CPS position statement for prenatal counselling before a premature birth: Simple rules for complicated decisions

Paediatrics and Child Health (Canada)

Volumn 19, Issue 1, 2014, Pages 22-24

  Janvier, Annie ^a   Barrington, Keith J ^b   Aziz, Khalid ^c   Bancalari, Eduardo ^d   Batton, Daniel ^e   Bellieni, Carlo ^f,g   Bensouda, Brahim ^h   Blanco, Carlos ⁱ   Cheung, Po Yin ^c   Cohn, Felicia ^j,k   Daboval, Thierry ^l   Davis, Peter ^m   Dempsey, Eugene ⁿ   Dupont Thibodeau, Amélie ^o   Ferretti, Emanuela ^p   Farlow, Barbara ^q   Fontana, Matteo ^r   Fortin Pellerin, Etienne ^s   Goldberg, Aviva ^t   Ruud Hansen, Thor Willy ^u   Haward, Marlyse ^v,w   Kovacs, Lajos ^x   Lapointe, Anie ^o   Lantos, John ^y   Morley, Colin ^z   Moussa, Ahmed ^o   Musante, Gabriel ^aa   Nadeau, Sophie ^ab   O'Donnell, Colm P F ^ac   Orfali, Kristina ^ad   Payot, Antoine ^o   Ryan, C Anthony ^ae   Sant'Anna, Guilherme ^h   Saugstad, Ola D ^af   Sayeed, Sadath ^ag   Stokes, Theophil A ^ah   Verhagen, Eduard ^ai   more..

^a CENTRE HOSPITALIER DE L UNIVERSITÉ DE MONTRÉAL   (Canada)

^b UNIVERSITÉ DE MONTRÉAL   (Canada)

^c UNIVERSITY OF ALBERTA   (Canada)

^d UNIVERSITY OF MIAMI HEALTH SYSTEM   (United States)

^e SOUTHERN ILLINOIS UNIVERSITY SCHOOL OF MEDICINE   (United States)

^f UNIVERSITY HOSPITAL OF SIENA   (Italy)

^g Bioethical Committee of the Italian Pediatric Society   (Italy)

^h MCGILL UNIVERSITY   (Canada)

ⁱ OUR LADY S CHILDREN S HOSPITAL   (Ireland)

^j UNIVERSITY OF CALIFORNIA   (United States)

^k American Society for Bioethics   (United States)

^l CHILDREN S HOSPITAL OF EASTERN ONTARIO   (Canada)

^m ROYAL WOMEN'S HOSPITAL   (Australia)

ⁿ Irish Centre for Fetal and Neonatal Translational Research   (Ireland)

^o UNIVERSITY OF MONTREAL   (Canada)

^p UNIVERSITY OF OTTAWA   (Canada)

^q Patients for Patients' Safety Canada   (Canada)

^r CHILDREN S HOSPITAL   (Switzerland)

^s CENTRE HOSPITALIER UNIVERSITAIRE DE SHERBROOKE   (Canada)

^t UNIVERSITY OF MANITOBA   (Canada)

^u UNIVERSITY OF OSLO   (Norway)

^v ALBERT EINSTEIN COLLEGE OF MEDICINE   (United States)

^w Children's Hospital at Montefiore ^*  (United States)

^x MCGILL UNIVERSITY   (Canada)

^y Children's Mercy Hospital   (United States)

^z Royal Womens Hospital Melbourne   (Australia)

^aa UNIVERSIDAD AUSTRAL   (Argentina)

^ab UNIVERSITÉ LAVAL   (Canada)

^ac UNIVERSITY COLLEGE DUBLIN   (Ireland)

^ad CHU de l'Université Laval ^*  (United States)

^ae UNIVERSITY COLLEGE CORK   (Ireland)

^af OSLO UNIVERSITY HOSPITAL   (Norway)

^ag BOSTON CHILDREN S HOSPITAL   (United States)

^ah UNIFORMED SERVICES UNIVERSITY OF THE HEALTH SCIENCES   (United States)

^ai UNIVERSITY MEDICAL CENTER GRONINGEN   (Netherlands)

more..

Author keywords

[No Author keywords available]

Indexed keywords

COUNSELING; GESTATIONAL AGE; HEALTH CARE POLICY; HUMAN; INTERPERSONAL COMMUNICATION; MEDICAL DECISION MAKING; MEDICAL INFORMATION; NOTE; PRACTICE GUIDELINE; PREMATURITY; PRENATAL COUNSELLING; PRENATAL PERIOD;

EID: 84892571875     PISSN: 12057088     EISSN: None     Source Type: Journal    
DOI: None     Document Type: Note

References (35)

1. Canadian Paediatric Society, Fetus and Newborn Committee; Society of Obstetricians and Gynaecologists of Canada, Maternal-Fetal Medicine Committee. Management of the woman with threatened birth of an infant of extremely low gestational age. CMAJ 1994;151:547-53.
2. Jefferies A, Kirpalani H; Canadian Paediatric Society, Fetus and Newborn Committee. Counselling and management for anticipated extremely preterm birth. Paediatr Child health 2012;17:443.
3. Doyle LW, Roberts G, Anderson PJ. Outcomes at age 2 years of infants <28 weeks' gestational age born in Victoria in 2005. J Pediatr 2010;156:49-53.e1.
4. Moore T, Hennessy EM, Myles J, et al. Neurological and developmental outcome in extremely preterm children born in England in 1995 and 2006: The EPICure studies. BMJ 2012;345:e7961.
5. Saigal S, Stoskopf B, Streiner D, et al. Transition of extremely low-birth-weight infants from adolescence to young adulthood: Comparison with normal birth-weight controls. JAMA 2006;295:667-75.
6. Saigal S, Stoskopf B, Pinelli J, et al. Self-perceived health-related quality of life of former extremely low birth weight infants at young adulthood. Pediatrics 2006;118:1140-8.
7. Saigal S, Feeny D, Rosenbaum P, Furlong W, Burrows E, Stoskopf B. Self-perceived health status and health-related quality of life of extremely low-birth-weight infants at adolescence. JAMA 1996;276:453-9.
8. Saigal S, Lambert M, Russ C, Hoult L. Self-esteem of adolescents who were born prematurely. Pediatrics 2002;109:429-33.
9. Saigal S. Quality of life of former premature infants during adolescence and beyond. Early Hum Dev 2013;89:209-13.
10. Saigal S, Rosenbaum PL, Feeny D, et al. Parental perspectives of the health status and health-related quality of life of teen-aged children who were extremely low birth weight and term controls. Pediatrics 2000;105:569-74.
11. Saigal S, Tyson J. Measurement of quality of life of survivors of neonatal intensive care: Critique and implications. Semin Perinatol 2008;32:59-66.
12. Mottram R, Holt J. "Is gestational age a factor in determining the health-related quality of life of children and young people born preterm?" A critical review of the literature. J Neonatal Nurs 2010;16:80-90.
13. Zwicker JG, Harris SR. Quality of life of formerly preterm and very low birth weight infants from preschool age to adulthood: A systematic review. Pediatrics 2008;121:e366-76.
14. Lam HS, Wong SPS, Liu FYB, Wong HL, Fok TF, Ng PC. Attitudes toward neonatal intensive care treatment of preterm infants with a high risk of developing long-term disabilities. Pediatrics 2009;123:1501-8.
15. Streiner DL, Saigal S, Burrows E, Stoskopf B, Rosenbaum P. Attitudes of parents and health care professionals toward active treatment of extremely premature infants. Pediatrics 2001;108:152-7.
16. Gaucher N, Payot A. From powerlessness to empowerment: Mothers expect more than information from the prenatal consultation for preterm labour. Paediatr Child Health 2011;16:638-42.
17. Payot A, Gendron S, Lefebvre F, Doucet H. Deciding to resuscitate extremely premature babies: How do parents and neonatologists engage in the decision? Soc Sci Med 2007;64:1487-500.
18. Saigal S, Pinelli J, Streiner DL, Boyle M, Stoskopf B. Impact of extreme prematurity on family functioning and maternal health 20 years later. Pediatrics 2010;126:e81-8.
19. Singer L, Davillier M, Bruening P, Hawkins S, Yamashita T. Social support, psychological distress, and parenting strains in mothers of very low birthweight infants. Fam Rel 1996;45:343-50.
20. Janvier A, Lantos J, Deschenes M, Couture E, Nadeau S, Barrington KJ. Caregivers attitudes for very premature infants: What if they knew? Acta Paediatr 2008;97:276-9.
21. Janvier A, Barrington KJ, Aziz K, Lantos J. Ethics ain't easy: Do we need simple rules for complicated ethical decisions? Acta Paediatr 2008;97:402-6.
22. Janvier A, Leblanc I, Barrington KJ. Nobody likes premies: The relative value of patients' lives. J Perinatol 2008;28:821-6.
23. Janvier A, Bauer KL, Lantos JD. Are newborns morally different from older children? Theor Med Bioeth 2007;28:413-25.
24. Janvier A, Leblanc I, Barrington KJ. The best-interest standard is not applied for neonatal resuscitation decisions. Pediatrics 2008;121:963-9.
25. Hansen TW, Janvier A, Aasland O, Forde R. Ethics, choices, and decisions in acute medicine: A national survey of Norwegian physicians' attitudes. Pediatr Crit Care Med 2013;14:e63.
26. Fontana MS, Farrell C, Gauvin F, Lacroix J, Janvier A. Modes of death in pediatrics: Differences in the ethical approach in neonatal and pediatric patients. J Pediatr 2013;162:1107-11.
27. Armstrong K, Ryan CA, Hawkes CP, Janvier A, Dempsey EM. Life and death decisions for incompetent patients: Determining best interests - the Irish perspective. Acta Paediatr 2011;100:519-23.
28. Laventhal N, Spelke MB, Andrews B, Larkin LK, Meadow W, Janvier A. Ethics of resuscitation at different stages of life: A survey of perinatal physicians. Pediatrics 2011;127:e1221-9.
29. Beaino G, Khoshnood B, Kaminski M, et al. Predictors of the risk of cognitive deficiency in very preterm infants: The EPIPAGE prospective cohort. Acta Paediatr 2011;100:370-8.
30. Johnson S, Fawke J, Hennessy E, et al. Neurodevelopmental disability through 11 years of age in children born before 26 weeks of gestation. Pediatrics 2009;124:e249-57.
31. Swamy GK, Ostbye T, Skjaerven R. Association of preterm birth with long-term survival, reproduction, and next-generation preterm birth. JAMA 2008;299:1429-36.
32. Guyatt GH, Oxman AD, Schünemann HJ, Tugwell P, Knottnerus A. GRADE guidelines: A new series of articles in the Journal of Clinical Epidemiology. J Clin Epidemiol 2011;64:380-2.
33. Andrews J, Guyatt G, Oxman AD, et al. GRADE guidelines: 14. Going from evidence to recommendations: The significance and presentation of recommendations. J Clin Epidemiol 2013;66:719-25.
34. Tyson JE, Parikh NA, Langer J, Green C, Higgins RD; the National Institute of Child Health and Human Development Neonatal Research Network. Intensive care for extreme prematurity - moving beyond gestational age. N Engl J Med 2008;358:1672-81.
35. Janvier A, Lorenz JM, Lantos JD. Antenatal counselling for parents facing an extremely preterm birth: Limitations of the medical evidence. Acta Paediatr 2012;101:800-4.