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Volumn 28, Issue 1, 2014, Pages 88-94

Retrospective and prospective data collection compared in the dutch end of life in dementia (DEOLD) study

Author keywords

cohort studies; dementia; follow back; nursing homes; palliative care; research design

Indexed keywords

AGED; AGED, 80 AND OVER; DEMENTIA; FEMALE; HUMANS; LENGTH OF STAY; MALE; NETHERLANDS; NURSING HOMES; PROSPECTIVE STUDIES; RESEARCH DESIGN; RETROSPECTIVE STUDIES; TERMINAL CARE;

EID: 84894447777     PISSN: 08930341     EISSN: None     Source Type: Journal    
DOI: 10.1097/WAD.0b013e318293b380     Document Type: Review
Times cited : (39)

References (31)
  • 1
    • 78650631271 scopus 로고    scopus 로고
    • Dying with dementia: What we know after more than a decade of research
    • van der Steen JT. Dying with dementia: what we know after more than a decade of research. J Alzheimers Dis. 2010;22:37-55.
    • (2010) J Alzheimers Dis , vol.22 , pp. 37-55
    • Van Der Steen, J.T.1
  • 2
    • 84855268749 scopus 로고    scopus 로고
    • Advanced dementia: State of the art and priorities for the next decade
    • Mitchell SL, Black BS, Ersek M, et al. Advanced dementia: state of the art and priorities for the next decade. Ann Intern Med. 2012;156:45-51.
    • (2012) Ann Intern Med , vol.156 , pp. 45-51
    • Mitchell, S.L.1    Black, B.S.2    Ersek, M.3
  • 3
    • 79953315744 scopus 로고    scopus 로고
    • The difficulty of predicting mortality in nursing home residents
    • van der Steen JT, Heymans MW, Steyerberg EW, et al. The difficulty of predicting mortality in nursing home residents. Eur Geriatr Med. 2011;2:15-17.
    • (2011) Eur Geriatr Med , vol.2 , pp. 15-17
    • Van Der Steen, J.T.1    Heymans, M.W.2    Steyerberg, E.W.3
  • 4
    • 84874255152 scopus 로고    scopus 로고
    • Selecting the best instruments to measure quality of endof- life care and quality of dying in long-term care
    • van Soest-Poortvliet MC, van der Steen JT, Zimmerman S, et al. Selecting the best instruments to measure quality of endof- life care and quality of dying in long-term care. J Am Med Dir Assoc. 2013;14:179-186.
    • (2013) J Am Med Dir Assoc , vol.14 , pp. 179-186
    • Van Soest-Poortvliet, M.C.1    Van Der Steen, J.T.2    Zimmerman, S.3
  • 5
    • 84863621561 scopus 로고    scopus 로고
    • Psychometric properties of instruments to measure the quality of end-of-life care and dying for long-term care residents with dementia
    • van Soest-Poortvliet MC, van der Steen JT, Zimmerman S, et al. Psychometric properties of instruments to measure the quality of end-of-life care and dying for long-term care residents with dementia. Qual Life Res. 2012;21:671-846.
    • (2012) Qual Life Res , vol.21 , pp. 671-846
    • Van Soest-Poortvliet, M.C.1    Van Der Steen, J.T.2    Zimmerman, S.3
  • 6
    • 65949100803 scopus 로고    scopus 로고
    • Ratings of symptoms and comfort in dementia patients at the end of life: Comparison of nurses and families
    • van der Steen JT, Gijsberts MJ, Knol DL, et al. Ratings of symptoms and comfort in dementia patients at the end of life: comparison of nurses and families. Palliat Med. 2009;23:317-324.
    • (2009) Palliat Med , vol.23 , pp. 317-324
    • Van Der Steen, J.T.1    Gijsberts, M.J.2    Knol, D.L.3
  • 7
    • 0024349285 scopus 로고
    • Design of the 1986 National Mortality Followback Survey: Considerations on collecting data on decedents
    • Seeman I, Poe GS,McLaughlin JK. Design of the 1986 National Mortality Followback Survey: considerations on collecting data on decedents. Public Health Rep. 1989;104:183-188.
    • (1989) Public Health Rep , vol.104 , pp. 183-188
    • Seeman, I.1    Poe, G.S.2    McLaughlin, J.K.3
  • 8
    • 32044436968 scopus 로고    scopus 로고
    • Measuring end-of-life care outcomes retrospectively
    • Teno JM. Measuring end-of-life care outcomes retrospectively. J Palliat Med. 2005;8(suppl 1):S42-S49.
    • (2005) J Palliat Med , vol.8 , Issue.SUPPL. 1
    • Teno, J.M.1
  • 9
    • 0034889320 scopus 로고    scopus 로고
    • After-death interviews with surrogates/bereaved family members: Some issues of validity
    • Addington-Hall J, McPherson C. After-death interviews with surrogates/bereaved family members: some issues of validity. J Pain Symptom Manage. 2001;22:784-790.
    • (2001) J Pain Symptom Manage , vol.22 , pp. 784-790
    • Addington-Hall, J.1    McPherson, C.2
  • 10
    • 33748780910 scopus 로고    scopus 로고
    • Methodological challenges in measuring quality care at the end of life in the long-term care environment
    • Thompson GN, Chochinov HM. Methodological challenges in measuring quality care at the end of life in the long-term care environment. J Pain Symptom Manage. 2006;32:378-391.
    • (2006) J Pain Symptom Manage , vol.32 , pp. 378-391
    • Thompson, G.N.1    Chochinov, H.M.2
  • 11
    • 33645777421 scopus 로고    scopus 로고
    • Defining the patient population: One of the problems for palliative care research
    • Borgsteede SD, Deliens L, Francke AL, et al. Defining the patient population: one of the problems for palliative care research. Palliat Med. 2006;20:63-68.
    • (2006) Palliat Med , vol.20 , pp. 63-68
    • Borgsteede, S.D.1    Deliens, L.2    Francke, A.L.3
  • 13
    • 10344260879 scopus 로고    scopus 로고
    • Resurrecting treatment histories of dead patients: A study design that should be laid to rest
    • Bach PB, Schrag D, Begg CB. Resurrecting treatment histories of dead patients: a study design that should be laid to rest. JAMA. 2004;292:2765-2770.
    • (2004) JAMA , vol.292 , pp. 2765-2770
    • Bach, P.B.1    Schrag, D.2    Begg, C.B.3
  • 14
    • 33747486328 scopus 로고    scopus 로고
    • Advanced dementia research in the nursing home: The CASCADE study
    • Mitchell SL, Kiely DK, Jones RN, et al. Advanced dementia research in the nursing home: the CASCADE study. Alzheimer Dis Assoc Disord. 2006;20:166-175.
    • (2006) Alzheimer Dis Assoc Disord , vol.20 , pp. 166-175
    • Mitchell, S.L.1    Kiely, D.K.2    Jones, R.N.3
  • 15
    • 33845461910 scopus 로고    scopus 로고
    • Health problems and correlates of pain in nursing home residents with advanced dementia
    • Black BS, Finucane T, Baker A, et al. Health problems and correlates of pain in nursing home residents with advanced dementia. Alzheimer Dis Assoc Disord. 2006;20:283-290.
    • (2006) Alzheimer Dis Assoc Disord , vol.20 , pp. 283-290
    • Black, B.S.1    Finucane, T.2    Baker, A.3
  • 16
    • 18344376789 scopus 로고    scopus 로고
    • Decision making at the end of life in dementia: How family caregivers perceive their interactions with health care providers in long-term care settings
    • Caron C, Griffith J, Arcand M. Decision making at the end of life in dementia: how family caregivers perceive their interactions with health care providers in long-term care settings. J Appl Gerontol. 2005;24:231-247.
    • (2005) J Appl Gerontol , vol.24 , pp. 231-247
    • Caron, C.1    Griffith, J.2    Arcand, M.3
  • 17
    • 77950383365 scopus 로고    scopus 로고
    • Place of death of older persons with dementia. A study in five European countries
    • Houttekier D, Cohen J, Bilsen J, et al. Place of death of older persons with dementia. A study in five European countries. J Am Geriatr Soc. 2010;58:751-756.
    • (2010) J Am Geriatr Soc , vol.58 , pp. 751-756
    • Houttekier, D.1    Cohen, J.2    Bilsen, J.3
  • 18
    • 73449114679 scopus 로고    scopus 로고
    • Medical services for older people in nursing homes - Comparing services in England and the Netherlands
    • Conroy S, van der Cammen T, Schols J, et al. Medical services for older people in nursing homes - comparing services in England and the Netherlands. J Nutr Health Aging. 2009; 13:559-563.
    • (2009) J Nutr Health Aging , vol.13 , pp. 559-563
    • Conroy, S.1    Van Der Cammen, T.2    Schols, J.3
  • 19
    • 58149349884 scopus 로고    scopus 로고
    • End-of-life with dementia in Dutch antroposofic and traditional nursing homes [in Dutch]
    • Gijsberts MJ, van der Steen JT, Muller MT, et al. End-of-life with dementia in Dutch antroposofic and traditional nursing homes [in Dutch]. Tijdschr Gerontol Geriatr. 2008;39:256-264.
    • (2008) Tijdschr Gerontol Geriatr , vol.39 , pp. 256-264
    • Gijsberts, M.J.1    Van Der Steen, J.T.2    Muller, M.T.3
  • 21
    • 0037259553 scopus 로고    scopus 로고
    • Development and psychometric evaluation of the Pain Assessment in Advanced Dementia (PAINAD) scale
    • Warden V, Hurley AC, Volicer L. Development and psychometric evaluation of the Pain Assessment in Advanced Dementia (PAINAD) scale. J Am Med Dir Assoc. 2003;4:9-15.
    • (2003) J Am Med Dir Assoc , vol.4 , pp. 9-15
    • Warden, V.1    Hurley, A.C.2    Volicer, L.3
  • 22
    • 70350458703 scopus 로고    scopus 로고
    • The clinical course of advanced dementia
    • Mitchell SL, Teno JM, Kiely DK, et al. The clinical course of advanced dementia. N Engl J Med. 2009;361:1529-1538.
    • (2009) N Engl J Med , vol.361 , pp. 1529-1538
    • Mitchell, S.L.1    Teno, J.M.2    Kiely, D.K.3
  • 23
    • 0000369731 scopus 로고    scopus 로고
    • The quality of life in latestage dementia (QUALID) scale
    • Weiner MF,Martin-CookK, SvetlikDA, et al. The quality of life in latestage dementia (QUALID) scale. J AmMedDir Assoc. 2000;1:114-116.
    • (2000) J AmMedDir Assoc. , vol.1 , pp. 114-116
    • Weiner, M.F.1    Martin-Cook, K.2    Svetlik, D.A.3
  • 24
    • 70350514333 scopus 로고    scopus 로고
    • Measuring quality of life in nursing home residents with severe dementia: Psychometric properties of the QUALID scale
    • [in Dutch]
    • Schalkwijk D, Verlare LR, Muller MT, et al. Measuring quality of life in nursing home residents with severe dementia: psychometric properties of the QUALID scale [in Dutch]. Tijdschr Gerontol Geriatr. 2009;40:184-192.
    • (2009) Tijdschr Gerontol Geriatr , vol.40 , pp. 184-192
    • Schalkwijk, D.1    Verlare, L.R.2    Muller, M.T.3
  • 25
    • 0019967975 scopus 로고
    • The Global Deterioration Scale for assessment of primary degenerative dementia
    • Reisberg B, Ferris SH, de Leon MJ, et al. The Global Deterioration Scale for assessment of primary degenerative dementia. Am J Psychiatry. 1982;139:1136-1139.
    • (1982) Am J Psychiatry , vol.139 , pp. 1136-1139
    • Reisberg, B.1    Ferris, S.H.2    De Leon, M.J.3
  • 27
    • 58449090014 scopus 로고    scopus 로고
    • Benefits and pitfalls of pooling datasets from comparable observational studies: Combining US and Dutch nursing home studies
    • van der Steen JT, Kruse RL, Szafara KL, et al. Benefits and pitfalls of pooling datasets from comparable observational studies: combining US and Dutch nursing home studies. Palliat Med. 2008;22:750-759.
    • (2008) Palliat Med , vol.22 , pp. 750-759
    • Van Der Steen, J.T.1    Kruse, R.L.2    Szafara, K.L.3
  • 29
    • 84857190640 scopus 로고    scopus 로고
    • Excess winter mortality in France: Influence of temperature, influenza like illness, and residential care status
    • Phu Pin S, Golmard JL, Cotto E, et al. Excess winter mortality in France: influence of temperature, influenza like illness, and residential care status. J Am Med Dir Assoc. 2012;13:e1-e7.
    • (2012) J Am Med Dir Assoc , vol.13
    • Phu Pin, S.1    Golmard, J.L.2    Cotto, E.3
  • 30
    • 84870616566 scopus 로고    scopus 로고
    • Selection bias in family reports on end of life with dementia in nursing homes
    • van der Steen JT, Deliens L, Ribbe MW, et al. Selection bias in family reports on end of life with dementia in nursing homes. J Palliat Med. 2012;15:1292-1296.
    • (2012) J Palliat Med , vol.15 , pp. 1292-1296
    • Van Der Steen, J.T.1    Deliens, L.2    Ribbe, M.W.3
  • 31
    • 80053369753 scopus 로고    scopus 로고
    • Sedative load of medications prescribed for older people with dementia in care homes
    • Accessed, April 11, 2013
    • Parsons C, Haydock J, Mathie E, et al. Sedative load of medications prescribed for older people with dementia in care homes. BMC Geriatr. 2011;11:56. Available at: http:// www.ncbi.nlm.nih.gov/pubmed/21958366. Accessed April 11, 2013.
    • (2011) BMC Geriatr , vol.11 , pp. 56
    • Parsons, C.1    Haydock, J.2    Mathie, E.3


* 이 정보는 Elsevier사의 SCOPUS DB에서 KISTI가 분석하여 추출한 것입니다.