns, R., Coon, D., Czaja, S., GallagherThompson, D., et al. (2006). Enhancing the quality of life of dementia caregivers from, different ethnic or racial groups. Annals of Internal Medicine, 145, 727-738.
3. Brennan, P. F., Moore, S., & Smyth, K. (1995). The effects of a special computer network on caregivers of persons with Alzheimer's disease. Nursing Research, 44, 166-172.
4. Brinck, T., Gergle, D., & Wood, S. D. (2002). Usability for the. Web: Designing Web sites that work. San Francisco, CA: Morgan Kaufmann.
5. Burns, A., & Rabins, P. (2000). Carer burden in dementia. Internationaljournal of Geriatric Psychiatry, 15(Suppl. 1).S9-S13.
6. Charmaz, K. (2005). Grounded theory in the 21st century. In N.K. Denzin & Y. S. Lincoln (Eds.), The SAGE handbook of qualitative research (3rd ed., pp. 507-536). Thousand Oaks, CA: Sage.
7. Chiu, T., & Henderson, J. (2005). Developing internet-based occupational therapy services. American Journal of Occupational Therapy, 59, 626-630.
8. Chiu, T., & Lottridge, D. (2005a). The language of information exchange for Chinese-English caregivers: a preliminary evaluation of preferences and barriers. Paper presented at the eHealth Conference: Realizing the Vision, Apr 30-May 3, 2005, Toronto, Ontario.
9. Chiu, T., & Lottridge, D. (2005b). Development and Iterative Refinement of an Internet-based Service for Chinese Family Caregivers of People with Alzheimer Disease. Paper presented at the AMIA Conference, Oct 22- 26, 2005, Washington, DC.
10. Chiu, T., Marziali, E., Tang, M., Colantonio, A., Carswell, A., Eysenbach, G., et al. (2008). How do family caregivers and occupational therapists interact via emails? Paper presented at the 2008 International Occupational Therapy Conference. Guangzhou, China
11. Chui, T., Tran, K., & Flanders, J. (2005). Chinese Canadians: Enriching the cultural mosaic. Canadian Social Trends, 76, 24-33.
12. Cohen, C. A., Colantonio, A., & Vernich, L. (2002). Positive aspects of caregiving: Rounding out the caregiver experience. International Journal of Geriatric Psychiatry, 17, 184-188.
13. Colantonio, A., Cohen, C., & Corlett, S. (1998). Support needs of elderly caregivers of persons with dementia. Canadian Journal of Aging, 17, 330-345.
14. Colantonio A., Cohen, C., & Pon, M. (2001). Assessing support needs of caregivers of persons with dementia: Who wants what? Community Mental Health Journal, 37, 231-234.
15. Connell, C. M., & Gibson, G. D. (1997). Racial, ethnic, and cultural differences in dementia caregiving: Review and analysis. The Gerontologist, 37, 355-364.
16. Czaja, S. J., & Rubert, M. P. (2005) Telecommunications technology as an aid to family caregivers of persons with dementia. Psychosomatic Medicine, 64, 469-476.
17. Eisdorfer, C., Czaja, S. J., Loewenstein, D. A., Rubert, M. P., Arguelles, S., Mitrani, V. B., et al. (2003). The effect of a family therapy and technology-based intervention on caregiver depression. The Gerontologist, 43, 521-531.
18. Finkel, S., Czaja, S. J., Schulz, R., Martinovich, Z., Harris, C., Pezzuto, D. (2007). E-care: A telecommunications technology intervention for family caregivers of dementia patients. American journal of geriatric psychiatry: Official Journal of the American Association for Geriatric Psychiatry, 15, 443-448.
19. Fuh, J. L., Liu, C. Y., Wang, S. J., Wang, H. C., & Liu, H. C. (1999). Revised memory and behavior problems checklist in Taiwanese patients with Alzheimer's disease. International Psychogeriatrics, 11, 181-189.
20. Galinsky, M. J., Schopler, J. H., & Abell, M. D. (1997). Connecting group members through telephone and computer groups. Health and Social Work, 22, 181-188.
21. Glueckauf, R. L., Ketterson, T. U., Loomis, J. S., & Dages, P. (2004). Online support and education for dementia caregivers: Overview, utilization, and initial program evaluation. Telemedicine Journal and e-Health: The Official Journal of the American Telemedicine Association, 10, 223-232.
22. Gräsel, E. (1995). Somatic symptoms and caregiving strain among family caregivers of older patients with progressive nursing needs. Archives of Gerontology and Geriatrics, 21, 253-266.
23. Gräsel, E., Chiu, T., & Oliver, R. (2003). Development and validation of the Burden Scale for Family Caregivers. Toronto, Ontario, Canada: COTA Comprehensive Rehabilitation and Mental Health Services.
24. Haley, W. E., Han, B., & Henderson, J. N. (1998). Aging and ethnicity: Issues for clinical practice. Journal of Clinical Psychology in Medical Settings, 5, 393-409.
25. Ho, B., Friedland, J., Rappolt, S., & Noh, S. (2003). Caregiving for relatives with Alzheimer's disease: Feelings of Chinese-Canadian women. Journal of Aging Studies, 17, 301-321.
26. Ikels, C. (2002). Constructing and deconstructing the self: Dementia in China. Journal of Cross Cultural Gerontology, 17, 233-251.
27. Janevic, M. R., & Connell, C. M. (2001). Racial, ethnic, and cultural differences in the dementia caregiving experience: Recent findings. The Gerontologist, 41, 334-347.
28. Lai, D. W. L., & Chau, S. B. Y (2007). Predictors of health service barriers for older Chinese immigrants in Canada. Health and Social Work, 32, 57-65.
29. Mahoney, D. F., Tarlow, B. J., & Jones, R. N. (2003). Effects of an automated telephone support system on caregiver burden and anxiety: Findings from the REACH for TLC intervention study. Gerontologist, 43(4), 556-567.
30. Marziali, E., & Donahue, P. (2006). Caring for others: Internet video-conferencing group intervention for family caregivers of older adults with neurodegenerative disease. The Gerontologist, 46,398-403.
31. Marziali, E., Donahue, P., & Crossin, G. (2005). Caring for others: Internet health care support intervention for family caregivers of persons with Alzheimer's, stroke, or Parkinson's disease. Families in Society, 86, 375-383.
32. National Institute on Aging. (2001). New checklist shows how to make Web sites senior friendly. Retrieved July 13, 2002, from http://www.nia.nih.gov/ news/pr/2001/0222.htm
33. Older Americans Resources and Services. (1978). Multidimensional functional assessment: The OARS methodology. A manual. Durham, NC: Duke University, Center for the Study of Aging and Human Development.
34. Pang, F. C., Chow, T. W, Cummings, J. L., Leung, V. P. Y., Chiu, H. F. K., Lam, L. C. W., et al. (2002). Effect of neuropsychiatrie symptoms of Alzheimer's disease on Chinese and American caregivers. International Journal of Geriatric Psychiatry, 17, 29-34.
35. Patterson, T. L., Semple, SJ., Shaw, W. S., Yu, E., He, Y., Zhang, M. Y, et al. (1998). The cultural context of caregiving: A comparison of Alzheimer's caregivers in Shanghai, China and San Diego, California. Psychological Medicine, 28, 1071-1084.
36. Patton, M. Q. (1990). Qualitative evaluation and research methods (2nd ed.). Newbury Park, CA: Sage Publications.
37. Powell, J., Chiu, T., & Eysenbach, E. (2008). Networked technologies supporting carers of people with dementia: Systematic review. Journal of Telemedicineand Telecare, 14, 154-156.
38. Radloff, L. S. (1977). The CES-D scale: A self-report depression scale for research in the general population. Applied Psychological Measurement, 1, 385-401.
39. Rankin, S. H., Galbraith, M. E., & Johnson, S. (1993). Reliability and validity data for a Chinese translation of the Center for Epidemiological Studies-Depression. Psychological Reports, 73(Pt. 2), 1291-1298.
40. Schulz, R., Burgio, L., Burns, R., Eisdorfer, C., GallagherThompson, D., Gitlin, L.N., et al. (2003). Resources for Enhancing Alzheimer's Caregiver Health (REACH): overview, site-specific outcomes, and future directions. Gerontologist, 43(4), 513-520.
41. Sörensen, S., Pinquart, M., & Duberstein, P. (2002). How effective are interventions with caregivers? An updated meta-analysis. The Gerontologist, 42, 356-372.
42. Strauss, A. L., & Corbin, J. M. (1998). Basics of qualitative research: Techniques and procedures for developing grounded theory (2nd ed.). Thousand Oaks, CA: Sage Publications.
43. Teri, L., Truax, P., Logsdon, R., Uomoto, J., Zarit, S., & Vitaliano, P. P. (1992). Assessment of behavioral problems in dementia: The revised memory and behavior problems checklist. Psychology and Aging, 7, 622-631.
44. White, M. H., Dorman, S. M., Mahoney, D. F., Tarlow, B., & Sandaire, J. (2000). Online support for caregivers. Analysis of an Internet Alzheimer mail group: A computermediated intervention for Alzheimer's caregivers. Computers in Nursing, 18, 168-176.
45. Yu, E.S.H., Kean, Y. M., Slymen, D. J., Liu, W. T, Zhang, M., & Katzman, R. (1998). Self-perceived health and 5-year mortality risks among the elderly in Shanghai, China. American Journal of Epidemiology, 147, 880-890.
46. Zhang, J., & Norvilitis, J. M. (2002). Measuring Chinese psychological well-being with western developed instruments. Journal of Personality Assessment, 79, 492-511.
47. Zimet, G. D., Dahlem, N. W, Zimet, S. G., & Farley, G. K. (1988). The multidimensional scale of perceived social support. Journal of Personality Assessment, 52, 30-41.